Low bone turnover and low bone density in a cohort of adults with Down syndrome (original) (raw)
Abstract
Summary
Increased incidence of osteoporosis in Down syndrome has been reported, but etiology is not established. We report low bone turnover markers and bone mineral density (BMD) in a cohort of people with Down syndrome without consistent clinical risk factors. Our results should guide future studies and treatments for this common problem.
Introduction
To better understand the etiology for osteoporosis in Down syndrome (DS), we measured bone density by dual-energy X-ray absorptiometry (DXA) and circulating biochemical markers of bone formation and resorption in a cohort of 30 community-dwelling DS adults.
Methods
Seventeen males and 13 females followed in the University of Arkansas Down Syndrome Clinic were evaluated by DXA to estimate BMD and underwent phlebotomy to measure serum procollagen type-1 intact N-terminal propeptide (P1NP) to evaluate bone formation, and serum C-terminal peptide of type-I collagen (CTx) to evaluate bone resorption.
Results
Seven of 13 DS females and 12 of 17 DS males had low bone mass at one of measured sites (z ≤ −2.0). When data were grouped by age, males had apparent osteopenia earlier than females. The mean P1NP in the normal group was 19.2 ± 5.2 ng/ml vs. 2.2 ± 0.9 ng/ml in the DS group (P = 0.002). Serum CTx levels in the normal group were 0.4 ± 0.1 ng/ml vs. 0.3 ± 0.1 ng/ml (P = 0.369).
Conclusions
Low BMD in adults with DS is correlated with a significant decrease in bone formation markers, compared to controls without DS, and is independent of gender. These data suggest that diminished osteoblastic bone formation and inadequate accrual of bone mass, with no significant differences in bone resorption, are responsible for the low bone mass in DS. These observations question the use of antiresorptive therapy in this population and focus attention on increasing bone mass by other interventions.
Access this article
Subscribe and save
- Starting from 10 chapters or articles per month
- Access and download chapters and articles from more than 300k books and 2,500 journals
- Cancel anytime View plans
Buy Now
Price excludes VAT (USA)
Tax calculation will be finalised during checkout.
Instant access to the full article PDF.
Fig. 1

The alternative text for this image may have been generated using AI.
Similar content being viewed by others
References
- Gonzalez-Aguero A, Vicente-Rodriguez G, Moreno LA, Casajus JA (2011) Bone mass in male and female children and adolescents with Down syndrome. Osteoporos Int 22:2151–57
Article PubMed CAS Google Scholar - Bittles AH, Glasson EJ (2004) Clinical, social, and ethical implications of changing life expectancy in Down syndrome. Dev Med Child Neurol 46:282–86
Article PubMed CAS Google Scholar - Hawli Y, Nasrallah M, El-Hajj FG (2009) Endocrine and musculoskeletal abnormalities in patients with Down syndrome. Nat Rev Endocrinol 5:327–34
Article PubMed CAS Google Scholar - Glasson EJ, Sullivan SG, Hussain R, Petterson BA, Montgomery PD, Bittles AH (2002) The changing survival profile of people with Down’s syndrome: implications for genetic counselling. Clin Genet 62:390–393
Article PubMed CAS Google Scholar - van Allen MI, Fung J, Jurenka SB (1999) Health care concerns and guidelines for adults with Down syndrome. Am J Med Genet 89:100–110
Article PubMed Google Scholar - Kao CH, Chen CC, Wang SJ, Yeh SH (1992) Bone mineral density in children with Down’s syndrome detected by dual photon absorptiometry. Nucl Med Commun 13:773–75
PubMed CAS Google Scholar - Angelopoulou N, Matziari C, Tsimaras V, Sakadamis A, Souftas V, Mandroukas K (2000) Bone mineral density and muscle strength in young men with mental retardation (with and without Down syndrome). Calcif Tissue Int 66:176–80
Article PubMed CAS Google Scholar - Angelopoulou N, Souftas V, Sakadamis A, Mandroukas K (1999) Bone mineral density in adults with Down’s syndrome. Eur Radiol 9:648–51
Article PubMed CAS Google Scholar - Sepulveda D, Allison DB, Gomez JE, Kreibich K, Brown RA, Pierson RN Jr, Heymsfield SB (1995) Low spinal and pelvic bone mineral density among individuals with Down syndrome. Am J Ment Retard 100:109–14
PubMed CAS Google Scholar - Guijarro M, Valero C, Paule B, Gonzalez-Macias J, Riancho JA (2008) Bone mass in young adults with Down syndrome. J Intellect Disabil Res 52:182–89
Article PubMed CAS Google Scholar - Baptista F, Varela A, Sardinha LB (2005) Bone mineral mass in males and females with and without Down syndrome. Osteoporos Int 16:380–388
Article PubMed Google Scholar - Suva LJ, Gaddy D, Perrien DS, Thomas RL, Findlay DM (2005) Regulation of bone mass by mechanical loading: microarchitecture and genetics. Curr Osteoporos Rep 3:46–51
