Bismah Jameel - Academia.edu (original) (raw)

Papers by Bismah Jameel

Research paper thumbnail of Additional file 2 of Barriers and facilitators of patient centered care for immigrant and refugee women: a scoping review

Additional file 2. Data extracted from included studies. Table of data on study characteristics a... more Additional file 2. Data extracted from included studies. Table of data on study characteristics and findings.

Research paper thumbnail of Barriers and facilitators of patient centered care for immigrant and refugee women: a scoping review

BMC Public Health, Jun 26, 2020

Background: Migrants experience disparities in healthcare quality, in particular women migrants. ... more Background: Migrants experience disparities in healthcare quality, in particular women migrants. Despite international calls to improve healthcare quality for migrants, little research has addressed this problem. Patientcentred care (PCC) is a proven approach for improving patient experiences and outcomes. This study reviewed published research on PCC for migrants. Methods: We conducted a scoping review by searching MEDLINE, CINAHL, SCOPUS, EMBASE and the Cochrane Library for English-language qualitative or quantitative studies published from 2010 to June 2019 for studies that assessed PCC for adult immigrants or refugees. We tabulated study characteristics and findings, and mapped findings to a 6-domain PCC framework. Results: We identified 581 unique studies, excluded 538 titles/abstracts, and included 16 of 43 full-text articles reviewed. Most (87.5%) studies were qualitative involving a median of 22 participants (range 10-60). Eight (50.0%) studies involved clinicians only, 6 (37.5%) patients only, and 2 (12.5%) both patients and clinicians. Studies pertained to migrants from 19 countries of origin. No studies evaluated strategies or interventions aimed at either migrants or clinicians to improve PCC. Eleven (68.8%) studies reported barriers of PCC at the patient (i.e. language), clinician (i.e. lack of training) and organization/system level (i.e. lack of interpreters). Ten (62.5%) studies reported facilitators, largely at the clinician level (i.e. establish rapport, take extra time to communicate). Five (31.3%) studies focused on women, thus we identified few barriers (i.e. clinicians dismissed their concerns) and facilitators (i.e. women clinicians) specific to PCC for migrant women. Mapping of facilitators to the PCC framework revealed that most pertained to 2 domains: fostering a healing relationship and exchanging information. Few facilitators mapped to the remaining 4 domains: address emotions/concerns, manage uncertainty, make decisions, and enable selfmanagement. Conclusions: While few studies were included, they revealed numerous barriers of PCC at the patient, clinician and organization/system level for immigrants and refugees from a wide range of countries of origin. The few facilitators identified pertained largely to 2 PCC domains, thereby identifying gaps in knowledge of how to achieve PCC in 4 domains, and an overall paucity of knowledge on how to achieve PCC for migrant women.

Research paper thumbnail of Physician behaviours that optimize patient‐centred care: Focus groups with migrant women

Health Expectations, Jul 24, 2020

BackgroundNo prior research studied how to implement patient‐centred care (PCC) for migrant women... more BackgroundNo prior research studied how to implement patient‐centred care (PCC) for migrant women, who face inequities in health‐care quality. This study explored migrant women's views about what constitutes PCC and how to achieve it.DesignWe conducted a qualitative study involving three focus groups with migrant women living in Toronto, Canada, recruited from English language classes at a community settlement agency, used constant comparative technique to inductively analyse transcripts and interpreted themes against a published PCC framework.ParticipantsTwenty‐three migrant women aged 25‐78 from 10 countries participated.ResultsWomen articulated 28 physician behaviours important to them across six PCC domains: foster a healing relationship, exchange information, address concerns, manage uncertainty, share decisions and enable self‐care. They emphasized the PCC domain of exchanging information, which included 13 (46.4%) of 28 behaviours: listen to reason for visit, ask questions, provided detailed explanations, communicate clearly, ensure privacy and provide additional information. Women said that instead of practising these behaviours, physicians rushed through discussions, and ignored or dismissed their concerns and questions. As a result, women said that physicians may not fully understand their problem, and they may refrain from stating important details or avoid seeking care.ConclusionsThis research characterized the lack of PCC experienced by migrant women and revealed specific physician behaviours to optimize PCC for migrant women. Research is needed to develop and evaluate the impact of strategies targeted at migrant women, physicians and health‐care systems to support PCC for migrant women.

