International Family Support Network & Clinics | NFXF (original) (raw)

Skip to content

International Family Support Network & Clinics

International Family Support Network & ClinicsNFXF2024-11-11T11:20:41-05:00

Argentina

CENAGEM – Centro Nacional De Genetica Medica

Las Heras 2670 3er Piso Genetica
Buenos Aires

Contact: Miguel Aguirre, MD, Medical
Phone: +54 11 4801-2326
Email: vlotersztein@yahoo.com.ar

Links: Website

Medical Director: Miguel Aguirre, MD
Clinic Coordinator: Vanesa Lotersztein e Isabel Luisa Valencia

Australia

Notes:

Belgium

Brazil

Associação X Fragil do Brasil

Links: Website

Canada

University of British Columbia Sunny Hill Health Centre for Children

Division of Developmental Pediatrics and Provincial Medical Genetics Program

Contact: Dr. Elena Lopez
Phone: +1 604-453-8300

Links: Website

Chile

Corporacion X Fragil De Chile

Division of Developmental Pediatrics and Provincial Medical Genetics Program

Contacts:
Carolina Diaz +56 9 9744 4141
Patricia Vergara+56 9 7856 6770

Email: contacto@xfragil.cl

Links: Website | Facebook

Centro de Diagnostico, Tratamiento y Seguimiento de Pacientes con Síndrome X Frágil (CDTSXF)

INTA University of Chile

Contact: Dr. Ángela Pugin
Phone: +56 9 9997 4676
Email: angelapugin@yahoo.com

Links: Website | Facebook

China

Children’s Hospital of Fudan University

Fragile X Syndrome Clinic
NO.399 Wanyuan Rd, Shanghai, China

Ages Seen: 0-35 years

Clinic Director: Dr. Qiong Xu

Contact: Yiting Zhu, Clinic Coordinator
Email: fudanfxs@163.com
Phone/Scheduling Appointments: 0086-13162365629

Links: Website

WeChat Group

Fragile X syndrome families and doctors in China have established an online WeChat group where they can exchange information and experiences. Please contact Dr. Ying Han to learn about how you can join the group.

Contact: Ying Han, MD, PhD
Email: hanying1568@126.com

Links: WeChat Apps

Colombia

Denmark

Center for Fragile X Syndrome

Rigshospitalet
Department of Clinical Genetics
Blegdamsvej 9
Copenhagen, Denmark
Phone: +45 43 26 01 00

Contact: Dr. Bitten Schönewolf-Greulich
Phone: +45 29 20 48 50
Email: fragiltx.rigshospitalet@regionh.dk

Links: Website

Ecuador

Neurodesarrollo Quito

Elías Sinalín y pasaje privado lote #3
Quito, Ecuador

Clinic Director: Jenniffer Villarreal
Clinic Coordinator: Graciela Oña

Phone: +45 29 20 48 50
Email: neurodesarrolloquito@gmail.com

Links: Website

France

MOSAÏQUES Association des “X Fragile”

Links: Website

Association Nationale Syndrome X Fragile & Maladies Associees

Phone: +33 4 69 67 94 58

Links: Website

Germany

Interessengemeinschaft Fragiles-X e.V.

Contact: Antje Beckert
Phone: +49 381 29642375
Email: gs@frax.de

Links: Website

Netzwerk Fragiles-X am UKT

Contact: Dr. Ulrike Gaiser
Phone: +49 7071 2984734
Email: netzwerk@frax.de

Links: Website

Georgia

Fragile X Center

MediClubGeorgia Medical Center, Tbilisi, Georgia

Medical Director: Dr. Gia Melikishvili
Clinic Coordinator: Dr. Nazhi Tabatadze
Phone: +995 59721444
Email: fragilexsyndromegeorgia@gmail.com

India

Fragile X Society of India

Chairperson: Shalini N. Kedia
Phone: +91 22 6664 2151
Cell: +91 98201 99092
Email: info@fragilex.in

Links: Website

Ummeed Child Development Center

Ground Floor, Mantri Pride 1-B, 1/62, N.M.
Joshi Marg, Subhash Nagar,
Lower Parel, Mumbai 400 011

Medical Director: Dr. Roopa Srinivasan
Clinic Coordinator: Ms. Aditi Jha
Phone: +91 22 6248 8100
Email: aditi.jha@ummeed.org

Links: Website

Indonesia

Center for Developmental Disorder and Autism (CEDIA)/ Center for Biomedical Research (CEBIOR)

Central Laboratory 2nd floor
Genetic Clinic of National Diponegoro University Hospital
Faculty of Medicine Diponegoro University
Prof. Soedarto Street no1, Semarang 50275, Indonesia

