Charlotte Robroeks - Academia.edu (original) (raw)

Papers by Charlotte Robroeks

Research paper thumbnail of Outcome of a 30-Month Screening, Education, and Treatment Program of Lower Urinary Tract (Dys)Function in Pediatric Kidney Recipients

Journal of the American Society of Nephrology, Oct 1, 2021

Research paper thumbnail of Completeness, Correctness and Conciseness of Physician-Written Versus Large Language Model Generated Patient Summaries Integrated in Electronic Health Records

Research paper thumbnail of 417.9: A Pre-transplant Risk Assessment Tool for Outcome in Pediatric Kidney Transplantation Based on a Dutch Cohort of 1415 Patients

Transplantation, Sep 1, 2022

Research paper thumbnail of The strengths and complexities of European registries concerning paediatric kidney transplantation health care

Frontiers in Pediatrics, Mar 22, 2023

Robroeks CMHHT (2023) The strengths and complexities of European registries concerning paediatric... more Robroeks CMHHT (2023) The strengths and complexities of European registries concerning paediatric kidney transplantation health care.

Research paper thumbnail of A pre-transplantation risk assessment tool for graft survival in Dutch pediatric kidney recipients

Research paper thumbnail of A pre-transplantation risk assessment tool for graft survival in Dutch pediatric kidney recipients

Research paper thumbnail of Outcome of a thorough screening of lower urinary tract function in all pediatric kidney recipients

Pediatric Transplantation, Dec 8, 2020

LUTD is one of the possible factors influencing pediatric kidney graft outcomes. This study evalu... more LUTD is one of the possible factors influencing pediatric kidney graft outcomes. This study evaluates the results of a thorough assessment of voiding behavior in pediatric transplants. Data of patients with kidney disease of nephrological origin are compared to those with urological origin. A single-center analysis of pediatric kidney transplants performed from 2005 to the present was executed. Donor and recipient characteristics as well as voiding and drinking habits were documented using FVCs and uroflowmetry with PVR measurements. LUTD was defined by a mean MVV >150% or <65% of the EBC for age, abnormal uroflowmetry, PVR repeatedly >15% of EBC or >20 mL, abnormal voiding patterns or behavior, and presence of LUT symptoms. LUTD was diagnosed in 71% of the 56 screened children and more present in urological origin of kidney disease (100%) compared to nephrological origin (61%, P = .005). Individual presence of LUT symptoms, abnormal voiding behavior, FVC parameters, UTIs, and uroflowmetry/PVR parameters were not different between the two groups. Polyuria after transplantation was seen in 63% of patients, mainly in the first post-transplant years and recipients aged <10 years. Time after transplantation was a significant independent predictive factor for the presence of LUTD. LUTD is common in all pediatric kidney recipients and underestimated in those with a nephrological origin of disease. Active screening, monitoring and a care attention plan prior to transplantation and during follow-up, is advocated to optimize outcomes for all patients.

Research paper thumbnail of Preparing for a kidney transplant: Medical nephrectomy in children with nephrotic syndrome

Pediatric Transplantation, Mar 25, 2020

Nephrotic syndrome is characterized by proteinuria, hypoalbuminemia, and general edema. These sym... more Nephrotic syndrome is characterized by proteinuria, hypoalbuminemia, and general edema. These symptoms may persist in children who reach ESRD, which is unfavorable for the patient's allograft outcome. In addition, this may hamper early diagnosis of a relapse after transplantation. Surgical bilateral nephrectomy is often considered for that reason, but medical nephrectomy may be a less invasive alternative. In this retrospective single-center case series, we identified all children on dialysis with ESRD due to nephrotic syndrome in which a medical nephrectomy was attempted before kidney transplantation between 2013 and 2018. Outcome was measured by urine output and serum albumin levels. Eight patients with either congenital nephrotic syndrome or focal segmental glomerular sclerosis were included in the study. All patients received an ACE inhibitor as drug of first choice for medical nephrectomy, to which 5 patients responded with oligoanuria and a significant rise in serum albumin, and 3 patients responded insufficiently. In 1 of these 3 patients, diclofenac was added to the ACE inhibitor, with good result. In the other 2 patients, indomethacin was initiated without success, and surgical bilateral nephrectomy was performed. Overall, 6/8 patients had a successful medical nephrectomy and did not need surgical nephrectomy. No recurrence of nephrotic syndrome was found after kidney transplantation in all but one. Medical nephrectomy with ACE inhibitors and/or non-steroidal anti-inflammatory drugs is a safe and non-invasive therapy to minimize proteinuria in children with ESRD due to nephrotic syndrome before kidney transplantation. We suggest that this strategy should be considered as therapy before proceeding with surgical nephrectomy.

