Abby Lippman - Academia.edu (original) (raw)

Papers by Abby Lippman

Research paper thumbnail of Consentement éclairé quant au don d'embryons à des fins de recherche

ABSTRACT Objectif : Offrir des conseils aux cliniciens qui participent au processus de choix écla... more ABSTRACT Objectif : Offrir des conseils aux cliniciens qui participent au processus de choix éclairé en ce qui a trait au don d'embryons humains à des fins de recherche. Recommandations 1. Comme le stipulent les lignes directrices des Instituts de recherche en santé du Canada et la Loi sur la procréation assistée, le consentement explicite tant des donneurs de gamètes que des donneurs d'embryons est requis avant que des embryons ne puissent être utilisés à des fins de recherche. Les donneurs de gamètes et les fournisseurs d'embryons peuvent ne pas être les mêmes personnes lorsque la création d'embryons fait appel à des dons de gamètes. 2. Le processus de consentement doit indiquer ce qui suit aux donneurs potentiels : les types possibles (et, dans le cas du consentement final, le type particulier) de projet de recherche dans le cadre desquels les embryons seront utilisés; les risques associés au don d'embryons à la recherche, tel que le risque de ne plus avoir par la suite accès à ces embryons à des fins génésiques; le fait que la femme / le couple ne tireront pas personnellement profit du don d'embryons à la recherche; les gains commerciaux que pourront potentiellement en tirer des tierces parties; la possibilité que l'on communique avec eux à l'avenir au sujet de la disposition des embryons; le fait que la confidentialité ne peut faire l'objet d'une protection absolue. 3. La désignation selon laquelle les embryons cryoconservés n'étant plus requis à des fins génésiques doivent être donnés à la recherche, donnés à un autre couple ou éliminés doit faire l'objet d'une discussion avant la récupération des gamètes et être établie au moment de la cryoconservation, les personnes concernées comprenant bien que, à l'avenir, un consentement final sera requis. La décision finale quant au don d'embryons cryoconservés ne devrait pas être prise avant que la femme / le couple n'aient décidé qu'ils n'ont plus besoin des embryons en question à des fins génésiques. La décision de mettre fin à la cryoconservation des embryons et la décision quant à leur disposition doivent être prises séparément. La femme / le couple devront être consultés à nouveau en ce qui a trait à la disposition finale de leurs embryons. 4. Compte tenu du manque de données scientifiques quant à la prévisibilité de la caractérisation microscopique des embryons et de leur potentiel d'engendrer une grossesse, il est recommandé d'offrir à toutes les femmes / tous les couples l'occasion de cryoconserver tous les embryons n'ayant pas été transférés au cours du cycle de traitement et de les aviser que le fait de ne pas procéder à la cryoconservation de ces embryons peut accroître leur risque de devoir subir un cycle supplémentaire de FIV afin d'atteindre leurs objectifs génésiques. 5. Les participants à la recherche doivent être avisés du fait qu'ils peuvent retirer leur consentement en tout temps avant la décongélation des embryons à des fins de recherche ou, dans le cas de la recherche sur les cellules souches, la création d'une lignée de cellules souches. 6. Les donneurs potentiels doivent être avisés que leurs soins médicaux ne seront aucunement affectés par leur décision quant au don d'embryons.

Research paper thumbnail of Informed consent to donate embryos for research purposes

Journal of obstetrics and gynaecology Canada : JOGC = Journal d'obstétrique et gynécologie du Canada : JOGC, 2008

To develop guidance for clinicians participating in the informed choice process with respect to t... more To develop guidance for clinicians participating in the informed choice process with respect to the donation of human embryos for research purposes. 1. As indicated in the Canadian Institutes of Health Research Guidelines and the Assisted Human Reproduction Act, specific consent from both the gamete and embryo providers is required before embryos can be used for research purposes. The gamete donors may be different individuals than the embryo providers when donated gametes are used to create embryos. 2. The consent process should inform potential donors of the possible types of (and for final consent, the specific) research project(s) for which the embryos will be used; the risks involved in donating embryos to research, such as not having these embryos available for their reproductive purposes; the fact that the woman/couple will not benefit personally from donating embryos to research; the potential for commercial gain by others; the possibility that they will be contacted in futu...

