A Proposed Disaster Literacy Model | Disaster Medicine and Public Health Preparedness | Cambridge Core (original) (raw)

Abstract

Although numerous government, nonprofit, and relief organizations have endeavored to educate and prepare the American public for disasters, adults with physical, mental, and educational disabilities remain among the most vulnerable and least prepared subgroups of the population. The lack of alignment between the literacy demands of existing disaster preparedness and recovery materials and the literacy skills of many vulnerable subgroups limits their ability to understand and effectively use potentially life-saving information. We review the literature on literacy and vulnerable populations, propose a new model for disaster literacy, and describe opportunities for incorporating best practices into planning and preparedness activities. Disaster literacy is defined here as an individual's ability to read, understand, and use information to make informed decisions and follow instructions in the context of mitigating, preparing, responding, and recovering from a disaster. Recommendations are made for developing and evaluating disaster communication materials for vulnerable populations. To meet and improve the disaster literacy of vulnerable populations we suggest pilot-testing and evaluation be routinely used to inform selection of media type, message, and point of contact. (Disaster Med Public Health Preparedness. 2014;0:1–9)

References

2.Light, PC. Preparing for the Unthinkable: A Report on the State of Citizen Preparedness. New York, New York: New York University Center for Catastrophe Preparedness and Response; 2005.Google Scholar

3.Veil, SR, Littlefield, RS, Rowan, KE. Dissemination as success: local emergency management communication practices. Public Relat Rev. 2009; 35:449-451.CrossRefGoogle Scholar

4.The Council for Excellence in Government. Are we Ready? Introducing the Public Readiness Index: A Survey-based Tool to Measure the Preparedness of Individuals, Families and Communities. Washington, DC: Council for Excellence in Government; 2006.Google Scholar

5.Rothman, M, Brown, LM. The vulnerable geriatric casualty: medical needs of frail older adults during disasters. Generations. 2007; 31:16-20.Google Scholar

6.Altevogt, B, Pope, A, Hill, M, Shine, KI. eds. Research Priorities in Emergency Preparedness and Response for Public Health Wystems: A Letter Report. Washington DC: Institute of Medicine; 2008.Google Scholar

7.Brown, LM, Shiang, J, Bongar, B. Crisis intervention: theory and practice. In: Weidger TA, Stricker G, eds. Comprehensive Handbook of Psychology. New York, New York: John Wiley & Sons, Inc; 2003: 431-451.Google Scholar

8.Brown, LM, Cohen, D, Kohlmaier, JR. Older adults and terrorism. In: Bongar B, Brown LM, Beutler L, Breckenridge J, Zimbardo P, eds. Psychology of Terrorism. New York, New York: Oxford University Press; 2007: 288-310.Google Scholar

9.Institute of Medicine. Speaking of Health: Assessing Health Communication Strategies for Diverse Populations. Washington, DC: National Academies Press; 2002.Google Scholar

10.Brown, LM, Rothman, M, Norris, F. Issues in mental health care for older adults after disasters. Generations. 2007; 31:21-26.Google Scholar

11.O'Brien, N. Emergency Preparedness for Older People. New York, New York: International Longevity Center-USA; 2003.Google Scholar

12.Inter-Agency Standing Committee. Humanitarian Action and Older Persons: An Essential Brief for Humanitarian Actors. New York, New York: Inter-Agency Standing Committee; 2008.Google Scholar

13.Burton, A, Breen, C. Older refugees in humanitarian emergencies. Lancet. 2005; 360:S47-S48.Google Scholar

14.Duggan, S, Deeny, P, Spelman, R, Vitale, CT. Perceptions of older people on disaster response and preparedness. Int J Older People Nurs. 2010; 5:71-76.Google Scholar

15.HelpAge International. Older People in Disasters and Humanitarian Crises: Guidelines for Best Practice. London, United Kingdom: HelpAge International; 2005.Google Scholar

16.Wells, J. Protecting and Assisting Older People in Emergencies. Network Paper No. 53. London, United Kingdom: Humanitarian Practice Network: Overseas Development Institute; 2005.Google Scholar

