Daniela Salinas Barajas - Academia.edu (original) (raw)
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Papers by Daniela Salinas Barajas
The Journal of Pediatrics, 2011
Objective-To examine the process of transition from pediatric to adult healthcare services from t... more Objective-To examine the process of transition from pediatric to adult healthcare services from the perspectives of young adults with chronic disease and pediatric and adult healthcare providers. Study design-A qualitative approach using focus group interviews was performed to investigate transition experiences. Novel innovation games were also utilized to generate data. Content and narrative analyses of interview transcripts were performed. Results-Six focus groups were conducted with 10 young adults with chronic disease and 24 healthcare providers. Content analysis yielded 3 content domains: transition experiences in the context of relationships between patients, parents, and healthcare providers; differences between pediatric and adult-oriented medicine and how these differences inhibit or facilitate transition; and identifying transition services that should be provided to young patients with chronic disease. Conclusion-This study demonstrates the need for gradual transfer of disease management from parent to child and better communication between adult and pediatric services during the transition process. Pediatric medicine and adult medicine represent different subcultures; acknowledging these differences may improve cooperation during transition from pediatric to adult providers. Young adult patients with chronic disease embrace the use of technology for specific interventions to improve the transition experience. Various national healthcare agencies have identified successful transition from pediatric to adult healthcare services as a process crucial to healthcare outcomes in children with chronic disease [1-3]. Although position statements on the issue of transition have been published by relevant societies [1, 4-8], there remains a notable and demonstrable deficiency in services provided to patients to ensure a smooth transition [2, 9]. Data to date suggest that the healthcare transition can be traumatic with adverse morbidity and even mortality outcomes [2, 10-12]. However, interventions to improve outcomes are lacking, and the characteristics
The Journal of Pediatrics, 2011
Objective-To examine the process of transition from pediatric to adult healthcare services from t... more Objective-To examine the process of transition from pediatric to adult healthcare services from the perspectives of young adults with chronic disease and pediatric and adult healthcare providers. Study design-A qualitative approach using focus group interviews was performed to investigate transition experiences. Novel innovation games were also utilized to generate data. Content and narrative analyses of interview transcripts were performed. Results-Six focus groups were conducted with 10 young adults with chronic disease and 24 healthcare providers. Content analysis yielded 3 content domains: transition experiences in the context of relationships between patients, parents, and healthcare providers; differences between pediatric and adult-oriented medicine and how these differences inhibit or facilitate transition; and identifying transition services that should be provided to young patients with chronic disease. Conclusion-This study demonstrates the need for gradual transfer of disease management from parent to child and better communication between adult and pediatric services during the transition process. Pediatric medicine and adult medicine represent different subcultures; acknowledging these differences may improve cooperation during transition from pediatric to adult providers. Young adult patients with chronic disease embrace the use of technology for specific interventions to improve the transition experience. Various national healthcare agencies have identified successful transition from pediatric to adult healthcare services as a process crucial to healthcare outcomes in children with chronic disease [1-3]. Although position statements on the issue of transition have been published by relevant societies [1, 4-8], there remains a notable and demonstrable deficiency in services provided to patients to ensure a smooth transition [2, 9]. Data to date suggest that the healthcare transition can be traumatic with adverse morbidity and even mortality outcomes [2, 10-12]. However, interventions to improve outcomes are lacking, and the characteristics