Research paper thumbnail of Unmet Need for Assistance to Perform Activities of Daily Living and Psychological Distress in Community-Dwelling Elderly Women

Canadian Journal on Aging / La Revue canadienne du vieillissement, 2011

Community-dwelling seniors increasingly require physical assistance to perform the activities of ... more Community-dwelling seniors increasingly require physical assistance to perform the activities of daily living (ADL). To examine the possible association of this need with psychological distress, we conducted a prospective cohort study of community-dwelling people age 75 and older in Montreal, Canada. We report the results for women only (n = 530). Multivariable linear regression was used to examine the association between met and unmet need in instrumental ADL (IADL) and personal ADL (PADL) with concomitant psychological distress. Unmet IADL need was associated with elevated psychological distress [β = 0.42 (95% CI: 0.26, 0.60)], as was met IADL need [β = 0.19 (95% CI: 0.06, 0.33)], but not met and unmet PADL need. The full model explained 32.8 per cent of the total variance in psychological distress. Receiving assistance to meet IADL needs is associated with elevated psychological distress. Not receiving assistance, however, is associated with even greater distress.

Research paper thumbnail of Egg Harvesting for Stem Cell Research

Increasingly, researchers are seeking eggs from young women to be used for embryo cloning procedu... more Increasingly, researchers are seeking eggs from young women to be used for embryo cloning procedures. The harvesting of multiple eggs often involves the administration of drugs that have not been approved for this purpose. Also these drugs have not been adequately studied for their long-term effects on women despite research providing some evidence of significant harm to women in both the short and long term. Current practices follow a historical pattern of exposing women to risks that ultimately prove unacceptable. In addition, egg harvesting is taking place in a research climate marked by conflicts of interest, the misleading use of language to describe research goals, and a commercial push that may lead to the exploitation of young women. In this article, we outline these matters and explain how they are leading to an international campaign for a moratorium on egg harvesting for cloning purposes.

Research paper thumbnail of Previous child with trisomy 21 and abortion rate

Progress in clinical and biological research

Research paper thumbnail of Early prenatal diagnosis by chorionic villi sampling

Current problems in dermatology

Research paper thumbnail of Twice-told tales: Stories about genetic disorders

The American Journal of Human Genetics

Rapid advances in molecular genetics are expanding the ability to screen for genetic differences ... more Rapid advances in molecular genetics are expanding the ability to screen for genetic differences between individuals that may be associated with their health status, and there is great interest in the ethical, legal, and social implications of this technology. We wish to draw attention to one very specific issue regarding how the public is informed about genetics and genetic differences: the selected messages about health and illness that are transmitted by written materials -and the great potential of such messages to influence attitudes and behavior.

Research paper thumbnail of Conflicts, ethics, and the genome

The American Journal of Human Genetics

... This may not be the complete list of references from this article. Krimsky Sheldon, Ennis Jam... more ... This may not be the complete list of references from this article. Krimsky Sheldon, Ennis James G, Weissman Robert. Academic-corporate ties in biotechnology: a quantitative study. Sci Technol Human Values. 1991 Summer;16(3):275–287. [PubMed]. ...

Research paper thumbnail of Mother matters: a fresh look at prenatal genetic testing

Issues in reproductive and genetic engineering: journal of international feminist analysis

Research paper thumbnail of Prenatal diagnosis

American Journal of Public Health, 1999

Research paper thumbnail of The human genome project: Perilous promises?

Medicine, Health Care and Philosophy, 1999

... Not Page 2. 48 ABBY LIPPMAN ... My only complaint about his chapter is its too-short length: ... more ... Not Page 2. 48 ABBY LIPPMAN ... My only complaint about his chapter is its too-short length: one would have liked a more extensive discussion of the many thoughtful ideas he only has space to touch on. Richard Cooper's entry is also recommended read-ing. ...