Research paper thumbnail of Prognostic Factors on Graft Function in Pediatric Kidney Recipients

Transplantation Proceedings, Apr 1, 2021

BACKGROUND Graft survival in pediatric kidney transplant recipients has increased in the last dec... more BACKGROUND Graft survival in pediatric kidney transplant recipients has increased in the last decades. Determining prognostic factors for graft function over time allows the identification of patients at risk for graft loss and could lead to improvement of current guidelines. METHODS Data were collected among pediatric kidney transplant recipients in a single center during the first 5 years after transplantation. Mixed model analysis was used to indicate possible prognostic factors for the loss of graft function. RESULTS A total of 100 pediatric kidney transplant recipients were analyzed. Negative prognostics of graft function are higher donor age and higher recipient age, presence of obstructive uropathology, re-transplant, and occurrence of BK viremia. The negative influence on graft function of both donor age and presence of obstructive uropathology increased over time. In this study, the factors that did not influence graft function over time were the number of HLA mismatches, pre-transplant dialysis, intra-abdominal graft placement, ischemia time, occurrence of acute rejection, presence of lower urinary tract dysfunction, occurrence of urinary tract infections, and infections with cytomegalovirus and Epstein-Barr virus. CONCLUSIONS This study showed that a higher donor age and higher recipient age, presence of obstructive uropathology, a re-transplant, and the occurrence of BK viremia were negative prognostic factors of graft function over time, in the first 5 years after transplant. Graft function was comparable between steroid-sparing regimens (preferable in low-risk patients) and regimens including steroids (for special reasons).

Research paper thumbnail of Assessing causality by means of the Naranjo scale in a paediatric patient with life threatening respiratory failure after alemtuzumab administration: a case report

BMC Pediatrics, May 12, 2021

Background: Alemtuzumab is a T cell depleting antibody agent used as induction immunosuppressant ... more Background: Alemtuzumab is a T cell depleting antibody agent used as induction immunosuppressant therapy in solid organ transplant recipients. In addition, it is being increasingly used to treat severe or glucocorticoid-resistant graft rejection. Despite the effectiveness of the treatment, severe adverse events have been reported related to alemtuzumab administration. We present a similar event illustrating the severity of this adverse drug reaction (ADR) and we highlight the structure causality assessment provides in approaching such a case. Case presentation: We report a case of life-threatening respiratory failure after alemtuzumab administration in a 17 year old paediatric kidney transplant recipient. He developed near fatal severe respiratory and circulatory failure based on acute respiratory distress syndrome (ARDS) with diffuse alveolar oedema and haemoptysis hours after his second alemtuzumab administration. As it was questionable whether alemtuzumab could be regarded as the origin of his reaction and in order to assess the causality of this reaction as well as to structure clinical reasoning, we applied a widely used ADR probability scale to systematically review our case. Discussion and conclusions: Our case shows a severe ADR after alemtuzumab administration. It illustrates the importance of proper causality assessment, the structure it provides and the benefit of a clinical pharmacology consultation when a severe reaction is suspected to be an ADR. By taking our case as an example, we demonstrate the added value of structured causality assessment to clinical reasoning and in generating differential diagnoses.

Research paper thumbnail of Oscillometric and intra-arterial blood pressure in children post-kidney transplantation: Is invasive blood pressure measurement always needed?