Research paper thumbnail of Uncommon Methodologies for Conducting Literature Reviews: Part 1—A Policy Analysis of How Maternal Health Concepts Have Been Framed in Policy Documents of a Low-Income Country

Research paper thumbnail of Maternal Health Policy Priorities in Pakistan: A Content Analysis of Policy Documents

Research Square (Research Square), Nov 25, 2020

Background: Despite numerous improvements in the health care system of Pakistan in the past few d... more Background: Despite numerous improvements in the health care system of Pakistan in the past few decades, many disparities continue to persist between health care policies and practices in comparison to developed nations, particularly in the area of maternal health. Despite a 181% increase in expenditure, Pakistan did not meet its target to reduce child mortality and improve maternal health by 2015, causing these disparities to further widen. Methods: We sought to investigate the policymaking process of Pakistan by conducting a content analysis of 34 policy documents pertaining to maternal health service delivery. Results: We found a number of gaps, priorities, and determinants for health policymaking. The most commonly discussed themes were the following: Measures of Burden, System and Organizational Capacity, Access and Availability of Health Services, Policy and Planning, Gaps and Needs, and Socioeconomic Factors. Integrated care and opioid use were seldom mentioned in included policy documents. Conclusions: We discuss the reasons that might explain why Pakistan has not observed an improvement in maternal health outcomes despite signi cant investment. We use path dependency to explain that drawbacks of health care priority-setting processes in Pakistan. We suggest a refocus on identifying and improving health disparities between communities. We also suggest research and policy attention on integrated care and opioid use in Pakistan.

Research paper thumbnail of The design and delivery of maternal health interventions in Pakistan: a scoping review

Health Care for Women International, Jan 9, 2020

Hundreds of women die daily due to preventable causes related to pregnancy and childbirth. Multip... more Hundreds of women die daily due to preventable causes related to pregnancy and childbirth. Multiple programs have been developed to support efforts to reduce maternal mortality. However, no synthesis has been conducted to date that reviews the design, delivery, and impact of these initiatives in Pakistan. After conducting a systematic literature search, we found 23 articles describing interventions. We analyzed these articles for intervention characteristics. In this scoping review the authors identify the characteristics of interventions to improve maternal health services in Pakistan and priorities for future programs and research. Recommendations include multi-level interventions, stakeholder engagement, and rigorous evaluations of existing interventions.

Research paper thumbnail of How is patient‐centred care conceptualized in obstetrical health? comparison of themes from concept analyses in obstetrical health‐ and patient‐centred care

Health Expectations, Jan 13, 2022

BackgroundDue to gender inequities that exist for women of childbearing age, there exists a need ... more BackgroundDue to gender inequities that exist for women of childbearing age, there exists a need to deliver care tailored to their needs and preferences. Patient‐centred care (PCC) can be used to meet these needs. This review aims to compare patient care delivery between PCC and obstetrical care. This can help us address how PCC should be delivered to women before, during and after pregnancy versus how it is delivered to patients regardless of sex.MethodsA review of literature was conducted on MEDLINE, EMBASE, CINAHL and SCOPUS for English PCC and high‐quality perinatal reviews published between 2010 and 2021. The data were analysed using a modified Walker and Avant framework.ResultsA total of 2138 unique studies were identified, with 11 PCC and 9 high‐quality obstetrical care studies included. Common defining features between PCC and obstetrical care include respect and dignity, informed decision‐making, therapeutic alliance, effective communication, social relationships and autonomy. PCC‐specific features were holistic care, empowerment, individualized care, coordinated care and empathy. Unique high‐quality obstetrical care themes included continuity of care, privacy and confidentiality, provider education and status, physical environment and equitable maternal care.ConclusionsThere are shared defining attributes between PCC and obstetrical care, including respect and dignity, informed decision‐making, the therapeutic alliance, effective communication, social relationships and autonomy. However, there remain unique defining attributes for high‐quality obstetrical care and PCC. This highlights the need for a unique approach to obstetrical care. More research on care for different physiological conditions in women is needed to address patient care that addresses different parts of the lifespan and develop frameworks that can influence health policy, patient care and health system evaluation.Patient or Public ContributionThis study was one part of a larger, multicomponent study of how to implement PCC for women across the lifespan. While we did not specifically consult or involve women in this dual concept analysis, our larger study (content analysis of clinical guidelines and government policies, qualitative interviews with women and clinicians, Delphi study to prioritize consensus recommendations for achieving PCC for women) was guided by the experiences and input of a 50+ women advisory panel.

Research paper thumbnail of Additional file 3 of Barriers and facilitators of patient centered care for immigrant and refugee women: a scoping review

Additional file 3. Comparison of facilitators and barriers by migrant status, type of care and st... more Additional file 3. Comparison of facilitators and barriers by migrant status, type of care and study design.

Research paper thumbnail of Favouring Responsible Publishing: Creating a Database of Researchers and Surveying Their Knowledge, Attitudes and Opinions towards Open Access Publishing and a New Field-Specific Journal

Introduction: There may be value to understanding the interests and needs of a journal’s audience... more Introduction: There may be value to understanding the interests and needs of a journal’s audience, particularly regarding open access publishing (OAP) and behaviours associated with predatory publishing while establishing a new field-specific journal. As a new journal facing potential challenges in the publishing space, the Journal of Natural Health Product Research (JNHPR) undertook a stakeholder and community feedback initiative on publishing research in the field of natural health products (NHPs). This is the first study, to our knowledge, where academic representatives of the journal used this method to examine the knowledge, attitudes, and opinions of its potential audience. Methods: A database of international researchers in the NHP field was built using publicly available online data. Most NHP researchers (n= 1892) were identified by a keyword-based, systematic search, with additional researchers discovered through snowball sampling. A survey was then developed and distribute...

