Anke de Veer - Academia.edu (original) (raw)

Papers by Anke de Veer

Research paper thumbnail of Home care for patients with dirty homes: a qualitative study of the problems experienced by nurses and possible solutions

BMC Health Services Research, May 3, 2022

Background: Home-care nurses are often the first care professionals to enter a dirty home. The pe... more Background: Home-care nurses are often the first care professionals to enter a dirty home. The perceived problems and support needs of home-care nurses in these situations are largely unknown. Objective: To examine the problems home-care nurses encounter in caring for patients living in dirty homes, and possible solutions for these problems. Design: Qualitative descriptive research. Setting: Communities across the Netherlands. Participants: Twenty-three participants to investigate the problems or needs experienced, and 20 participants to investigate solutions. Participants included patients, home-care nurses and other professionals working in the community. Methods: Semi-structured interviews were conducted with 23 participants and analysed according to the principles of deductive thematic analysis. Subsequently, in interviews with 4 (representatives of) patients and four focus-group sessions with 16 professionals, the problems found were validated and solutions to the problems discussed. Results: Ten subthemes emerged that were clustered into three main themes: 'dilemmas arise in choosing the right nursing care'; 'cooperation and an integrated approach are often necessary, but lacking'; 'home-care nurses have insufficient competencies'. Seven possible solutions were found: (1) strengthening collaboration between organizations in the community; (2) involving others sooner; (3) case management; (4) person-centred care; (5) taking more time; (6) providing home-care nurses with tools and support services; and (7) strengthening the competencies of nurses. Conclusions: Care for patients with a dirty home is complex. An integrated person-centred care approach is often necessary and home-care nurses need extra support to provide such care. Interventions should not only focus on patients, but address the nurses, the organization, and the collaboration between organizations in the community.

Research paper thumbnail of Perspectives of people with mild intellectual disabilities on care relationships at the end of life: A group interview study

Palliative Medicine, Mar 24, 2016

Background: Care relationships are crucial in tailoring the end-of-life care of a person with int... more Background: Care relationships are crucial in tailoring the end-of-life care of a person with intellectual disabilities (ID) to their needs. Yet, almost all studies on end-of-life care for people with ID have been conducted among caregivers. The views of people with ID about care relationships at the end of life have not been a specific focus of research. Aim: To explore relevant dimensions of the care relationships in end-of-life care from the perspectives of people with mild ID in the Netherlands. Design: Group interviews were conducted using nominal group technique. Interviews were inductively analysed by two researchers. Setting/participants: Seven groups participated (33 people). Inclusion criteria were as follows: having mild ID, being able to decide about participation and give informed consent, and not receiving end-of-life care. All groups were interviewed twice. Results: Two dimensions of care relationships were found: (1) 'Ascertain, record and honour wishes' of the ill person. Adequately dealing with care wishes, 'last wishes' and funeral wishes was of central importance: 'it's about their life'. We found an emphasis on control that seemed to reflect the participants' experience that respecting autonomy does not always happen. (2) 'Being there': Ill people need people who are there for him or her, practically, as well as emotionally, socially and spiritually. Participants placed specific emphasis on providing positive experiences.

Research paper thumbnail of Attitudes of Dutch nurses towards their involvement in end-of-life decisions with a possible life-shortening effect

