Tracy Stackhouse Speaks to Fragile X Caregivers (original) (raw)

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• Understanding Fragile X

  • Fragile X 101
    * Fragile X 101
    * Prevalence
    * Signs and Symptoms
    * Genetics and Inheritance
    * Testing and Diagnosis
  • Fragile X Syndrome
    * Fragile X Syndrome
    * Newly Diagnosed
    * Fragile X & Autism
  • Associated Conditions
    * Premutation
    * FXPOI
    * FXTAS
    * New Developments
  • Xtraordinary Individuals
  • 31 Shareable Fragile X Facts
  • Fragile X Info SeriesFact sheets by topic
  • Fragile X MasterClass™️
  • Knowledge CenterFrequently asked questions.

• Resources for Families

  •  Resources for Families
  • FXS Strategies by Topic
    * Adulthood
    * Autism
    * Behavior
    * COVID-19
    * Daily Living
    * Females
    * Medications
    * Physical & Medical Concerns
    * Puberty & Sexuality
    * School & Education
  • FXS Resources by Age
  • Premutation Topics
    * The Fragile X Premutation
    * FXTAS Resources
    * FXPOI Resources
    * Reproductive Resources
  • Newly Diagnosed
  • ResearchLearn and participate
    * Research 101What is research?
    * STX209 Reconsent ProjectEnrollment is open
    * International Fragile X Premutation Registry — For ParticipantsEnroll now
    * Participate in ResearchMyFXResearch Portal
    * Original Research Articles
    * FORWARD-MARCHDatabase and registry
    * Research ResultsNew and archives
  • Find a Fragile X Clinic
    * U.S. Fragile X Syndrome Clinics
    * FXTAS-Specific Clinics
    * International Clinics & Organizations
  • Find a Contact Near You
  • Knowledge CenterOur Fragile X library
  • Webinars & Videos
  • Printable Resources
  • Treatment Recommendations

• Resources for Professionals

  •  Resources for Professionals
  • NFXF MasterClass™️ for Professionals
  • Research Readiness ProgramResearch facilitation for researchers
  • NFXF Data Repository
  • International Fragile X Premutation Registry — Research Requests
  • FORWARD-MARCHRegistry & Database
  • NFXF-Led PFDD Meeting for Fragile X SyndromePatient-focused drug development
  • Marketing Your Research Opportunities
  • Treatment Recommendations
  • Fragile X Clinics
    * U.S. FXS Clinics
    * FXTAS-Specific Clinics
    * International Clinics & Organizations
  • NFXF RESEARCH AWARDS
    * Randi J. Hagerman Summer Scholar Research Awards
    * Junior Investigator Awards

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  Involved

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  • Other Ways to Give
  • Meet Our Donors_ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _
  • NFXF Merchandise
  • Advocate
  • Fragile X Awareness
  • X Strides

• News & Events

  • Blog
  • Subscribe
  • All Events
  • NFXF Conference

• About Us

  • Mission & Vision
  • Financials & Impact
  • Our Team
  • Our Board
  • Our Advisors
  • Our Sponsors

• Understanding Fragile X

  • Fragile X 101
    * Fragile X 101
    * Prevalence
    * Signs & Symptoms
    * Genetics and Inheritance
    * Testing and Diagnosis
  • Fragile X Syndrome
    * Fragile X Syndrome
    * Fragile X & Autism
  • Associated Conditions
    * Premutation
    * FXPOI
    * FXTAS
    * New Developments
  • Xtraordinary Individuals
  • 31 Shareable Fragile X Facts
  • Fragile X Info Series
  • FRAGILE X MASTERCLASS
  • Knowledge Center

• Resources for Families

  •  Resources for Families
  • FXS Strategies by Topic
    * Adulthood
    * Autism
    * Behavior
    * Daily Living
    * Females
    * Medications
    * Physical & Medical Concerns
    * Fragile X and Puberty & Sexuality
    * School & Education
  • FXS Resources by Age
  • Premutation Topics
    * The Fragile X Premutation
    * FXTAS Resources
    * FXPOI Resources
    * Reproductive Resources
  • Newly Diagnosed
  • Research
    * Research 101: What is Research?
    * STX209 Reconsent Project
    * International Fragile X Premutation Registry — For Participants
    * Participate in Research
    * Original Research Articles
    * FORWARD-MARCH
    * Research Results Roundup
  • Find a Clinic Near You
  • Find a Contact Near Your
  • Knowledge Center
  • Webinars & Videos
  • Printable Resources
  • Treatment Recommendations

• Resources for Professionals

  •  Resources for Professionals
  • NFXF MasterClass™️ for Professionals
  • Research Readiness Program
  • NFXF Data Repository
  • International Fragile X Premutation Registry — Research Requests
  • FORWARD-MARCH Registry & Database
  • NFXF-Led Patient-Focused Drug Development Meeting
  • Marketing Your Research Opportunities
  • Treatment Recommendations
  • Find a Clinic Near You
  • NFXF Research Awards
    * Randi J. Hagerman Summer Scholars
    * Junior Investigator Awards

• Get Involved

  • Donate
  • Give Monthly
  • Other Ways to Give
  • Meet Our Donors
  • NFXF Merchandise
  • Advocate
  • Fragile X Awareness
  • X Strides
  • Participate in Research

• News & Events

  • Blog
  • Subscribe
  • All Events
  • Fragile X Conference

• About Us

  • Mission & Vision
  • Financials & Impact
  • Our Team
  • Our Board
  • Our Advisors
  • Our Sponsors

• Contact Us

• Shop

The Genetics of Fragile X Disorders

With Brenda Finucane, MS, CGC

Many thanks to Brenda for her webinar to help each of us understand the genetics of Fragile X. You may also be interested in some of our other resources on genetics, including Genetics & Inheritance and Testing and Diagnosis.

Presenter: Brenda Finucane
Moderator: Jayne Dixon-Weber
Runtime: 1:03:16

Use the Chapters tool to find specific ↑ sections.

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