Ana Querido - Academia.edu (original) (raw)

Papers by Ana Querido

Acta Paulista de Enfermagem

Revista de Enfermagem Referência, 2018

International Journal of Environmental Research and Public Health, Jan 14, 2023

Hope is essential in the experience of living with advanced chronic disease. Maintaining hope in ... more Hope is essential in the experience of living with advanced chronic disease. Maintaining hope in situations of physical, psychological, spiritual and social suffering requires expertise in managing hope enabling and inhibiting factors'. Its' balance can be very difficult to achieve without the help of professionals, nurses in particular. The focus on hope promotion is imperative in caring for patients at end of life. Fostering hope in patients can result in comfort and quality of life. However interventions designed to promote hope are often nonspecific in its nature, and often don't address the real needs of patients. On the other hand, as they are nonspecific, their effectiveness is hard to measure. Aiming to develop and test a program to promote hope for people with advanced disease, we conducted four studies The first was a cross cultural validation into Portuguese of HHI to measure hope; HCQ to measure comfort, and MQOL to measure quality of life in a sample of 205 palliative patients in different contexts. The results confirm that the all Portuguese versions are valid good psychometric properties. They fit the culture and are suitable for measuring the effectiveness of nursing interventions. The second study aimed to characterize hope, comfort and quality of life (QOL) in the same sample, to identify the relationship between these variables and their mediators. The results allowed us to identify the needs of patients regarding hope promotion and identify socio demographic and clinical variables that impact in their hope. These factors were taken into consideration and incorporated in the design of the intervention program. The objective of the third study was to construct a program of nursing intervention to promote hope from the literature review and the results of the previous study. The Hope Promotion Program (EPP) satisfies the assumptions of nursing interventions effective. In the fourth study we tested the effectiveness of PPE variables in hope, comfort and QOL, in a longitudinal experimental design (pretest-post test) over a month. A sample of 26 palliative patients was randomized into two equivalent groups. The intervention took place at patients home. The results indicate that PPE is effective in promoting hope, improving comfort and QoL. The results contribute to a more effective practice, nursing education using autonomous intervention and to a better research.

International Journal of Environmental Research and Public Health

Patient therapeutic adherence lies at the core of mental health care. Health Care professionals a... more Patient therapeutic adherence lies at the core of mental health care. Health Care professionals and organizations play a major role in promoting adherence among people with mental disorders. However, defining therapeutic adherence remains complex. We used Rodgers’ evolutionary concept analysis to explore the concept of therapeutic adherence in the context of mental health. We conducted a systematic literature search on Medline/PubMed and CINAHL for works published between January 2012 and December 2022. The concept analysis showed that major attributes of therapeutic adherence include patient, microsystem and meso/exosystem-level factors. Antecedents are those related to patients, such as their background, beliefs and attitudes, and acceptance of mental illness–and those related to patient-HCP therapeutic engagement. Lastly, three different consequences of the concept emerged: an improvement in clinical and social outcomes, commitment to treatment, and the quality of healthcare deli...

Frontiers in Psychology

BackgroundIn Palliative Care (PC), family and close people are an essential part of provision of ... more BackgroundIn Palliative Care (PC), family and close people are an essential part of provision of care. They assume highly complex tasks for which they are not prepared, with considerable physical, psychological, social and economic impact. Informal Caregivers (ICs) often falter in the final stage of life and develop distress, enhancing emotional burden and complicated grief. The lack of available and accessible in-person counselling resources is often reported by ICs. Online resources can promote early access to help and support for patient-IC dyads in palliative care. The primary aim of this research is to co-design, develop and test the feasibility of the Help2Care-PAL mHealth app that addresses the needs of ICs of palliative patients cared for at home. This Digital Health Intervention (DHI) in palliative care will be used for education, symptom management, communication and decision-making, to enhance Quality of Life (QoL) of patients and ICs, fostering anticipatory grief and the...

European Psychiatry, 2021

IntroductionThe ongoing COVID-19 pandemic is inducing fear, and a timely understanding of mental ... more IntroductionThe ongoing COVID-19 pandemic is inducing fear, and a timely understanding of mental health status is urgently needed for society. Previous research has revealed a profound and wide range of psychosocial impacts on people at the individual, community, and international levels. On an individual level, people are likely to experience fear of falling sick or dying themselves, feelings of helplessness, and stigma. Currently, there is little understanding of mental well-being assessment under scenarios of pandemics that oblige to social isolation and quarantine.ObjectivesThis study aims to: a) establish the prevalence of psychiatric symptoms; b) identify risk and protective factors contributing to psychological stress; and c) identify coping strategies to promote better adjustment during and after the pandemic crisis.MethodsWe will adopt a mixed-method approach, firstly with a cross-sectional survey design (in both Portugal and Swiss context) to assess the higher education st...

