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Rene pictured with his wife and three children

Kara and her two boys at a baseball game

Jessie and her family.

Ilana and Adam, parents of a son with Fragile X syndrome

What is Fragile X video thumbnail.

What is Fragile X? A 90-Second Video

In this 90-second video, we answer the frequently asked question, “What is Fragile X?” by explaining Fragile X Syndrome, the premutation, and its associated conditions, as well as how Fragile X is inherited.

Dr. David Hessl presenting his study on FXTAS and executive functioning in a webinar.

I Have the Fragile X Premutation … Now What?

March 13, 2024

01 hour 00 min

Our panelists share strategies to help manage the risk of developing and treating Fragile X-associated conditions and recommendations for informing and advocating for your healthcare and mental health needs with your providers. This conversation focuses on the individual living with the Fragile X premutation while also recognizing that they may be a multi-generational caregiver within their family.

Three speakers in a Zoom webinar call.

Reproductive Health: Physical and Emotional

September 6, 2023

59 mins

Reproductive health is a broad topic, covering the physical and emotional components of areas like puberty, sexuality, reproductive options, and family planning. These topics can be challenging to cover, but they are important!

Dr. Hagerman speaking at the 18th Fragile X Conference on premutation concerns.

Premutation Concerns and Strategies

January 5, 2023

01 hour 25 mins

Dr. Randi Hagerman discusses the Fragile X-associated conditions and disorders and provides strategies for some of their characteristics.