Pediatric Transplantation, Oct 25, 2018

ObjectiveBlood pressure (BP) monitoring in children immediately after kidney transplantation is i... more ObjectiveBlood pressure (BP) monitoring in children immediately after kidney transplantation is ideally performed with an arterial line. Accurate measurement of BP is necessary for optimal management. However, during the first days postoperative, the arterial line is removed and BP measurement is switched to a non‐invasive device. The aim of this study was to determine the accuracy and reliability of the automated oscillometric device compared to invasive arterial BP (IBP) monitoring in patients after renal transplantation in pediatric intensive care unit (PICU).MethodWe analyzed all simultaneously measured BPs in children with a kidney transplant in the Amalia Children's Hospital Radboud University Medical Center between January 1, 2012, and January 1, 2016. BP measurements were performed according to the hospital protocol. Agreement between invasive and non‐invasive methods was assessed using Bland‐Altman plots.ResultsA total of 29 patients were included in this retrospective study. The majority of children were male (59%), and median age was 11 years (range 1‐17 years). Totally, 80 BP measurements were recorded during the first days post‐kidney transplantation. The correlation coefficients (R) of systolic, diastolic, and MAP of non‐invasive (NIBP) and IBP measurements were 0.84, 0.76, and 0.77, respectively (P &lt; 0.01). Overall, the average MAP (7.5 ± 1.2 mm Hg; P &lt; 0.05) NIBP values were lower compared to IBP. In hypertensive patients, MAP (10.4 ± 10.0 mm Hg; P &lt; 0.05) BP values were significantly lower using the NIBP device. Clinically relevant difference of &gt;10 mm Hg was found in 51% (41/80) of measurements and mainly observed in hypertensive measurements.ConclusionsIBP measurement is considered the golden standard for monitoring BP in patients immediately after kidney transplantation. NIBP values showed a good agreement with invasive reading, but the variability of NIBP mainly in hypertensive patients is high as it is the number of clinically relevant differences to IBP. We conclude that IBP remains the golden standard to monitor BP in children directly postoperatively.

Research paper thumbnail of Challenges in e-Health: The effect of digitalisation of frequency voiding charts on compliance in paediatric patients. Randomised controlled trial comparing digital and versus paper frequency voiding charts

DIGITAL HEALTH

Objective Frequency voiding charts are commonly used to gain better insight into the voiding and ... more Objective Frequency voiding charts are commonly used to gain better insight into the voiding and drinking behaviours of patients with voiding symptoms. Non-compliance when filling out a chart is known to be high. The use of a digital application might increase adherence, but little research has been conducted on this topic. The aim of this study is to compare the quality (number of correctly filled out charts) and quantity (number of complete charts) of digital versus paper frequency voiding charts among children and their parents. Methods A multi-centre parallel randomised controlled trial was conducted. Participants were assigned either a 48-h digital frequency voiding chart or a 48-h paper frequency voiding chart. Completion rates were scored based on a predefined scoring method and transcribed into a percentage. Secondary objectives included user friendliness, feasibility, degree of the child's participation, and attractiveness. Trail registry data: NTR NL9383. Results Ninet...

Research paper thumbnail of The strengths and complexities of European registries concerning paediatric kidney transplantation health care

Frontiers in Pediatrics

IntroductionPatient data are increasingly available in (multi)national registries, especially for... more IntroductionPatient data are increasingly available in (multi)national registries, especially for rare diseases. This study aims to provide an overview of current European registries of paediatric kidney transplantation (PKT) care, their coverage, and their focus. Based on these data, we assess whether the current status is optimal for achieving our common goal: the optimalisation of health care.MethodsA list of all PKT centres within the European Union (EU) as well as active PKT registries was compiled using existing literature and the European Platform on Rare Disease Registration. Registry staff members were contacted to obtain information about the parameters collected and the registry design. These data were compared between registries.ResultsIn total, 109 PKT centres performing PKT surgery were identified in the 27 EU Member States. Currently, five European PKT registries are actively collecting data. In 39% of these centres, no data were registered within any of these five ex...

Research paper thumbnail of A pre-transplantation risk assessment tool for graft survival in Dutch pediatric kidney recipients

Clinical Kidney Journal

Background A prediction model for graft survival including donor and recipient characteristics co... more Background A prediction model for graft survival including donor and recipient characteristics could help clinical decision making and optimize outcomes. The aim of this study was to develop a risk assessment tool for graft survival based on essential pre-transplantation parameters. Methods The data originated from the national Dutch registry (NOTR). A multivariable binary logistic model was used to predict graft survival, corrected for the transplantation era and time after transplantation. Subsequently, a prediction score was calculated from the β-coefficients. For internal validation, derivation (80%) and validation (20%) cohorts were defined. Model performance was assessed with the area under the curve (AUC) of the receiver operating characteristics curve, Hosmer–Lemeshow test, and calibration plots. Results In total 1428 transplantations were performed. Ten-year graft survival was 42% for transplantations before 1990, which has improved to the current value of 92%. Over time, s...