17.Rudd, RE, Anderson, JE, Oppenheimer, S, Nath, C. Health literacy: an update of public health and medical literature. In: Comings JP, Garner B, Smith C, eds. Review of Adult Learning and Literacy. Mahwah, New Jersey: Lawrence Erlbaum Associates; 2007: 175-204.Google Scholar

19.Kutner, M, Jin, Y, Paulsen, C. The Health Literacy of America's Adults: Results From the 2003 National Assessment of Adult Literacy. Washington, DC: US Department of Education; 2006.Google Scholar

20.Baker, DW, Parker, RM, Williams, MV, et al.The health care experience of patients with low literacy. Arch Fam Med. 1996; 5:329-334.CrossRefGoogle ScholarPubMed

21.Bawden, D. Origins and concepts of digital literacy. In: Lankshear C, Knobel M, eds. Digital Literacies: Concepts, Policies and Practices. New York: Peter Lang; 2008: 17-32.Google Scholar

22.Cutter-Mackenzie, A, Smith, R. Ecological literacy: the missing paradigm in environmental education. Environ Edu Res. 2003; 9:497-524.Google Scholar

23.Hogarth, JM. Financial literacy and family and consumer sciences. J Fam Consum Sci. 2002; 94:14-28.Google Scholar

24.Lusardi, A, Mitchell, OS. Financial literacy and retirement preparedness: evidence and implications for financial education. Bus Econ. 2007; 42:35-44.Google Scholar

25.Madi, N, Kamaluddin, A, Janggu, T, Ibrahim, MBA, Samah, ABA, Jussof, K. Tax literacy among employees. Intl J Econ Finance. 2010; 2:218-223.Google Scholar

26.White, JB. The invisible discourse of the law: reflections on legal literacy and general education. Michigan Q Rev. 1982: 420-438.Google Scholar

27.Pegrum, M. I link, therefore I am: network literacy as a core digital literacy. E-Learn Digital Media. 2010; 7:346-354.Google Scholar

28.Prakash, MS. Ecological literacy for moral virtue: Orr on [moral] education for postmodern sustainability. J Moral Educ. 1995; 24:3-18.Google Scholar

29.Savolainen, R. Network competence and information seeking on the internet: from definitions towards a social cognitive model. J Doc. 2002; 58:211-226.CrossRefGoogle Scholar

30.Shapiro, JJ, Hughes, SK. Information literacy as a liberal art? Educom Rev. 1996; 31:31-35.Google Scholar

31.US Government Accountability Office. Disaster Preparedness: Limitations in Federal Evacuation Assistance for Health Facilities Should Be Addressed. Report to Congressional Committees (GAO-06-826). Washington, DC: US Government Accountability Office; 2006.Google Scholar

32.Rowel, R, Sheikhattari, P, Barber, TM, Evans-Holland, M. Introduction of a guide to enhance risk communication among low-income and minority populations: a grassroots community engagement approach. Health Promot Pract. 2012; 13:124-132.Google Scholar

33.Savoia, E, Lin, L, Viswanath, K. Communications in public health emergency preparedness: a systematic review of the literature. Biosecur Bioterror. 2013; 11:170-184.Google Scholar

35.Simonds, SK. Health education as social policy. Health Educ Monogr. 1974; 2:1-25.Google Scholar

36.Berkman, ND, Sheridan, SL, Donahue, KE, Halpern, DJ, Crotty, K. Low health literacy and health outcomes: an updated systematic review. Ann Intern Med. 2011; 155:97-107.Google Scholar

37.Von Wagner, C, Steptoe, A, Wolf, M, Wordle, J. Health literacy and health actions: a review and a framework from health psychology. Health Educ Behav. 2009; 36:860-877.Google Scholar

38.Saha, S. Improving literacy as a means to reducing health disparities. J Gen Intern Med. 2006; 21:893-895.Google Scholar

39.Institute of Medicine. Health Literacy: A Prescription to End Confusion. Washington, DC: National Academies Press; 2004.Google Scholar

40.Baker, DW, Gazmararian, JA, Williams, MV, et al.Functional health literacy and the risk of hospital admission among Medicare managed care enrollees. Am J Public Health. 2002; 92:1278-1283.Google Scholar

41.Koh, HK, Berwick, DM, Clancy, CM, et al.New federal policy initiatives to boost health literacy can help the nation move beyond the cycle of costly ‘crisis care’. Health Affairs (Millwood). 2012; 31:434-443.Google Scholar

