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The expression of pain or pain behaviour is unique for each per son with or without developmental... more The expression of pain or pain behaviour is unique for each per son with or without developmental disability (DD*). Lack of pain assessment and management creates health disparities for people with DD. Little research has been done to support care guide lines. This scoping review was undertaken to summarize the literature about what is known about pain in people with devel opmental or intellectual disabilities. Studies which include people with autism have been included, recognizing that these individu als may or may not always have difficulties in verbal expression or selfinjurious behaviour. Scoping reviews map the literature to clarify boundaries, identify gaps in evidence and identify areas of research priorities. This scoping review identified four main themes of research related to pain in people with DD: identifying pain; parentalcaregiver report; pain measures and practice rec ommendations. This paper describes the method of this scoping review and the findings related to these four main themes.

The expression of pain or pain behaviour is unique for each per son with or without developmental... more The expression of pain or pain behaviour is unique for each per son with or without developmental disability (DD*). Lack of pain assessment and management creates health disparities for people with DD. Little research has been done to support care guide lines. This scoping review was undertaken to summarize the literature about what is known about pain in people with devel opmental or intellectual disabilities. Studies which include people with autism have been included, recognizing that these individu als may or may not always have difficulties in verbal expression or selfinjurious behaviour. Scoping reviews map the literature to clarify boundaries, identify gaps in evidence and identify areas of research priorities. This scoping review identified four main themes of research related to pain in people with DD: identifying pain; parentalcaregiver report; pain measures and practice rec ommendations. This paper describes the method of this scoping review and the findings related to these four main themes.

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