European Network for Ichthyosis – International patients network run by national European patients associations (original) (raw)

Who we are

The European Network for Ichthyosis, eni, is an international patients network run by national European patients associations.

eni is a common voice for ichthyosis patients and a partner for authorities on a European level.

Our work on joint activities is enabled by a mailing list permitting discussions, the exchange of experiences and ideas.

All European Ichthyosis patients associations are cordially invited to join eni, to present themselves on the eni web-site and to develop joint activities.

Our team and members

Eni is governed by a volunteer team of the local ichthyosis associations. The members are chosen each two years and they represent the different nationalities integrated in eni.

President
Mandy Aldwin-Easton
UK

Vice-president
Karin Veldman
Netherlands

CEO
Leonardo Hervás
Spain

Treasurer
Kirstin Kiekbusch
Germany