Reproductive and Gynecologic Care for Women with an FX Premutation (original) (raw)
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- Fragile X 101
* Fragile X 101
* Prevalence
* Signs & Symptoms
* Genetics and Inheritance
* Testing and Diagnosis - Fragile X Syndrome
* Fragile X Syndrome
* Fragile X & Autism - Associated Conditions
* Premutation
* FXPOI
* FXTAS
* New Developments - Xtraordinary Individuals
- 31 Shareable Fragile X Facts
- Fragile X Info Series
- FRAGILE X MASTERCLASS
- Knowledge Center
- Fragile X 101
-
- Resources for Families
- FXS Strategies by Topic
* Adulthood
* Autism
* Behavior
* Daily Living
* Females
* Medications
* Physical & Medical Concerns
* Fragile X and Puberty & Sexuality
* School & Education - FXS Resources by Age
- Premutation Topics
* The Fragile X Premutation
* FXTAS Resources
* FXPOI Resources
* Reproductive Resources - Newly Diagnosed
- Research
* Research 101: What is Research?
* STX209 Reconsent Project
* International Fragile X Premutation Registry — For Participants
* Participate in Research
* Original Research Articles
* FORWARD-MARCH
* Research Results Roundup - Find a Clinic Near You
- Find a Contact Near Your
- Knowledge Center
- Webinars & Videos
- Printable Resources
- Treatment Recommendations
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- Resources for Professionals
- NFXF MasterClass™️ for Professionals
- Research Readiness Program
- NFXF Data Repository
- International Fragile X Premutation Registry — Research Requests
- FORWARD-MARCH Registry & Database
- NFXF-Led Patient-Focused Drug Development Meeting
- Marketing Your Research Opportunities
- Treatment Recommendations
- Find a Clinic Near You
- NFXF Research Awards
* Randi J. Hagerman Summer Scholars
* Junior Investigator Awards
Reproductive and Gynecologic Care for Women with the Fragile X Premutation — Presentation
With Heather Hipp, Jennifer Barber, and Keiko Mathewson
Heather Hipp, Jennifer Barber, and Keiko Mathewson discuss their recommendations for women at high risk to consider earlier childbearing or methods of fertility preservation, such as egg (oocyte) or embryo freezing. If they decide to have children, they can spontaneously conceive and, if desired, pursue prenatal testing for the Fragile X mutation with chorionic villus sampling or amniocentesis.
Women can also undergo in-vitro fertilization with pre-implantation genetic testing on their embryos if they do not want to pass on the mutation to a child.
Presenters: Heather Hipp, Jennifer Barber, and Keiko Mathewson
Moderator: Jayne Dixon-Weber
Runtime: 1:21:26
Women with a premutation of Fragile X have a 20% risk of developing Fragile X-associated primary ovarian insufficiency, or FXPOI. Women with FXPOI struggle with infertility and the health effects of early onset ovarian insufficiency, including hot flushes, night sweats, and risks of osteoporosis. Many women do not receive adequate hormone replacement therapy, which has been shown to be protective against these risks.
For women who are carriers and are still having menstrual cycles, there is information that CGG repeat length and history of tobacco use can help predict the risk of FXPOI. Ovarian reserve markers, such as AMH, are also often used, though these have not been validated in young women with the premutation.