Jenny Vafeiadou | Birkbeck College, University of London (original) (raw)
PhD Candidate in Health Informatics. Supervised by Prof. George Roussos (Birkbeck) and Dr Mina Vasalou (UCL). Project: Participatory self-quantification for people with Parkinson's.
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University of the Basque Country, Euskal Herriko Unibertsitatea
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Conference Presentations by Jenny Vafeiadou
Papers by Jenny Vafeiadou
Research Involvement and Engagement, Apr 13, 2023
Proceedings of the ACM on Human-Computer Interaction
People living with Parkinson's disease engage in self-tracking as part of their health self-m... more People living with Parkinson's disease engage in self-tracking as part of their health self-management. Whilst health technologies designed for this group have primarily focused on improving the clinical assessments of the disease, less attention has been given to how people with Parkinson's use technology to track and manage their disease in their everyday experience. We report on a qualitative study in which we systematically analysed posts from an online health community (OHC) comprising people with Parkinson's (PwP). Our findings show that PwP track a diversity of information and use a wide range of digital and non-digital tools, informed by temporal and structured practices. Using an existing framework of sensemaking for chronic disease self-management, we also identify new ways in which PwP engage in sensemaking, alongside a set of new challenges that are particular to the character of this chronic disease. We relate our findings to technologies for self-tracking offering design implications.
University museums can perform as fundamental social agents while contributing to research and ed... more University museums can perform as fundamental social agents while contributing to research and education. As such, it is important to explore and build on three key elements: effective student engagement, digital projects, and financial sustainability. This paper highlights the Museum's overarching goal to critically assess the integration of technology in order to enhance the visitor's experience without overshadowing the exhibits. Additionally, it presents the Museum's strategic plan which includes volunteering, sponsorships and partnerships. Finally, we elaborate on how the problem of restricted funds is addressed, what scientific expertise the Museum offers and how we invest in audience development.
Research Involvement and Engagement, Apr 13, 2023
Proceedings of the ACM on Human-Computer Interaction
People living with Parkinson's disease engage in self-tracking as part of their health self-m... more People living with Parkinson's disease engage in self-tracking as part of their health self-management. Whilst health technologies designed for this group have primarily focused on improving the clinical assessments of the disease, less attention has been given to how people with Parkinson's use technology to track and manage their disease in their everyday experience. We report on a qualitative study in which we systematically analysed posts from an online health community (OHC) comprising people with Parkinson's (PwP). Our findings show that PwP track a diversity of information and use a wide range of digital and non-digital tools, informed by temporal and structured practices. Using an existing framework of sensemaking for chronic disease self-management, we also identify new ways in which PwP engage in sensemaking, alongside a set of new challenges that are particular to the character of this chronic disease. We relate our findings to technologies for self-tracking offering design implications.
University museums can perform as fundamental social agents while contributing to research and ed... more University museums can perform as fundamental social agents while contributing to research and education. As such, it is important to explore and build on three key elements: effective student engagement, digital projects, and financial sustainability. This paper highlights the Museum's overarching goal to critically assess the integration of technology in order to enhance the visitor's experience without overshadowing the exhibits. Additionally, it presents the Museum's strategic plan which includes volunteering, sponsorships and partnerships. Finally, we elaborate on how the problem of restricted funds is addressed, what scientific expertise the Museum offers and how we invest in audience development.