ABSTRACT Background: Nurses are often involved in end-of-life decision making as they play an imp... more ABSTRACT Background: Nurses are often involved in end-of-life decision making as they play an important role in caring for terminally ill patients. Aim: To investigate nurses’ attitudes towards their involvement in end-of-life decisions with a possible lifeshortening effect, and a possible relationship with sociodemographic characteristics and work-related factors. Methods: A representative sample of 903 nurses in the Netherlands received a written structured questionnaire about experiences with medical end-of-life decisions, and the extent to which they agreed with statements about attitudes towards and their role in medical end-of-life decisions on a 5-point scale. Logistic regression models were fitted for each statement to determine the relation between nurses’ attitudes and socio-demographic and work-related characteristics. Results: The response rate was 66 percent. Most nurses, especially highly educated nurses, nurses working in a hospital, and nurses who had experience with or had received training on end-of-life decisions, agreed that patients talk rather to a nurse about end-of-life decisions than to a physician (64%). In particular highly educated and female nurses, believed that they are in a better position to assess patients’ wishes than physicians are (38%). Most nurses, especially those working in a hospital and nursing home agreed that they should be involved in the whole process of end-of-life decisions (74%), and in decisions to withhold or withdraw life sustaining treatment (58%). Though the core value of nursing is the patient’s wellbeing most nurses believed that nursing may also include decisions with a possible life shortening (71%). Conclusion: Overall, nurses agree that decisions with a possible life-shortening effect are part of their job and they want to be involved in these decisions. Work setting seems to be the most important determinant regarding the preferred involvement in decisions which may have a shortening effect. (aut. ref.)

Research paper thumbnail of Nursing care for patients carrying multi‐drug resistant organisms: Experiences, intention to use protective equipment and ability to comply with measures

Journal of Clinical Nursing

AimsThe aims of the study were to explore the impact of caring for patients carrying multi‐drug r... more AimsThe aims of the study were to explore the impact of caring for patients carrying multi‐drug resistant organisms on nursing staff and identify factors predicting their intention to use personal protective equipment and their ability to comply with advised infection prevention and control measures.BackgroundCarriage of multi‐drug resistant organisms and corresponding infection prevention and control measures have a major impact on patients. Limited research has been done to investigate the impact of caring for these patients on nursing staff.DesignA cross‐sectional design.MethodsOnline survey among Dutch nursing staff in various healthcare settings. Prediction analyses were conducted using random forest. The STROBE checklist was used preparing the manuscript.Results974 respondents were included. The majority of nursing staff reported to have experience in caring for patients carrying multi‐drug resistant organisms. Relevant dilemmas in daily practice were identified. Important pre...

Research paper thumbnail of End-of-life care for homeless people in shelter-based nursing care settings: A retrospective record study

Palliative Medicine, 2020

Background: Homeless people experience multiple health problems and early mortality. In the Nethe... more Background: Homeless people experience multiple health problems and early mortality. In the Netherlands, they can get shelter-based end-of-life care, but shelters are predominantly focused on temporary accommodation and recovery. Aim: To examine the characteristics of homeless people who reside at the end-of-life in shelter-based nursing care settings and the challenges in the end-of-life care provided to them. Design: A retrospective record study using both quantitative and qualitative analysis methods. Setting/participants: Two Dutch shelter-based nursing care settings. We included 61 homeless patients who died between 2009 and 2016. Results: Most patients had somatic (98%), psychiatric (84%) and addiction problems (90%). For 75% of the patients, the end of life was recognised and documented; this occurred 0–1253 days before death. For 26%, a palliative care team was consulted in the year before death. In the three months before death, 45% had at least three transitions, mainly to...

Research paper thumbnail of Improving palliative care for people with intellectual disability: a self-assessment of policies, practices and competencies in care services

BMC Palliative Care

Background Providing care for ageing and vulnerable people with intellectual disability (ID) is c... more Background Providing care for ageing and vulnerable people with intellectual disability (ID) is challenging, and professionals working in ID care often have limited experience in palliative care. The current study provides insight into palliative care practices in ID care services and competencies of professionals and identifies ways to improve palliative care for people with ID. Methods For this study ten services in the Netherlands were recruited that provide care for people with mild to profound ID. Professionals in each of these services conducted a self-assessment of their palliative care policies and practices based on nine core element of palliative care described in the Dutch Quality Framework for Palliative Care. The self-assessment included a medical file review of a total of 100 people with ID who died non-suddenly. In addition, 424 professionals from the services returned a digital questionnaire on palliative care competencies and training needs. Results The self-assessm...

