Marcia Braden, Author at National Fragile X Foundation (original) (raw)

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About Marcia Braden

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So far Marcia Braden has created 16 blog entries.

Females and Fragile X Syndrome — Webinar

By Marcia Braden|2023-12-20T22:49:41-05:00Jun 9, 2021|Webinar|

Dr. Braden helps us understand the difference between males and females with Fragile X syndrome as well as strategies for common challenges for females that include executive functioning and relationships.

Fragile X Syndrome Self-Advocates Share Their Challenges and Triumphs — Presentation

By Marcia Braden|2023-12-21T07:11:11-05:00Aug 27, 2020|Adulthood, Webinar Conference|

One of the most common questions related to Fragile X is what limitations does a person with Fragile x syndrome have? Meet Allison Cohen, Michael Cohen, Doug Cooper, Aaron Heisel, Samantha Rhodes, Joshua Rocker, Jodi Selinger, Spencer Shelton, and Cassie Stringer.

Female Power to Fight a Crisis — Presentation

By Marcia Braden|2023-12-21T00:04:47-05:00May 8, 2020|Females, Webinar, Webinar Conference|

Females living with Fragile X syndrome were asked to give advice to other females living with FXS on how to cope with this — or any future — crisis. Listen as Marcia talks through their advice and her own advice, built on decades of working with patients with Fragile X syndrome.

How Do We Cope with the Current Circumstances

By Marcia Braden|2020-08-20T18:42:33-04:00Apr 14, 2020|Behavior, Blog|

In this new recording, Marcia Braden discusses strategies for daily living with COVID-19. She discusses how anxiety can fuel behavior, and she gives ideas on how to set up your day and accommodations you can make to help keep anxiety at a minimum.

When Disappearing Acts Are a Good Thing

By Marcia Braden|2023-06-14T16:15:53-04:00Apr 2, 2020|Behavior, Braden on Behavior|

Behavior can often be misunderstood and punished because the parent or caregiver doesn’t recognize its function for the child. Caregivers must look behind the behavior to learn what they’re trying to communicate.

How to Help Your Child Cope with COVID-19

By Marcia Braden|2023-01-31T12:59:04-05:00Mar 31, 2020|Behavior, Treatment and Intervention|

Dr. Marcia Braden provides tips and resources, including social story and visual schedule templates, to help you and your children during the COVID-19 pandemic.

Moving from Pediatrics to Adult Services — Webinar

By Marcia Braden|2023-12-07T09:02:30-05:00Sep 7, 2018|Webinar|

Dr. Marcia Braden on the difficulties associated with patients with Fragile X syndrome transitioning from a pediatric to an adult care provider.

Summary of Guidelines for Establishing a Private Home

By Marcia Braden|2022-10-27T16:31:49-04:00May 17, 2017|Adolescents and Adults, Adulthood|

Some families may not want their child to live in a home/facility that is offered by the local disability organization.

Best Practice in Educational Strategies and Curricula

By Marcia Braden|2023-03-13T14:14:26-04:00Feb 1, 2017|Education, School and Education|

Promising outcomes are continuing to develop using the cognitive phenotype to better understand how to best teach students with FXS.

The Unique Challenges for Females with Fragile X Syndrome

By Marcia Braden|2023-06-14T16:05:27-04:00Jan 11, 2017|Females, FXS|

Though males experience both greater frequency and severity of symptoms, females with FXS do present a variety of challenges as well. We take a look at what those are with Dr. Marcia Braden.

Proactive and Reactive Behavior Management for Your Child

By Marcia Braden|2022-09-02T09:57:52-04:00Sep 28, 2016|Behavior, Braden on Behavior|

Behavior management continues to be of tremendous importance to parents and professionals and understanding the etiology of behavior in people with Fragile X syndrome is critical when creating proactive strategies to successfully manage that behavior.

Oppositional or Merely Anxious?

By Marcia Braden|2023-06-14T16:19:37-04:00Aug 8, 2016|Behavior, Braden on Behavior|

Children with and without Fragile X syndrome learn to maneuver their environments in order to survive and thrive. In order to discern whether a behavior is oppositional, or merely a reaction to anxiety, pay attention to your reaction.

Teaching Pro-Public Behavior: Public or Private?

By Marcia Braden|2024-12-02T15:16:10-05:00Jun 27, 2016|Daily Living, FXS, Treatment and Intervention|

How do we prepare our children to access their communities, without the risk of their being exploited, showing affection in inappropriate ways, using sexual language that may be misconstrued, or touching body parts that could bring legal action or, at the very least, a disgruntled public?

“Happy Birthday” Meltdowns and Other Behavioral Conundrums

By Marcia Braden|2023-06-14T16:16:28-04:00Nov 25, 2014|Behavior, Braden on Behavior, Treatment and Intervention|

“Why does my child cry when people sing ‘Happy Birthday’ to her?” Many years ago when I first heard this from a parent of a girl with FXS, I thought it was rather strange and perhaps something unique to this child’s behavioral repertoire.

Is Your Child’s Behavior a Manifestation of Their Disability?

By Marcia Braden|2023-03-13T14:17:16-04:00Feb 22, 2013|Braden on Behavior, School and Education, Treatment and Intervention|

Before school authorities consider suspension and possible expulsion, they need to determine whether threatening someone may have been the only way that the person with Fragile X syndrome could express the gravity of their personal discomfort.