Research paper thumbnail of Additional file 1 of Barriers and facilitators of patient centered care for immigrant and refugee women: a scoping review

Additional file 1. Search strategy. Strategy used to search databases for relevant studies.

Research paper thumbnail of How is patient‐centred care conceptualized in obstetrical health? comparison of themes from concept analyses in obstetrical health‐ and patient‐centred care

Health Expectations, 2022

BACKGROUND Due to gender inequities that exist for women of childbearing age, there exists a need... more BACKGROUND Due to gender inequities that exist for women of childbearing age, there exists a need to deliver care tailored to their needs and preferences. Patient-centred care (PCC) can be used to meet these needs. This review aims to compare patient care delivery between PCC and obstetrical care. This can help us address how PCC should be delivered to women before, during and after pregnancy versus how it is delivered to patients regardless of sex. METHODS A review of literature was conducted on MEDLINE, EMBASE, CINAHL and SCOPUS for English PCC and high-quality perinatal reviews published between 2010 and 2021. The data were analysed using a modified Walker and Avant framework. RESULTS A total of 2138 unique studies were identified, with 11 PCC and 9 high-quality obstetrical care studies included. Common defining features between PCC and obstetrical care include respect and dignity, informed decision-making, therapeutic alliance, effective communication, social relationships and autonomy. PCC-specific features were holistic care, empowerment, individualized care, coordinated care and empathy. Unique high-quality obstetrical care themes included continuity of care, privacy and confidentiality, provider education and status, physical environment and equitable maternal care. CONCLUSIONS There are shared defining attributes between PCC and obstetrical care, including respect and dignity, informed decision-making, the therapeutic alliance, effective communication, social relationships and autonomy. However, there remain unique defining attributes for high-quality obstetrical care and PCC. This highlights the need for a unique approach to obstetrical care. More research on care for different physiological conditions in women is needed to address patient care that addresses different parts of the lifespan and develop frameworks that can influence health policy, patient care and health system evaluation. PATIENT OR PUBLIC CONTRIBUTION This study was one part of a larger, multicomponent study of how to implement PCC for women across the lifespan. While we did not specifically consult or involve women in this dual concept analysis, our larger study (content analysis of clinical guidelines and government policies, qualitative interviews with women and clinicians, Delphi study to prioritize consensus recommendations for achieving PCC for women) was guided by the experiences and input of a 50+ women advisory panel.

Research paper thumbnail of Uncommon Methodologies for Conducting Literature Reviews: Part 2—A Systematic Review and Concept Analysis of the Terms That Depict Tokenism in Patient Engagement

Research paper thumbnail of Maternal Health Policy Priorities in Pakistan: A Content Analysis of Policy Documents

Background: Despite numerous improvements in the health care system of Pakistan in the past few d... more Background: Despite numerous improvements in the health care system of Pakistan in the past few decades, many disparities continue to persist between health care policies and practices in comparison to developed nations, particularly in the area of maternal health. Despite a 181% increase in expenditure, Pakistan did not meet its target to reduce child mortality and improve maternal health by 2015, causing these disparities to further widen. Methods: We sought to investigate the policymaking process of Pakistan by conducting a content analysis of 34 policy documents pertaining to maternal health service delivery. Results: We found a number of gaps, priorities, and determinants for health policymaking. The most commonly discussed themes were the following: Measures of Burden, System and Organizational Capacity, Access and Availability of Health Services, Policy and Planning, Gaps and Needs, and Socioeconomic Factors. Integrated care and opioid use were seldom mentioned in included po...

Research paper thumbnail of Additional file 3 of Barriers and facilitators of patient centered care for immigrant and refugee women: a scoping review

Additional file 3. Comparison of facilitators and barriers by migrant status, type of care and st... more Additional file 3. Comparison of facilitators and barriers by migrant status, type of care and study design.

Research paper thumbnail of Conceptualizing "access" of maternal health services in lower-middle-income countries

Health Science Inquiry, 2020

A considerable number of women die each year worldwide due to preventable causes during pregnancy... more A considerable number of women die each year worldwide due to preventable causes during pregnancy and childbirth. The high mortality of women who die from pregnancy-related issues can be attributed to inadequate access of high-quality maternal health services. However, access is a nebulous concept with a compendium of conceptualizations and definitions. In this paper, we discuss the various conceptualizations of access to maternal health services in lower middle-income countries, and compare how issues related to access differ between high- and lower middle-income countries. This discussion informs two priorities that we suggest for researchers conducting health system improvement work in lower middle-income countries: 1) develop a robust understanding of the barriers to access that continue to persist due to cultural, socioeconomic, and political factors, and 2) formulate frameworks and theories specific to lower middle-income countries to guide research.

