International Fragile X Conference | NFXF (original) (raw)

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International Fragile X ConferenceDany Petraska2024-07-29T14:06:55-04:00

19th NFXF International Fragile X Conference

The NFXF International Fragile X Conference is the premier educational event for the Fragile X community. This biennial event brings individuals with Fragile X and their families, caregivers, friends, and professionals together to learn from one another and celebrate Fragile X. This unique experience is not only educational but also empowering.

Our Recent Conference Was July 25–28, 2024, in Orlando!

The 19th NFXF International Fragile X Conference on July 25–28, 2024, was held at the Renaissance Sea World in Orlando. More post-conference news will be added soon.

Below you’ll find the agenda, sponsors, and can refer to the table here for information on virtual sessions:

What’s Included for On-Site & Virtual Attendance On-Site Attendance Virtual Attendance
Keynotes ✓ ✓ Live stream***
Industry Updates ✓ ✓ Live stream
Panel Sessions* ✓ ✓ Live stream
Self-Advocate Sessions** ✓
Breakout Sessions ✓ Recording only
Kickoff Reception (Thursday) ✓
Poster Presentations (Friday) ✓ Recording only
Saturday Celebration ✓
Access to Recordings Post-Conference: Keynotes, Industry Updates, Poster Presentations, and Panel and Breakout Sessions ✓ ✓

*Due to the sensitive nature of the content, some sessions will not be recorded.

**Self-advocate sessions cover topics, activities, and strategies to educate and empower self-advocates, encourage connections with other self-advocates and their caregivers, and learn meaningful strategies and skills to implement at home, school, work, and community. Sessions may be interactive including movement, hands-on activities, music, and talking. See the agenda for more.

***Live streams and recordings will be available on the Whova app. Instructions will be provided. Recordings will be available within two weeks after the conference. There will not be any opportunity for virtual attendees to interact with presenters for recorded sessions. Self-Advocate sessions will not be live-streamed or recorded.

REGISTER NOW FOR VIRTUAL ACCESS/RECORDED SESSIONS ↗

19th NFXF International Fragile X Conference Orlando Florida

IMPORTANT DATES

Conference SAVE THE DATE! 20th NFXF International Fragile X Conference

July 16-19, 2026
Louisville, KY

Thank you to our 40th Anniversary Sponsors!

Anonymous (4)
Melissa and Al Blount
Laurie and Will Bridges
Nancy Christensen
Sari Ciment
Jaquelyn Coleman
Joanne Crotty
Jordan Crotty
Jennifer Epstein
Mark Gershensen
Shannon Farruk
Peggy and Mike Flanigan
Kara Frech
Ilana Garber
Randi Hagerman
Stephanie Jacob and John Harrigan
Marcia and Denny Haugen
Susan Howell
Eileene Hutchinson
Lisa and Michael Kelley
Patricia Kennedy
Reymundo Lozano, MD
Emily Mack
Patricia Martin
Carolyn Menzie
Hilary and Drew Rosselot
Rebecca Shaffer, PsyD
Stephanie Sherman
Shari and Brian Silver
Jennifer and Kimball Silverton
Kristin, Riley and Jake Smith
Anne and Jay Souder
Diane and Scott Southard
David Tillman
Melissa Verardi
Victoria Wilkins, MD

Thank You to Our Generous Sponsors

Conference FAQs

Conference locations are chosen years in advance through a competitive proposal process. Our partner helps us select sites that are best suited for the Fragile X community. We will continue to move the conference around the country to manage overall costs.

The NFXF is a bipartisan organization in all things we do.

Sign up for conference updates

Additional Hotel Information

The 2024 conference will be held at Renaissance SeaWorld in Orlando. The hotel is about 18 minutes from Orlando International Airport (MCO). We recommend using a ride-share app or getting a rental car. We have a discounted rate for parking at the hotel.

Please do not reserve more rooms than you anticipate needing. The negotiated room rate is available until the room block is sold out.