Research paper thumbnail of Diagnostic and therapeutic management of vesico‐ureteral reflux in pediatric kidney transplantation—Results of an online survey on behalf of the European Society for Paediatric Nephrology

Pediatric Transplantation

Research paper thumbnail of 417.9: A Pre-transplant Risk Assessment Tool for Outcome in Pediatric Kidney Transplantation Based on a Dutch Cohort of 1415 Patients

Research paper thumbnail of Pearls and Pitfalls in Pediatric Kidney Transplantation After 5 Decades

Frontiers in Pediatrics

Worldwide, over 1,300 pediatric kidney transplantations are performed every year. Since the first... more Worldwide, over 1,300 pediatric kidney transplantations are performed every year. Since the first transplantation in 1959, healthcare has evolved dramatically. Pre-emptive transplantations with grafts from living donors have become more common. Despite a subsequent improvement in graft survival, there are still challenges to face. This study attempts to summarize how our understanding of pediatric kidney transplantation has developed and improved since its beginnings, whilst also highlighting those areas where future research should concentrate in order to help resolve as yet unanswered questions. Existing literature was compared to our own data of 411 single-center pediatric kidney transplantations between 1968 and 2020, in order to find discrepancies and allow identification of future challenges. Important issues for future care are innovations in immunosuppressive medication, improving medication adherence, careful donor selection with regard to characteristics of both donor and ...

Research paper thumbnail of P88 The potential impact of hematocrit correction on evaluation of tacrolimus target exposure in pediatric kidney transplant patients

Archives of Disease in Childhood, 2019

BackgroundTacrolimus is an important immunosuppressive agent with high intra- and interindividual... more BackgroundTacrolimus is an important immunosuppressive agent with high intra- and interindividual pharmacokinetic variability and a narrow therapeutic index. As tacrolimus extensively accumulates in erythrocytes, hematocrit is a key factor in the interpretation of tacrolimus whole blood concentrations. However, as hematocrit values in pediatric kidney transplant patients are highly variable after kidney transplantation, translating whole blood concentration targets without taking hematocrit into consideration, is theoretically incorrect. The aim of this study is to evaluate the potential impact of hematocrit correction on tacrolimus target exposure in pediatric kidney transplant patients.MethodsData were obtained from 36 pediatric kidney transplant patients. 255 tacrolimus whole blood samples were available, together responsible for 36 area under the concentration time curves (AUCs) and trough concentrations. First, hematocrit-corrected concentrations were derived using a formula de...

Research paper thumbnail of Assessing causality by means of the Naranjo scale in a paediatric patient with life threatening respiratory failure after alemtuzumab administration: a case report

BMC Pediatrics, 2021

Background Alemtuzumab is a T cell depleting antibody agent used as induction immunosuppressant t... more Background Alemtuzumab is a T cell depleting antibody agent used as induction immunosuppressant therapy in solid organ transplant recipients. In addition, it is being increasingly used to treat severe or glucocorticoid-resistant graft rejection. Despite the effectiveness of the treatment, severe adverse events have been reported related to alemtuzumab administration. We present a similar event illustrating the severity of this adverse drug reaction (ADR) and we highlight the structure causality assessment provides in approaching such a case. Case presentation We report a case of life-threatening respiratory failure after alemtuzumab administration in a 17 year old paediatric kidney transplant recipient. He developed near fatal severe respiratory and circulatory failure based on acute respiratory distress syndrome (ARDS) with diffuse alveolar oedema and haemoptysis hours after his second alemtuzumab administration. As it was questionable whether alemtuzumab could be regarded as the o...

