Dana Roth - Academia.edu (original) (raw)

Papers by Dana Roth

The Family Quality of Life Survey: Main caregivers of people with intellectual or developmental d... more The Family Quality of Life Survey: Main caregivers of people with intellectual or developmental disabilities is intended for international use and may be reprinted or copied for educational, service or research purposes without consent from the authors. However, the authors appreciate and strongly encourage educators and researchers to inform them of the uses to which the Family Quality of Life Survey: Main caregivers of people with intellectual or developmental disabilities is put, and invite them to share data and data analyses. All other uses or adaptations of the survey require written permission from Barry J. Isaacs at the address below. Suggested citation (APA format)

Journal of Mental Health Research in Intellectual Disabilities, 2019

Introduction: Studies regarding the use of support services for persons with a dual diagnosis of ... more Introduction: Studies regarding the use of support services for persons with a dual diagnosis of intellectual disability and psychopathology are scarce; even fewer have focused on children and young adults. The aim of the present study, conducted in Israel, was to compare the use of support services and their perceived effectiveness by families of children and young adults with intellectual disability (ID) and with dual diagnosis. Methods: Data were collected from 195 family (parental) caregivers of individuals with ID or dual diagnosis, aged 10-30. Using a structured questionnaire, family caregivers reported on the use of support services and on their perceived effectiveness. Results: Findings showed that in addition to the obvious mental health services, caregivers of individuals with ID and dual diagnosis report using a range of services and resources. Caregivers of persons diagnosed only with ID perceived some of the mental health services as being more effective than did caregivers of individuals with dual diagnosis. Conclusion: We advocate for enhanced training for professionals working with individuals with dual diagnosis within all services. Furthermore, parents need to be supported in their search for services for their child and in dealing with complex situations. In addition, more research is needed to identify why individuals with dual diagnosis may not benefit from current mental health services and, in line with this, develop more effective services. Finally, we advocate for the establishment of a one-stop shop that can provide for the comprehensive needs of these individuals within one center.

Administration and Policy in Mental Health and Mental Health Services Research, 2019

This study examined the roles of stigma and of enabling factors in help-seeking by parental careg... more This study examined the roles of stigma and of enabling factors in help-seeking by parental caregivers of individuals with intellectual disabilities and dual diagnosis. Questionnaires were completed by 195 family caregivers. Lower family stigma was related to higher personal enabling factors (e.g. knowledge about services and previous experience in seeking help), which in turn was related to higher help-seeking behaviors. Higher professional enabling factors (e.g. attitude of the professional, services in the vicinity) were related to higher intentions to seek help, which were related to higher help-seeking behaviors. Professionals can help families achieve a greater sense of self-efficacy in their own help-seeking process by providing them with knowledge about services and facilitating a more positive experience in the process.

Men Disability Society, 2017

Social, political, and cultural realities have an effect on all members of society. For families ... more Social, political, and cultural realities have an effect on all members of society. For families with a child with disability there are additional challenges. Being a minority family with a child with a disability adds to the challenges. This study compares the family quality of life (FQOL) of families with a child with disability in Jewish and Arab communities in Israel. Main caregivers of children with disabilities of 158 Jewish and 105 Arab Israeli responded to the Family Quality of Life Survey, which operationalizes FQOL as a construct of six measurement dimensions in nine core family life domains. Overall, Jewish families in Israel reported higher FQOL than Arab families. Although eight of the nine domains were rated highly for Importance, the main outcome measures Attainment and Satisfaction were rated lower for almost all domains. Some domains contributed to overall differences more than others. The patterns also differed for the Jewish and Arab families. Social/cultural/poli...

