Roslyn Boyd - Academia.edu (original) (raw)

Papers by Roslyn Boyd

Research paper thumbnail of Study protocol for Running for health (Run4Health CP): a multicentre, assessor-blinded randomised controlled trial of 12 weeks of two times weekly Frame Running training versus usual care to improve cardiovascular health risk factors in children and youth with cerebral palsy

BMJ Open

IntroductionChildren and youth with moderate-severe (Gross Motor Function Classification System (... more IntroductionChildren and youth with moderate-severe (Gross Motor Function Classification System (GMFCS) levels II–V) cerebral palsy (CP) participate less frequently in physical activities compared with peers without CP and have elevated risk of cardiorespiratory morbidity and mortality in adulthood. Frame Running (RaceRunning) is a new athletics discipline that is an accessible option for physical activity participation for people with moderate-severe CP. There is no high-quality evidence for the effect of Frame Running on cardiovascular disease in children and young people with CP. The primary aim of this study is to conduct a randomised controlled trial of the effect of 12 weeks of Frame Running training on risk factors for cardiovascular disease.Methods and nalysisSixty-two children and youth with CP (age 8–20 years) in GMFCS levels II–V will be recruited across four sites and randomised to receive either 12 weeks of Frame Running training two times weekly for 60 min, or usual ca...

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Research paper thumbnail of Early detection of Australian Aboriginal and Torres Strait Islander infants at high risk of adverse neurodevelopmental outcomes at 12 months corrected age: LEAP-CP prospective cohort study protocol

BMJ Open, 2022

IntroductionNeurodevelopmental disorders (NDD), including cerebral palsy (CP), autism spectrum di... more IntroductionNeurodevelopmental disorders (NDD), including cerebral palsy (CP), autism spectrum disorder (ASD) and foetal alcohol spectrum disorder (FASD), are characterised by impaired development of the early central nervous system, impacting cognitive and/or physical function. Early detection of NDD enables infants to be fast-tracked to early intervention services, optimising outcomes. Aboriginal and Torres Strait Islander infants may experience early life factors increasing their risk of neurodevelopmental vulnerability, which persist into later childhood, further compounding the health inequities experienced by First Nations peoples in Australia. The LEAP-CP prospective cohort study will investigate the efficacy of early screening programmes, implemented in Queensland, Australia to earlier identify Aboriginal and Torres Strait Islander infants who are ‘at risk’ of adverse neurodevelopmental outcomes (NDO) or NDD. Diagnostic accuracy and feasibility of early detection tools for i...

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Research paper thumbnail of Energy expenditure in children following femoral fracture in a randomised controlled trial

Gait & Posture, 1999

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Research paper thumbnail of Day-to-day variability of energy intake in young children with cerebral palsy

Developmental Medicine & Child Neurology, 2012

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Research paper thumbnail of Reported Eating Ability of Young Children With Cerebral Palsy: Is There an Association With Gross Motor Function?

Archives of Physical Medicine and Rehabilitation, Mar 1, 2013

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Research paper thumbnail of Efficacy of early interventions with active parent implementation in low-and-Middle income countries for young children with cerebral palsy to improve child development and parent mental health outcomes: a systematic review

Disability and Rehabilitation, Oct 14, 2021

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Research paper thumbnail of Parent-reported indicators for detecting feeding and swallowing difficulties and undernutrition in preschool-aged children with cerebral palsy

Developmental Medicine & Child Neurology, Sep 6, 2017

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Research paper thumbnail of The Eating and Drinking Ability Classification System in a population-based sample of preschool children with cerebral palsy

Developmental Medicine & Child Neurology, Mar 9, 2017

To determine (1) the reproducibility of the Eating and Drinking Ability Classification System (ED... more To determine (1) the reproducibility of the Eating and Drinking Ability Classification System (EDACS); (2) EDACS classification distribution in a population‐based cohort with cerebral palsy (CP); and (3) the relationships between the EDACS and clinical mealtime assessment, other classifications, and health outcomes.