Research paper thumbnail of The Netherlands

Exhaled volatile organic compounds predict exacerbations of childhood asthma in a 1-year prospect... more Exhaled volatile organic compounds predict exacerbations of childhood asthma in a 1-year prospective study

Research paper thumbnail of Outcome of a 30-Month Screening, Education, and Treatment Program of Lower Urinary Tract (Dys)Function in Pediatric Kidney Recipients

Journal of the American Society of Nephrology, Oct 1, 2021

Research paper thumbnail of Completeness, Correctness and Conciseness of Physician-Written Versus Large Language Model Generated Patient Summaries Integrated in Electronic Health Records

Research paper thumbnail of 417.9: A Pre-transplant Risk Assessment Tool for Outcome in Pediatric Kidney Transplantation Based on a Dutch Cohort of 1415 Patients

Transplantation, Sep 1, 2022

Research paper thumbnail of The strengths and complexities of European registries concerning paediatric kidney transplantation health care

Frontiers in Pediatrics, Mar 22, 2023

Robroeks CMHHT (2023) The strengths and complexities of European registries concerning paediatric... more Robroeks CMHHT (2023) The strengths and complexities of European registries concerning paediatric kidney transplantation health care.

Research paper thumbnail of A pre-transplantation risk assessment tool for graft survival in Dutch pediatric kidney recipients

Research paper thumbnail of A pre-transplantation risk assessment tool for graft survival in Dutch pediatric kidney recipients

Research paper thumbnail of Outcome of a thorough screening of lower urinary tract function in all pediatric kidney recipients

Pediatric Transplantation, Dec 8, 2020

LUTD is one of the possible factors influencing pediatric kidney graft outcomes. This study evalu... more LUTD is one of the possible factors influencing pediatric kidney graft outcomes. This study evaluates the results of a thorough assessment of voiding behavior in pediatric transplants. Data of patients with kidney disease of nephrological origin are compared to those with urological origin. A single-center analysis of pediatric kidney transplants performed from 2005 to the present was executed. Donor and recipient characteristics as well as voiding and drinking habits were documented using FVCs and uroflowmetry with PVR measurements. LUTD was defined by a mean MVV >150% or <65% of the EBC for age, abnormal uroflowmetry, PVR repeatedly >15% of EBC or >20 mL, abnormal voiding patterns or behavior, and presence of LUT symptoms. LUTD was diagnosed in 71% of the 56 screened children and more present in urological origin of kidney disease (100%) compared to nephrological origin (61%, P = .005). Individual presence of LUT symptoms, abnormal voiding behavior, FVC parameters, UTIs, and uroflowmetry/PVR parameters were not different between the two groups. Polyuria after transplantation was seen in 63% of patients, mainly in the first post-transplant years and recipients aged <10 years. Time after transplantation was a significant independent predictive factor for the presence of LUTD. LUTD is common in all pediatric kidney recipients and underestimated in those with a nephrological origin of disease. Active screening, monitoring and a care attention plan prior to transplantation and during follow-up, is advocated to optimize outcomes for all patients.

Research paper thumbnail of Preparing for a kidney transplant: Medical nephrectomy in children with nephrotic syndrome

Pediatric Transplantation, Mar 25, 2020

Nephrotic syndrome is characterized by proteinuria, hypoalbuminemia, and general edema. These sym... more Nephrotic syndrome is characterized by proteinuria, hypoalbuminemia, and general edema. These symptoms may persist in children who reach ESRD, which is unfavorable for the patient's allograft outcome. In addition, this may hamper early diagnosis of a relapse after transplantation. Surgical bilateral nephrectomy is often considered for that reason, but medical nephrectomy may be a less invasive alternative. In this retrospective single-center case series, we identified all children on dialysis with ESRD due to nephrotic syndrome in which a medical nephrectomy was attempted before kidney transplantation between 2013 and 2018. Outcome was measured by urine output and serum albumin levels. Eight patients with either congenital nephrotic syndrome or focal segmental glomerular sclerosis were included in the study. All patients received an ACE inhibitor as drug of first choice for medical nephrectomy, to which 5 patients responded with oligoanuria and a significant rise in serum albumin, and 3 patients responded insufficiently. In 1 of these 3 patients, diclofenac was added to the ACE inhibitor, with good result. In the other 2 patients, indomethacin was initiated without success, and surgical bilateral nephrectomy was performed. Overall, 6/8 patients had a successful medical nephrectomy and did not need surgical nephrectomy. No recurrence of nephrotic syndrome was found after kidney transplantation in all but one. Medical nephrectomy with ACE inhibitors and/or non-steroidal anti-inflammatory drugs is a safe and non-invasive therapy to minimize proteinuria in children with ESRD due to nephrotic syndrome before kidney transplantation. We suggest that this strategy should be considered as therapy before proceeding with surgical nephrectomy.