Research paper thumbnail of RESEARCH ARTICLE Open Access Successful implementation of new technologies

Background: A growing number of new technologies are becoming available within nursing care that ... more Background: A growing number of new technologies are becoming available within nursing care that can improve the quality of care, reduce costs, or enhance working conditions. However, such effects can only be achieved if technologies are used as intended. The aim of this study is to gain a better understanding of determinants influencing the success of the introduction of new technologies as perceived by nursing staff. Methods: The study population is a nationally representative research sample of nursing staff (further referred to as the Nursing Staff Panel), of whom 685 (67%) completed a survey questionnaire about their experiences with recently introduced technologies. Participants were working in Dutch hospitals, psychiatric organizations, care organizations for mentally disabled people, home care organizations, nursing homes or homes for the elderly. Results: Half of the respondents were confronted with the introduction of a new technology in the last three years. Only half of ...

Research paper thumbnail of Pijn bij dementie

Tijdschrift voor VerpleeghuisGeneeskunde, 2008

Research paper thumbnail of Het management is aan zet

TVZ - Tijdschrift voor verpleegkundige experts, 2017

Research paper thumbnail of Author's response to reviews Title: Factors influencing the implementation of clinical guidelines for health care professionals: a meta-review Authors

Research paper thumbnail of Meerderheid van begeleiders in verstandelijke gehandicaptenzorg voelt zich onvoldoende competent voor begeleiding van chronische zieke cliënt

Als begeleiders mensen met een verstandelijke beperking en een chronische ziekte goed begeleiden ... more Als begeleiders mensen met een verstandelijke beperking en een chronische ziekte goed begeleiden dan is dit gunstig voor hun kwaliteit van leven en zal er, zo is de verwachting, minder beroep worden gedaan op medische zorg. Maar zien begeleiders dit als hun taak? Deze factsheet laat zien dat dit bij 70% van de begeleiders het geval is. Zij denken daarbij vooral aan nagaan of iemand een verhoogde kans heeft op bijkomende gezondheidsproblemen en deze tijdig signaleren. Voorlichting, advisering en het bevorderen van zelfmanagement worden minder vaak als onderdeel van hun taak gezien. Opvallend veel begeleiders, namelijk 58%, vindt de eigen kennis en vaardigheden op dit terrein nog onvoldoende. Begeleiders met een verpleegkundige achtergrond hebben een bredere taakopvatting dan begeleiders met een agogisch vooropleiding en voelen zich ook beter toegerust.

Research paper thumbnail of Lessons Learned about Implementation and Continuation from a Nationwide Quality Improvement Program in Dutch Palliative Care

Research paper thumbnail of Panel Verpleging en Verzorging: incidenten met medische technologie in ziekenhuizen

Research paper thumbnail of Zorgen over patiënten met verstandelijke beperking

Huisarts en wetenschap, 2014

Research paper thumbnail of s response to reviews Title : Factors influencing the implementation of clinical guidelines for health care professionals : a meta-review

Research paper thumbnail of Additional file 3: of Palliative care for homeless people: a systematic review of the concerns, care needs and preferences, and the barriers and facilitators for providing palliative care

Characteristics of study populations. (DOCX 29Â kb)

Research paper thumbnail of Additional file 2: of Palliative care for homeless people: a systematic review of the concerns, care needs and preferences, and the barriers and facilitators for providing palliative care

Details of assessments of studies by using the Critical Appraisal Tool. (DOCX 22Â kb)

Research paper thumbnail of ACP-trainingsprogramma

Research paper thumbnail of Decision-making about the best place of palliative care for people with intellectual disabilities: a guide for care staff and healthcare professionals providing palliative care for people with intellectual disabilities

Familiarity 9 The team's expertise 10 The home environment setup 11 Fellow residents or family me... more Familiarity 9 The team's expertise 10 The home environment setup 11 Fellow residents or family members 12 Different perspectives 13 Making the decision together 15

Research paper thumbnail of s response to reviews Title : Successful implementation of new technologies in nursing care : a questionnaire survey among nurse-users

