International Dravet Epilepsy Action League (original) (raw)

The International Dravet Epilepsy Action League (IDEA League) is an American non-profit organization that has created an international partnership of parents and professionals with the purpose of creating greater awareness and understanding of Dravet syndrome and the spectrum of related genetic forms of epilepsy. The IDEA League is a nonprofit organization that was founded by parents of children with Dravet syndrome in October 2005. The National Institutes of Health direct individuals seeking information on Dravet Syndrome to the IDEA League. The IDEA League represents Dravet Syndrome and is a member of the National Organization for Rare Disorders (NORD).