An exploration of family caregivers’ health care needs when caring for patients with cancer in the resource-challenged context of West Java, Indonesia (original) (raw)

Purba, Chandra Isabella Hostanida, Johnston, Bridget ORCID: https://orcid.org/0000-0003-4051-3436 and Kotronoulas, Grigorios ORCID: https://orcid.org/0000-0002-9508-9989(2023) An exploration of family caregivers’ health care needs when caring for patients with cancer in the resource-challenged context of West Java, Indonesia.Seminars in Oncology Nursing, 39(3), 151369. (doi: 10.1016/j.soncn.2022.151369) (PMID:36424248)

Abstract

Objective: Family caregivers in West Java, Indonesia, care for their family members at home or in a shelter with limited sources. This study aims to establish the needs of family caregivers when providing informal care to family members with cancer in the resource-challenged context of West Java, Indonesia Data Sources: This cross-sectional survey involved family caregivers, using convenience sampling. Data were collected using the Supportive Care Needs Survey-Partners and Caregivers, translated into Indonesian. Descriptive statistics were computed and reported. We recruited 220 individuals. Our typical participant was a married (49.5%), housewife (35.5%) with primary school level education (35.6%). Just more than half the sample were men (50.9%). Our participants had a mean age of 40.2 years, had been caregivers for a mean 1.2 years, and traveled a mean 164.7 km to accompany patients to medical appointments. Our participants reported unmet supportive care needs in all domains, except for sexuality. The topmost unmet need was finding out about financial support Conclusion: Our sample struggled to balance their living allowance and budget for cancer treatment. They also need information to care for their family. The need for financial support for patients and family caregivers was the most important finding. Our findings will be valuable in planning ahead to enhance the status of supportive and palliative care provided in West Java, Indonesia. Implications for Nursing Practice: Flexible and comprehensive nurse-led interventions should be developed to support family caregivers fulfill their roles and sustaining their quality of life.

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