Common Behaviors and Available Treatments Across the Lifespan — Presentation | NFXF (original) (raw)
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- Fragile X 101
* Fragile X 101
* Prevalence
* Signs & Symptoms
* Genetics and Inheritance
* Testing and Diagnosis - Fragile X Syndrome
* Fragile X Syndrome
* Fragile X & Autism - Associated Conditions
* Premutation
* FXPOI
* FXTAS
* New Developments - Xtraordinary Individuals
- 31 Shareable Fragile X Facts
- Fragile X Info Series
- FRAGILE X MASTERCLASS
- Knowledge Center
- Fragile X 101
-
- Resources for Families
- FXS Strategies by Topic
* Adulthood
* Autism
* Behavior
* Daily Living
* Females
* Medications
* Physical & Medical Concerns
* Fragile X and Puberty & Sexuality
* School & Education - FXS Resources by Age
- Premutation Topics
* The Fragile X Premutation
* FXTAS Resources
* FXPOI Resources
* Reproductive Resources - Newly Diagnosed
- Research
* Research 101: What is Research?
* STX209 Reconsent Project
* International Fragile X Premutation Registry — For Participants
* Participate in Research
* Original Research Articles
* FORWARD-MARCH
* Research Results Roundup - Find a Clinic Near You
- Find a Contact Near Your
- Knowledge Center
- Webinars & Videos
- Printable Resources
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- Resources for Professionals
- NFXF MasterClass™️ for Professionals
- Research Readiness Program
- NFXF Data Repository
- International Fragile X Premutation Registry — Research Requests
- FORWARD-MARCH Registry & Database
- NFXF-Led Patient-Focused Drug Development Meeting
- Marketing Your Research Opportunities
- Treatment Recommendations
- Find a Clinic Near You
- NFXF Research Awards
* Randi J. Hagerman Summer Scholars
* Junior Investigator Awards
Common Behaviors and Available Treatments Across the Lifespan — Presentation
Presented by Debra Reisinger, MD
Individuals with Fragile X syndrome (FXS) can experience a variety of symptoms and behavioral challenges that change across development. This presentation highlights how to recognize behavioral challenges in FXS and the most common behavioral difficulties and treatment options at each developmental stage. Specific tips are shared that families can easily implement with their children or adolescents.
Additional resources and controls for this video are accessible just below the video: Play/pause, volume, subtitles, view transcript, watch as picture-in-picture, or in fullscreen mode.
About the Speaker
Debra Reisinger, PhD
Assistant Professor of Clinical Pediatrics, Indiana University School of Medicine
Dr. Reisinger is a clinical psychologist at Indiana University School of Medicine and Riley Hospital for Children. She completed her postdoctoral training at Cincinnati Children’s Hospital Medical Center and the Cincinnati Fragile X Treatment and Research Center. She has been involved in assessment, treatment, and research in FXS for the past decade. Dr. Shaffer is the director of psychological services at the Cincinnati Fragile X Treatment and Research Center. She provides psychological assessment and behavioral treatment to a wide age range of individuals with FXS and carriers. She also conducts research and provides assessments for research studies focused on FXS.
Additional Resources
Behavior & Fragile X Syndrome
When discussing Fragile X syndrome and behavior, it is important to note that — like every person — the focus should be on the individual. Many behaviors are positive, and it is those behaviors you will see most often in addition to challenging behaviors. Behavior problems serve a purpose (or a function) and are often a form of communication. Addressing behavioral challenges in an individual with FXS should start with a comprehensive evaluation. A proactive approach with appropriate support and accommodations will likely foster positive outcomes and set up the individual with FXS to succeed in their home, school, or community.