Contact: Dr. Agustini Utari
Phone: +62 24 8454714
Email: agustiniutari@gmail.com

Ireland

Israel

Italy

Associazione Italiana Sindrome X-Fragile

Links: Website

Rete Multidisciplinare X Fragile Padova

Università-Azienda ospedaliera di Padova
Via Giustiniani 2, 35128 Padova

Medical Director: Prof. Alessandra Murgia
Clinic Coordinator: Dr. Marco Ricca
Phone: +39 049 821 1430
Email: alessandra.murgia@unipd.it

Links: Website

Ospedale Pediatrico Bambino Gesù

UOC Neuropsichiatria dell’Infanzia e dell’Adolescenza
Viale Ferdinando Baldelli 41, 00146, Roma, Italy

Medical Director: Prof. Stefano Vicari

Clinic Psychologist: Dr. Alice Montanaro
Email: federica.montanaro@opbg.net

Clinic Coordinator: Dr. Paolo Alfieri
Email: paolo.alfieri@opbg.net

Phone: +39 066 859 4721 or +39 066 959 2735

Links: Website

Japan

From Tottori University Research

Link: Website

Lesotho

Mexico

Centro de Investigaciones “Dr. Hideyo Noguchi”

Mérida, Yucatan

Contacts:
Dr. Doris Pinto
Dr. Silvina Contreras
Dr. Zacil Vilchis

Phone: +52 999 593 2994

Links: Website

Star Médica Hospital

Mérida, Yucatan

Contact: Dr. Felix Campos
Phone: +52 999 370 1913
Email: felixcampos@gmail.com

Netherlands

Fragiele X Vereniging Nederland

Parent Support: Hanneke van der Heijden, Secretariat
Phone: +31 6 14332033
Email: info@fragielex.nl

Links: Website

New Zealand

Norway

Foreningen for Fragilt X-Syndrom

Links: Website

Philippines

Ateneo Autism Study Group

Ateneo School of Medicine and Public Health — Center for Research and Innovations
Frontera Verde, Ortigas Avenue, Pasig City, Philippines
Don Eugenio Lopez Sr. Medical Complex
Ortigas Avenue, Pasig City

Phone: +632 8706 3086
Email: aasg.asmph@ateneo.edu

Links: Website | Facebook

Poland

Portugal

Associacão Portuguesa da Síndrome do X Frágil

Contact: Maria Manuel Parrinha
Phone: +351 21 456 2190
Cell: +351 967 271 404
Email: geral@apsxf.org

Links: Website | Facebook

Russia

Serbia

South Africa

Spain

Spanish Federation of Fragile X Syndrome

The Spanish Federation of Fragile X Syndrome is composed of multiple associations throughout the country.

Links: Website

Associació Catalana Síndrome X Fràgil

Links: Website

Consulta de Genética Clínica

Hospital Clínico Universitario “Lozano Blesa” de Zaragoza

Contact: Dr. Feliciano J. Ramos
Phone: +34 976 55 64 00 Ext. x4041
Email: framos@unizar.es

Links: Website

Regional University Hospital of Malaga

Psychiatric or Neuropediatric Service

UGC Salud Mental
Laboratorio de Investigación
Pabellon 6 sot. Hospital Civil
29009 Málaga
Spain

Medical Directors:
Dr. Lucía Pérez-Costillas, Psychiatrist
Dr. Rocío Calvo-Medina, Neuropediatrician

Clinic Coordinator: Yolanda de Diego-Otero, Geneticist

Email:
ydediego@yahoo.es
rrro@hotmail.com

Phone: +34 658 14 60 62

Links: Website

Corporació Sanitaria Parc Taulí (Parc Tauli Hospital)

Rare Diseases Department, Fragile X Syndrome Unit

Pza. Parc Taulí, 1
Sabadell
Barcelona, Spain

Medical Director & Clinic Coordinator: Dr. Ana Roche
Phone: +34 699 83 35 11 Ext. 21290 or +34 937 23 10 10 Ext. 21003
Email: ana.roche.mar@gmail.com

Links: Website

Sri Lanka

Children’s Discovery House

Occupational therapy and other services for children with special needs.

No. 651/25, Elvitigala Mawatha
Colombo 00500, Sri Lanka

Phone: +94 11 236 9713
Email: info@cdhcolombo.com

Links: Website

Switzerland

Turkey

Kanuni Eğitim Araştırma Hastanesi/ Trabzon

Training Hospital of Ministry of Health

Contact: Dr. Onur Dursun
Email: onurburak007@yahoo.com

Links: Website

United Kingdom

United States

National Fragile X Foundation (NFXF)

1012 14th St. NW
Suite 500, Washington, DC 20005
(800) 688-8765

Phone: +1 800-688-8765
Email: contact@fragilex.org

Links: Website | Facebook

Fragile X Clinical & Research Consortium (FXCRC)

Links: Website

Uruguay

Asociacion X Fragil del Uruguay

Links: Facebook