Research paper thumbnail of Home care for patients with dirty homes: a qualitative study of the problems experienced by nurses and possible solutions

BMC Health Services Research, May 3, 2022

Background: Home-care nurses are often the first care professionals to enter a dirty home. The pe... more Background: Home-care nurses are often the first care professionals to enter a dirty home. The perceived problems and support needs of home-care nurses in these situations are largely unknown. Objective: To examine the problems home-care nurses encounter in caring for patients living in dirty homes, and possible solutions for these problems. Design: Qualitative descriptive research. Setting: Communities across the Netherlands. Participants: Twenty-three participants to investigate the problems or needs experienced, and 20 participants to investigate solutions. Participants included patients, home-care nurses and other professionals working in the community. Methods: Semi-structured interviews were conducted with 23 participants and analysed according to the principles of deductive thematic analysis. Subsequently, in interviews with 4 (representatives of) patients and four focus-group sessions with 16 professionals, the problems found were validated and solutions to the problems discussed. Results: Ten subthemes emerged that were clustered into three main themes: 'dilemmas arise in choosing the right nursing care'; 'cooperation and an integrated approach are often necessary, but lacking'; 'home-care nurses have insufficient competencies'. Seven possible solutions were found: (1) strengthening collaboration between organizations in the community; (2) involving others sooner; (3) case management; (4) person-centred care; (5) taking more time; (6) providing home-care nurses with tools and support services; and (7) strengthening the competencies of nurses. Conclusions: Care for patients with a dirty home is complex. An integrated person-centred care approach is often necessary and home-care nurses need extra support to provide such care. Interventions should not only focus on patients, but address the nurses, the organization, and the collaboration between organizations in the community.

Research paper thumbnail of Perspectives of people with mild intellectual disabilities on care relationships at the end of life: A group interview study

Palliative Medicine, Mar 24, 2016

Background: Care relationships are crucial in tailoring the end-of-life care of a person with int... more Background: Care relationships are crucial in tailoring the end-of-life care of a person with intellectual disabilities (ID) to their needs. Yet, almost all studies on end-of-life care for people with ID have been conducted among caregivers. The views of people with ID about care relationships at the end of life have not been a specific focus of research. Aim: To explore relevant dimensions of the care relationships in end-of-life care from the perspectives of people with mild ID in the Netherlands. Design: Group interviews were conducted using nominal group technique. Interviews were inductively analysed by two researchers. Setting/participants: Seven groups participated (33 people). Inclusion criteria were as follows: having mild ID, being able to decide about participation and give informed consent, and not receiving end-of-life care. All groups were interviewed twice. Results: Two dimensions of care relationships were found: (1) 'Ascertain, record and honour wishes' of the ill person. Adequately dealing with care wishes, 'last wishes' and funeral wishes was of central importance: 'it's about their life'. We found an emphasis on control that seemed to reflect the participants' experience that respecting autonomy does not always happen. (2) 'Being there': Ill people need people who are there for him or her, practically, as well as emotionally, socially and spiritually. Participants placed specific emphasis on providing positive experiences.

Research paper thumbnail of Attitudes of Dutch nurses towards their involvement in end-of-life decisions with a possible life-shortening effect

