Awareness Day Archives | NFXF (original) (raw)
Fragile X Awareness Day
On July 12, 2000, the 106th Congress designated July 22 as National Fragile X Awareness Day.
South Carolina and Wisconsin Proclaim Fragile X Awareness Day
By Dan Whiting|2021-07-22T00:11:13-04:00Jul 22, 2021|Awareness Day|
The governors of Wisconsin and South Carolina proclaim July 22, 2021 as Fragile X Awareness Day in South Carolina. Read their proclamations.
Rep. Engel Raises Fragile X Awareness in Congress
By Dan Whiting|2019-07-22T15:07:30-04:00Jul 22, 2019|Advocacy, Awareness Day|
Rep. Eliot Engel, D-NY-16, serves as the co-chair of the Fragile X Caucus in the U.S. House of Representatives. His co-chair is Rep. Chris Smith, R-NJ-4. To help raise awareness of Fragile X for National Fragile X Awareness Day, Rep. Engel had a statement. Read the full statement here.
South Carolina Fragile Awareness X Day 2019
By Dan Whiting|2019-07-19T11:12:02-04:00Jul 19, 2019|Awareness Day|
Governor Hency McMaster proclaims July 22, 2019 as Fragile X Awareness Day in South Carolina. Read his entire proclamation.
Pack Your Lunch for Fragile X
By Dan Whiting|2019-07-18T18:03:25-04:00Jul 17, 2019|Awareness Day|
July 22 is National Fragile X Awareness Day. Wear green, pack your lunch, and donate your lunch money to the National Fragile X Foundation. And urge your coworkers do to the same!
Behold: The Fragile X Syndrome Burger
By Dan Whiting|2019-07-18T14:22:32-04:00Jul 12, 2019|Awareness Day|
Momma Cherri heard about Jordan’s bell ringing and Fragile X Awareness Month, so she created a Fragile X burger and filmed an episode to educate her viewers about Fragile X syndrome and teach them how to make a Fragile X burger.
South Carolina Fragile X Awareness Day 2018
By Dan Whiting|2019-07-01T14:10:04-04:00Jul 18, 2018|Awareness Day, South Carolina, South Carolina Events|
July 22, 2018 is Fragile X Awareness Day in South Carolina thanks to the Governor's proclamation. A special thank you to NFXF South Carolina Chapter Leaders Roger and Faye Kuperman for their hard [...]
Fragile X Awareness Happens All Year
By Dan Whiting|2018-04-13T09:38:41-04:00Apr 10, 2018|Awareness Day|
Fragile X awareness is a 365-day-a-year job, which is why it is one of our core pillars. But, we set aside July every year as a month to help raise awareness of Fragile X, and [...]
The Many Ways You Raise Fragile X Awareness—Every Day!
By NFXF admin|2017-07-11T11:40:58-04:00Jul 11, 2017|Awareness Day|
[mpc_image preset="preset_2" image="28333" padding_divider="true" padding_css="padding-bottom:15px;" image_size="700_thumb" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100"] Every day when you walk out the door with your child who has Fragile X syndrome (FXS), you are raising awareness of the condition. [...]
Katie Couric and Yahoo News Partner with the NFXF for Fragile X Awareness Month
By NFXF|2015-07-08T10:58:07-04:00Jul 8, 2015|Awareness Day, In the News, Keeping You Informed|
In a report earlier this year, Yahoo News and Katie Couric shared insight on Fragile X and its link to autism and other well-known conditions. In that report, she asked an important question: “If the [...]
The 2015 NFXF Let ‘Em Know 5K!
By NFXF|2015-04-15T13🔞27-04:00Apr 15, 2015|Awareness Day|
Our annual “Let 'Em Know 5K” is coming back - a virtual event that brought together people from all over the country! For the past two years, this event to raise awareness and funds for [...]
You Made Awareness Month Happen!
By NFXF|2014-09-03T08:46:30-04:00Sep 3, 2014|Awareness Day|
Our top Let 'Em Know team, New Jersey Fragile X Community Support Group National Fragile X Awareness Month is a group effort. We prepare each July to unite and keep our communities informed [...]
July 22, 2014: Today is National Fragile X Awareness Day!
By NFXF|2020-06-19T14:55:51-04:00Jul 22, 2014|Awareness Day|
Fragile X Awareness Day (and month) from 2014.
The Garber Family Story
By NFXF|2014-07-03T08:20:10-04:00Jul 3, 2014|Awareness Day, Hope & Inspiration|
In our world of parenting a child with special needs, all you have to do is say “Holland” and everyone knows you are dealing with challenging days and lost dreams. As Emily Perl Kingsley expressed [...]
Let 'Em Know 5k FAQs
By NFXF|2014-06-04T12:17:45-04:00Jun 4, 2014|Awareness Day|
Registration & Rules What is the Difference Between Registering, Joining a Team and Donating? Registering When you register for the NFXF Let ‘Em Know 5k, you: Receive a dry-fit shirt and a race bib. Agree [...]
The 2014 NFXF Let ‘Em Know 5k: It’s Back!
By NFXF|2014-05-19T11:52:45-04:00May 19, 2014|Awareness Day|
Last year, we held our first ever “Let ‘Em Know 5k”, a virtual event that brought together people from all over the country! This July, we want it to be even bigger and better. So [...]