Research paper thumbnail of Prognostic Factors on Graft Function in Pediatric Kidney Recipients

Transplantation Proceedings, Apr 1, 2021

BACKGROUND Graft survival in pediatric kidney transplant recipients has increased in the last dec... more BACKGROUND Graft survival in pediatric kidney transplant recipients has increased in the last decades. Determining prognostic factors for graft function over time allows the identification of patients at risk for graft loss and could lead to improvement of current guidelines. METHODS Data were collected among pediatric kidney transplant recipients in a single center during the first 5 years after transplantation. Mixed model analysis was used to indicate possible prognostic factors for the loss of graft function. RESULTS A total of 100 pediatric kidney transplant recipients were analyzed. Negative prognostics of graft function are higher donor age and higher recipient age, presence of obstructive uropathology, re-transplant, and occurrence of BK viremia. The negative influence on graft function of both donor age and presence of obstructive uropathology increased over time. In this study, the factors that did not influence graft function over time were the number of HLA mismatches, pre-transplant dialysis, intra-abdominal graft placement, ischemia time, occurrence of acute rejection, presence of lower urinary tract dysfunction, occurrence of urinary tract infections, and infections with cytomegalovirus and Epstein-Barr virus. CONCLUSIONS This study showed that a higher donor age and higher recipient age, presence of obstructive uropathology, a re-transplant, and the occurrence of BK viremia were negative prognostic factors of graft function over time, in the first 5 years after transplant. Graft function was comparable between steroid-sparing regimens (preferable in low-risk patients) and regimens including steroids (for special reasons).

Research paper thumbnail of Assessing causality by means of the Naranjo scale in a paediatric patient with life threatening respiratory failure after alemtuzumab administration: a case report

BMC Pediatrics, May 12, 2021

Background: Alemtuzumab is a T cell depleting antibody agent used as induction immunosuppressant ... more Background: Alemtuzumab is a T cell depleting antibody agent used as induction immunosuppressant therapy in solid organ transplant recipients. In addition, it is being increasingly used to treat severe or glucocorticoid-resistant graft rejection. Despite the effectiveness of the treatment, severe adverse events have been reported related to alemtuzumab administration. We present a similar event illustrating the severity of this adverse drug reaction (ADR) and we highlight the structure causality assessment provides in approaching such a case. Case presentation: We report a case of life-threatening respiratory failure after alemtuzumab administration in a 17 year old paediatric kidney transplant recipient. He developed near fatal severe respiratory and circulatory failure based on acute respiratory distress syndrome (ARDS) with diffuse alveolar oedema and haemoptysis hours after his second alemtuzumab administration. As it was questionable whether alemtuzumab could be regarded as the origin of his reaction and in order to assess the causality of this reaction as well as to structure clinical reasoning, we applied a widely used ADR probability scale to systematically review our case. Discussion and conclusions: Our case shows a severe ADR after alemtuzumab administration. It illustrates the importance of proper causality assessment, the structure it provides and the benefit of a clinical pharmacology consultation when a severe reaction is suspected to be an ADR. By taking our case as an example, we demonstrate the added value of structured causality assessment to clinical reasoning and in generating differential diagnoses.

Research paper thumbnail of Oscillometric and intra-arterial blood pressure in children post-kidney transplantation: Is invasive blood pressure measurement always needed?