Research paper thumbnail of Prenatal Diagnosis: Can What Counts Be Counted?

Women & Health, 1992

ABSTRACT

Research paper thumbnail of Everything You Need to Know

Women & Health, 1995

ABSTRACT. The use of biomedical testing and genetic counselling is usually framed as something an... more ABSTRACT. The use of biomedical testing and genetic counselling is usually framed as something an individual woman chooses, with little consideration given to the context in which women make these choices. In order to understand something of the context in which women (35 and ...

Research paper thumbnail of Led (astray) by genetic maps: The cartography of the human genome and health care

Social Science & Medicine, 1992

Advocates of projects to map the human genome claim that the information produced will illuminate... more Advocates of projects to map the human genome claim that the information produced will illuminate the causes of human disease, improve treatment and, in general, increase our health and well-being. While concerns about the costs of mapping and the possible discriminatory and eugenic applications of the information it will provide have received some attention, assumptions implicit in the biomedical discourse in which its 'benefits' are proposed and which are shaping definitions of illness and health, normality and abnormality, have not yet been adequately analyzed. This paper examines how the genetic stories about mapping and its potential products being told in the biomedical (and popular) literature continue a tradition of reductionism and determinism. This new 'cartography', by adopting the blueprint as a metaphor for genes, leads to restricted conceptions of health and illness, reinforces inequities in the distribution of health and, by privatizing and individualizing responsibility for health, creates and legitimizes a new arena for social control.

Research paper thumbnail of The Ethics of Deriving Gametes from ES Cells

Research paper thumbnail of Egg harvesting for stem cell research: medical risks and ethical problems

Reproductive BioMedicine Online, 2006

Increasingly, researchers are seeking eggs from young women to be used for embryo cloning procedu... more Increasingly, researchers are seeking eggs from young women to be used for embryo cloning procedures. The harvesting of multiple eggs often involves the administration of drugs that have not been approved for this purpose. Also these drugs have not been adequately studied for their long-term effects on women despite research providing some evidence of significant harm to women in both the short and long term. Current practices follow a historical pattern of exposing women to risks that ultimately prove unacceptable. In addition, egg harvesting is taking place in a research climate marked by conflicts of interest, the misleading use of language to describe research goals, and a commercial push that may lead to the exploitation of young women. In this article, we outline these matters and explain how they are leading to an international campaign for a moratorium on egg harvesting for cloning purposes.

Research paper thumbnail of Bottom Line Genetics

Community Genetics, 2001

For many years, but especially since the USA and international genome projects were begun, eugeni... more For many years, but especially since the USA and international genome projects were begun, eugenics and economics seem to have been major forces driving clinical applications of genetics. In many ways, the proposal by Dr. Cuckle reflects these forces. And it does so in ways that are worrisome, particularly for women. The promotion and support by ‘public health’ programs of

Research paper thumbnail of Canadian multicentre randomized clinical trial of chorion villus sampling and amniocentesis: Final report

Research paper thumbnail of Resistance and adherence to the norms of genetic counseling

Journal of Genetic Counseling, 1995

Genetic counseling for women of advanced maternal age who are considering prenatal testing contin... more Genetic counseling for women of advanced maternal age who are considering prenatal testing continues to be based on a principle of nondirectiveness. We interviewed 11 genetic counseling students and four counselors about how they experience and manage, in practice, the tensions between the ideology of nondirectiveness and the acknowledged reality that one can never be truly nondirective. We found that our respondents creatively resolve this tension-simultaneously resisting and adhering to the values of nondirectiveness and information-giving-in individual and situation-specific ways. This resolution is facilitated by the extent to which information given to counselees is fluid, mobile and context-dependent, but these very features of "information" also have critical implications for both the norms and the practice of genetic counseling.