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Research paper thumbnail of Clinical signs suggestive of pharyngeal dysphagia in preschool children with cerebral palsy

Research in Developmental Disabilities, Mar 1, 2015

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Research paper thumbnail of Oropharyngeal dysphagia in preschool children with cerebral palsy: Oral phase impairments

Research in Developmental Disabilities, Dec 1, 2014

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Research paper thumbnail of A prospective, longitudinal study of growth, nutrition and sedentary behaviour in young children with cerebral palsy

BMC Public Health, Apr 6, 2010

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Research paper thumbnail of Food and fluid texture consumption in a population-based cohort of preschool children with cerebral palsy: relationship to dietary intake

Developmental Medicine & Child Neurology, May 15, 2015

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Research paper thumbnail of Clinimetrics of measures of oropharyngeal dysphagia for preschool children with cerebral palsy and neurodevelopmental disabilities: a systematic review

Developmental Medicine & Child Neurology, May 14, 2012

Aim The aim of this study was to determine the psychometric properties and clinical utility of o... more Aim The aim of this study was to determine the psychometric properties and clinical utility of objective measures of oropharyngeal dysphagia (OPD) in children with cerebral palsy or neurodevelopmental disabilities aged 12 months to 5 years.Method Five electronic databases were searched to identify measures of OPD. The Consensus‐based Standards for the Selection of Measurement Instruments (COSMIN) Checklist was used to assess psychometric properties and a Modified CanChild Outcome Rating Form was used for clinical utility.Results Nine measures of OPD from 27 papers were assessed: the Brief Assessment of Motor Function – Oral Motor Deglutition Scale; the Behavioral Assessment Scale of Oral Functions in Feeding; the Dysphagia Disorders Survey; the Feeding Behaviour Scale; the Functional Feeding Assessment, modified; the Gisel Video Assessment; the Oral Motor Assessment Scale; the Pre‐Speech Assessment Scale; and the Schedule for Oral Motor Assessment.Interpretation The Schedule for Oral Motor Assessment and the Functional Feeding Assessment, modified, proved to be the strongest measures based on published psychometric properties of validity and reliability. The Schedule for Oral Motor Assessment and the Dysphagia Disorders Survey were found to have the strongest clinical utility. Further studies to test the psychometric properties of existing measures, in particular predictive validity, responsiveness, and test–retest reliability, would be beneficial for selecting an appropriate measure for both clinical and research contexts.

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Research paper thumbnail of Oropharyngeal Dysphagia and Gross Motor Skills in Children With Cerebral Palsy

Pediatrics, Apr 15, 2013

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Research paper thumbnail of Validity and reproducibility of measures of oropharyngeal dysphagia in preschool children with cerebral palsy

Developmental Medicine & Child Neurology, Nov 7, 2014

The aim of the study was to determine the best measure to discriminate between those with orophar... more The aim of the study was to determine the best measure to discriminate between those with oropharyngeal dysphagia (OPD) and those without OPD, among young children with cerebral palsy (CP). We carried out a cross-sectional population-based study involving 130 children with CP aged between 18 months and 36 months (mean 27.4mo; 81 males, 49 females) classified according to the Gross Motor Function Classification Scale (GMFCS) as level I (n=57), II (n=15), III (n=23), IV (n=12), or V (n=23). Forty children with CP (mean 28.5mo; 21 males,19 females, eight for each GMFCS level) were included in the reproducibility sub-study, and 40 children with typical development (mean 26.2mo; 18 males, 22 females) were included in the validity sub-study. OPD was assessed using the Dysphagia Disorders Survey (DDS), Pre-Speech Assessment Scale (PSAS), and Schedule for Oral Motor Assessment (SOMA). We analysed reproducibility using inter- and intrarater agreement (percentage) and reliability (kappa values and intraclass correlation coefficients). Construct validity was assessed as concordance between measures (SOMA, DDS, and PSAS). In the absence of a criterion standard measure for OPD, prevalence was estimated using latent class variable analysis. Data from the children with typical development were used to propose modified OPD cut-points for discriminative validity. All measures had strong agreement (>85%) for inter- and intrarater reliability. The SOMA had the best specificity (100.0%), but lacked sensitivity (53.0%), whereas the DDS and PSAS had high sensitivity (each 100.0%) but lacked specificity (47.1% and 70.6% respectively). OPD prevalence when calculated using the web-based estimation was 65.4%, which was similar to the estimate from the modified cut-points. Using the sample of children with typical development and modified cut-points, OPD prevalence was lower than estimates with standard scoring. We propose using these modified cut-points when administering the DDS, PSAS or SOMA in young children with CP.