Article PubMed Google Scholar - Blazek JD, Gaddy A, Meyer R, Roper RJ, Li J (2011) Disruption of bone development and homeostasis by trisomy in Ts65Dn Down syndrome mice. Bone 48:275–80
Article PubMed CAS Google Scholar - Bull MJ (2011) Health supervision for children with Down syndrome. Pediatrics 128:393–406
Article PubMed Google Scholar - Sakadamis A, Angelopoulou N, Matziari C, Papameletiou V, Souftas V (2002) Bone mass, gonadal function and biochemical assessment in young men with trisomy 21. Eur J Obstet Gynecol Reprod Biol 100:208–12
Article PubMed CAS Google Scholar - Hsiang YH, Berkovitz GD, Bland GL, Migeon CJ, Warren AC (1987) Gonadal function in patients with Down syndrome. Am J Med Genet 27:449–58
Article PubMed CAS Google Scholar - Grimwood JS, Kumar A, Bickerstaff DR, Suvarna SK (2000) Histological assessment of vertebral bone in a Down’s syndrome adult with osteoporosis. Histopathology 36:279–80
Article PubMed CAS Google Scholar - Monroe DG, McGee-Lawrence ME, Oursler MJ, Westendorf JJ (2012) Update on Wnt signaling in bone cell biology and bone disease. Gene 492:1–18
Article PubMed CAS Google Scholar - Moester MJ, Papapoulos SE, Lowik CW, van Bezooijen RL (2010) Sclerostin: current knowledge and future perspectives. Calcif Tissue Int 87:99–107
Article PubMed CAS Google Scholar - Mendonca GV, Pereira FD, Fernhall B (2011) Effects of combined aerobic and resistance exercise training in adults with and without Down syndrome. Arch Phys Med Rehabil 92:37–45
Article PubMed Google Scholar - Gupta S, Rao BK, Kumaran SD (2011) Effect of strength and balance training in children with Down’s syndrome: a randomized controlled trial. Clin Rehabil 25:425–32
Article PubMed Google Scholar - Cowley PM, Ploutz-Snyder LL, Baynard T, Heffernan KS, Jae SY, Hsu S, Lee M, Pitetti KH, Reiman MP, Fernhall B (2011) The effect of progressive resistance training on leg strength, aerobic capacity and functional tasks of daily living in persons with Down syndrome. Disabil Rehabil 33:2229–36
Article PubMed Google Scholar - Bachrach LK (2007) Consensus and controversy regarding osteoporosis in the pediatric population. Endocr Pract 13:513–20
PubMed Google Scholar - Hui SL, Slemenda CW, Johnston CC Jr (1990) The contribution of bone loss to postmenopausal osteoporosis. Osteoporos Int 1:30–34
Article PubMed CAS Google Scholar - Fergeson MA, Mulvihill JJ, Schaefer GB, Dehaai KA, Piatt J, Combs K, Bright BC, Neas BR (2009) Low adherence to national guidelines for thyroid screening in Down syndrome. Genet Med 11:548–51
Article PubMed Google Scholar - Ugazio AG, Maccario R, Notarangelo LD, Burgio GR (1990) Immunology of Down syndrome: a review. Am J Med Genet Suppl 7:204–12
PubMed CAS Google Scholar - Karlsson B, Gustafsson J, Hedov G, Ivarsson SA, Anneren G (1998) Thyroid dysfunction in Down’s syndrome: relation to age and thyroid autoimmunity. Arch Dis Child 79:242–45
Article PubMed CAS Google Scholar - Seeman E (2002) Pathogenesis of bone fragility in women and men. Lancet 359:1841–50
Article PubMed Google Scholar
Acknowledgments
This work was supported by the Rockefeller Chair in Clinical Genetics (KDM), the UAMS Translational Research Institute (TRI) clinical award (KDM), UAMS TRI UL1RR029884, and the Carl L. Nelson Endowed Chair in Orthopaedic Creativity (LJS).
Conflicts of interest
None.
Author information
Authors and Affiliations
- Department of Family Medicine, University of Arkansas for Medical Sciences, 4301 W. Markham St., Little Rock, AR, 72205, USA
K. D. McKelvey - Department of Medical Genetics, University of Arkansas for Medical Sciences, Slot 514, 4301 W. Markham St., Little Rock, AR, 72205, USA
K. D. McKelvey & J. A. Kelsay - Department of Physiology and Biophysics, University of Arkansas for Medical Sciences, 4301 W. Markham St., Little Rock, AR, 72205, USA
T. W. Fowler, N. S. Akel, D. Gaddy & L. J. Suva - Department of Orthopaedic Surgery, Center for Orthopaedic Research, University of Arkansas for Medical Sciences, 4301 W. Markham St., Little Rock, AR, 72205, USA
T. W. Fowler, D. Gaddy & L. J. Suva - Department of Pharmacology and Toxicology, University of Arkansas for Medical Sciences, 4301 W. Markham St., Little Rock, AR, 72205, USA
G. R. Wenger
Authors
- K. D. McKelvey
- T. W. Fowler
- N. S. Akel
- J. A. Kelsay
- D. Gaddy
- G. R. Wenger
- L. J. Suva
Corresponding author
Correspondence toK. D. McKelvey.
Rights and permissions
About this article
Cite this article
McKelvey, K.D., Fowler, T.W., Akel, N.S. et al. Low bone turnover and low bone density in a cohort of adults with Down syndrome.Osteoporos Int 24, 1333–1338 (2013). https://doi.org/10.1007/s00198-012-2109-4
- Received: 10 June 2012
- Accepted: 11 July 2012
- Published: 18 August 2012
- Issue date: April 2013
- DOI: https://doi.org/10.1007/s00198-012-2109-4