Alicia García - Academia.edu (original) (raw)
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En este apartado contemplamos la comunicación desde la situación del médico. Se incluyen puntos c... more En este apartado contemplamos la comunicación desde la situación del médico. Se incluyen puntos como la necesidad de mejorar las condiciones laborares y económicas actuales de los médicos para retener a los médicos formados en España, la escucha activa y el apoyo a la alfabetización en salud.
Papers by Alicia García
Vaccination prevents an estimated 2.5 million deaths worldwide each year (European Commision and ... more Vaccination prevents an estimated 2.5 million deaths worldwide each year (European Commision and World Health Organization, 2019). Nowadays in countries with high vaccination levels, parents ponder about vaccinating their children (Domínguez et al., 2018; Moran, Lucas, Everhart, Morgan, & Prickett, 2016). This is a global problem that risks 90% national minimum vaccination coverage (95% for measles) (WHO Library Cataloguing-in-Publication, 2013). It involves a hazard for children and adults' life who cannot be vaccinated as well as for those people who reject vaccination. Non-vaccination advocacy people strive to persuade hesitant parents through online videos, a communication source whose consumption is increasing. This research aims to unveil persuasive traits in provaccination and anti-vaccination Youtube videos to provide some hints for future online campaigns to counteract vaccine hesitancy. We will go through nine analysis layers of the content of the videos with pro-vacci...
Orphanet Journal of Rare Diseases, 2019
Background: Given the inherent complexity of rare paediatric diseases and the sensitive emotional... more Background: Given the inherent complexity of rare paediatric diseases and the sensitive emotional context of the situations they create (due to the patients' age and the tense uncertainty surrounding the progression of the disease), communication between the adults involved is a key tool in the efforts to provide these children and youths a better quality of life. We conducted ten interviews with families of children with rare diseases, in the aim of exploring how communication between doctors and patients affect their daily lives. All participants, members of FEDER (a Spanish federation of associations of patients with rare diseases) were invited by phone or email to participate in a semi-structured interview including questions on clinical information, communication experiences with healthcare professionals, and the impact these had on the interviewees' relationships with them. To analyse these interviews, we used the 'grounded theory' methodology and open and axial text coding techniques, in addition to those identifying the properties and dimensions of the categories formulated. Results: The core category we have proposed is 'adjustment of mutual trust', with said category describing the attitude and behaviour of doctors who inspire trust in the parents of paediatric patients diagnosed with a rare disease. More specifically, said behaviours or sources of trust are: appearing human, sensitive and empathetic; showing transparency and communicative openness; being supportive of parental proactivity; and being available to families at all times. Conclusions: Trust is the cornerstone of parent-doctor communication in the field of children with rare diseases. If the sources of trust are present, they create a degree of trust that bolsters both parties in the search for a common goal: providing the child with the best possible care.
En este apartado contemplamos la comunicación desde la situación del médico. Se incluyen puntos c... more En este apartado contemplamos la comunicación desde la situación del médico. Se incluyen puntos como la necesidad de mejorar las condiciones laborares y económicas actuales de los médicos para retener a los médicos formados en España, la escucha activa y el apoyo a la alfabetización en salud.
Vaccination prevents an estimated 2.5 million deaths worldwide each year (European Commision and ... more Vaccination prevents an estimated 2.5 million deaths worldwide each year (European Commision and World Health Organization, 2019). Nowadays in countries with high vaccination levels, parents ponder about vaccinating their children (Domínguez et al., 2018; Moran, Lucas, Everhart, Morgan, & Prickett, 2016). This is a global problem that risks 90% national minimum vaccination coverage (95% for measles) (WHO Library Cataloguing-in-Publication, 2013). It involves a hazard for children and adults' life who cannot be vaccinated as well as for those people who reject vaccination. Non-vaccination advocacy people strive to persuade hesitant parents through online videos, a communication source whose consumption is increasing. This research aims to unveil persuasive traits in provaccination and anti-vaccination Youtube videos to provide some hints for future online campaigns to counteract vaccine hesitancy. We will go through nine analysis layers of the content of the videos with pro-vacci...
Orphanet Journal of Rare Diseases, 2019
Background: Given the inherent complexity of rare paediatric diseases and the sensitive emotional... more Background: Given the inherent complexity of rare paediatric diseases and the sensitive emotional context of the situations they create (due to the patients' age and the tense uncertainty surrounding the progression of the disease), communication between the adults involved is a key tool in the efforts to provide these children and youths a better quality of life. We conducted ten interviews with families of children with rare diseases, in the aim of exploring how communication between doctors and patients affect their daily lives. All participants, members of FEDER (a Spanish federation of associations of patients with rare diseases) were invited by phone or email to participate in a semi-structured interview including questions on clinical information, communication experiences with healthcare professionals, and the impact these had on the interviewees' relationships with them. To analyse these interviews, we used the 'grounded theory' methodology and open and axial text coding techniques, in addition to those identifying the properties and dimensions of the categories formulated. Results: The core category we have proposed is 'adjustment of mutual trust', with said category describing the attitude and behaviour of doctors who inspire trust in the parents of paediatric patients diagnosed with a rare disease. More specifically, said behaviours or sources of trust are: appearing human, sensitive and empathetic; showing transparency and communicative openness; being supportive of parental proactivity; and being available to families at all times. Conclusions: Trust is the cornerstone of parent-doctor communication in the field of children with rare diseases. If the sources of trust are present, they create a degree of trust that bolsters both parties in the search for a common goal: providing the child with the best possible care.