42.Abel, T. Measuring health literacy: moving towards a health-promotion perspective. Int J Public Health. 2008; 53:169-170.Google Scholar

43.Sentell, TL, Halpin, HA. Importance of adult literacy in understanding health disparities. J Gen Intern Med. 2006; 21:862-866.CrossRefGoogle ScholarPubMed

44.American Medical Association. Health literacy: report of the Council on Scientific Affairs. JAMA. 1999; 281:552-557.Google Scholar

45.Brown, LM, Haley, C, Bryant, C. The role of social marketing in developing disaster behavioral health programs. In: Framingham JL, Teasley M, eds. Behavioral Health Response to Disasters. Boca Raton, FL: Taylor & Francis Group; 2012.Google Scholar

46.Kayman, H, Ablorh-Odjidja, A. Revisiting public health preparedness: incorporating social justice principles into pandemic preparedness planning for influenza. J Public Health Manag Pract. 2006; 12:373-380.Google Scholar

47.Brodie, M, Weltzien, E, Altman, D, Blendon, RJ, Benson, LM. Experiences of Hurricane Katrina evacuees in Houston shelters: implications for future planning. Am J Public Health. 2006; 96:1402-1408.Google Scholar

49.Florida Department of Elder Affairs. Disaster Preparedness Guide for Elders. Tallahassee, Florida: State of Florida; 2013.Google Scholar

50.Tanner, A, Friedman, DB, Barr, D, Koskan, A. Preparing for disaster: an examination of public health emergency information on local TV web sites. Electronic News. 2008; 2:218-234.Google Scholar

51.Friedman, DB, Tanwar, M, Richter, JVE. Evaluation of online disaster and emergency preparedness resources. Prehosp Disaster Med. 2008; 23:438-446.Google Scholar

52.Owens, JK, Warner Stidham, A, Owens, EL. Disaster evacuation for persons with special needs: a content analysis of information on YouTube. App Nurs Res. 2013; 26:273-275.Google Scholar

53.Keselman, A, Slaughter, L, Patel, VL. Toward a framework for understanding lay public’s comprehension of disaster and bioterrorism information. J Biomed Inform. 2005; 38:331-344.Google Scholar

54.Friedman, DB, Tanwar, M, Yoho, DW, Richter, JVE. Disaster preparedness information needs of individuals attending an adult literacy center: an exploratory study. Commun Literacy J. 2010; 4:55-73.Google Scholar

56.Nutbeam, D. The evolving concept of health literacy. Soc Sci Med. 2008; 67:2072-2078.Google Scholar

57.Paasche-Orlow, MK, Wolf, MS. The causal pathways linking health literacy to health outcomes. Am J Health Behav. 2007; 31:S19-S26.Google Scholar

58.Prochaska, JO, DiClemente, CC. Stages and processes of self-change in smoking: towards an integrative model of change. J Consult Clin Psych. 1983; 51:390-395.CrossRefGoogle Scholar

59.Baker, DW, Gazmararian, JA, Sudano, J, Patterson, M. The association between age and health literacy among elderly persons. J Gerontol B Psychol Sci Soc Sci. 2000; 55:S368-S374.Google Scholar

60.Chou, WS, Hunt, YM, Beckjord, EB, Moser, RP, Hesse, BW. Social media use in the United States: implications for health communication. J Med Internet Res. 2009; 11:e48.Google Scholar

61.Centers for Disease Control and Prevention. Improving Health Literacy for Older Adults: Expert Panel Report 2009. Atlanta, Georgia: US: Department of Health and Human Services; 2009.Google Scholar

62.Austin, PE, Matlock, R II, Dunn, KA, Kesler, C, Brown, CK. Discharge instructions: do illustrations help our patients understand them? Ann Emerg Med. 1995; 25:317-320.Google Scholar

63.Michielutte, R, Dignan, MB, Schroeder, EM. The use of illustrations and narrative text style to improve readability of a health education brochure. J Cancer Educ. 1992; 7:251-260.Google Scholar

64.Ngoh, LN. Design, development, and evaluation of visual aids for communicating prescription drug instructions to nonliterate patients in rural Cameroon. Patient Educ Couns. 1997; 31:245-261.Google Scholar