Research paper thumbnail of Human papillomavirus (HPV) vaccination and the development of public policies

Journal of Epidemiology & Community Health, 2008

Research paper thumbnail of Consentement éclairé quant au don d'embryons à des fins de recherche

ABSTRACT Objectif : Offrir des conseils aux cliniciens qui participent au processus de choix écla... more ABSTRACT Objectif : Offrir des conseils aux cliniciens qui participent au processus de choix éclairé en ce qui a trait au don d'embryons humains à des fins de recherche. Recommandations 1. Comme le stipulent les lignes directrices des Instituts de recherche en santé du Canada et la Loi sur la procréation assistée, le consentement explicite tant des donneurs de gamètes que des donneurs d'embryons est requis avant que des embryons ne puissent être utilisés à des fins de recherche. Les donneurs de gamètes et les fournisseurs d'embryons peuvent ne pas être les mêmes personnes lorsque la création d'embryons fait appel à des dons de gamètes. 2. Le processus de consentement doit indiquer ce qui suit aux donneurs potentiels : les types possibles (et, dans le cas du consentement final, le type particulier) de projet de recherche dans le cadre desquels les embryons seront utilisés; les risques associés au don d'embryons à la recherche, tel que le risque de ne plus avoir par la suite accès à ces embryons à des fins génésiques; le fait que la femme / le couple ne tireront pas personnellement profit du don d'embryons à la recherche; les gains commerciaux que pourront potentiellement en tirer des tierces parties; la possibilité que l'on communique avec eux à l'avenir au sujet de la disposition des embryons; le fait que la confidentialité ne peut faire l'objet d'une protection absolue. 3. La désignation selon laquelle les embryons cryoconservés n'étant plus requis à des fins génésiques doivent être donnés à la recherche, donnés à un autre couple ou éliminés doit faire l'objet d'une discussion avant la récupération des gamètes et être établie au moment de la cryoconservation, les personnes concernées comprenant bien que, à l'avenir, un consentement final sera requis. La décision finale quant au don d'embryons cryoconservés ne devrait pas être prise avant que la femme / le couple n'aient décidé qu'ils n'ont plus besoin des embryons en question à des fins génésiques. La décision de mettre fin à la cryoconservation des embryons et la décision quant à leur disposition doivent être prises séparément. La femme / le couple devront être consultés à nouveau en ce qui a trait à la disposition finale de leurs embryons. 4. Compte tenu du manque de données scientifiques quant à la prévisibilité de la caractérisation microscopique des embryons et de leur potentiel d'engendrer une grossesse, il est recommandé d'offrir à toutes les femmes / tous les couples l'occasion de cryoconserver tous les embryons n'ayant pas été transférés au cours du cycle de traitement et de les aviser que le fait de ne pas procéder à la cryoconservation de ces embryons peut accroître leur risque de devoir subir un cycle supplémentaire de FIV afin d'atteindre leurs objectifs génésiques. 5. Les participants à la recherche doivent être avisés du fait qu'ils peuvent retirer leur consentement en tout temps avant la décongélation des embryons à des fins de recherche ou, dans le cas de la recherche sur les cellules souches, la création d'une lignée de cellules souches. 6. Les donneurs potentiels doivent être avisés que leurs soins médicaux ne seront aucunement affectés par leur décision quant au don d'embryons.

Research paper thumbnail of Informed consent to donate embryos for research purposes

Journal of obstetrics and gynaecology Canada : JOGC = Journal d'obstétrique et gynécologie du Canada : JOGC, 2008

To develop guidance for clinicians participating in the informed choice process with respect to t... more To develop guidance for clinicians participating in the informed choice process with respect to the donation of human embryos for research purposes. 1. As indicated in the Canadian Institutes of Health Research Guidelines and the Assisted Human Reproduction Act, specific consent from both the gamete and embryo providers is required before embryos can be used for research purposes. The gamete donors may be different individuals than the embryo providers when donated gametes are used to create embryos. 2. The consent process should inform potential donors of the possible types of (and for final consent, the specific) research project(s) for which the embryos will be used; the risks involved in donating embryos to research, such as not having these embryos available for their reproductive purposes; the fact that the woman/couple will not benefit personally from donating embryos to research; the potential for commercial gain by others; the possibility that they will be contacted in futu...

