Amie Milunovich, Author at National Fragile X Foundation (original) (raw)
About Amie Milunovich
Amie Milunovich, FORWARD National Coordinator: Amie joined the NFXF in 2015. She has eight years of experience coordinating clinical research trials. Amie was a research assistant and research coordinator for numerous clinical trials at several programs. Amie holds a bachelor's degree in family and consumer science and is a SOCRA Certified Clinical Research Professional. She enjoys Bikram Yoga, painting, cooking, and spending time with family and friends.
Your participation in FORWARD is meaningful and increases awareness about Fragile X Syndrome!
By Amie Milunovich|2024-05-10T17:24:20-04:00May 10, 2024|Blog, FORWARD|
Two FORWARD papers published in American Journal of Medical Genetics Part A , were the top 10 most-cited papers published during the 2022-2023 period!
Sensory Symptoms and Signs of Hyperarousal in Individuals with Fragile X Syndrome
By Amie Milunovich|2024-03-12T10:26:29-04:00Mar 12, 2024|FORWARD|
FORWARD // Researchers conducted the first comprehensive analysis of characteristics of sensory symptoms in children with FXS and their impact on families.
Latent Class Analysis Identifies Distinctive Behavioral Subtypes in Children with Fragile X Syndrome
By Amie Milunovich|2023-03-05T21:51:58-05:00Nov 22, 2022|FORWARD|
FORWARD // Among the different models resulting from the latent class analysis, a 5-class solution yielded the most clinically meaningful pharmacotherapy-independent behavioral subtypes.
Examination of Correlates to Health-Related Quality of Life in Individuals with Fragile X Syndrome
By Amie Milunovich|2022-06-17T15:19:03-04:00Feb 17, 2022|FORWARD|
FORWARD // We examined the nature and degree of association between health-related quality of life and established measures of functioning in FXS; 155 parents completed the questionnaires on their child as part of the larger CDC-funded FORWARD study.
Height and Body Mass Index in Fragile X Syndrome: A Longitudinal Assessment
By Amie Milunovich|2022-06-07T14:59:59-04:00Feb 16, 2022|FORWARD|
FORWARD // These findings warrant increased attention to obesity prevention for all individuals with FXS.
Longitudinal Trajectory of Seizures in Fragile X Syndrome
By Amie Milunovich|2022-06-17T15:24:05-04:00Dec 30, 2021|FORWARD|
FORWARD // This study adds to the understanding of the characteristics, risk factors, and course of seizures in FXS and provides a basis for anticipatory guidance for clinicians and families.
Mosaicism in Males with Fragile X Syndrome
By Amie Milunovich|2022-06-07T14:54:56-04:00Dec 28, 2021|FORWARD|
FORWARD // Participants with methylation mosaicism tended to have less severe intellectual disability and better social and functional skills. Knowing more about how FXS differs in people with and without methylation mosaicism may eventually help guide expectations and treatment of individuals with FXS.
Psychotropic Drug Treatment Patterns in Persons with Fragile X Syndrome
By Amie Milunovich|2022-06-07T14:51:37-04:00Dec 16, 2021|FORWARD|
FORWARD // This study contributes to the limited understanding of psychopharmacologic management of IAAS in FXS and will help guide future treatment.
Sleep Problems in FXS: Cross-Sectional Analysis of a Large Clinic-Based Cohort
By Amie Milunovich|2023-01-31T17:23:08-05:00Dec 10, 2021|FORWARD|
FORWARD // Findings showed that sleep difficulties are prevalent in children with FXS and, although they tend to be mild, they are associated with behavioral problems and negative impact to families.
Development of Neural Response to Novel Sounds in Fragile X Syndrome: Potential Biomarkers
By Amie Milunovich|2022-06-07T14:49:28-04:00Nov 19, 2020|FORWARD|
FORWARD // Despite an overall normal developmental trajectory for most measures, individuals with FXS show age-independent but gender-dependent decreases in complex processing of novel stimuli.
Factor Structure of the Aberrant Behavior Checklist in Fragile X Syndrome
By Amie Milunovich|2022-06-07T14:47:41-04:00Oct 7, 2020|FORWARD|
FORWARD // There may be circumscribed times when the new algorithm may be appropriate for scoring, namely when anxiety or social avoidance constructs are the central and unequivocal domains of interest.
Opinion Article: Autism Terminology and Clinical Practice
By Amie Milunovich|2021-11-21T21:00:30-05:00May 25, 2020|FORWARD, Research|
FORWARD // The simplified diagnosis of ASD, which merged previous diagnoses into a single disorder, has led to its use in plural (autism spectrum disorders) for different purposes.
Assessment of Social Interaction in Fragile X Syndrome
By Amie Milunovich|2021-11-21T18:04:43-05:00Apr 17, 2020|FORWARD|
FORWARD // An efficient and direct measure of social interactions and autism symptoms is needed for Fragile X syndrome research and clinical care.
Repetitive Behaviors in Fragile X Syndrome
By Amie Milunovich|2021-11-21T18:04:32-05:00Apr 15, 2020|FORWARD|
FORWARD // These findings build on the current understanding of RRBs in Fragile X syndrome based on gender and comorbid ASD.
FXS & Language Across the Lifespan
By Amie Milunovich|2022-06-17T14:48:50-04:00Apr 4, 2020|FORWARD|
FORWARD // Caregiver reports tended to give lower estimates of language ability than what was found using an objectively administered assessment.