Research paper thumbnail of Barriers and facilitators of patient centered care for immigrant and refugee women: a scoping review

BMC Public Health, 2020

Background Migrants experience disparities in healthcare quality, in particular women migrants. D... more Background Migrants experience disparities in healthcare quality, in particular women migrants. Despite international calls to improve healthcare quality for migrants, little research has addressed this problem. Patient-centred care (PCC) is a proven approach for improving patient experiences and outcomes. This study reviewed published research on PCC for migrants. Methods We conducted a scoping review by searching MEDLINE, CINAHL, SCOPUS, EMBASE and the Cochrane Library for English-language qualitative or quantitative studies published from 2010 to June 2019 for studies that assessed PCC for adult immigrants or refugees. We tabulated study characteristics and findings, and mapped findings to a 6-domain PCC framework. Results We identified 581 unique studies, excluded 538 titles/abstracts, and included 16 of 43 full-text articles reviewed. Most (87.5%) studies were qualitative involving a median of 22 participants (range 10–60). Eight (50.0%) studies involved clinicians only, 6 (37....

Research paper thumbnail of The design and delivery of maternal health interventions in Pakistan: a scoping review

Health Care for Women International, 2020

Hundreds of women die daily due to preventable causes related to pregnancy and childbirth. Multip... more Hundreds of women die daily due to preventable causes related to pregnancy and childbirth. Multiple programs have been developed to support efforts to reduce maternal mortality. However, no synthesis has been conducted to date that reviews the design, delivery, and impact of these initiatives in Pakistan. After conducting a systematic literature search, we found 23 articles describing interventions. We analyzed these articles for intervention characteristics. In this scoping review the authors identify the characteristics of interventions to improve maternal health services in Pakistan and priorities for future programs and research. Recommendations include multi-level interventions, stakeholder engagement, and rigorous evaluations of existing interventions.

Research paper thumbnail of Stakeholders’ feedback on the proposed recommendations for updating the patented medicine prices review board (pmprb) budget impact analysis guidelines

Journal of Population Therapeutics & Clinical Pharmacology, 2020

Introduction The present study aimed to obtain Canadian stakeholders' feedback on a list of propo... more Introduction The present study aimed to obtain Canadian stakeholders' feedback on a list of proposed recommendations for updating the Patented Medicine Prices Review Board (PMPRB)'s 2007 budget impact analysis (BIA) guidelines. Methods A mixed-methods study was designed to obtain feedback from two stakeholder perspectives-(public and private) payers and manufacturers-on the proposed BIA recommendations. We obtained policymakers' opinion through one-on-one interviews and collected feedback from manufacturers and their consultants using a survey. The interview guide and the survey were developed based on the list of Stakeholder analysis for updating BIA guidelines

Research paper thumbnail of Introduction to Qualitative Research for Novice Investigators

Undergraduate Research in Natural and Clinical Science and Technology (URNCST) Journal, 2018

Qualitative research has been used for centuries in the discipline of social sciences to examine ... more Qualitative research has been used for centuries in the discipline of social sciences to examine the experiences, perspectives, and perceptions of individuals and communities. Recently, qualitative research has also emerged as a reputable paradigm of research inquiry within the field of health sciences. Qualitative research may be considered a research approach complementary to quantitative research, which is most commonly utilized in medical disciplines through the use of randomised controlled trials and meta-analyses of treatment effectiveness. It aims to elaborate, explain, and describe social phenomena such as the relationship between patients and healthcare providers, how medical interventions may affect long-term care and quality of life, and how to contextualize the findings of randomized controlled trials to the complex lives of patients by considering the multitude of factors that influence treatment effectiveness. Qualitative research seeks to answer the "why" and "how" of phenomena as opposed to the "what" and "how much." The majority of novice investigators will use the quantitative research paradigm for an independent study course or their thesis dissertation. When these investigators encounter the qualitative research paradigm, they are struck with the lack of simple and useful resources available that identify, clarify, and explicate the qualitative research process. This article aims to serve as an introductory guide for novice investigators who wish to integrate the tradition of qualitative research into their practices. The authors introduce the purpose, components, and process of qualitative research including common methodologies, data collection methods, sampling strategies, and data analysis approaches.

Research paper thumbnail of Research Fundamentals: Data Collection, Data Analysis, and Ethics

Undergraduate Research in Natural and Clinical Science and Technology (URNCST) Journal, 2018

This is the third and final article of a three-part series that follows up the discussion on the ... more This is the third and final article of a three-part series that follows up the discussion on the fundamentals of writing research protocols for quantitative clinical research studies. In this editorial, the authors discuss key elements of data collection, data analysis, and the ethical considerations and implications that come with clinical research. This editorial is the concluding segment on providing guidelines for undergraduate researchers interested in publishing their protocol in the Undergraduate Research in Natural and Clinical Sciences and Technology (URNCST) Journal.

