The National Fragile X Foundation (original) (raw)

Empowering Families, Changing Lives

Providing knowledge, resources and tools, and connecting you with a community that cares.

1M

Estimated number of people in the U.S. with the Fragile X premutation

100K

Estimated number of people in the U.S. with Fragile X syndrome

Our Impact

Empowering families living with Fragile X and the professionals who serve them every day

Promoting effective advocacy for families and individuals to meet the ongoing challenges of the Fragile X journey.

Providing tools and resources to help manage the day-to-day challenges of life with Fragile X.

Facilitating research for families and professionals and centering patients and families in work toward treatments and a cure.

Improving access and availability of informed treatment options for all patients with Fragile X.

Hope for the Future

Every individual living with Fragile X deserves to receive the support and care they need to reach their full potential. By making a gift today, you can make a difference in the lives of all those impacted by Fragile X!

Learn more about our impact, where your donations go, and our responsibility as a nonprofit.

Learn more about our impact, where your donations go, and our responsibility as a nonprofit.

Living With Fragile X

Awareness

Awareness

What is Fragile X?

In this 90-second video, we answer the frequently asked question, “What is Fragile X?” by explaining Fragile X Syndrome, the premutation, and its associated conditions, as well as how Fragile X is inherited.

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Watch

January 2, 2025

00 h 51 m