Cardio Facio Cutaneous syndrome International (original) (raw)
support. research. awareness. Education.
“Everly has the resilience to keep pushing through obstacles. She is the one who is always incredibly happy and reminding you to smile. She always has open arms for a big hug at the exact time that you need one, reminding you that everything is going to be okay!”
— Reanna, Everly’s Mom
Support our FAMILIES
Our 12th CFC International Family Medical Conference was hosted on July 24-27, 2024 in Orlando, Florida! Thank you to all who were able to attend.
We are incredibly grateful to our sponsors of the conference and events! Join us in thanking the following contributors:
presenting sponsor:
Scutero Family Foundation
Wilson Lewis
Mighty Myles Superhero Network
Kinley Klassic
Darin & Jenny Iacobelli Family
Legacy Lighting
Kohler Scholarship Fund
Miss Leah Borian
The Moore Family
The Boyce Family
Vidya Ramabadran & Family
Dave & Karen Peterson
Our Mission
To improve the quality of life for individuals with Cardiofaciocutaneous syndrome and their families through support, research, awareness and education.
OUR VISION
To advance understanding and treatment of CFC syndrome.
To provide support as needed by people affected by CFC syndrome through outreach, education and information sharing.
- To ensure that physicians have ready access to the latest information to enable accurate diagnosis and proper symptom treatment.
- To maintain and expand a registry of individuals with CFC syndrome.
- To foster and facilitate medical research on CFC syndrome including development of appropriate treatments.
- To maintain and grow a broad base of funds needed to expand our mission and goals.
- To provide sustainability of the organization through continuity and growth.
- To support a collaborative relationship among the conditions of the RAS pathway.