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Research paper thumbnail of Longitudinal Growth, Diet, and Physical Activity in Young Children With Cerebral Palsy

Pediatrics, Sep 7, 2016

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Research paper thumbnail of Differences in body composition according to functional ability in preschool-aged children with cerebral palsy

Clinical Nutrition, Feb 1, 2015

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Research paper thumbnail of A systematic review of the clinimetric properties of oral motor dysfunction measures for preschool children with cerebral palsy

Developmental Medicine & Child Neurology, 2012

This systematic review evaluates assessments used to discriminate, predict, or evaluate the motor... more This systematic review evaluates assessments used to discriminate, predict, or evaluate the motor development of preterm infants during the first year of life. Eighteen assessments were identified; nine met the inclusion criteria. The Alberta Infant Motor Scale (AIMS), Bayley Scale of Infant and Toddler Development -- Version III, Peabody Developmental Motor Scales -- Version 2, Test of Infant Motor Performance (TIMP), and Toddler and Infant Motor Examination have good discriminative validity when examined in large populations. The AIMS, Prechtl's Assessment of General Movements (GMs), Neuro Sensory Motor Development Assessment (NSMDA), and TIMP were designed for preterm infants and are able to detect more subtle changes in movement quality. The best predictive assessment tools are age dependent: GMs, the Movement Assessment of Infants, and TIMP are strongest in early infancy (age 4 mo or less) and the AIMS and NSMDA are better at older ages (8-12 mo). The TIMP is the only tool that has demonstrated a difference between groups in response to intervention in two randomized controlled trials. The AIMS, TIMP, and GMs demonstrated the highest levels of overall reliability (interrater and intrarater intraclass correlation coefficient or kappa>0.85). Selection of motor assessment tools during the first year of life for infants born preterm will depend on the intended purpose of their use for discrimination, prediction, and/or evaluation.

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Research paper thumbnail of Reported and observed clinical signs of oropharyngeal aspiration in young children with cerebral palsy

Developmental Medicine & Child Neurology, 2011

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Research paper thumbnail of Relationship between body composition and functional ability in preschool children with cerebral palsy

Developmental Medicine & Child Neurology, 2012

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Research paper thumbnail of Study protocol for Running for health (Run4Health CP): a multicentre, assessor-blinded randomised controlled trial of 12 weeks of two times weekly Frame Running training versus usual care to improve cardiovascular health risk factors in children and youth with cerebral palsy

BMJ Open

IntroductionChildren and youth with moderate-severe (Gross Motor Function Classification System (... more IntroductionChildren and youth with moderate-severe (Gross Motor Function Classification System (GMFCS) levels II–V) cerebral palsy (CP) participate less frequently in physical activities compared with peers without CP and have elevated risk of cardiorespiratory morbidity and mortality in adulthood. Frame Running (RaceRunning) is a new athletics discipline that is an accessible option for physical activity participation for people with moderate-severe CP. There is no high-quality evidence for the effect of Frame Running on cardiovascular disease in children and young people with CP. The primary aim of this study is to conduct a randomised controlled trial of the effect of 12 weeks of Frame Running training on risk factors for cardiovascular disease.Methods and nalysisSixty-two children and youth with CP (age 8–20 years) in GMFCS levels II–V will be recruited across four sites and randomised to receive either 12 weeks of Frame Running training two times weekly for 60 min, or usual ca...

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Research paper thumbnail of Early detection of Australian Aboriginal and Torres Strait Islander infants at high risk of adverse neurodevelopmental outcomes at 12 months corrected age: LEAP-CP prospective cohort study protocol

BMJ Open, 2022

IntroductionNeurodevelopmental disorders (NDD), including cerebral palsy (CP), autism spectrum di... more IntroductionNeurodevelopmental disorders (NDD), including cerebral palsy (CP), autism spectrum disorder (ASD) and foetal alcohol spectrum disorder (FASD), are characterised by impaired development of the early central nervous system, impacting cognitive and/or physical function. Early detection of NDD enables infants to be fast-tracked to early intervention services, optimising outcomes. Aboriginal and Torres Strait Islander infants may experience early life factors increasing their risk of neurodevelopmental vulnerability, which persist into later childhood, further compounding the health inequities experienced by First Nations peoples in Australia. The LEAP-CP prospective cohort study will investigate the efficacy of early screening programmes, implemented in Queensland, Australia to earlier identify Aboriginal and Torres Strait Islander infants who are ‘at risk’ of adverse neurodevelopmental outcomes (NDO) or NDD. Diagnostic accuracy and feasibility of early detection tools for i...

