Ethics Watch (original) (raw)

• Ethics Watch
• Published: 01 July 2004

Nature Reviews Genetics volume 5, page 485 (2004) Cite this article

• 358 Accesses
• 19 Citations
• Metrics details

The Council does not consider that different options need to be offered in the informed consent for use of samples obtained during medical care. Furthermore, informed consent can be waived if the samples and data are made completely anonymous, unless a prior contrary wish has been expressed.

It also recommends that “donors should be able to give generalized consent to the use of their samples and data for the purposes of medical — including genetic — research”. The same applies to the length of storage and use of the data. Neither is limited in advance.

This is a preview of subscription content, access via your institution

Relevant articles

Open Access articles citing this article.

• Trust in farm data sharing: reflections on the EU code of conduct for agricultural data sharing

  • Simone van der Burg
  • , Leanne Wiseman
  • & Jovana Krkeljas
    Ethics and Information Technology Open Access 10 July 2020

• A biobank management model applicable to biomedical research

  • Christiane Auray-Blais
  • & Johane Patenaude
    BMC Medical Ethics Open Access 06 April 2006

Access options

Subscribe to this journal

Receive 12 print issues and online access

$259.00 per year

only $21.58 per issue

Buy this article

• Purchase on SpringerLink
• Instant access to the full article PDF.

USD 39.95

Prices may be subject to local taxes which are calculated during checkout

Additional access options:

• Log in
• Learn about institutional subscriptions
• Read our FAQs
• Contact customer support

References

1. German National Ethics Committee (Nationaler Ethikrat). Biobanks for Research, Opinion (German National Ethics Committee, 2004) (available in English at http://www.ethikrat.org/_english/news/next_meeting.html).

Download references

Author information

Authors and Affiliations

1. Bartha M. Knoppers

Authors

1. Bartha M. Knoppers

Rights and permissions

About this article

Cite this article

Knoppers, B. Ethics Watch.Nat Rev Genet 5, 485 (2004). https://doi.org/10.1038/nrg1396

Download citation

• Issue date: 01 July 2004
• DOI: https://doi.org/10.1038/nrg1396

This article is cited by