Experts Discuss Education Strategies for Fragile X Syndrome — Panel | NFXF (original) (raw)
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- Fragile X 101
* Fragile X 101
* Prevalence
* Signs & Symptoms
* Genetics and Inheritance
* Testing and Diagnosis - Fragile X Syndrome
* Fragile X Syndrome
* Fragile X & Autism - Associated Conditions
* Premutation
* FXPOI
* FXTAS
* New Developments - Xtraordinary Individuals
- 31 Shareable Fragile X Facts
- Fragile X Info Series
- FRAGILE X MASTERCLASS
- Knowledge Center
- Fragile X 101
-
- Resources for Families
- FXS Strategies by Topic
* Adulthood
* Autism
* Behavior
* Daily Living
* Females
* Medications
* Physical & Medical Concerns
* Fragile X and Puberty & Sexuality
* School & Education - FXS Resources by Age
- Premutation Topics
* The Fragile X Premutation
* FXTAS Resources
* FXPOI Resources
* Reproductive Resources - Newly Diagnosed
- Research
* Research 101: What is Research?
* STX209 Reconsent Project
* International Fragile X Premutation Registry — For Participants
* Participate in Research
* Original Research Articles
* FORWARD-MARCH
* Research Results Roundup - Find a Clinic Near You
- Find a Contact Near Your
- Knowledge Center
- Webinars & Videos
- Printable Resources
- Treatment Recommendations
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- Resources for Professionals
- NFXF MasterClass™️ for Professionals
- Research Readiness Program
- NFXF Data Repository
- International Fragile X Premutation Registry — Research Requests
- FORWARD-MARCH Registry & Database
- NFXF-Led Patient-Focused Drug Development Meeting
- Marketing Your Research Opportunities
- Treatment Recommendations
- Find a Clinic Near You
- NFXF Research Awards
* Randi J. Hagerman Summer Scholars
* Junior Investigator Awards
Experts Discuss Education Strategies for Fragile X Syndrome — Panel
Moderated by Linda Sorensen, featuring Tracy Murnan Stackhouse, MA, OTR/L, and Anne Hoffmann, PhD, CCC-SLP.
Runtime: 0:53:36
Additional resources and controls for this video are accessible just below the video: Play/pause, volume, subtitles, view transcript, watch as picture-in-picture, or in fullscreen mode.
About the Speaker
Linda Sorensen
Conference Director, former Executive Director at National Fragile X Foundation
Linda has been a member of the NFXF team since 2004, and served as executive director from 2004 to 2022. She has over 25 years of experience in non-profit programs, operations management, board and volunteer development. She earned a bachelor’s degree in Psychology and a masters in Adult Education and Organizational Development. She loves the company of her family and friends and enjoys golf, along with entertaining, traveling, and reading great books.
Tracy Murnan Stackhouse, MA, OTR/L
Executive Director, Co-Founder and Occupational Therapist
Tracy Murnan Stackhouse, MA, OTR is co-founder of the Developmental FX in Denver, Colorado. She is a leading pediatric occupational therapist (OT) involved in clinical treatment, research, mentoring, and training regarding OT intervention for persons with neurodevelopmental disorders, especially Fragile X Syndrome and autism. Tracy has a master’s degree in developmental psychology/neuroscience. She received her NDT training with Lois Bly. She is SIPT Certified and was the clinical specialist in sensory integration at The Children’s Hospital in Denver as well as the OT for the Fragile X Research and Treatment Center. Tracy continued her clinical and research work with Dr. Randi Hagerman at the UC Davis M.I.N.D. Institute during its start-up year prior to starting Developmental FX. Tracy has written several book chapters on sensory integration and neurodevelopmental disorders, and teaches nationally and internationally on sensory integration, autism, fragile X and related topics.She is the lead author for the SpIRiT & S.T.E.P.S.I. Clinical Reasoning Tools which are leading-edge evidence-based models in pediatric OT. Tracy is a member of the National Fragile X Foundation Clinical Research Consortium, the Scientific And Clinical Advisory Committee, and the NFXF Advisory Council.
Anne Hoffmann, PhD, CCC-SLP.
Assistant Professor & Speech-Language Pathologist at Rush University Medical Center
Anne Hoffmann, PhD, CCC-SLP, is an assistant professor and speech-language pathologist in the Communication Disorders & Sciences, and Pediatrics departments at Rush University. Her research examines language and social communication development in individuals with neurodevelopmental disorders, especially Fragile X syndrome. Her teaching and clinical interests focus on pediatric speech and language disorders. Hoffmann completed her doctoral work at The Ohio State University and then completed her post-doctoral position in pediatrics at Rush University.
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