ABSTRACT Background: Nurses are often involved in end-of-life decision making as they play an imp... more ABSTRACT Background: Nurses are often involved in end-of-life decision making as they play an important role in caring for terminally ill patients. Aim: To investigate nurses’ attitudes towards their involvement in end-of-life decisions with a possible lifeshortening effect, and a possible relationship with sociodemographic characteristics and work-related factors. Methods: A representative sample of 903 nurses in the Netherlands received a written structured questionnaire about experiences with medical end-of-life decisions, and the extent to which they agreed with statements about attitudes towards and their role in medical end-of-life decisions on a 5-point scale. Logistic regression models were fitted for each statement to determine the relation between nurses’ attitudes and socio-demographic and work-related characteristics. Results: The response rate was 66 percent. Most nurses, especially highly educated nurses, nurses working in a hospital, and nurses who had experience with or had received training on end-of-life decisions, agreed that patients talk rather to a nurse about end-of-life decisions than to a physician (64%). In particular highly educated and female nurses, believed that they are in a better position to assess patients’ wishes than physicians are (38%). Most nurses, especially those working in a hospital and nursing home agreed that they should be involved in the whole process of end-of-life decisions (74%), and in decisions to withhold or withdraw life sustaining treatment (58%). Though the core value of nursing is the patient’s wellbeing most nurses believed that nursing may also include decisions with a possible life shortening (71%). Conclusion: Overall, nurses agree that decisions with a possible life-shortening effect are part of their job and they want to be involved in these decisions. Work setting seems to be the most important determinant regarding the preferred involvement in decisions which may have a shortening effect. (aut. ref.)

Research paper thumbnail of Nursing care for patients carrying multi‐drug resistant organisms: Experiences, intention to use protective equipment and ability to comply with measures

Journal of Clinical Nursing

AimsThe aims of the study were to explore the impact of caring for patients carrying multi‐drug r... more AimsThe aims of the study were to explore the impact of caring for patients carrying multi‐drug resistant organisms on nursing staff and identify factors predicting their intention to use personal protective equipment and their ability to comply with advised infection prevention and control measures.BackgroundCarriage of multi‐drug resistant organisms and corresponding infection prevention and control measures have a major impact on patients. Limited research has been done to investigate the impact of caring for these patients on nursing staff.DesignA cross‐sectional design.MethodsOnline survey among Dutch nursing staff in various healthcare settings. Prediction analyses were conducted using random forest. The STROBE checklist was used preparing the manuscript.Results974 respondents were included. The majority of nursing staff reported to have experience in caring for patients carrying multi‐drug resistant organisms. Relevant dilemmas in daily practice were identified. Important pre...

Research paper thumbnail of End-of-life care for homeless people in shelter-based nursing care settings: A retrospective record study

Palliative Medicine, 2020

Background: Homeless people experience multiple health problems and early mortality. In the Nethe... more Background: Homeless people experience multiple health problems and early mortality. In the Netherlands, they can get shelter-based end-of-life care, but shelters are predominantly focused on temporary accommodation and recovery. Aim: To examine the characteristics of homeless people who reside at the end-of-life in shelter-based nursing care settings and the challenges in the end-of-life care provided to them. Design: A retrospective record study using both quantitative and qualitative analysis methods. Setting/participants: Two Dutch shelter-based nursing care settings. We included 61 homeless patients who died between 2009 and 2016. Results: Most patients had somatic (98%), psychiatric (84%) and addiction problems (90%). For 75% of the patients, the end of life was recognised and documented; this occurred 0–1253 days before death. For 26%, a palliative care team was consulted in the year before death. In the three months before death, 45% had at least three transitions, mainly to...

Research paper thumbnail of Improving palliative care for people with intellectual disability: a self-assessment of policies, practices and competencies in care services

BMC Palliative Care

Background Providing care for ageing and vulnerable people with intellectual disability (ID) is c... more Background Providing care for ageing and vulnerable people with intellectual disability (ID) is challenging, and professionals working in ID care often have limited experience in palliative care. The current study provides insight into palliative care practices in ID care services and competencies of professionals and identifies ways to improve palliative care for people with ID. Methods For this study ten services in the Netherlands were recruited that provide care for people with mild to profound ID. Professionals in each of these services conducted a self-assessment of their palliative care policies and practices based on nine core element of palliative care described in the Dutch Quality Framework for Palliative Care. The self-assessment included a medical file review of a total of 100 people with ID who died non-suddenly. In addition, 424 professionals from the services returned a digital questionnaire on palliative care competencies and training needs. Results The self-assessm...