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Research paper thumbnail of Energy expenditure in children following femoral fracture in a randomised controlled trial

Gait & Posture, 1999

Bookmarks Related papers MentionsView impact

Research paper thumbnail of Day-to-day variability of energy intake in young children with cerebral palsy

Developmental Medicine & Child Neurology, 2012

Bookmarks Related papers MentionsView impact

Research paper thumbnail of Reported Eating Ability of Young Children With Cerebral Palsy: Is There an Association With Gross Motor Function?

Archives of Physical Medicine and Rehabilitation, Mar 1, 2013

Bookmarks Related papers MentionsView impact

Research paper thumbnail of Efficacy of early interventions with active parent implementation in low-and-Middle income countries for young children with cerebral palsy to improve child development and parent mental health outcomes: a systematic review

Disability and Rehabilitation, Oct 14, 2021

Bookmarks Related papers MentionsView impact

Research paper thumbnail of Parent-reported indicators for detecting feeding and swallowing difficulties and undernutrition in preschool-aged children with cerebral palsy

Developmental Medicine & Child Neurology, Sep 6, 2017

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Research paper thumbnail of The Eating and Drinking Ability Classification System in a population-based sample of preschool children with cerebral palsy

Developmental Medicine & Child Neurology, Mar 9, 2017

To determine (1) the reproducibility of the Eating and Drinking Ability Classification System (ED... more To determine (1) the reproducibility of the Eating and Drinking Ability Classification System (EDACS); (2) EDACS classification distribution in a population‐based cohort with cerebral palsy (CP); and (3) the relationships between the EDACS and clinical mealtime assessment, other classifications, and health outcomes.

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Research paper thumbnail of Clinical signs suggestive of pharyngeal dysphagia in preschool children with cerebral palsy

Research in Developmental Disabilities, Mar 1, 2015

Bookmarks Related papers MentionsView impact

Research paper thumbnail of Oropharyngeal dysphagia in preschool children with cerebral palsy: Oral phase impairments

Research in Developmental Disabilities, Dec 1, 2014

Bookmarks Related papers MentionsView impact

Research paper thumbnail of A prospective, longitudinal study of growth, nutrition and sedentary behaviour in young children with cerebral palsy

BMC Public Health, Apr 6, 2010

Bookmarks Related papers MentionsView impact

Research paper thumbnail of Food and fluid texture consumption in a population-based cohort of preschool children with cerebral palsy: relationship to dietary intake

Developmental Medicine & Child Neurology, May 15, 2015

Bookmarks Related papers MentionsView impact

Research paper thumbnail of Clinimetrics of measures of oropharyngeal dysphagia for preschool children with cerebral palsy and neurodevelopmental disabilities: a systematic review

Developmental Medicine & Child Neurology, May 14, 2012

Aim The aim of this study was to determine the psychometric properties and clinical utility of o... more Aim The aim of this study was to determine the psychometric properties and clinical utility of objective measures of oropharyngeal dysphagia (OPD) in children with cerebral palsy or neurodevelopmental disabilities aged 12 months to 5 years.Method Five electronic databases were searched to identify measures of OPD. The Consensus‐based Standards for the Selection of Measurement Instruments (COSMIN) Checklist was used to assess psychometric properties and a Modified CanChild Outcome Rating Form was used for clinical utility.Results Nine measures of OPD from 27 papers were assessed: the Brief Assessment of Motor Function – Oral Motor Deglutition Scale; the Behavioral Assessment Scale of Oral Functions in Feeding; the Dysphagia Disorders Survey; the Feeding Behaviour Scale; the Functional Feeding Assessment, modified; the Gisel Video Assessment; the Oral Motor Assessment Scale; the Pre‐Speech Assessment Scale; and the Schedule for Oral Motor Assessment.Interpretation The Schedule for Oral Motor Assessment and the Functional Feeding Assessment, modified, proved to be the strongest measures based on published psychometric properties of validity and reliability. The Schedule for Oral Motor Assessment and the Dysphagia Disorders Survey were found to have the strongest clinical utility. Further studies to test the psychometric properties of existing measures, in particular predictive validity, responsiveness, and test–retest reliability, would be beneficial for selecting an appropriate measure for both clinical and research contexts.

