The Endometriosis Foundation | HealthUnlocked (original) (raw)

out of options to try- please send recommendations hi everyone, posting in this forum today because after seeing countless doctors and getting no answers on what might be going on- I went on a rabbit hole to...hi everyone, posting in this forum today because after seeing countless doctors...

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Agarules

•6 days ago

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out of options to try- please send recommendations hi everyone, posting in this forum today because after seeing countless doctors and getting no answers on what might be going on- I went on a rabbit hole to...hi everyone, posting in this forum today because after seeing countless doctors...

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Agarules

•6 days ago

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Hypogastric Nerve ResectionHi all, I had my left hypogastric nerve partially resected in july as it was fully invaded with endo. Has anyone else had this?? Did you have urinary and bowel...Hi all, I had my left hypogastric nerve partially resected in july as it was ful...

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NevBean

•13 days ago

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1st lap endometriosis 2nd lap no endo help???Haa anyone had same experience as me? I'm feeling lost upset confussed. A year ago I was diagnosed with endometriosis /adenomyosis and pcos I had lost my job...Haa anyone had same experience as me? I'm feeling lost upset confussed. A year a...

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Confussedpenguin101

•30 days ago

1 Reply

Preparing for IVF - endometriosis and potential APSI've been preparing to begin IVF treatment, doing blood tests etc. One of my blood tests came back positive for beta-2 glycoprotein IgM antibodies, which may...I've been preparing to begin IVF treatment, doing blood tests etc. One of my blo...

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JC222

•1 month ago

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Creative therapy group workshops useful to connect and not be isolated I’ve had endo my whole life and like most of us here struggled to feel heard,validated and respected. Waiting fir past two years now for a hysterectomy as...I’ve had endo my whole life and like most of us here struggled to feel heard,val...

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Livingthedream22

•1 month ago

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how to support my partner with EndoHi everyone, I hope you are all well or as well as can be- my partner suffers really badly with pain and heavy bleeding and it’s horrible for her and I hate...Hi everyone, I hope you are all well or as well as can be- my partner suffers r...

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Sryan11

•1 month ago

1 Reply

Help please Hello :) I find myself here after not really knowing where to go. I have a very long story and I’m grateful if anyone has any advice or tips for me. I’m a...Hello :) I find myself here after not really knowing where to go. I have a very...

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Xoxo__

•1 month ago

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specialists nurse for endometriosis has anyone ever seen a specialists nurse for endometriosis and do they helphas anyone ever seen a specialists nurse for endometriosis and do they help

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Frankatele299

•2 months ago

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Yoga for EndometriosisHi all, So happy to find this support forum! I want to share with you a yoga series I’ll be teaching this fall called "Yoga for Endometriosis.” Over the...Hi all, So happy to find this support forum! I want to share with you a yoga se...

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skspanther

•2 months ago

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dizziness and nausea without pain?Hey So I’ve been having a terrible time forever with my cycle but particularly the last year since I had my little boy. I’ve always suspected endo but before...Hey So I’ve been having a terrible time forever with my cycle but particularly ...

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RGEB

•2 months ago

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Collaboration on Endometriosis Care Pathway ProjectHi everyone, My name is Alaina Zubair, and I am currently pursuing an MSc in Healthcare and Design at Imperial College London. As an endometriosis patient...Hi everyone, My name is Alaina Zubair, and I am currently pursuing an MSc in ...

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Alainazubair

•3 months ago

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Fatigue and Ednometriosis and AdenmyosisI was wondering what peoples experiences were with fatigue and Endo and Adeno. I have always been a tired person but sometimes my fatigue is so bad I can...I was wondering what peoples experiences were with fatigue and Endo and Adeno. I...

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SmallTalk

•3 months ago

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End Of My RopeHi ladies ; i am coming to the end of my hope rope and just have no idea what to do here. i was diagnosed with Endo in 2022, spread to my colon, bowel,...Hi ladies ; i am coming to the end of my hope rope and just have no idea what to...

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malsmarie

•3 months ago

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Laparoscopic Surgery poss endo Hi, i am going in for laparoscopic surgery in a couple of weeks time for poss endo excision. Does anyone have an tips for rexovery etc? Ive not have...Hi, i am going in for laparoscopic surgery in a couple of weeks time for poss...