European Psychiatry, 2021

IntroductionWeb Journal Club as a collaborative learning method, is an effective method to enhanc... more IntroductionWeb Journal Club as a collaborative learning method, is an effective method to enhance the knowledge base of nursing students, their presentation skills, problem-solving skills and ability to critically appraise literature.ObjectivesTo describe the experience of a online journal club on education of MHN undergraduate students.MethodsWe implemented a journal club in the online classroom with a total of 24 portuguese undergraduate students enrolled in clinical training of MHN (sixth semester). Over a two-week period, five 2-hour online journal club sessions were conducted in April 2020. During each session, five journal articles were presented synchronously to a live online audience via the Zoom Classroom technology. After all sessions, students were invited by e-mail to complete an anonymous and voluntary online questionnaire via Google Forms.ResultsAll students were all very positive about the journal club sessions and found the opportunity to discuss and reflect on prac...

International Journal of Environmental Research and Public Health, 2022

Hope performs an important role in how patients and their families cope with suffering and stress... more Hope performs an important role in how patients and their families cope with suffering and stressful events. To better inform practice and theory on hope, palliative care research should include both patients and their family carers, given their strong interdependence. The aim of this study was to explore how hope is experienced in dyads formed by end-of-life patients and their family carers. In this qualitative study, data were collected by in-depth interviews with seven Portuguese family dyads. Analysis followed a thematic analysis approach. The analysis of the interviews shed light on the importance of hope for all participants, and the challenges involved. Family dyads noted several barriers and facilitators to perceptions of hope. Barriers to hope included limitations imposed by illness, feelings of anguish and helplessness, and poor communication with clinicians. Hope facilitators included supportive others, positive thinking and sense of humour, connection with nature, faith ...

Este guia serve de apoio escrito ao desenvolvimento do seu sentido de esperança. Está organizado ... more Este guia serve de apoio escrito ao desenvolvimento do seu sentido de esperança. Está organizado em quatro capítulos principais: Recursos e ameaças à esperança; Reviver memórias de esperança do passado; Viver melhor o presente; Planear o futuro. Cada capítulo consta de: o Introdução-Aspectos teóricos da esperança acompanhados por uma "frase famosa" com o intuito de o/a ajudar a reflectir sobre o tema, bem como a apresentação de um conjunto de actividades que pretendem funcionar como forma de exercitar a sua esperança; o Actividades-Descrição e orientações específicas para a realização dos exercícios propostos; o Suportes de Registo-Sugestão da forma de registo das actividades. Salientamos que algumas actividades consomem mais tempo do que outras e existem actividades que exigem mais energia do que outras. Para uma óptima utilização do seu guia sugerimos que:  Escolha uma actividade que lhe desperte o interesse e que faça sentido para si.  Inicie a actividade na presença do enfermeiro, e continue….  Sempre que desejar ou necessitar pode usar este guia em conjunto com a família ou amigos.

Revista de Enfermagem Referência, 2020

Informal caregiver of dependent person in self-care: burden-related factors Cuidador informal de ... more Informal caregiver of dependent person in self-care: burden-related factors Cuidador informal de personas dependientes en el autocuidado: factores de sobrecarga

JMIR Research Protocols, 2021

Background Nurses dispense direct care in a wide variety of settings and are considered the backb... more Background Nurses dispense direct care in a wide variety of settings and are considered the backbone of the health care system. They often work long hours, face emotional stress, and are at a high risk of psychosocial and somatic illnesses. Nurses sometimes fall sick but work regardless, leading to presenteeism and subsequent risks to quality of care and patient safety due to the increased likelihood of patients falling, medication errors, and staff-to-patient disease transmission. Objective This study aims to understand presenteeism among frontline nurses and nurse managers in acute, primary, and long-term health care settings and to contribute to the development of future interventional studies and recommendations. Methods A qualitative study based on online focus group discussions will explore the perceptions of, attitudes to, and experiences with presenteeism among frontline nurses and nurse managers. Using a pilot-tested interview guide, 8 focus group discussions will involve n...

