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Fragile X-Associated Primary Ovarian Insufficiency

June 27, 2025

01 hour 01 min

Panelists, Dr. Emily Allen, Dr. Heather Hipp, and Cecilia Bouska, shared their expertise on a range of important topics on FXPOI, including diagnostic criteria, how to communicate concerns with your healthcare provider, and treatment options tailored to individual needs.

Jessie and her family.

Ilana and Adam, parents of a son with Fragile X syndrome

Rene pictured with his wife and three children

Kara and her two boys at a baseball game

Genetics of Fragile X

April 9, 2025

01 hour 06 mins

A panel of genetics professionals covers a wide range of topics, highlighting the complexity of Fragile X genetics and emphasizing the critical role of a genetic counselor as part of your healthcare team, providing valuable guidance throughout the entire process.

What is Fragile X video thumbnail.

What is Fragile X? A 90-Second Video

In this 90-second video, we answer the frequently asked question, “What is Fragile X?” by explaining Fragile X Syndrome, the premutation, and its associated conditions, as well as how Fragile X is inherited.