65.Dowse, R. Pictograms in pharmacy. Int J Pharm Pract. 1998; 6:109-118.Google Scholar

66.Houts, PS, Doak, LG, Loscalzo, MJ. The role of pictures in improving health communication: a review of research on attention, comprehension, recall, and adherence. Patient Educ Couns. 2006; 61:173-190.Google Scholar

67.Houts, PS, Witmer, JT, Tringali, CA, Tringali, CA, Bucher, JA, Localio, RA. Using pictographs to enhance recall of spoken medical instructions. Patient Educ Couns. 1998; 35:83-88.CrossRefGoogle ScholarPubMed

68.Kripalani, S, Love-Ghaffari, MH, Henderson, LE, et al.Development of an illustrated medication schedule as a low-literacy patient education tool. Patient Educ Couns. 2007; 66:368-377.Google Scholar

69.Mansoor, LE. Effect of pictograms on readability of patient information materials. Ann Pharmacother. 2003; 37:1003-1009.Google Scholar

70.Mayer, RE. Cambridge Handbook of Multimedia Learning. New York, New York: Cambridge University Press; 2005.Google Scholar

71.Choi, J. Literature review: using pictographs in discharge instructions for older adults with low-literacy skills. J Clin Nurs. 2011; 20:2984-2996.Google Scholar

72.Zeng-Treitler, Q, Kim, H, Hunter, M. Improving patient comprehension and recall of discharge instructions by supplementing free texts with pictographs. AMIA Ann Symp Proc. 2008; Nov 6; 849-853.Google Scholar

73.Lujan, J, Acevedo, S. Development and testing of a communication card for emergency and disaster preparedness for monolingual Spanish-speaking individuals with low literacy. Internet J Rescue Disaster Med. 2009: 8.Google Scholar

76.Brown, KM, Lindenberger, JH, Bryant, CA. Using pretesting to ensure messages and materials are on strategy. Health Promot Pract. 2008; 8:116-122.Google Scholar

77.Frank, RG, Pindyck, T, Donahue, SA, et al.Impact of a media campaign for disaster mental health counseling in post-September 11 New York. Psychiatr Serv. 2006; 57:1304-1308.CrossRefGoogle ScholarPubMed

78.Haddow, KS, Haddow, G. Disaster Communications in a Changing Media World. Boca Raton, Florida: Taylor and Francis Group; 2011.Google Scholar

79.Weiss, S. Review of communicating emergency preparedness: strategies for creating a disaster resilient public. J Homeland Security Emergency Manage Sci. 2009; 6(9).Google Scholar

80.Brach, C, Keller, D, Hernandez, LM, et al.Ten Attributes of a Health Literate Health Care Organization. Institute of Medicine Roundtable on Health Literacy. Washington, DC: National Academies of Sciences; June 2012.Google Scholar

81.Doak, CC, Doak, LG, Friedell, GH, Mead, CD. Improving comprehension for cancer patients with low literacy skills: strategies for clinicians. CA Cancer J Clin. 1998; 48:151-162.Google Scholar

82.Nutbeam, D. Health literacy as a public health goal: a challenge for contemporary health education and communication strategies into the 21st century. Health Promot Int. 2000; 15:259-267.Google Scholar

83.Löckenhoff, CE, Carstensen, LL. Socioemotional selectivity theory, aging, and health: the increasingly delicate balance between regulating emotions and making tough choices. J Pers. 2004; 72:1395-1424.Google Scholar

84.Aldrich, N, Benson, WF. Disaster preparedness and the chronic disease needs of vulnerable older adults. Prev Chronic Dis. 2008; 5:A27.Google Scholar

85.Elmore, DL, Brown, LM. Emergency preparedness and response: health and social policy implications for older adults. Generations. 2007; 31:66-74.Google Scholar

86.Gibson, MJ, Hayunga, M. We Can Do Better: Lessons Learned for Protecting Older Persons in Disasters. Washington, DC: AARP; 2006.Google Scholar

87.Baker, SM. Vulnerability and resilience in natural disasters: a marketing and public policy perspective. J Public Pol Mark. 2009; 28:114-123.Google Scholar