Research paper thumbnail of Additional file 2 of Barriers and facilitators of patient centered care for immigrant and refugee women: a scoping review

Additional file 2. Data extracted from included studies. Table of data on study characteristics a... more Additional file 2. Data extracted from included studies. Table of data on study characteristics and findings.

Research paper thumbnail of Barriers and facilitators of patient centered care for immigrant and refugee women: a scoping review

BMC Public Health, Jun 26, 2020

Background: Migrants experience disparities in healthcare quality, in particular women migrants. ... more Background: Migrants experience disparities in healthcare quality, in particular women migrants. Despite international calls to improve healthcare quality for migrants, little research has addressed this problem. Patientcentred care (PCC) is a proven approach for improving patient experiences and outcomes. This study reviewed published research on PCC for migrants. Methods: We conducted a scoping review by searching MEDLINE, CINAHL, SCOPUS, EMBASE and the Cochrane Library for English-language qualitative or quantitative studies published from 2010 to June 2019 for studies that assessed PCC for adult immigrants or refugees. We tabulated study characteristics and findings, and mapped findings to a 6-domain PCC framework. Results: We identified 581 unique studies, excluded 538 titles/abstracts, and included 16 of 43 full-text articles reviewed. Most (87.5%) studies were qualitative involving a median of 22 participants (range 10-60). Eight (50.0%) studies involved clinicians only, 6 (37.5%) patients only, and 2 (12.5%) both patients and clinicians. Studies pertained to migrants from 19 countries of origin. No studies evaluated strategies or interventions aimed at either migrants or clinicians to improve PCC. Eleven (68.8%) studies reported barriers of PCC at the patient (i.e. language), clinician (i.e. lack of training) and organization/system level (i.e. lack of interpreters). Ten (62.5%) studies reported facilitators, largely at the clinician level (i.e. establish rapport, take extra time to communicate). Five (31.3%) studies focused on women, thus we identified few barriers (i.e. clinicians dismissed their concerns) and facilitators (i.e. women clinicians) specific to PCC for migrant women. Mapping of facilitators to the PCC framework revealed that most pertained to 2 domains: fostering a healing relationship and exchanging information. Few facilitators mapped to the remaining 4 domains: address emotions/concerns, manage uncertainty, make decisions, and enable selfmanagement. Conclusions: While few studies were included, they revealed numerous barriers of PCC at the patient, clinician and organization/system level for immigrants and refugees from a wide range of countries of origin. The few facilitators identified pertained largely to 2 PCC domains, thereby identifying gaps in knowledge of how to achieve PCC in 4 domains, and an overall paucity of knowledge on how to achieve PCC for migrant women.

Research paper thumbnail of Physician behaviours that optimize patient‐centred care: Focus groups with migrant women

Health Expectations, Jul 24, 2020

BackgroundNo prior research studied how to implement patient‐centred care (PCC) for migrant women... more BackgroundNo prior research studied how to implement patient‐centred care (PCC) for migrant women, who face inequities in health‐care quality. This study explored migrant women's views about what constitutes PCC and how to achieve it.DesignWe conducted a qualitative study involving three focus groups with migrant women living in Toronto, Canada, recruited from English language classes at a community settlement agency, used constant comparative technique to inductively analyse transcripts and interpreted themes against a published PCC framework.ParticipantsTwenty‐three migrant women aged 25‐78 from 10 countries participated.ResultsWomen articulated 28 physician behaviours important to them across six PCC domains: foster a healing relationship, exchange information, address concerns, manage uncertainty, share decisions and enable self‐care. They emphasized the PCC domain of exchanging information, which included 13 (46.4%) of 28 behaviours: listen to reason for visit, ask questions, provided detailed explanations, communicate clearly, ensure privacy and provide additional information. Women said that instead of practising these behaviours, physicians rushed through discussions, and ignored or dismissed their concerns and questions. As a result, women said that physicians may not fully understand their problem, and they may refrain from stating important details or avoid seeking care.ConclusionsThis research characterized the lack of PCC experienced by migrant women and revealed specific physician behaviours to optimize PCC for migrant women. Research is needed to develop and evaluate the impact of strategies targeted at migrant women, physicians and health‐care systems to support PCC for migrant women.