Research paper thumbnail of Unmet Need for Assistance to Perform Activities of Daily Living and Psychological Distress in Community-Dwelling Elderly Women

Canadian Journal on Aging / La Revue canadienne du vieillissement, 2011

Community-dwelling seniors increasingly require physical assistance to perform the activities of ... more Community-dwelling seniors increasingly require physical assistance to perform the activities of daily living (ADL). To examine the possible association of this need with psychological distress, we conducted a prospective cohort study of community-dwelling people age 75 and older in Montreal, Canada. We report the results for women only (n = 530). Multivariable linear regression was used to examine the association between met and unmet need in instrumental ADL (IADL) and personal ADL (PADL) with concomitant psychological distress. Unmet IADL need was associated with elevated psychological distress [β = 0.42 (95% CI: 0.26, 0.60)], as was met IADL need [β = 0.19 (95% CI: 0.06, 0.33)], but not met and unmet PADL need. The full model explained 32.8 per cent of the total variance in psychological distress. Receiving assistance to meet IADL needs is associated with elevated psychological distress. Not receiving assistance, however, is associated with even greater distress.

Research paper thumbnail of Egg Harvesting for Stem Cell Research

Increasingly, researchers are seeking eggs from young women to be used for embryo cloning procedu... more Increasingly, researchers are seeking eggs from young women to be used for embryo cloning procedures. The harvesting of multiple eggs often involves the administration of drugs that have not been approved for this purpose. Also these drugs have not been adequately studied for their long-term effects on women despite research providing some evidence of significant harm to women in both the short and long term. Current practices follow a historical pattern of exposing women to risks that ultimately prove unacceptable. In addition, egg harvesting is taking place in a research climate marked by conflicts of interest, the misleading use of language to describe research goals, and a commercial push that may lead to the exploitation of young women. In this article, we outline these matters and explain how they are leading to an international campaign for a moratorium on egg harvesting for cloning purposes.

Research paper thumbnail of Previous child with trisomy 21 and abortion rate

Progress in clinical and biological research

Research paper thumbnail of Early prenatal diagnosis by chorionic villi sampling

Current problems in dermatology

Research paper thumbnail of Twice-told tales: Stories about genetic disorders

The American Journal of Human Genetics

Rapid advances in molecular genetics are expanding the ability to screen for genetic differences ... more Rapid advances in molecular genetics are expanding the ability to screen for genetic differences between individuals that may be associated with their health status, and there is great interest in the ethical, legal, and social implications of this technology. We wish to draw attention to one very specific issue regarding how the public is informed about genetics and genetic differences: the selected messages about health and illness that are transmitted by written materials -and the great potential of such messages to influence attitudes and behavior.

Research paper thumbnail of Conflicts, ethics, and the genome

The American Journal of Human Genetics

... This may not be the complete list of references from this article. Krimsky Sheldon, Ennis Jam... more ... This may not be the complete list of references from this article. Krimsky Sheldon, Ennis James G, Weissman Robert. Academic-corporate ties in biotechnology: a quantitative study. Sci Technol Human Values. 1991 Summer;16(3):275–287. [PubMed]. ...

Research paper thumbnail of Mother matters: a fresh look at prenatal genetic testing

Issues in reproductive and genetic engineering: journal of international feminist analysis

Research paper thumbnail of Prenatal diagnosis

American Journal of Public Health, 1999

Research paper thumbnail of The human genome project: Perilous promises?

Medicine, Health Care and Philosophy, 1999

... Not Page 2. 48 ABBY LIPPMAN ... My only complaint about his chapter is its too-short length: ... more ... Not Page 2. 48 ABBY LIPPMAN ... My only complaint about his chapter is its too-short length: one would have liked a more extensive discussion of the many thoughtful ideas he only has space to touch on. Richard Cooper's entry is also recommended read-ing. ...