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Research paper thumbnail of Oropharyngeal Dysphagia and Gross Motor Skills in Children With Cerebral Palsy

Pediatrics, Apr 15, 2013

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Research paper thumbnail of Validity and reproducibility of measures of oropharyngeal dysphagia in preschool children with cerebral palsy

Developmental Medicine & Child Neurology, Nov 7, 2014

The aim of the study was to determine the best measure to discriminate between those with orophar... more The aim of the study was to determine the best measure to discriminate between those with oropharyngeal dysphagia (OPD) and those without OPD, among young children with cerebral palsy (CP). We carried out a cross-sectional population-based study involving 130 children with CP aged between 18 months and 36 months (mean 27.4mo; 81 males, 49 females) classified according to the Gross Motor Function Classification Scale (GMFCS) as level I (n=57), II (n=15), III (n=23), IV (n=12), or V (n=23). Forty children with CP (mean 28.5mo; 21 males,19 females, eight for each GMFCS level) were included in the reproducibility sub-study, and 40 children with typical development (mean 26.2mo; 18 males, 22 females) were included in the validity sub-study. OPD was assessed using the Dysphagia Disorders Survey (DDS), Pre-Speech Assessment Scale (PSAS), and Schedule for Oral Motor Assessment (SOMA). We analysed reproducibility using inter- and intrarater agreement (percentage) and reliability (kappa values and intraclass correlation coefficients). Construct validity was assessed as concordance between measures (SOMA, DDS, and PSAS). In the absence of a criterion standard measure for OPD, prevalence was estimated using latent class variable analysis. Data from the children with typical development were used to propose modified OPD cut-points for discriminative validity. All measures had strong agreement (>85%) for inter- and intrarater reliability. The SOMA had the best specificity (100.0%), but lacked sensitivity (53.0%), whereas the DDS and PSAS had high sensitivity (each 100.0%) but lacked specificity (47.1% and 70.6% respectively). OPD prevalence when calculated using the web-based estimation was 65.4%, which was similar to the estimate from the modified cut-points. Using the sample of children with typical development and modified cut-points, OPD prevalence was lower than estimates with standard scoring. We propose using these modified cut-points when administering the DDS, PSAS or SOMA in young children with CP.

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Research paper thumbnail of Longitudinal Growth, Diet, and Physical Activity in Young Children With Cerebral Palsy

Pediatrics, Sep 7, 2016

Bookmarks Related papers MentionsView impact

Research paper thumbnail of Differences in body composition according to functional ability in preschool-aged children with cerebral palsy

Clinical Nutrition, Feb 1, 2015

Bookmarks Related papers MentionsView impact

Research paper thumbnail of A systematic review of the clinimetric properties of oral motor dysfunction measures for preschool children with cerebral palsy

Developmental Medicine & Child Neurology, 2012

This systematic review evaluates assessments used to discriminate, predict, or evaluate the motor... more This systematic review evaluates assessments used to discriminate, predict, or evaluate the motor development of preterm infants during the first year of life. Eighteen assessments were identified; nine met the inclusion criteria. The Alberta Infant Motor Scale (AIMS), Bayley Scale of Infant and Toddler Development -- Version III, Peabody Developmental Motor Scales -- Version 2, Test of Infant Motor Performance (TIMP), and Toddler and Infant Motor Examination have good discriminative validity when examined in large populations. The AIMS, Prechtl's Assessment of General Movements (GMs), Neuro Sensory Motor Development Assessment (NSMDA), and TIMP were designed for preterm infants and are able to detect more subtle changes in movement quality. The best predictive assessment tools are age dependent: GMs, the Movement Assessment of Infants, and TIMP are strongest in early infancy (age 4 mo or less) and the AIMS and NSMDA are better at older ages (8-12 mo). The TIMP is the only tool that has demonstrated a difference between groups in response to intervention in two randomized controlled trials. The AIMS, TIMP, and GMs demonstrated the highest levels of overall reliability (interrater and intrarater intraclass correlation coefficient or kappa>0.85). Selection of motor assessment tools during the first year of life for infants born preterm will depend on the intended purpose of their use for discrimination, prediction, and/or evaluation.

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Research paper thumbnail of Reported and observed clinical signs of oropharyngeal aspiration in young children with cerebral palsy

Developmental Medicine & Child Neurology, 2011

Bookmarks Related papers MentionsView impact

Research paper thumbnail of Relationship between body composition and functional ability in preschool children with cerebral palsy

Developmental Medicine & Child Neurology, 2012

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