Research paper thumbnail of Uncommon Methodologies for Conducting Literature Reviews: Part 1—A Policy Analysis of How Maternal Health Concepts Have Been Framed in Policy Documents of a Low-Income Country

Research paper thumbnail of Maternal Health Policy Priorities in Pakistan: A Content Analysis of Policy Documents

Research Square (Research Square), Nov 25, 2020

Background: Despite numerous improvements in the health care system of Pakistan in the past few d... more Background: Despite numerous improvements in the health care system of Pakistan in the past few decades, many disparities continue to persist between health care policies and practices in comparison to developed nations, particularly in the area of maternal health. Despite a 181% increase in expenditure, Pakistan did not meet its target to reduce child mortality and improve maternal health by 2015, causing these disparities to further widen. Methods: We sought to investigate the policymaking process of Pakistan by conducting a content analysis of 34 policy documents pertaining to maternal health service delivery. Results: We found a number of gaps, priorities, and determinants for health policymaking. The most commonly discussed themes were the following: Measures of Burden, System and Organizational Capacity, Access and Availability of Health Services, Policy and Planning, Gaps and Needs, and Socioeconomic Factors. Integrated care and opioid use were seldom mentioned in included policy documents. Conclusions: We discuss the reasons that might explain why Pakistan has not observed an improvement in maternal health outcomes despite signi cant investment. We use path dependency to explain that drawbacks of health care priority-setting processes in Pakistan. We suggest a refocus on identifying and improving health disparities between communities. We also suggest research and policy attention on integrated care and opioid use in Pakistan.

Research paper thumbnail of The design and delivery of maternal health interventions in Pakistan: a scoping review

Health Care for Women International, Jan 9, 2020

Hundreds of women die daily due to preventable causes related to pregnancy and childbirth. Multip... more Hundreds of women die daily due to preventable causes related to pregnancy and childbirth. Multiple programs have been developed to support efforts to reduce maternal mortality. However, no synthesis has been conducted to date that reviews the design, delivery, and impact of these initiatives in Pakistan. After conducting a systematic literature search, we found 23 articles describing interventions. We analyzed these articles for intervention characteristics. In this scoping review the authors identify the characteristics of interventions to improve maternal health services in Pakistan and priorities for future programs and research. Recommendations include multi-level interventions, stakeholder engagement, and rigorous evaluations of existing interventions.

Research paper thumbnail of How is patient‐centred care conceptualized in obstetrical health? comparison of themes from concept analyses in obstetrical health‐ and patient‐centred care

Health Expectations, Jan 13, 2022

BackgroundDue to gender inequities that exist for women of childbearing age, there exists a need ... more BackgroundDue to gender inequities that exist for women of childbearing age, there exists a need to deliver care tailored to their needs and preferences. Patient‐centred care (PCC) can be used to meet these needs. This review aims to compare patient care delivery between PCC and obstetrical care. This can help us address how PCC should be delivered to women before, during and after pregnancy versus how it is delivered to patients regardless of sex.MethodsA review of literature was conducted on MEDLINE, EMBASE, CINAHL and SCOPUS for English PCC and high‐quality perinatal reviews published between 2010 and 2021. The data were analysed using a modified Walker and Avant framework.ResultsA total of 2138 unique studies were identified, with 11 PCC and 9 high‐quality obstetrical care studies included. Common defining features between PCC and obstetrical care include respect and dignity, informed decision‐making, therapeutic alliance, effective communication, social relationships and autonomy. PCC‐specific features were holistic care, empowerment, individualized care, coordinated care and empathy. Unique high‐quality obstetrical care themes included continuity of care, privacy and confidentiality, provider education and status, physical environment and equitable maternal care.ConclusionsThere are shared defining attributes between PCC and obstetrical care, including respect and dignity, informed decision‐making, the therapeutic alliance, effective communication, social relationships and autonomy. However, there remain unique defining attributes for high‐quality obstetrical care and PCC. This highlights the need for a unique approach to obstetrical care. More research on care for different physiological conditions in women is needed to address patient care that addresses different parts of the lifespan and develop frameworks that can influence health policy, patient care and health system evaluation.Patient or Public ContributionThis study was one part of a larger, multicomponent study of how to implement PCC for women across the lifespan. While we did not specifically consult or involve women in this dual concept analysis, our larger study (content analysis of clinical guidelines and government policies, qualitative interviews with women and clinicians, Delphi study to prioritize consensus recommendations for achieving PCC for women) was guided by the experiences and input of a 50+ women advisory panel.

Research paper thumbnail of Additional file 3 of Barriers and facilitators of patient centered care for immigrant and refugee women: a scoping review

Additional file 3. Comparison of facilitators and barriers by migrant status, type of care and st... more Additional file 3. Comparison of facilitators and barriers by migrant status, type of care and study design.

Research paper thumbnail of Favouring Responsible Publishing: Creating a Database of Researchers and Surveying Their Knowledge, Attitudes and Opinions towards Open Access Publishing and a New Field-Specific Journal

Introduction: There may be value to understanding the interests and needs of a journal’s audience... more Introduction: There may be value to understanding the interests and needs of a journal’s audience, particularly regarding open access publishing (OAP) and behaviours associated with predatory publishing while establishing a new field-specific journal. As a new journal facing potential challenges in the publishing space, the Journal of Natural Health Product Research (JNHPR) undertook a stakeholder and community feedback initiative on publishing research in the field of natural health products (NHPs). This is the first study, to our knowledge, where academic representatives of the journal used this method to examine the knowledge, attitudes, and opinions of its potential audience. Methods: A database of international researchers in the NHP field was built using publicly available online data. Most NHP researchers (n= 1892) were identified by a keyword-based, systematic search, with additional researchers discovered through snowball sampling. A survey was then developed and distribute...

