Dany Petraska, Author at National Fragile X Foundation (original) (raw)

About Dany Petraska

Dany Petraska is a content strategist at PRI, and writes for many different audiences and industries. She received her bachelor’s degree in journalism from California State University, Fresno, and previously worked as a publicist for the U.S. Parachute Association and Electronic Arts, and as an editor for PR Newswire.

Marner Family Hosts 5th Annual Quad Cities Fragile X Golf Outing

By Dany Petraska|2024-10-04T13:00:32-04:00Oct 4, 2024|AnythingForFragileX, Fundraising|

The annual QC Fragile X golf outing, hosted by the Marner family, has been an incredibly inspiring demonstration of support. Thank you Andrea and Kevin - and your many supporters over the past five years!

Western Massachusetts Chapter Leader attends Autism Connections Conference

By Dany Petraska|2024-04-30T16:10:38-04:00Apr 30, 2024|Fundraiser|

Western Massachusetts Chapter Leader attends Annual Autism Connections Conference, which brings professionals and families together to learn more about autism and strategies and therapies to help their individual with autism.

Encouraging Early Communication: Strategies for Caregivers — Presentation

By Dany Petraska|2023-12-20T14:50:12-05:00Jul 15, 2022|Webinar|

This presentation focuses on tools that caregivers can use to encourage communication development for individuals at early stages of development. Presented by Anne Hoffman from Rush University Medical Center.

Keynote: Clinical Trials in Fragile X Syndrome — Presentation

By Dany Petraska|2023-12-20T16:57:25-05:00Jul 15, 2022|Webinar|

This keynote session explore completed and active clinical trials relating to Fragile X syndrome. Presented by Elizabeth Berry-Kravis, Craig A. Erickson, and Randi J. Hagerman.

An Xtraordinary Employee: Corey Gershenson

By Dany Petraska|2022-08-02T19:17:16-04:00Feb 25, 2022|Blog|

Corey Gershenson lives with Fragile X syndrome. Thanks to his determination — and employers willing to embrace employees with disabilities — he also works two jobs and volunteers at Mercy Hospital in St. Louis.

Parent Survey: Children’s Behavioral Strengths and Challenges

By Dany Petraska|2020-07-08T13:44:41-04:00Mar 11, 2020|Opportunities for Families|

The MIND Group at the University of Minnesota is conducting a survey for parents of children with Fragile X syndrome to learn about how genetic and neurodevelopmental differences impact behavioral strengths and challenges. Parents of 3–17 year old children living with Fragile X are eligible to participate.

Purdue Early Childhood Study – PANDABox

By Dany Petraska|2022-05-11T13:03:28-04:00Jan 9, 2020|Opportunities for Families|

Purdue University is conducting a research study to learn about development of infants with Fragile X syndrome. Boys and girls ages 6-18 months with the full mutation may be eligible to participate.

NFXF, Heartland Chapter — Iowa and South Dakota, Receives Valero Grant

By Dany Petraska|2020-09-08T17:51:07-04:00Jan 3, 2020|Fundraising, Heartland|

Valero loved Heartland Chapter Vice President Brenda Slama’s sensory room proposal and awarded the chapter with a $6,200 grant during the 2019 Valero Texas Open Benefit for Children.

A Workplace Fundraiser You’ll Want to Copy

By Dany Petraska|2023-03-16T15:17:30-04:00Sep 24, 2019|Fundraising|

Matt Faruolo wanted to do something to raise awareness about Fragile X, so he decided to host a weeklong fundraising event at work. Here’s how he did it.

Early Development of Young Children with Fragile X in North Carolina

By Dany Petraska|2022-02-08T10:05:29-05:00Sep 18, 2019|Opportunities for Families|

RTI Int’l and UNC at Chapel Hill are conducting a research study to learn more about early development of young children with Fragile X in North Carolina, and the experiences of their parents when obtaining the diagnosis and early intervention services.

Joshua’s Mom on Participating in Fragile X Clinical Trials

By Dany Petraska|2019-09-17T13:29:18-04:00Sep 16, 2019|Clinical Trials|

Diane and her son Joshua volunteered for a clinical trial a little over a year ago. In this heartwarming video, his mom shares how their family made the decision to participate, and what the experience has been like so far.

By Dany Petraska|2022-08-04T15:02:21-04:00May 3, 2019|Faces of Fragile X|

Your stories help educate the public about Fragile X and inspire more research toward new treatments and an eventual cure. Here’s why.

Two New Fragile X Research Papers Now Available

By Dany Petraska|2019-04-24T13:39:26-04:00Apr 24, 2019|Research|

Two recently published, peer-reviewed Fragile X research papers are now available on our website: Voice of People with Fragile X Syndrome and Their Families: Reports from a Survey on Treatment Priorities, and Best Practices in Fragile X Syndrome Treatment Development.

By Dany Petraska|2019-04-24T12:59:16-04:00Apr 23, 2019|Lists|

We took a peek behind our blog posts to see which were the most popular. These are the top 5 most popular posts as of April 2019.

8th Annual Cork and Café Fundraiser Recap

By Dany Petraska|2019-01-02T15:43:31-05:00Jan 2, 2019|Western Massachusetts|

The NFXF Western Massachusetts Chapter’s eighth annual Cork and Café Fundraiser hosted 55 wine lovers for an evening of wine tasting, appetizers, a silent auction, and for the non-wine drinkers, hand-roasted coffees.