Journal of Public Health Research, 2021

Background To date, no instrument in Portugal has evaluated the attitudes of the population about... more Background To date, no instrument in Portugal has evaluated the attitudes of the population about advance care directives. This paper describes the development and testing of the General Public's Attitudes Toward Advance Care Directives (GPATACD) Scale. Design and methods Methodological study. The development of the instrument was based on a literature review, updated in 2018. Face and content validity were verified by an expert panel and piloted among six participants. Data were collected in an online survey of 1024 Portuguese adults. The obtained data were analyzed using Varimax rotation, while the reliability was evaluated by calculating Cronbach's alpha. Results The scale achieves good Item-Content Validity Index (I-CVI) values, between 0.89 and 1.00, and scale-CVI values of 0.91. A principal component analysis generated four dimensions with 26 items as a final scale, with overall Cronbach's alpha of 0.848. Conclusions The findings demonstrate that the scale is valid...

Journal of Nursing Education, 2020

International Journal of Environmental Research and Public Health, 2020

Background: International research has shown that healthcare professionals (HCPs) and nonhealthca... more Background: International research has shown that healthcare professionals (HCPs) and nonhealthcare professionals (NHCPs) are unaware of the goals and purposes of palliative care. This study evaluates the knowledge of palliative care among a sample of Portuguese adults and correlates their level of knowledge with age, gender, profession, and experience of family member’s palliative care. Method: A cross-sectional online survey was carried out on a sample of 152 HCPs and 440 NHCPs who completed an anonymous questionnaire of sociodemographic, family, and professional data, and an instrument of 26 dichotomous (true or false) questions focusing on palliative care goals and purposes. Results: The 592 participants had a mean age of 31.3 ± 11.1 years, and most were female. Statistically significant differences between statements considered as correct by HCPs and NHCPs were found in 24 statements; HCPs had the highest percentage of correct answers. The terms most frequently associated with ...

Scandinavian Journal of Caring Sciences, 2019

BackgroundThe aim of this study was to assess the self‐care dependency levels of the dependent pe... more BackgroundThe aim of this study was to assess the self‐care dependency levels of the dependent person at the time of home discharge and its relationship between (1) the degree of dependency of each self‐care domain; (2) the previous dependency levels; and (3) the gender of the dependent person. It also aims to assess the relationship between the degree of dependency of each self‐care domain, the length of admission, the length of dependency and the age of the dependent person at the time of discharge.MethodsA cross‐sectional study was conducted. The sample comprised hospitalised adults and elderly in the medical services of a Portuguese hospital during the months of March, April and May of 2018. The data were collected by an interview conducted at the time of home discharge from the hospital medical ward.ResultsThe average age of dependent people of the sample is 80.7 years (±10.1) with the majority being women (51.7%), with no statistical difference in the mean age according to gen...

Acta Paulista de Enfermagem

Revista de Enfermagem Referência, 2018

International Journal of Environmental Research and Public Health, Jan 14, 2023

Hope is essential in the experience of living with advanced chronic disease. Maintaining hope in ... more Hope is essential in the experience of living with advanced chronic disease. Maintaining hope in situations of physical, psychological, spiritual and social suffering requires expertise in managing hope enabling and inhibiting factors'. Its' balance can be very difficult to achieve without the help of professionals, nurses in particular. The focus on hope promotion is imperative in caring for patients at end of life. Fostering hope in patients can result in comfort and quality of life. However interventions designed to promote hope are often nonspecific in its nature, and often don't address the real needs of patients. On the other hand, as they are nonspecific, their effectiveness is hard to measure. Aiming to develop and test a program to promote hope for people with advanced disease, we conducted four studies The first was a cross cultural validation into Portuguese of HHI to measure hope; HCQ to measure comfort, and MQOL to measure quality of life in a sample of 205 palliative patients in different contexts. The results confirm that the all Portuguese versions are valid good psychometric properties. They fit the culture and are suitable for measuring the effectiveness of nursing interventions. The second study aimed to characterize hope, comfort and quality of life (QOL) in the same sample, to identify the relationship between these variables and their mediators. The results allowed us to identify the needs of patients regarding hope promotion and identify socio demographic and clinical variables that impact in their hope. These factors were taken into consideration and incorporated in the design of the intervention program. The objective of the third study was to construct a program of nursing intervention to promote hope from the literature review and the results of the previous study. The Hope Promotion Program (EPP) satisfies the assumptions of nursing interventions effective. In the fourth study we tested the effectiveness of PPE variables in hope, comfort and QOL, in a longitudinal experimental design (pretest-post test) over a month. A sample of 26 palliative patients was randomized into two equivalent groups. The intervention took place at patients home. The results indicate that PPE is effective in promoting hope, improving comfort and QoL. The results contribute to a more effective practice, nursing education using autonomous intervention and to a better research.