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Loulabelle1709

•4 months ago

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SurgeryHi ladies I'm going to see my gynaecologist 29th April to speak about surgery but I'm telling him I want a hysterectomy I've done everything els e.g...Hi ladies I'm going to see my gynaecologist 29th April to speak about surgery bu...

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Mammyof2gals

•7 months ago

1 Reply

Help!Hi I'm 34 with endometriosis on the pelvis and also been told my ovaries are stuck to the back of my womb. I've had my tubes tied for 7 years(bad pregnancys)...Hi I'm 34 with endometriosis on the pelvis and also been told my ovaries are stu...

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Mammyof2gals

•7 months ago

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Endo diagnosis I had an appointment with a specialist recently and I expressed the desire to have diagnostic laparoscopy for endometriosis. The specialist recommended that I...I had an appointment with a specialist recently and I expressed the desire to ha...

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Tigerlily34

•7 months ago

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query?hi all, I had an internal ultrasound which showed my ovary was stuck to my uterus so they said that it was possible endometriosis. They referred me for a...hi all, I had an internal ultrasound which showed my ovary was stuck to my ut...

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Efuller

•8 months ago

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endo help, don’t know what to do.O have suffered with what I was told was ibs since my teens. I was diagnosed with endo a few years ago after they removed a 14cm cyst and found endo on my...O have suffered with what I was told was ibs since my teens. I was diagnosed wit...

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Saharnia

•8 months ago

1 Reply

Tips for explaining chronic pain to family? Hello all, I’ve been taking painkillers longterm for my chronic pelvic pain while I’ve waited for and recovered from procedures, and now while I wait for...Hello all, I’ve been taking painkillers longterm for my chronic pelvic pain whi...

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Orange8

•9 months ago

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A bit late for me but...A bit late for me as I am a woman who has just passed her 60 years milestone, but I wanted to share my experience anyway. I dont think it will be news to...A bit late for me as I am a woman who has just passed her 60 years milestone, b...

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Larscamp

•9 months ago

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Endo surgery with tight pelvic floor muscles/nerve pain?Hello all, I’m new here (recently clinically diagnosed with endometriosis after years of pain, and increased daily pelvic pain in the last 2.5 years.) I’m...Hello all, I’m new here (recently clinically diagnosed with endometriosis after...

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Orange8

•10 months ago

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endo and reoccurrent miscarriages Hi all, I had a laparoscopy last week, I was lucky as it was only one month after suspecting I could have endo. Although I think it was the cause of my 6...Hi all, I had a laparoscopy last week, I was lucky as it was only one month af...

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Olive8000

•10 months ago

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pain management Hi all I had a full hysterectomy in February this year & endometriosis has already come back & is also on my bowel & bladder. I’ve taken so many meds & I’m...Hi all I had a full hysterectomy in February this year & endometriosis has alrea...

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Penguin20_23

•11 months ago

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Vaginal tightness and spasmsHey there. I was diagnosed with endo about a month and a half ago. I'm 28 years old and have been married for almost five years. Sexual intimacy is painful....Hey there. I was diagnosed with endo about a month and a half ago. I'm 28 years...

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ChicaPica

•11 months ago

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My idea to easily diagnose endometriosis from homeHi everyone, my name is Ellen Hutton. I am a current Biomedical Science student currently working on a university project to develop a business plan. My idea...Hi everyone, my name is Ellen Hutton. I am a current Biomedical Science student ...

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ellenhutton

•1 year ago

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Pain so severe contemplating leaving workHiya, I just wanted to share my issues and see if anyone is going through, been through the same and has any advice. I am currently struggling with my endo...Hiya, I just wanted to share my issues and see if anyone is going through, been...

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Rwby_Rose

•1 year ago

1 Reply

Seeking support (Waiting for docs appt. to have further testing for Endo etc.Hi everyone, I have not been officially diagnosed with Endo yet but my doctor at the end of my pregnancy said it was a possibility due to some...Hi everyone, I have not been officially diagnosed with Endo yet but my doctor a...

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benevolentsj

•1 year ago

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endometriosis hello everyone for the past 10 years I’ve suffered from intense periods,full body pain, headaches, nausea, extreme fatigue and stomach pains. Last week I...hello everyone for the past 10 years I’ve suffered from intense periods,full b...

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heatherthornton578

•1 year ago

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