Marfan World (original) (raw)

WELCOME TO MARFAN WORLD

Marfan World, which was formally known as the International Federation of Marfan Syndrome Organizations was founded in 1992 at the Second International Symposium on Marfan Syndrome in San Francisco, California.

The mission of Marfan World is to:

• Share current, accurate information about the Marfan syndrome and related conditions worldwide
• Facilitate international communication among medical professionals who serve the Marfan and related conditions community
• Facilitate communication between international organizations representing patients and families affected with Marfan and related disorders.
• Support and foster global research initiatives
• Convene the International Symposia on Marfan Syndrome and Related Conditions