International Journal of Environmental Research and Public Health

Patient therapeutic adherence lies at the core of mental health care. Health Care professionals a... more Patient therapeutic adherence lies at the core of mental health care. Health Care professionals and organizations play a major role in promoting adherence among people with mental disorders. However, defining therapeutic adherence remains complex. We used Rodgers’ evolutionary concept analysis to explore the concept of therapeutic adherence in the context of mental health. We conducted a systematic literature search on Medline/PubMed and CINAHL for works published between January 2012 and December 2022. The concept analysis showed that major attributes of therapeutic adherence include patient, microsystem and meso/exosystem-level factors. Antecedents are those related to patients, such as their background, beliefs and attitudes, and acceptance of mental illness–and those related to patient-HCP therapeutic engagement. Lastly, three different consequences of the concept emerged: an improvement in clinical and social outcomes, commitment to treatment, and the quality of healthcare deli...

Frontiers in Psychology

BackgroundIn Palliative Care (PC), family and close people are an essential part of provision of ... more BackgroundIn Palliative Care (PC), family and close people are an essential part of provision of care. They assume highly complex tasks for which they are not prepared, with considerable physical, psychological, social and economic impact. Informal Caregivers (ICs) often falter in the final stage of life and develop distress, enhancing emotional burden and complicated grief. The lack of available and accessible in-person counselling resources is often reported by ICs. Online resources can promote early access to help and support for patient-IC dyads in palliative care. The primary aim of this research is to co-design, develop and test the feasibility of the Help2Care-PAL mHealth app that addresses the needs of ICs of palliative patients cared for at home. This Digital Health Intervention (DHI) in palliative care will be used for education, symptom management, communication and decision-making, to enhance Quality of Life (QoL) of patients and ICs, fostering anticipatory grief and the...

European Psychiatry, 2021

IntroductionThe ongoing COVID-19 pandemic is inducing fear, and a timely understanding of mental ... more IntroductionThe ongoing COVID-19 pandemic is inducing fear, and a timely understanding of mental health status is urgently needed for society. Previous research has revealed a profound and wide range of psychosocial impacts on people at the individual, community, and international levels. On an individual level, people are likely to experience fear of falling sick or dying themselves, feelings of helplessness, and stigma. Currently, there is little understanding of mental well-being assessment under scenarios of pandemics that oblige to social isolation and quarantine.ObjectivesThis study aims to: a) establish the prevalence of psychiatric symptoms; b) identify risk and protective factors contributing to psychological stress; and c) identify coping strategies to promote better adjustment during and after the pandemic crisis.MethodsWe will adopt a mixed-method approach, firstly with a cross-sectional survey design (in both Portugal and Swiss context) to assess the higher education st...

European Psychiatry, 2021

IntroductionWeb Journal Club as a collaborative learning method, is an effective method to enhanc... more IntroductionWeb Journal Club as a collaborative learning method, is an effective method to enhance the knowledge base of nursing students, their presentation skills, problem-solving skills and ability to critically appraise literature.ObjectivesTo describe the experience of a online journal club on education of MHN undergraduate students.MethodsWe implemented a journal club in the online classroom with a total of 24 portuguese undergraduate students enrolled in clinical training of MHN (sixth semester). Over a two-week period, five 2-hour online journal club sessions were conducted in April 2020. During each session, five journal articles were presented synchronously to a live online audience via the Zoom Classroom technology. After all sessions, students were invited by e-mail to complete an anonymous and voluntary online questionnaire via Google Forms.ResultsAll students were all very positive about the journal club sessions and found the opportunity to discuss and reflect on prac...

International Journal of Environmental Research and Public Health, 2022

Hope performs an important role in how patients and their families cope with suffering and stress... more Hope performs an important role in how patients and their families cope with suffering and stressful events. To better inform practice and theory on hope, palliative care research should include both patients and their family carers, given their strong interdependence. The aim of this study was to explore how hope is experienced in dyads formed by end-of-life patients and their family carers. In this qualitative study, data were collected by in-depth interviews with seven Portuguese family dyads. Analysis followed a thematic analysis approach. The analysis of the interviews shed light on the importance of hope for all participants, and the challenges involved. Family dyads noted several barriers and facilitators to perceptions of hope. Barriers to hope included limitations imposed by illness, feelings of anguish and helplessness, and poor communication with clinicians. Hope facilitators included supportive others, positive thinking and sense of humour, connection with nature, faith ...

