Building the infrastructure for nationwide cancer surveillance and control – a comparison between The National Program of Cancer Registries (NPCR) and The Surveillance, Epidemiology, and End Results (SEER) Program (United States) (original) (raw)
References
Thacker SB,Berkelman RL (1988) Public health surveillance in the United States. Epidemiol Rev10: 164-190. Google Scholar
Hiatt RA,Rimer BK (1999) A new strategy for cancer control research. Cancer Epidemiol Biomarkers Prev8: 957-964. Google Scholar
Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, Division of Cancer Prevention and Control (2001) Atlanta, GA: Comprehensive Cancer Control: A Model Public Health Strategy.
Abrams DB (1997) A New Agenda for Cancer Control Research: Report of the Cancer Control Review Group. Bethesda, MD: National Cancer Institute. Google Scholar
The National Cancer Act of 1971, Pub L 92-218, 85 Stat 1828 (December 23, 1971). Available from: http://www3.cancer.gov/ legis/1971canc.html, accessed August 2002.
Hutton MD,Simpson LD,Miller DS,Weir HK,McDavid K,Hall HI (2001) Progress toward nationwide cancer surveillance: an evaluation of the national program of cancer registries, 1994-1999. J Registry Manage28(3): 113-120. Google Scholar
Hultstrom D (ed.) (2001) Standards for Cancer Registries, Volume II: Data Standards and Data Dictionary, version 9.1., 6th edn. Springfield (IL): North American Association of Central Cancer Registries. Google Scholar
North American Association of Central Cancer Registries (NAACCR) (2000) Standards for Cancer Registries, Volume III: Standards for Completeness, Quality, Analysis, and Management of Data. Springfield (IL): North American Association of Central Cancer Registries. Google Scholar
Centers for Disease Control and Prevention (CDC) (1994) State cancer registries: status of authorizing legislation and enabling regulations-United States, October 1993. MMWR Morb Mortal Wkly Rep43(4): 71-75. Google Scholar
Senate and House of Representatives of the United States (October 24, 1992). Public Law 102-515, Cancer Registries Amendment Act. Diseases. Health and Health Care. Atlanta, GA: US Department of Health and Human Services, Public Health Service, Centers for Disease Control and Prevention. Google Scholar
Swan J,Wingo PA,Clive R, et al. (1998) Cancer surveillance in the U.S.: can we have a national system? Cancer83: 1282-1291. Google Scholar
Hutchison CL,Roffers SC,Fritz AG (1997) Cancer Registry Management: Principles and Practice. Lenexa, KS: National Cancer Registrars Association. Google Scholar
Fritz A,Ries L (eds) (1998) The SEER Program Code Manual, 3rd edn. Bethesda, MD: National Cancer Institute. Google Scholar
Tucker T,Howe HL,Weir HK (1999) Certification for population-based cancer registries. J Registry ManageFebruary: 24-27.
North American Association of Central Cancer Registries. NAACCR Certification Criteria and Standards for High Quality Data. Available from: http://www.naaccr.org, accessed May 2002.
National Cancer Institute, National Institutes of Health News Release (March 17,2000). Bethesda, MD: NCI and CDC collaborate on a comprehensive cancer surveillance and control system. Google Scholar
U.S. Cancer Statistics Working Group (2002) U.S. Cancer Statistics: Incidence, 1999. Atlanta (GA): Department of Health and Human Services, Centers for Disease Control and Prevention and National Cancer Institute. Google Scholar
Wu XC,Hotes JL,Fulton PJ, et al. (2002) Cancer in North America, 1995-1999. Volume One: Incidence. Springfield, IL: North American Association of Central Cancer Registries. Google Scholar
Tucker TC,Howe HL (2001) Measuring the quality of central cancer registries: the NAACCR perspective. J Registry Manage28: 41-4. Google Scholar
Howe HL (2001) Conclusions of the Workgroup for High Quality Criteria for Data Use: The NAACCR Narrative. Springfield (IL): North American Association of Central Cancer Registries. Google Scholar
SEER (Surveillance, Epidemiology, and End Results Program) (1998) The SEER Program Code Manual, 3rd edn. Bethesda (MD): National Cancer Institute, NIH Publication No. 98-1999. Google Scholar
Percy C,Van Holten V,Muir C, (eds). (1990) International Classification of Diseases for Oncology, 2nd edn. Geneva: World Health Organization. Google Scholar
National Center for Health Statistics (1994) Vital Statistics of the United States, 1994. Vol. II, Part A: Mortality, 'Technical Appendix'. Hyattsville, MD: National Center for Health Statistics. Google Scholar
Rosenberg HM,Maurer JD,Sorlie PD, et al. (1999) Quality of Death Rates by Race and Hispanic Origin: A Summary of Current Research. Hyattsville, MD: National Center for Health Statistics. Google Scholar
Poe GS,Powell-Griner E,McLaughlin JK,Placek PJ,Thompson GB,Robinson K (1993) Comparability of the Death Certificate and the 1986 National Mortality Followback Survey. Hyattsville, MD: National Center for Health Statistics. Google Scholar
Hogan H (1993) The 1990 post-enumeration survey: operations and results. J Am Stat Assoc88: 1047-1060. Google Scholar
O'Malley C, Hu KU, West DW. North American Association of Central Cancer Registries: Race and Ethnicity Identifier Assessment Project. Available from: http://www.naaccr.org, accessed August 2002.