Research paper thumbnail of Prenatal Diagnosis: Can What Counts Be Counted?

Women & Health, 1992

ABSTRACT

Research paper thumbnail of Everything You Need to Know

Women & Health, 1995

ABSTRACT. The use of biomedical testing and genetic counselling is usually framed as something an... more ABSTRACT. The use of biomedical testing and genetic counselling is usually framed as something an individual woman chooses, with little consideration given to the context in which women make these choices. In order to understand something of the context in which women (35 and ...

Research paper thumbnail of Led (astray) by genetic maps: The cartography of the human genome and health care

Social Science & Medicine, 1992

Advocates of projects to map the human genome claim that the information produced will illuminate... more Advocates of projects to map the human genome claim that the information produced will illuminate the causes of human disease, improve treatment and, in general, increase our health and well-being. While concerns about the costs of mapping and the possible discriminatory and eugenic applications of the information it will provide have received some attention, assumptions implicit in the biomedical discourse in which its 'benefits' are proposed and which are shaping definitions of illness and health, normality and abnormality, have not yet been adequately analyzed. This paper examines how the genetic stories about mapping and its potential products being told in the biomedical (and popular) literature continue a tradition of reductionism and determinism. This new 'cartography', by adopting the blueprint as a metaphor for genes, leads to restricted conceptions of health and illness, reinforces inequities in the distribution of health and, by privatizing and individualizing responsibility for health, creates and legitimizes a new arena for social control.

Research paper thumbnail of The Ethics of Deriving Gametes from ES Cells

Research paper thumbnail of Egg harvesting for stem cell research: medical risks and ethical problems

Reproductive BioMedicine Online, 2006

Increasingly, researchers are seeking eggs from young women to be used for embryo cloning procedu... more Increasingly, researchers are seeking eggs from young women to be used for embryo cloning procedures. The harvesting of multiple eggs often involves the administration of drugs that have not been approved for this purpose. Also these drugs have not been adequately studied for their long-term effects on women despite research providing some evidence of significant harm to women in both the short and long term. Current practices follow a historical pattern of exposing women to risks that ultimately prove unacceptable. In addition, egg harvesting is taking place in a research climate marked by conflicts of interest, the misleading use of language to describe research goals, and a commercial push that may lead to the exploitation of young women. In this article, we outline these matters and explain how they are leading to an international campaign for a moratorium on egg harvesting for cloning purposes.

Research paper thumbnail of Bottom Line Genetics

Community Genetics, 2001

For many years, but especially since the USA and international genome projects were begun, eugeni... more For many years, but especially since the USA and international genome projects were begun, eugenics and economics seem to have been major forces driving clinical applications of genetics. In many ways, the proposal by Dr. Cuckle reflects these forces. And it does so in ways that are worrisome, particularly for women. The promotion and support by ‘public health’ programs of

Research paper thumbnail of Canadian multicentre randomized clinical trial of chorion villus sampling and amniocentesis: Final report

Research paper thumbnail of Resistance and adherence to the norms of genetic counseling

Journal of Genetic Counseling, 1995

Genetic counseling for women of advanced maternal age who are considering prenatal testing contin... more Genetic counseling for women of advanced maternal age who are considering prenatal testing continues to be based on a principle of nondirectiveness. We interviewed 11 genetic counseling students and four counselors about how they experience and manage, in practice, the tensions between the ideology of nondirectiveness and the acknowledged reality that one can never be truly nondirective. We found that our respondents creatively resolve this tension-simultaneously resisting and adhering to the values of nondirectiveness and information-giving-in individual and situation-specific ways. This resolution is facilitated by the extent to which information given to counselees is fluid, mobile and context-dependent, but these very features of "information" also have critical implications for both the norms and the practice of genetic counseling.

Research paper thumbnail of Human papillomavirus (HPV) vaccination and the development of public policies

Journal of Epidemiology & Community Health, 2008