Dan Whiting, Author at National Fragile X Foundation (original) (raw)
About Dan Whiting
Dan served as the NFXF Director of Community Impact from 2017 to 2022. He has over 23 years of experience in public policy and communications, including 11 years as a staff member for a U.S. Senator, in the Bush Administration as Chief of Staff at an agency, and as a senior strategist for communication initiatives across the DOD. During his time at the NFXF, he was passionate about helping individuals with intellectual and developmental disabilities live better lives.
The ABLE Employment Flexibility Act
By Dan Whiting|2023-03-11T21:03:15-05:00Jan 13, 2022|Advocacy|
The ABLE Employment Flexibility Act (H.R. 4672) permits employers to contribute to an employee’s ABLE account instead of a 401(k) – including an employer’s match. By saving it in the ABLE account it will not adversely affect most means-tested federal benefits.
Why Laurie, Will, and Caroline Bridges Support the NFXF
By Dan Whiting|2021-12-14T15:01:47-05:00Dec 13, 2021|Blog|
The Bridges have been supporting the Fragile X community for years. They took a few minutes this month to tell you why and encourage you to join them in supporting the work of the National Fragile X Foundation this month. Hear what they have to say.
It’s All About Employ-Ability!
By Dan Whiting|2022-08-02T19:20:42-04:00Nov 12, 2021|Advocacy|
Paula Fasciano and friends opened Bake Ability so they could give employment opportunities to individuals with intellectual and developmental disabilities.
An Update on Our Advocacy Efforts
By Dan Whiting|2024-03-19T22:55:41-04:00Nov 4, 2021|Advocacy|
An update on our advocacy efforts, including Advocacy Day 2022 and key legislation we are currently supporting.
An Xtraordinary Employee: Clay
By Dan Whiting|2022-08-02T19:21:56-04:00Oct 19, 2021|Blog|
A concern for parents of children with Fragile X syndrome is their level independence as an adult. This is Clay and his mother June's story.
An Xtraordinary Employee: Zachary
By Dan Whiting|2022-08-02T19:24:29-04:00Sep 3, 2021|Blog|
Meet an xtraordinary employee, Zach, who turned his love of animals into his perfect job at the Monterey Zoo.
CDC Awards $4 Million Cooperative Agreement to Build on the Work of the FORWARD FXS Natural History Study!
By Dan Whiting|2021-08-10T10:46:48-04:00Aug 9, 2021|Blog|
A $4 million cooperative agreement to “Characterize the Natural History of Fragile X Syndrome to Inform the Development of Intervention and Outcome Measures” was awarded to Dr. Elizabeth Berry-Kravis of Rush University Medical Center by the Centers for Disease Control and Prevention (CDC).
South Carolina and Wisconsin Proclaim Fragile X Awareness Day
By Dan Whiting|2021-07-22T00:11:13-04:00Jul 22, 2021|Awareness Day|
The governors of Wisconsin and South Carolina proclaim July 22, 2021 as Fragile X Awareness Day in South Carolina. Read their proclamations.
How is Fragile X syndrome inherited?
By Dan Whiting|2022-08-04T14:10:16-04:00Jul 15, 2021|Genetics and Inheritance, Two Minute Tips|
This infographic and two-minute tip video answer the question, How is Fragile X syndrome inherited. It is one of the most common questions about Fragile X.
Fragile X Awareness Signs
By Dan Whiting|2021-05-28T15:05:16-04:00May 28, 2021|Awareness Month, Blog|
We designed several Fragile X awareness yard signs so you can choose one that serves you best. Each are printed on-demand and shipped directly to you with everything you need to display them in your yard for all of July or even longer if you choose.
NFXF Webinar Series: Fragile X Syndrome
By Dan Whiting|2023-12-21T11:11:56-05:00May 18, 2021|FXS|
Dr. Nicole Tartaglia joins us to discuss Fragile X syndrome (FXS). She covers everything from brief descriptions of the Fragile X-associated disorders, such as FXTAS and FXPOI, to details about FXS.
Medications for Fragile X Syndrome
By Dan Whiting|2021-04-21T15:32:20-04:00Apr 21, 2021|Blog, Treatment and Intervention|
Dr. Craig Erickson answers listener questions on medications for Fragile X syndrome.
COVID-19 Vaccines and Fragile X and Dr. Erickson Answers Your Medication Questions
By Dan Whiting|2021-06-07T11:22:14-04:00Apr 7, 2021|Blog|
Two important videos from Dr. Craig Erickson who discusses COVID-19 vaccines for individuals living with Fragile X premutations and full mutations, plus a second video on medications and Fragile X.
Advocacy Day Social Story
By Dan Whiting|2021-02-09T16:22:39-05:00Feb 9, 2021|Advocacy|
Our own Jayne Dixon Weber pulled together a social story to use to help you and your self-advocate prepare for the NFXF Advocacy Day on February 24, 2021.
What are Federal Budgets and Why They Matter
By Dan Whiting|2021-02-03T12:46:20-05:00Jan 29, 2021|Advocacy|
What is the President's budget, is it important for Fragile X advocacy, and how does Fragile X research get funded? These are all answered here.