Pediatric Transplantation, Oct 25, 2018

ObjectiveBlood pressure (BP) monitoring in children immediately after kidney transplantation is i... more ObjectiveBlood pressure (BP) monitoring in children immediately after kidney transplantation is ideally performed with an arterial line. Accurate measurement of BP is necessary for optimal management. However, during the first days postoperative, the arterial line is removed and BP measurement is switched to a non‐invasive device. The aim of this study was to determine the accuracy and reliability of the automated oscillometric device compared to invasive arterial BP (IBP) monitoring in patients after renal transplantation in pediatric intensive care unit (PICU).MethodWe analyzed all simultaneously measured BPs in children with a kidney transplant in the Amalia Children's Hospital Radboud University Medical Center between January 1, 2012, and January 1, 2016. BP measurements were performed according to the hospital protocol. Agreement between invasive and non‐invasive methods was assessed using Bland‐Altman plots.ResultsA total of 29 patients were included in this retrospective study. The majority of children were male (59%), and median age was 11 years (range 1‐17 years). Totally, 80 BP measurements were recorded during the first days post‐kidney transplantation. The correlation coefficients (R) of systolic, diastolic, and MAP of non‐invasive (NIBP) and IBP measurements were 0.84, 0.76, and 0.77, respectively (P &lt; 0.01). Overall, the average MAP (7.5 ± 1.2 mm Hg; P &lt; 0.05) NIBP values were lower compared to IBP. In hypertensive patients, MAP (10.4 ± 10.0 mm Hg; P &lt; 0.05) BP values were significantly lower using the NIBP device. Clinically relevant difference of &gt;10 mm Hg was found in 51% (41/80) of measurements and mainly observed in hypertensive measurements.ConclusionsIBP measurement is considered the golden standard for monitoring BP in patients immediately after kidney transplantation. NIBP values showed a good agreement with invasive reading, but the variability of NIBP mainly in hypertensive patients is high as it is the number of clinically relevant differences to IBP. We conclude that IBP remains the golden standard to monitor BP in children directly postoperatively.

Research paper thumbnail of Challenges in e-Health: The effect of digitalisation of frequency voiding charts on compliance in paediatric patients. Randomised controlled trial comparing digital and versus paper frequency voiding charts

DIGITAL HEALTH

Objective Frequency voiding charts are commonly used to gain better insight into the voiding and ... more Objective Frequency voiding charts are commonly used to gain better insight into the voiding and drinking behaviours of patients with voiding symptoms. Non-compliance when filling out a chart is known to be high. The use of a digital application might increase adherence, but little research has been conducted on this topic. The aim of this study is to compare the quality (number of correctly filled out charts) and quantity (number of complete charts) of digital versus paper frequency voiding charts among children and their parents. Methods A multi-centre parallel randomised controlled trial was conducted. Participants were assigned either a 48-h digital frequency voiding chart or a 48-h paper frequency voiding chart. Completion rates were scored based on a predefined scoring method and transcribed into a percentage. Secondary objectives included user friendliness, feasibility, degree of the child's participation, and attractiveness. Trail registry data: NTR NL9383. Results Ninet...

Research paper thumbnail of The strengths and complexities of European registries concerning paediatric kidney transplantation health care

Frontiers in Pediatrics

IntroductionPatient data are increasingly available in (multi)national registries, especially for... more IntroductionPatient data are increasingly available in (multi)national registries, especially for rare diseases. This study aims to provide an overview of current European registries of paediatric kidney transplantation (PKT) care, their coverage, and their focus. Based on these data, we assess whether the current status is optimal for achieving our common goal: the optimalisation of health care.MethodsA list of all PKT centres within the European Union (EU) as well as active PKT registries was compiled using existing literature and the European Platform on Rare Disease Registration. Registry staff members were contacted to obtain information about the parameters collected and the registry design. These data were compared between registries.ResultsIn total, 109 PKT centres performing PKT surgery were identified in the 27 EU Member States. Currently, five European PKT registries are actively collecting data. In 39% of these centres, no data were registered within any of these five ex...

Research paper thumbnail of A pre-transplantation risk assessment tool for graft survival in Dutch pediatric kidney recipients

Clinical Kidney Journal

Background A prediction model for graft survival including donor and recipient characteristics co... more Background A prediction model for graft survival including donor and recipient characteristics could help clinical decision making and optimize outcomes. The aim of this study was to develop a risk assessment tool for graft survival based on essential pre-transplantation parameters. Methods The data originated from the national Dutch registry (NOTR). A multivariable binary logistic model was used to predict graft survival, corrected for the transplantation era and time after transplantation. Subsequently, a prediction score was calculated from the β-coefficients. For internal validation, derivation (80%) and validation (20%) cohorts were defined. Model performance was assessed with the area under the curve (AUC) of the receiver operating characteristics curve, Hosmer–Lemeshow test, and calibration plots. Results In total 1428 transplantations were performed. Ten-year graft survival was 42% for transplantations before 1990, which has improved to the current value of 92%. Over time, s...