National Cancer Institute. SEER*Stat 4.2, Surveillance Epidemiology and End Results Program, Division of Cancer Prevention and Control, National Cancer Institute, Bethesda, MD. Available from: http://www.seer.cancer.gov, accessed April 2002.
Bureau of the Census. Population Estimates. Available from http:// eire.census.gov/popest/data/countiesl.php, accessed January 2002.
Fleiss JL (1981) Statistical Methods for Rates and Proportions. New York: John Wiley &; Sons. Google Scholar
Anderson RN,Rosenberg HM (1998) Report of the Second Workshop on Age Adjustment. In: Vital and Health Statistics. Hyattsville (MD): National Center for Health Statistics, HHS Publication No. (PHS) Vol. 4, no. 30, pp. 99-1467. Google Scholar
Anderson RN,Rosenberg HM (1998) Age standardization of death rates: implementation of the year 2000 standard. In: National Vital Statistics Reports. Hyattsville (MD): National Center for Health Statistics. HHS Publication No. (PHS) Vol. 47, no. 3, pp 99-1120. Google Scholar
Fay MP,Feuer EJ (1997) Confidence intervals for directly standardized rates: a method based on the gamma distribution. Stat Med16: 791-801. Google Scholar
Schenker N,Gentleman JF (2001) On judging the significance of differences by examining the overlap between confidence intervals. The Am Stat55(3): 182-186. Google Scholar
US Department of Health and Human Services (1989) Reducing the Health Consequences of Smoking: 25 Years of Progress. A Report of the Surgeon General. Atlanta, GA: US Department of Health and Human Services, Public Health Service, Centers for Disease Control and Prevention, Center for Chronic Disease Prevention and Health Promotion, Office on Smoking and Health. Google Scholar
Introducing the Third U.S. Preventive Services Task Force. Article originally in Am J Prev Med 2001; 20(3S): 3-4. Agency for Healthcare Research and Quality, Rockville, MD. http:// www.ahrq.gov/clinic/ajpmsuppl/berg.htm. Google Scholar
Lengerich EJ (ed). (Novembe 1999) Indicators for Chronic Disease Surveillance: Consensus of CSTE, ASTCDPD, and CDC. Atlanta, GA: Council of State and Territorial Epidemiologists (CSTE). Google Scholar
Clegg LX,Midthune DN,Feuer EJ,Fay MP,Hankey BF (2000) Cancer incidence rates adjusted for reporting delay. In: Ries LAG,Eisner MP,Kosary CL, et al. (eds) SEER Cancer Statistics Review, 1973-1997. Bethesda MD: National Cancer Institute, pp. 483-489. Google Scholar
Ries LAG,Wingo PA,Miller DS, et al. (2000) The annual report to the nation on the status of cancer, 1973-1997, with a special section on colorectal cancer. Cancer88: 2398-2424. Google Scholar
American Association of Central Cancer Registries (April 1991) Cancer Incidence in the U.S.A., 1987. Sacramento, CA: American Association of Central Cancer Registries. Google Scholar
Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, Behavioral Risk Factor Surveillance System Coordinators(2000) State-specific prevalence of current cigarette smoking among adults and the proportion of adults who work in a smoke-free environments-United States, 1999. MMWR49(43): 978-982. Google Scholar
Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, State Tobacco Activities Tracking and Evaluation (STATE) System (2002) Tobacco agriculture, 1997. Available from http://www2.cdc.gov/ nccdphp/osh/state/rpt_tob_display.asp?rpt_id=T1, accessed May 2002.
Hankey BF,Ries LA,Edwards BK (1999) The surveillance, epidemiology, and end results program: a national resource. Cancer Epidemiol Biomarkers Prev8: 1117-1121. Google Scholar
Frey CM,McMillen MM,Cowan CD,Horm JW,Kessler LG (1992) Representativeness of the surveillance, epidemiology, and end results program data: recent trends in cancer mortality rates. J Natl Cancer Inst84: 872-877. Google Scholar
Nattinger AB,McAuliffe TL,Schapira MM (1997) Generalizability of the surveillance, epidemiology, and end results registry population: factors relevant to epidemiologic and health care research. J Clin Epidemiol50: 939-945. Google Scholar
U.S. Department of Health and Human Services (1996) The effects of physical activity on health and disease-cancer. In: Physical Activity and Health: a Report of the Surgeon General. Atlanta, GA: U.S. Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, pp. 112-125. Google Scholar
Colditz GA,Cannuscio CC,Frazier AL (1997) Physical activity and reduced risk of colon cancer: implications for prevention. Cancer Causes Control8: 649-667. Google Scholar
Winawer SJ,Zauber AG,Ho MN, et al. (1991) Prevention of colorectal cancer by colonoscopic polypectomy. N Engl J Med325: 1593-1596. Google Scholar
Thomas DB (2002) Alternatives to a national system of population-based state cancer registries. Am J Public Health92: 1064-1066. Google Scholar
Working together for comprehensive cancer control: an institute for state leaders. Available from: http://www.cdc.gov/cancer, accessed August 2002.
National Dialogue on Cancer, NDC Teams, State Cancer Plans. Available from: http://www.ndoc.org, accessed August 2002.
Edwards BK,Howe HL,Ries LAG, et al. (2002) Annual report to the nation on the status of cancer, 1973-1999, featuring implications of age and aging on U.S. cancer burden. Cancer94: 2766-2792. Google Scholar