Tracy Stackhouse Speaks to Fragile X Caregivers (original) (raw)

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• Understanding Fragile X

  • Fragile X 101
    * Fragile X 101
    * Prevalence
    * Signs & Symptoms
    * Genetics and Inheritance
    * Testing and Diagnosis
  • Fragile X Syndrome
    * Fragile X Syndrome
    * Fragile X & Autism
  • Associated Conditions
    * Premutation
    * FXPOI
    * FXTAS
    * New Developments
  • Xtraordinary Individuals
  • 31 Shareable Fragile X Facts
  • Fragile X Info Series
  • FRAGILE X MASTERCLASS
  • Knowledge Center

• Resources for Families

  •  Resources for Families
  • FXS Strategies by Topic
    * Adulthood
    * Autism
    * Behavior
    * Daily Living
    * Females
    * Medications
    * Physical & Medical Concerns
    * Fragile X and Puberty & Sexuality
    * School & Education
  • FXS Resources by Age
  • Premutation Topics
    * The Fragile X Premutation
    * FXTAS Resources
    * FXPOI Resources
    * Reproductive Resources
  • Newly Diagnosed
  • Research
    * Research 101: What is Research?
    * STX209 Reconsent Project
    * International Fragile X Premutation Registry — For Participants
    * Participate in Research
    * Original Research Articles
    * FORWARD-MARCH
    * Research Results Roundup
  • Find a Clinic Near You
  • Find a Contact Near Your
  • Knowledge Center
  • Webinars & Videos
  • Printable Resources
  • Treatment Recommendations

• Resources for Professionals

  •  Resources for Professionals
  • NFXF MasterClass™️ for Professionals
  • Research Readiness Program
  • NFXF Data Repository
  • International Fragile X Premutation Registry — Research Requests
  • FORWARD-MARCH Registry & Database
  • NFXF-Led Patient-Focused Drug Development Meeting
  • Marketing Your Research Opportunities
  • Treatment Recommendations
  • Find a Clinic Near You
  • NFXF Research Awards
    * Randi J. Hagerman Summer Scholars
    * Junior Investigator Awards

• Get Involved

  • Donate
  • Give Monthly
  • Other Ways to Give
  • Meet Our Donors
  • NFXF Merchandise
  • Advocate
  • Fragile X Awareness
  • X Strides
  • Participate in Research

• News & Events

  • Blog
  • Subscribe
  • All Events
  • Fragile X Conference

• About Us

  • Mission & Vision
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  • Our Board
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Advancing Our Understanding and Future Treatment of FXTAS — Webinar

Presented by Deborah Hall, Maureen Leehey, Peter Todd, and Nancy Hertzig

An expert panel discusses FXTAS, which occurs in premutation carrier men and women when they are over the age of 55. It is associated with tremors, balance problems, and other neurological signs. The expert panel answers questions from caregivers, clinicians, researchers, and of course FXTAS patients.

Presenters: Deborah Hall, Maureen Leehey, Peter Todd, and Nancy Hertzig
Moderator: Robby MillerRuntime: 1:06:47