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• Understanding Fragile X

  • Fragile X 101
    * Fragile X 101
    * Prevalence
    * Signs and Symptoms
    * Genetics and Inheritance
    * Testing and Diagnosis
  • Fragile X Syndrome
    * Fragile X Syndrome
    * Newly Diagnosed
    * Fragile X & Autism
  • Associated Conditions
    * Premutation
    * FXPOI
    * FXTAS
    * New Developments
  • Xtraordinary Individuals
  • 31 Shareable Fragile X Facts
  • Fragile X Info SeriesFact sheets by topic
  • Fragile X MasterClass™️
  • Knowledge CenterFrequently asked questions.

• Resources for Families

  •  Resources for Families
  • FXS Strategies by Topic
    * Adulthood
    * Autism
    * Behavior
    * COVID-19
    * Daily Living
    * Females
    * Medications
    * Physical & Medical Concerns
    * Puberty & Sexuality
    * School & Education
  • FXS Resources by Age
  • Premutation Topics
    * The Fragile X Premutation
    * FXTAS Resources
    * FXPOI Resources
    * Reproductive Resources
  • Newly Diagnosed
  • ResearchLearn and participate
    * Research 101What is research?
    * STX209 Reconsent ProjectEnrollment is open
    * International Fragile X Premutation Registry — For ParticipantsEnroll now
    * Participate in ResearchMyFXResearch Portal
    * Original Research Articles
    * FORWARD-MARCHDatabase and registry
    * Research ResultsNew and archives
  • Find a Fragile X Clinic
    * U.S. Fragile X Syndrome Clinics
    * FXTAS-Specific Clinics
    * International Clinics & Organizations
  • Find a Contact Near You
  • Knowledge CenterOur Fragile X library
  • Webinars & Videos
  • Printable Resources
  • Treatment Recommendations

• Resources for Professionals

  •  Resources for Professionals
  • NFXF MasterClass™️ for Professionals
  • Research Readiness ProgramResearch facilitation for researchers
  • NFXF Data Repository
  • International Fragile X Premutation Registry — Research Requests
  • FORWARD-MARCHRegistry & Database
  • NFXF-Led PFDD Meeting for Fragile X SyndromePatient-focused drug development
  • Marketing Your Research Opportunities
  • Treatment Recommendations
  • Fragile X Clinics
    * U.S. FXS Clinics
    * FXTAS-Specific Clinics
    * International Clinics & Organizations
  • NFXF RESEARCH AWARDS
    * Randi J. Hagerman Summer Scholar Research Awards
    * Junior Investigator Awards

• Get
  Involved

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  • Other Ways to Give
  • Meet Our Donors_ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _
  • NFXF Merchandise
  • Advocate
  • Fragile X Awareness
  • X Strides

• News & Events

  • Blog
  • Subscribe
  • All Events
  • NFXF Conference

• About Us

  • Mission & Vision
  • Financials & Impact
  • Our Team
  • Our Board
  • Our Advisors
  • Our Sponsors

• Understanding Fragile X

  • Fragile X 101
    * Fragile X 101
    * Prevalence
    * Signs & Symptoms
    * Genetics and Inheritance
    * Testing and Diagnosis
  • Fragile X Syndrome
    * Fragile X Syndrome
    * Fragile X & Autism
  • Associated Conditions
    * Premutation
    * FXPOI
    * FXTAS
    * New Developments
  • Xtraordinary Individuals
  • 31 Shareable Fragile X Facts
  • Fragile X Info Series
  • FRAGILE X MASTERCLASS
  • Knowledge Center

• Resources for Families

  •  Resources for Families
  • FXS Strategies by Topic
    * Adulthood
    * Autism
    * Behavior
    * Daily Living
    * Females
    * Medications
    * Physical & Medical Concerns
    * Fragile X and Puberty & Sexuality
    * School & Education
  • FXS Resources by Age
  • Premutation Topics
    * The Fragile X Premutation
    * FXTAS Resources
    * FXPOI Resources
    * Reproductive Resources
  • Newly Diagnosed
  • Research
    * Research 101: What is Research?
    * STX209 Reconsent Project
    * International Fragile X Premutation Registry — For Participants
    * Participate in Research
    * Original Research Articles
    * FORWARD-MARCH
    * Research Results Roundup
  • Find a Clinic Near You
  • Find a Contact Near Your
  • Knowledge Center
  • Webinars & Videos
  • Printable Resources
  • Treatment Recommendations

• Resources for Professionals

  •  Resources for Professionals
  • NFXF MasterClass™️ for Professionals
  • Research Readiness Program
  • NFXF Data Repository
  • International Fragile X Premutation Registry — Research Requests
  • FORWARD-MARCH Registry & Database
  • NFXF-Led Patient-Focused Drug Development Meeting
  • Marketing Your Research Opportunities
  • Treatment Recommendations
  • Find a Clinic Near You
  • NFXF Research Awards
    * Randi J. Hagerman Summer Scholars
    * Junior Investigator Awards

• Get Involved

  • Donate
  • Give Monthly
  • Other Ways to Give
  • Meet Our Donors
  • NFXF Merchandise
  • Advocate
  • Fragile X Awareness
  • X Strides
  • Participate in Research

• News & Events

  • Blog
  • Subscribe
  • All Events
  • Fragile X Conference

• About Us

  • Mission & Vision
  • Financials & Impact
  • Our Team
  • Our Board
  • Our Advisors
  • Our Sponsors

• Contact Us

• Shop

Sibling & Self-Advocate Network

Sibling & Self-Advocate NetworkNFXF2023-09-18T11:50:25-04:00