Este guia serve de apoio escrito ao desenvolvimento do seu sentido de esperança. Está organizado ... more Este guia serve de apoio escrito ao desenvolvimento do seu sentido de esperança. Está organizado em quatro capítulos principais: Recursos e ameaças à esperança; Reviver memórias de esperança do passado; Viver melhor o presente; Planear o futuro. Cada capítulo consta de: o Introdução-Aspectos teóricos da esperança acompanhados por uma "frase famosa" com o intuito de o/a ajudar a reflectir sobre o tema, bem como a apresentação de um conjunto de actividades que pretendem funcionar como forma de exercitar a sua esperança; o Actividades-Descrição e orientações específicas para a realização dos exercícios propostos; o Suportes de Registo-Sugestão da forma de registo das actividades. Salientamos que algumas actividades consomem mais tempo do que outras e existem actividades que exigem mais energia do que outras. Para uma óptima utilização do seu guia sugerimos que:  Escolha uma actividade que lhe desperte o interesse e que faça sentido para si.  Inicie a actividade na presença do enfermeiro, e continue….  Sempre que desejar ou necessitar pode usar este guia em conjunto com a família ou amigos.

Revista de Enfermagem Referência, 2020

Informal caregiver of dependent person in self-care: burden-related factors Cuidador informal de ... more Informal caregiver of dependent person in self-care: burden-related factors Cuidador informal de personas dependientes en el autocuidado: factores de sobrecarga

JMIR Research Protocols, 2021

Background Nurses dispense direct care in a wide variety of settings and are considered the backb... more Background Nurses dispense direct care in a wide variety of settings and are considered the backbone of the health care system. They often work long hours, face emotional stress, and are at a high risk of psychosocial and somatic illnesses. Nurses sometimes fall sick but work regardless, leading to presenteeism and subsequent risks to quality of care and patient safety due to the increased likelihood of patients falling, medication errors, and staff-to-patient disease transmission. Objective This study aims to understand presenteeism among frontline nurses and nurse managers in acute, primary, and long-term health care settings and to contribute to the development of future interventional studies and recommendations. Methods A qualitative study based on online focus group discussions will explore the perceptions of, attitudes to, and experiences with presenteeism among frontline nurses and nurse managers. Using a pilot-tested interview guide, 8 focus group discussions will involve n...

Journal of Public Health Research, 2021

Background To date, no instrument in Portugal has evaluated the attitudes of the population about... more Background To date, no instrument in Portugal has evaluated the attitudes of the population about advance care directives. This paper describes the development and testing of the General Public's Attitudes Toward Advance Care Directives (GPATACD) Scale. Design and methods Methodological study. The development of the instrument was based on a literature review, updated in 2018. Face and content validity were verified by an expert panel and piloted among six participants. Data were collected in an online survey of 1024 Portuguese adults. The obtained data were analyzed using Varimax rotation, while the reliability was evaluated by calculating Cronbach's alpha. Results The scale achieves good Item-Content Validity Index (I-CVI) values, between 0.89 and 1.00, and scale-CVI values of 0.91. A principal component analysis generated four dimensions with 26 items as a final scale, with overall Cronbach's alpha of 0.848. Conclusions The findings demonstrate that the scale is valid...

Journal of Nursing Education, 2020

International Journal of Environmental Research and Public Health, 2020

Background: International research has shown that healthcare professionals (HCPs) and nonhealthca... more Background: International research has shown that healthcare professionals (HCPs) and nonhealthcare professionals (NHCPs) are unaware of the goals and purposes of palliative care. This study evaluates the knowledge of palliative care among a sample of Portuguese adults and correlates their level of knowledge with age, gender, profession, and experience of family member’s palliative care. Method: A cross-sectional online survey was carried out on a sample of 152 HCPs and 440 NHCPs who completed an anonymous questionnaire of sociodemographic, family, and professional data, and an instrument of 26 dichotomous (true or false) questions focusing on palliative care goals and purposes. Results: The 592 participants had a mean age of 31.3 ± 11.1 years, and most were female. Statistically significant differences between statements considered as correct by HCPs and NHCPs were found in 24 statements; HCPs had the highest percentage of correct answers. The terms most frequently associated with ...

Scandinavian Journal of Caring Sciences, 2019

BackgroundThe aim of this study was to assess the self‐care dependency levels of the dependent pe... more BackgroundThe aim of this study was to assess the self‐care dependency levels of the dependent person at the time of home discharge and its relationship between (1) the degree of dependency of each self‐care domain; (2) the previous dependency levels; and (3) the gender of the dependent person. It also aims to assess the relationship between the degree of dependency of each self‐care domain, the length of admission, the length of dependency and the age of the dependent person at the time of discharge.MethodsA cross‐sectional study was conducted. The sample comprised hospitalised adults and elderly in the medical services of a Portuguese hospital during the months of March, April and May of 2018. The data were collected by an interview conducted at the time of home discharge from the hospital medical ward.ResultsThe average age of dependent people of the sample is 80.7 years (±10.1) with the majority being women (51.7%), with no statistical difference in the mean age according to gen...