Research paper thumbnail of Additional file 1 of Barriers and facilitators of patient centered care for immigrant and refugee women: a scoping review

Additional file 1. Search strategy. Strategy used to search databases for relevant studies.

Research paper thumbnail of How is patient‐centred care conceptualized in obstetrical health? comparison of themes from concept analyses in obstetrical health‐ and patient‐centred care

Health Expectations, 2022

BACKGROUND Due to gender inequities that exist for women of childbearing age, there exists a need... more BACKGROUND Due to gender inequities that exist for women of childbearing age, there exists a need to deliver care tailored to their needs and preferences. Patient-centred care (PCC) can be used to meet these needs. This review aims to compare patient care delivery between PCC and obstetrical care. This can help us address how PCC should be delivered to women before, during and after pregnancy versus how it is delivered to patients regardless of sex. METHODS A review of literature was conducted on MEDLINE, EMBASE, CINAHL and SCOPUS for English PCC and high-quality perinatal reviews published between 2010 and 2021. The data were analysed using a modified Walker and Avant framework. RESULTS A total of 2138 unique studies were identified, with 11 PCC and 9 high-quality obstetrical care studies included. Common defining features between PCC and obstetrical care include respect and dignity, informed decision-making, therapeutic alliance, effective communication, social relationships and autonomy. PCC-specific features were holistic care, empowerment, individualized care, coordinated care and empathy. Unique high-quality obstetrical care themes included continuity of care, privacy and confidentiality, provider education and status, physical environment and equitable maternal care. CONCLUSIONS There are shared defining attributes between PCC and obstetrical care, including respect and dignity, informed decision-making, the therapeutic alliance, effective communication, social relationships and autonomy. However, there remain unique defining attributes for high-quality obstetrical care and PCC. This highlights the need for a unique approach to obstetrical care. More research on care for different physiological conditions in women is needed to address patient care that addresses different parts of the lifespan and develop frameworks that can influence health policy, patient care and health system evaluation. PATIENT OR PUBLIC CONTRIBUTION This study was one part of a larger, multicomponent study of how to implement PCC for women across the lifespan. While we did not specifically consult or involve women in this dual concept analysis, our larger study (content analysis of clinical guidelines and government policies, qualitative interviews with women and clinicians, Delphi study to prioritize consensus recommendations for achieving PCC for women) was guided by the experiences and input of a 50+ women advisory panel.

Research paper thumbnail of Uncommon Methodologies for Conducting Literature Reviews: Part 2—A Systematic Review and Concept Analysis of the Terms That Depict Tokenism in Patient Engagement

Research paper thumbnail of Maternal Health Policy Priorities in Pakistan: A Content Analysis of Policy Documents

Background: Despite numerous improvements in the health care system of Pakistan in the past few d... more Background: Despite numerous improvements in the health care system of Pakistan in the past few decades, many disparities continue to persist between health care policies and practices in comparison to developed nations, particularly in the area of maternal health. Despite a 181% increase in expenditure, Pakistan did not meet its target to reduce child mortality and improve maternal health by 2015, causing these disparities to further widen. Methods: We sought to investigate the policymaking process of Pakistan by conducting a content analysis of 34 policy documents pertaining to maternal health service delivery. Results: We found a number of gaps, priorities, and determinants for health policymaking. The most commonly discussed themes were the following: Measures of Burden, System and Organizational Capacity, Access and Availability of Health Services, Policy and Planning, Gaps and Needs, and Socioeconomic Factors. Integrated care and opioid use were seldom mentioned in included po...

Research paper thumbnail of Additional file 3 of Barriers and facilitators of patient centered care for immigrant and refugee women: a scoping review

Additional file 3. Comparison of facilitators and barriers by migrant status, type of care and st... more Additional file 3. Comparison of facilitators and barriers by migrant status, type of care and study design.

Research paper thumbnail of Conceptualizing "access" of maternal health services in lower-middle-income countries

Health Science Inquiry, 2020

A considerable number of women die each year worldwide due to preventable causes during pregnancy... more A considerable number of women die each year worldwide due to preventable causes during pregnancy and childbirth. The high mortality of women who die from pregnancy-related issues can be attributed to inadequate access of high-quality maternal health services. However, access is a nebulous concept with a compendium of conceptualizations and definitions. In this paper, we discuss the various conceptualizations of access to maternal health services in lower middle-income countries, and compare how issues related to access differ between high- and lower middle-income countries. This discussion informs two priorities that we suggest for researchers conducting health system improvement work in lower middle-income countries: 1) develop a robust understanding of the barriers to access that continue to persist due to cultural, socioeconomic, and political factors, and 2) formulate frameworks and theories specific to lower middle-income countries to guide research.

