Tracy Stackhouse Speaks to Fragile X Caregivers (original) (raw)

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• Understanding Fragile X

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• Understanding Fragile X

  • Fragile X 101
    * Fragile X 101
    * Prevalence
    * Signs & Symptoms
    * Genetics and Inheritance
    * Testing and Diagnosis
  • Fragile X Syndrome
    * Fragile X Syndrome
    * Fragile X & Autism
  • Associated Conditions
    * Premutation
    * FXPOI
    * FXTAS
    * New Developments
  • Xtraordinary Individuals
  • 31 Shareable Fragile X Facts
  • Fragile X Info Series
  • FRAGILE X MASTERCLASS
  • Knowledge Center

• Resources for Families

  •  Resources for Families
  • FXS Strategies by Topic
    * Adulthood
    * Autism
    * Behavior
    * Daily Living
    * Females
    * Medications
    * Physical & Medical Concerns
    * Fragile X and Puberty & Sexuality
    * School & Education
  • FXS Resources by Age
  • Premutation Topics
    * The Fragile X Premutation
    * FXTAS Resources
    * FXPOI Resources
    * Reproductive Resources
  • Newly Diagnosed
  • Research
    * Research 101: What is Research?
    * STX209 Reconsent Project
    * International Fragile X Premutation Registry — For Participants
    * Participate in Research
    * Original Research Articles
    * FORWARD-MARCH
    * Research Results Roundup
  • Find a Clinic Near You
  • Find a Contact Near Your
  • Knowledge Center
  • Webinars & Videos
  • Printable Resources
  • Treatment Recommendations

• Resources for Professionals

  •  Resources for Professionals
  • NFXF MasterClass™️ for Professionals
  • Research Readiness Program
  • NFXF Data Repository
  • International Fragile X Premutation Registry — Research Requests
  • FORWARD-MARCH Registry & Database
  • NFXF-Led Patient-Focused Drug Development Meeting
  • Marketing Your Research Opportunities
  • Treatment Recommendations
  • Find a Clinic Near You
  • NFXF Research Awards
    * Randi J. Hagerman Summer Scholars
    * Junior Investigator Awards

• Get Involved

  • Donate
  • Give Monthly
  • Other Ways to Give
  • Meet Our Donors
  • NFXF Merchandise
  • Advocate
  • Fragile X Awareness
  • X Strides
  • Participate in Research

• News & Events

  • Blog
  • Subscribe
  • All Events
  • Fragile X Conference

• About Us

  • Mission & Vision
  • Financials & Impact
  • Our Team
  • Our Board
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The How Toʼs of Sensory Diets in Fragile X Syndrome — Webinar

author

Tracy Murnan Stackhouse, MA, OTR
Tracy Murnan Stackhouse is the co-founder of Developmental FX in Denver. She is a leading pediatric occupational therapist involved in clinical treatment, research, mentoring, and training regarding OT intervention for persons with neurodevelopmental disorders, especially Fragile X syndrome and autism. Tracy teaches nationally and internationally on sensory integration, autism, and Fragile X. Tracy is a member of the National Fragile X Foundation Clinical Research Consortium, the Scientific & Clinical Advisory Committee, and the NFXF Advisory Council.

MORE COVID-19 RESOURCES

Jayne Dixon Weber2021-09-30T11:23:43-04:00

Let the Awareness Continue!

It looks like in many places we're back to wearing masks, or will be soon. Our family has pulled out all our favorite masks and getting used to them all over again.