Journal of Policy and Practice in Intellectual Disabilities, 2007

The International Family Quality of Life Project, begun in 1997, involves the collaboration of a ... more The International Family Quality of Life Project, begun in 1997, involves the collaboration of a team of researchers from Australia, Canada, Israel, and the United States whose aim was to conceptualize "family quality of life" and develop a survey tool. The authors describe the basis for the conceptualization and explain the survey development process. An initial version of the survey (the Family Quality of Life Survey-FQoLS-2000) was used to collect FQoL data across several countries in the early 2000s. The experiences of survey respondents and administrators and subsequent data analysis suggested modifications that resulted in an updated version-the FQoLS-2006. This new version focuses on 9 areas of family life: health, finances, family relationships, support from other people, support from disability-related services, influence of values, careers and planning for careers, leisure and recreation, and community interaction. The authors explore each of these areas in relation to 6 underlying concepts: importance, opportunities, initiative, attainment, stability, and satisfaction. Other sections entail obtaining information on the family make-up, family member, or members, with intellectual disability, and an overall summary of FQoL. The authors note that information from the FQoLS-2006 should be useful for a wide variety of purposes related to providing supports to individuals and families.

Journal of Policy and Practice in Intellectual Disabilities

This paper compares the family quality of life (FQOL) of families with a child with disability in... more This paper compares the family quality of life (FQOL) of families with a child with disability in Jewish and Arab communities in Israel. Social, political, and cultural realities have an effect on all members of society. For families with a child with disability there are additional challenges. Being a minority family with a child with a disability adds to the challenges. One hundred fifty-eight Jewish and 105 Arab Israeli caregivers of children with disabilities responded to the Family Quality of Life Survey (FQOLS-2006), which operationalizes FQOL as a construct of six measurement dimensions in nine core family life domains. Overall, Jewish families in Israel reported higher FQOL than Arab families. Although eight of the nine domains were rated highly for Importance, the main outcome measures Attainment and Satisfaction were rated lower for almost all domains. Some domains contributed to overall differences more than others. The patterns also differed for the Jewish and Arab families. It is important for policy and practice to consider the social/political status of families and to consider the possible impact this has on the family of a child with a disability. Further research is needed to develop application models for addressing the needs of minority populations in designing programs into the general service delivery system.

Intellectual Disability and Stigma, 2016

This chapter presents the results of a study that examined the voices of people with intellectual... more This chapter presents the results of a study that examined the voices of people with intellectual disability regarding their experience of stigma and self-stigma. The study employed a partial participatory research approach by including people with intellectual disabilities as consultants in the study design. Data was collected via semi-structured focus groups conducted within self-advocacy groups (SAGs) for people with intellectual disabilities. Findings showed that people with intellectual disabilities experience stigma and respond with avoidance, frustration, pain, and sadness. Five themes were identified: emotional impact of stigma, not understanding why stigma occurs and is directed toward them, confusion in self-concept and identity, ignoring as a default response to stigma, and the opportunity provided by self-advocacy.

Journal of International Special Needs Education, 2001

Abstract: A study examined the behavior of 8 Israeli children (ages 2-4) with developmental disab... more Abstract: A study examined the behavior of 8 Israeli children (ages 2-4) with developmental disabilities and maladaptive behavior who were exposed to direct lighting with unshielded standard fluorescent lamps vs. indirect diffuse full spectrum fluorescent lamps. The ...

Social Inclusion

A select committee of faculty, staff, administrators and students collaborated to create and impl... more A select committee of faculty, staff, administrators and students collaborated to create and implement the Disability Awareness, Training, and Empowerment (DATE) program on the campus of a midsize public state institution in the Northeastern United States. Based on studies of existing literature in the field, as well as campus climate information, the committee created a unique training program that has, to date, seen the training of over 350 faculty members, staff and administrators. This article will explore the literature that was surveyed to form the philosophical underpinnings of the program. The starting place for the training was No Pity: People with Disabilities Forging a New Civil Rights Movement (Shapiro, 1993), as well as the research of Cole and Cawthon (2015), Hehir and Schifter (2015), and Oliver (1990). After surveying this supporting literature, the article will then explore the evolution and facilitation of the training program, including the various iterations of t...