Research paper thumbnail of Barriers and facilitators of patient centered care for immigrant and refugee women: a scoping review

BMC Public Health, 2020

Background Migrants experience disparities in healthcare quality, in particular women migrants. D... more Background Migrants experience disparities in healthcare quality, in particular women migrants. Despite international calls to improve healthcare quality for migrants, little research has addressed this problem. Patient-centred care (PCC) is a proven approach for improving patient experiences and outcomes. This study reviewed published research on PCC for migrants. Methods We conducted a scoping review by searching MEDLINE, CINAHL, SCOPUS, EMBASE and the Cochrane Library for English-language qualitative or quantitative studies published from 2010 to June 2019 for studies that assessed PCC for adult immigrants or refugees. We tabulated study characteristics and findings, and mapped findings to a 6-domain PCC framework. Results We identified 581 unique studies, excluded 538 titles/abstracts, and included 16 of 43 full-text articles reviewed. Most (87.5%) studies were qualitative involving a median of 22 participants (range 10–60). Eight (50.0%) studies involved clinicians only, 6 (37....

Research paper thumbnail of The design and delivery of maternal health interventions in Pakistan: a scoping review

Health Care for Women International, 2020

Hundreds of women die daily due to preventable causes related to pregnancy and childbirth. Multip... more Hundreds of women die daily due to preventable causes related to pregnancy and childbirth. Multiple programs have been developed to support efforts to reduce maternal mortality. However, no synthesis has been conducted to date that reviews the design, delivery, and impact of these initiatives in Pakistan. After conducting a systematic literature search, we found 23 articles describing interventions. We analyzed these articles for intervention characteristics. In this scoping review the authors identify the characteristics of interventions to improve maternal health services in Pakistan and priorities for future programs and research. Recommendations include multi-level interventions, stakeholder engagement, and rigorous evaluations of existing interventions.

Research paper thumbnail of Stakeholders’ feedback on the proposed recommendations for updating the patented medicine prices review board (pmprb) budget impact analysis guidelines

Journal of Population Therapeutics & Clinical Pharmacology, 2020

Introduction The present study aimed to obtain Canadian stakeholders' feedback on a list of propo... more Introduction The present study aimed to obtain Canadian stakeholders' feedback on a list of proposed recommendations for updating the Patented Medicine Prices Review Board (PMPRB)'s 2007 budget impact analysis (BIA) guidelines. Methods A mixed-methods study was designed to obtain feedback from two stakeholder perspectives-(public and private) payers and manufacturers-on the proposed BIA recommendations. We obtained policymakers' opinion through one-on-one interviews and collected feedback from manufacturers and their consultants using a survey. The interview guide and the survey were developed based on the list of Stakeholder analysis for updating BIA guidelines

Research paper thumbnail of Introduction to Qualitative Research for Novice Investigators

Undergraduate Research in Natural and Clinical Science and Technology (URNCST) Journal, 2018

Qualitative research has been used for centuries in the discipline of social sciences to examine ... more Qualitative research has been used for centuries in the discipline of social sciences to examine the experiences, perspectives, and perceptions of individuals and communities. Recently, qualitative research has also emerged as a reputable paradigm of research inquiry within the field of health sciences. Qualitative research may be considered a research approach complementary to quantitative research, which is most commonly utilized in medical disciplines through the use of randomised controlled trials and meta-analyses of treatment effectiveness. It aims to elaborate, explain, and describe social phenomena such as the relationship between patients and healthcare providers, how medical interventions may affect long-term care and quality of life, and how to contextualize the findings of randomized controlled trials to the complex lives of patients by considering the multitude of factors that influence treatment effectiveness. Qualitative research seeks to answer the "why" and "how" of phenomena as opposed to the "what" and "how much." The majority of novice investigators will use the quantitative research paradigm for an independent study course or their thesis dissertation. When these investigators encounter the qualitative research paradigm, they are struck with the lack of simple and useful resources available that identify, clarify, and explicate the qualitative research process. This article aims to serve as an introductory guide for novice investigators who wish to integrate the tradition of qualitative research into their practices. The authors introduce the purpose, components, and process of qualitative research including common methodologies, data collection methods, sampling strategies, and data analysis approaches.

Research paper thumbnail of Research Fundamentals: Data Collection, Data Analysis, and Ethics

Undergraduate Research in Natural and Clinical Science and Technology (URNCST) Journal, 2018

This is the third and final article of a three-part series that follows up the discussion on the ... more This is the third and final article of a three-part series that follows up the discussion on the fundamentals of writing research protocols for quantitative clinical research studies. In this editorial, the authors discuss key elements of data collection, data analysis, and the ethical considerations and implications that come with clinical research. This editorial is the concluding segment on providing guidelines for undergraduate researchers interested in publishing their protocol in the Undergraduate Research in Natural and Clinical Sciences and Technology (URNCST) Journal.