Help! I need your support (original) (raw)

Hi all,
I am not new to Crohn's, we are old friends. I was diagnosed at the age of 3, and have battled with it for 14 years, ranging from moderete to severe. I have been on all the meds, tried all the treatments, was a medication guinea pig for awhile (quite interesting) but alas nothing proved to kick it into remission. I have been there, with those horrible stomach aches, the "blah" icky feeling, the nausea, the diet restrictions, the terribly embarasssing if I don't find a bathroom in a minute i'll have an accident diherria, the puffy steroid cheeks, the blood tests, the random consequences of weakened immune systems, and most of all, trying to explain all the drama and suffering to those who don't understand. it's almost impossible for them to wrap their heads around our everyday life. Recently I had to go the surgery route, after trying to avoid it for 14 years. I have a temporary ileostomy and hope to be reconnected soon. I have had a few complications so we'll see. keep optomistic, heads up, hopes high :]

The reason I come to you is to ask for your support. On Nov. 12, 2006 I am walking in the Las Vegas annual Guts and Glory walk hosted by CCFA. I need all the support I can get. If anyone lives in the area please contact me and I would be more than happy to have you as part of my team, or give you info on how to sign up individually. I would greatly appreciate any support or donations I can get for this walk, to my team (Dana's Crohnies for a Cure). The most important thing about IBD is to not only find treatments that work, but a cure. This is the way we can help. We need to raise awareness, and do all we can.

To donate, please go to:
https://www.kintera.org/faf/search/searchTeamPart.asp?ievent=176831&lis=1&kntae176831=81E2C01BC9CA45C4AF0D48F58DCB12B7&supId=0&team=1655579

or go to ccfa.org
click donate to walker
enter Dana Marshall-Bernstein

or you can contact me.

Thank you all so much, I appreciate any support I can get.
Keep happy and keep healthy!
Dana

P.S. If anyone ever has any crohn's related questions feel free to direct them my way, i usually have some experience based answers :)

P.P.S. I am starting as new nutritional drink next week called re-liv that i have heard only good things about. heard a crohn's story that it put one kids disease into total remission. will post more on it as i learn more. keeping fingers crossed :)

Current Mood: hopeful