Kristin Bogart, Author at National Fragile X Foundation (original) (raw)

About Kristin Bogart

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So far Kristin Bogart has created 88 blog entries.

An (Oral) Story of the National Fragile X Foundation

By Kristin Bogart|2024-12-19T13:35:22-05:00Dec 19, 2024|Foundation|

Dr. Hagerman told a short story about how the National Fragile X Foundation came to be at this year’s NFXF International Fragile X Conference, and we want to share her story with you.

Fishing for a Cure: The Christoffs Have Done it Again!

By Kristin Bogart|2024-12-19T13:59:51-05:00Dec 18, 2024|AnythingForFragileX, Donate|

The annual Fishing for a Cure fundraiser, hosted by Joey Christoff in honor of his son Mitchell, was another great success in 2024! Check out the big fish and the big smiles.

Hope for the Future – Adult Resources

By Kristin Bogart|2024-12-03T16:14:49-05:00Dec 3, 2024|Blog|

Learn how we are equipping families with resources needed to plan for the future with confidence, while we continue to work towards treatments for Fragile X.

Hope for the Future – Expanding Clinical Care

By Kristin Bogart|2024-12-04T11:53:43-05:00Dec 1, 2024|Blog|

Learn how we are expanding our network of Fragile X clinics to better support individuals living with the Fragile X premutation.

Messages of Gratitude — Video

By Kristin Bogart|2024-11-26T13:06:11-05:00Nov 26, 2024|Blog|

When we take a moment to reflect on what means the most to us in this season of gratitude and joy, the Fragile X community tops the list.

Hope for the Future – NFXF Belonging Grant

By Kristin Bogart|2024-11-25T11:01:02-05:00Nov 22, 2024|Blog|

Our NFXF Belonging Grant is already making an impact. Learn how we're expanding this program to reach even more families impacted by Fragile X!

Hope for the Future – Find Our People — Video Slideshow

By Kristin Bogart|2024-11-25T11:42:58-05:00Nov 20, 2024|Blog|

We're on a mission to find and support EVERY family living with Fragile X

The Michigan Medical Fragile X Clinic

By Kristin Bogart|2024-11-06T16:14:40-05:00Nov 4, 2024|Blog, FXCRC and Clinics|

Highlighting the Fragile X Clinic at the Michigan Medicine Fragile X clinic , a member of the National Fragile X Foundation’s Fragile X Clinical & Research Consortium (FXCRC)

NFXF Western Massachusetts Chapter Hosts Cork and Cafe 2024

By Kristin Bogart|2024-10-28T12:40:59-04:00Oct 28, 2024|AnythingForFragileX|

More than 50 friends and supporters gathered on September 29 to eat great food, taste various wines, bid for prizes, and raise awareness and funds to support the Fragile X community.

The People Who Are The NFXF

By Kristin Bogart|2024-10-22T14:42:28-04:00Oct 21, 2024|Foundation|

So many people - volunteers, team members, donors, advocates, including self-advocates, clinicians and clinic teams, researchers, therapists, educators, counselors, advisors and others - over the past 40 years have helped make the National Fragile X Foundation what it is today!

A Reflection on the CEO Commission’s 2024 Hill Day

By Kristin Bogart|2024-10-02T20:11:44-04:00Oct 2, 2024|Blog|

NFXF Executive Director, Hilary Rosselot, and Advocacy Ambassador, Dillon Kelley, attended the CEO Commission for Disability Employment’s Employment Summit and Hill Day in September 2024. It was an inspiring, action-packed few days, and they are excited to share more about their experience and why it matters to the Fragile X community.