Missy Zolecki, Author at National Fragile X Foundation (original) (raw)

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About Missy Zolecki

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So far Missy Zolecki has created 39 blog entries.

Preparing for the Return to Routine After a Long Break: Tips for Educators, Employers, and Caregivers

By Missy Zolecki|2024-12-27T16:50:59-05:00Dec 27, 2024|Behavior, Blog, Treatment and Intervention|

The return after a long break can be a difficult transition for anyone, especially an individual living with FXS. With thoughtful planning and a compassionate approach, the entire support team can help ease the process.

Enjoying Your Winter Holiday Season

By Missy Zolecki|2024-12-11T12:47:57-05:00Dec 6, 2024|Behavior, Treatment and Intervention|

Each person with Fragile X syndrome is different, so what works for one may not work for the other. We want you to enjoy the season, so we’ve gathered a list of activities, tips, and advice to set you up for success.

By Missy Zolecki|2024-11-27T15:17:57-05:00Nov 27, 2024|Treatment and Intervention, Webinar|

Tracy Stackhouse, MA, OTR/L, Lauren Moskowitz, PhD, Jennifer Epstein, PsyD, and Missy Zolecki joined us for a one-hour Q & A discussing Navigating Challenging Behaviors.

Females with Fragile X Syndrome — Webinar

By Missy Zolecki|2024-11-11T15:57:46-05:00Nov 11, 2024|Females, Webinar|

Barb Haas-Givler, MEd, BCBA, Cora Taylor, PhD, Nicole Tartaglia, MD, Tracy Jordan, PhD, and Vicki Wilkins, MD joined us for a one-hour Q & A discussing Females with Fragile X Syndrome.

Fragile X Advocacy Newsletter – October 2024

By Missy Zolecki|2024-10-08T16:19:04-04:00Oct 8, 2024|Advocacy, Blog|

Read and share the latest edition of the Fragile X Advocacy Newsletter with your Members of Congress offices!

“X Strides With Greater Chicago” 2024 a Huge Success!

By Missy Zolecki|2024-07-25T16:29:57-04:00Jul 25, 2024|Community|

The Greater Chicago Fragile X chapter held their “X Strides with Greater Chicago” event on July 13 in Glenview, Illinois. More than 50 families and caregivers participated including heading to the park splash pad to cool off afterward.

Fragile X Advocacy Newsletter – June 2024

By Missy Zolecki|2024-06-17T10:46:13-04:00Jun 17, 2024|Advocacy, Blog|

Read and share the latest edition of the Fragile X Advocacy Newsletter with your Members of Congress offices!

The NFXF Heartland Chapter Hosts 9th Annual “Bike To X Out Fragile X”

By Missy Zolecki|2024-06-13T15:40:20-04:00Jun 13, 2024|AnythingForFragileX|

Nancy Carlson and the NFXF Heartland Chapter — Iowa and South Dakota hosted their 9th Annual Bike To X Out Fragile X on Saturday, June 1, 2024, in Des Moines, Iowa.

2024 Advocacy Day Experience – Dillon Kelley

By Missy Zolecki|2024-06-11T16:23:22-04:00Jun 11, 2024|Advocacy, Fundraiser|

Dillon Kelley, Advocacy Ambassador to the NFXF Board of Directors shares his experience at the 2024 NFXF Advocacy Day.

Financially Empowering the Fragile X Community Through ABLE Accounts — Webinar

By Missy Zolecki|2024-05-21T17:00:11-04:00May 21, 2024|Premutation, Webinar|

Join us for the Financially Empowering the Fragile X Community Through ABLE Accounts webinar with Mark Raymond Jr. & John Finch.

10 Basic Financial Steps for Special Needs Caregivers — Webinar

By Missy Zolecki|2024-05-10T11:49:46-04:00May 10, 2024|Premutation, Webinar|

Kelly Piacenti joined us for the next topic of the NFXF Webinar Series -10 Basic Financial Steps for Special Needs Caregivers. She shared information to help caregivers get started in preparing for the financial future of their loved one with Fragile X.

Western Massachusetts Fragile X 8th Annual Hadley Corn Hole Championship

By Missy Zolecki|2024-04-25T19:54:10-04:00Apr 25, 2024|Fundraiser|

The 8th Annual Hadley Corn Hole Championship, organized by the Western Massachusetts Fragile X chapter on March 3, 2024, marked a day of camaraderie, spirited competition, and impactful fundraising.

Peer-Reviewed Medical Research Program’s FY 24 Funding Opportunities for Researchers — Webinar

By Missy Zolecki|2024-04-18T12:33:31-04:00Apr 18, 2024|Blog, Webinar|

Dr. Kathryn Argue share tips for applying for PRMRP funding with Fragile X professionals.

The Greater Chicago Fragile X Families Raise Awareness at the Brookfield Zoo Tree Trim

By Missy Zolecki|2024-04-16T10:02:52-04:00Apr 16, 2024|AnythingForFragileX, Donate|

The Greater Chicago Fragile X chapter families gathered on a sunny day in November to support the Brookfield Zoo and its annual Tree Trim event, and to raise awareness for Fragile X families everywhere.

Research Funding Opportunity from CDMRP/PRMRP for Fiscal Year 24

By Missy Zolecki|2024-04-03T11:40:10-04:00Apr 3, 2024|Advocacy, Annoucements, Blog, Research, Treatment and Intervention|

Announcing FY 2024 federal research funding opportunities across six award categories available for all Fragile X-associated conditions and disorders.