Research paper thumbnail of Diagnostic and therapeutic management of vesico‐ureteral reflux in pediatric kidney transplantation—Results of an online survey on behalf of the European Society for Paediatric Nephrology

Pediatric Transplantation

Research paper thumbnail of 417.9: A Pre-transplant Risk Assessment Tool for Outcome in Pediatric Kidney Transplantation Based on a Dutch Cohort of 1415 Patients

Research paper thumbnail of Pearls and Pitfalls in Pediatric Kidney Transplantation After 5 Decades

Frontiers in Pediatrics

Worldwide, over 1,300 pediatric kidney transplantations are performed every year. Since the first... more Worldwide, over 1,300 pediatric kidney transplantations are performed every year. Since the first transplantation in 1959, healthcare has evolved dramatically. Pre-emptive transplantations with grafts from living donors have become more common. Despite a subsequent improvement in graft survival, there are still challenges to face. This study attempts to summarize how our understanding of pediatric kidney transplantation has developed and improved since its beginnings, whilst also highlighting those areas where future research should concentrate in order to help resolve as yet unanswered questions. Existing literature was compared to our own data of 411 single-center pediatric kidney transplantations between 1968 and 2020, in order to find discrepancies and allow identification of future challenges. Important issues for future care are innovations in immunosuppressive medication, improving medication adherence, careful donor selection with regard to characteristics of both donor and ...

Research paper thumbnail of P88 The potential impact of hematocrit correction on evaluation of tacrolimus target exposure in pediatric kidney transplant patients

Archives of Disease in Childhood, 2019

BackgroundTacrolimus is an important immunosuppressive agent with high intra- and interindividual... more BackgroundTacrolimus is an important immunosuppressive agent with high intra- and interindividual pharmacokinetic variability and a narrow therapeutic index. As tacrolimus extensively accumulates in erythrocytes, hematocrit is a key factor in the interpretation of tacrolimus whole blood concentrations. However, as hematocrit values in pediatric kidney transplant patients are highly variable after kidney transplantation, translating whole blood concentration targets without taking hematocrit into consideration, is theoretically incorrect. The aim of this study is to evaluate the potential impact of hematocrit correction on tacrolimus target exposure in pediatric kidney transplant patients.MethodsData were obtained from 36 pediatric kidney transplant patients. 255 tacrolimus whole blood samples were available, together responsible for 36 area under the concentration time curves (AUCs) and trough concentrations. First, hematocrit-corrected concentrations were derived using a formula de...

Research paper thumbnail of Assessing causality by means of the Naranjo scale in a paediatric patient with life threatening respiratory failure after alemtuzumab administration: a case report

BMC Pediatrics, 2021

Background Alemtuzumab is a T cell depleting antibody agent used as induction immunosuppressant t... more Background Alemtuzumab is a T cell depleting antibody agent used as induction immunosuppressant therapy in solid organ transplant recipients. In addition, it is being increasingly used to treat severe or glucocorticoid-resistant graft rejection. Despite the effectiveness of the treatment, severe adverse events have been reported related to alemtuzumab administration. We present a similar event illustrating the severity of this adverse drug reaction (ADR) and we highlight the structure causality assessment provides in approaching such a case. Case presentation We report a case of life-threatening respiratory failure after alemtuzumab administration in a 17 year old paediatric kidney transplant recipient. He developed near fatal severe respiratory and circulatory failure based on acute respiratory distress syndrome (ARDS) with diffuse alveolar oedema and haemoptysis hours after his second alemtuzumab administration. As it was questionable whether alemtuzumab could be regarded as the o...

Research paper thumbnail of The Netherlands

Exhaled volatile organic compounds predict exacerbations of childhood asthma in a 1-year prospect... more Exhaled volatile organic compounds predict exacerbations of childhood asthma in a 1-year prospective study