One Fragile X Experience: Carrier & Mom Answers FAQs — Video | NFXF (original) (raw)

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One Fragile X Experience: Carrier & Mom Answers FAQs — Video

By Kristin Bogart

Ilana Garber, a Fragile X carrier and mother of a child with Fragile X syndrome, shares her experience with Fragile X and offers her perspective to people interested in testing for themselves or their child. She covers Fragile X-associated primary ovarian insufficiency (FXPOI), learning from the internet, finding community, and what she wished she would have known when her son was diagnosed.

Thank you, Ilana, for speaking about your experience in a way that honors your son in such a beautiful, authentic way.

Thank you to NFXF Corporate Sponsor for 2022 Asuragen for creating this important awareness project. Learn more about Asuragen’s work in Fragile X at DiscoverFragileX.

author

Kristin Bogart, Senior Director, Development and Communications

Kristin Bogart
Kristin joined the NFXF team in 2019. She has over 20 years of experience in fundraising and non-profit management, event planning, and board and volunteer development. She earned a bachelor’s degree in economics and a master’s in public administration. Kristin loves spending time with her two teenage sons and in the company of friends, and enjoys gardening, running, and hiking in the Santa Cruz mountains.