Research paper thumbnail of RESEARCH ARTICLE Open Access Successful implementation of new technologies

Background: A growing number of new technologies are becoming available within nursing care that ... more Background: A growing number of new technologies are becoming available within nursing care that can improve the quality of care, reduce costs, or enhance working conditions. However, such effects can only be achieved if technologies are used as intended. The aim of this study is to gain a better understanding of determinants influencing the success of the introduction of new technologies as perceived by nursing staff. Methods: The study population is a nationally representative research sample of nursing staff (further referred to as the Nursing Staff Panel), of whom 685 (67%) completed a survey questionnaire about their experiences with recently introduced technologies. Participants were working in Dutch hospitals, psychiatric organizations, care organizations for mentally disabled people, home care organizations, nursing homes or homes for the elderly. Results: Half of the respondents were confronted with the introduction of a new technology in the last three years. Only half of ...

Research paper thumbnail of Pijn bij dementie

Tijdschrift voor VerpleeghuisGeneeskunde, 2008

Research paper thumbnail of Het management is aan zet

TVZ - Tijdschrift voor verpleegkundige experts, 2017

Research paper thumbnail of Author's response to reviews Title: Factors influencing the implementation of clinical guidelines for health care professionals: a meta-review Authors

Research paper thumbnail of Meerderheid van begeleiders in verstandelijke gehandicaptenzorg voelt zich onvoldoende competent voor begeleiding van chronische zieke cliënt

Als begeleiders mensen met een verstandelijke beperking en een chronische ziekte goed begeleiden ... more Als begeleiders mensen met een verstandelijke beperking en een chronische ziekte goed begeleiden dan is dit gunstig voor hun kwaliteit van leven en zal er, zo is de verwachting, minder beroep worden gedaan op medische zorg. Maar zien begeleiders dit als hun taak? Deze factsheet laat zien dat dit bij 70% van de begeleiders het geval is. Zij denken daarbij vooral aan nagaan of iemand een verhoogde kans heeft op bijkomende gezondheidsproblemen en deze tijdig signaleren. Voorlichting, advisering en het bevorderen van zelfmanagement worden minder vaak als onderdeel van hun taak gezien. Opvallend veel begeleiders, namelijk 58%, vindt de eigen kennis en vaardigheden op dit terrein nog onvoldoende. Begeleiders met een verpleegkundige achtergrond hebben een bredere taakopvatting dan begeleiders met een agogisch vooropleiding en voelen zich ook beter toegerust.

Research paper thumbnail of Lessons Learned about Implementation and Continuation from a Nationwide Quality Improvement Program in Dutch Palliative Care

Research paper thumbnail of Panel Verpleging en Verzorging: incidenten met medische technologie in ziekenhuizen

Research paper thumbnail of Zorgen over patiënten met verstandelijke beperking

Huisarts en wetenschap, 2014

Research paper thumbnail of s response to reviews Title : Factors influencing the implementation of clinical guidelines for health care professionals : a meta-review

Research paper thumbnail of Additional file 3: of Palliative care for homeless people: a systematic review of the concerns, care needs and preferences, and the barriers and facilitators for providing palliative care

Characteristics of study populations. (DOCX 29Â kb)

Research paper thumbnail of Additional file 2: of Palliative care for homeless people: a systematic review of the concerns, care needs and preferences, and the barriers and facilitators for providing palliative care

Details of assessments of studies by using the Critical Appraisal Tool. (DOCX 22Â kb)

Research paper thumbnail of ACP-trainingsprogramma

Research paper thumbnail of Decision-making about the best place of palliative care for people with intellectual disabilities: a guide for care staff and healthcare professionals providing palliative care for people with intellectual disabilities

Familiarity 9 The team's expertise 10 The home environment setup 11 Fellow residents or family me... more Familiarity 9 The team's expertise 10 The home environment setup 11 Fellow residents or family members 12 Different perspectives 13 Making the decision together 15

Research paper thumbnail of s response to reviews Title : Successful implementation of new technologies in nursing care : a questionnaire survey among nurse-users