Faculty of Social Work, University …, 2000

... Barry J. Isaacs Surrey Place Centre 2 Surrey Place Toronto, Ontario M5S 2C2 barry.isaacs@ sur... more ... Barry J. Isaacs Surrey Place Centre 2 Surrey Place Toronto, Ontario M5S 2C2 barry.isaacs@ surreyplace.on.ca Dana Roth Head of Research Department Beit Issie Shapiro Issie Shapiro Street PO Box 29 Raanana 43100 Israel danar@beitissie.org.il Acknowledgement ...

Abstract: This study explains the characteristics and treatment of individuals with Rett Syndrome... more Abstract: This study explains the characteristics and treatment of individuals with Rett Syndrome and presents two case studies that investigated the use of interventions in reducing stereotypical hand movements (SHM). The case studies involve two girls (ages 5 ...

Theory & Psychology, 2000

ABSTRACT The article addresses the current status of Piaget's theory as a perspective on ... more ABSTRACT The article addresses the current status of Piaget's theory as a perspective on the nature of the human intellect and its development. As a framework for discussion, we adopt Lakatos's methodology of research programs, which has been used by several authors to debate the role of Piaget's and other perspectives on cognitive development. The position we advocate is that, in recent years, research in cognitive development has undergone a profound change of perspective, in the course of which the basic ontological commitments of the Piagetian approach have been challenged and undermined. We argue that Piaget's fundamental assumptions of overarching structures and the process of equilibration have been superseded by a new perspective represented by a synthesis of domain-specific and domain-general processes, which has become the dominant impetus in the field.

The purpose was to measure the outcome effects of a hydrotherapy program lasting 12 sessions on t... more The purpose was to measure the outcome effects of a hydrotherapy program lasting 12 sessions on the rehabilitation of participants after joint replacement because of arthritis-related conditions. Sixteen volunteers at a postrehabilitation stage (15 women and one man, mean age 56.7 ± 6.5 y) participated in a quasi-experimental design with simple interrupted time series aimed at improving range of motion around the hip joints, mobility (Berg Balance Scale; BBS), walking velocity in the timed up-and-go test (TUG), and scores on a quality-of-life scale (SF36). Oneway ANOVA statistics showed a significant effect between the pre-and posttest outcomes without differences between baseline and pretest for the extension and abduction of the operated hip, the BBS, the TUG, and the summary measures of the SF36 (general, physical and mental health). Findings suggest significant effects of the proposed treatment across the variables measured in participants with joint transplantations.

This article describes a pioneering evaluation of services for people with intellectual developme... more This article describes a pioneering evaluation of services for people with intellectual developmental disabilities (IDD) in Israel based on the principles of the participatory action research approach. This approach was carried out in an organization that provides housing, employment, and leisure services to people with IDD in Beer Sheva. The aim of the evaluation was to examine the tenants’ level of satisfaction with the services received. Participants in the evaluation included 46 tenants and 20 staff members. The evaluation tool focused on the quality of their lives in general as well as on specific domains. Furthermore, the caregiving staff’s perceptions of their own quality of life (QOL) and that of the tenants were examined. The evaluation tool used to assess the tenants’ quality of life was based on Schalock & Keith’s (1993) model, which underwent adaptations and changes by focus groups of the tenants. The tenants took an active part in the evaluation process, from the stage of adapting the tool through interpretation of the findings.
The level of QOL was generally rated high by the tenants, though the “control/independence” domain received low scores. The findings indicated significant differences between the tenants’ reports and those of the staff relating to their perceptions of the components of QOL and their prioritization. In addition, when dividing the tenants into groups according to level of functioning and support required, differences were found in the perceptions of the components of QOL and their rank order. The main finding showed a tendency among the higher functioning tenants to display less satisfaction with the level of independence in their lives.

Publikationsansicht. 4447187. Gender and birth status as variables in mothers' interaction s... more Publikationsansicht. 4447187. Gender and birth status as variables in mothers' interaction styles with and perceptions of their preterm and full term preschool children / (1989). Roth, Dana. Abstract. Typescript (photocopy).. Abstract (2 leaves) bound with copy.. Thesis (Ph. ...

Stigma in the field of intellectual disabilities, impact and initiatives for change, 2014