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Papers by Isabel Phillips

Research paper thumbnail of Contributions of patient and citizen researchers to ‘Am I the right way up?’ study of balance in posterior cortical atrophy and typical Alzheimer’s disease

Dementia, Oct 29, 2018

The current report describes the journey from the sharing of a single, extraordinary experience d... more The current report describes the journey from the sharing of a single, extraordinary experience during a support group conversation to the development of a novel scientific investigation of balance problems in a rarer form of dementia. The story centres around the involvement of people living with or caring for someone with posterior cortical atrophy (PCA; often referred to as the 'visual variant of Alzheimer's disease) in highlighting hitherto under-appreciated consequences of their condition upon their ability to know 'Am I the right way up?'. We describe how comments and descriptions of these balance symptoms were collated and communicated, and the involvement of people with PCA in shaping a series of scientific hypotheses and developing and adapting appropriate experimental materials and procedures. We also reflect more broadly on how we might better recognise, acknowledge and encourage different forms of involvement, and describe several engagement-inspired extensions to the research involving people living with dementia, scientists and artists. Aims and background It is difficult to report the 'aim of PPI' per se in the current study as technically PPI preceded the study. The origins of the research-by which we mean the ideas and creative inspiration which led eventually to formal scientific hypotheses-lie in a broader ongoing relationship between people with posterior cortical atrophy (PCA), care partners, clinicians and researchers formed through our PCA Support Group (www.raredementiasupport.org/pca/). It was at one of these meetings in the Dementia Research Centre in September 2013 that Pam Hulme and Isabel Phillips related how their mother(-in-law) Gaynor Hulme had recently asked them, "Am I the right way up?". This comment was remarkable as posterior cortical atrophy (PCA), the condition with which Gaynor lived, had hitherto been known primarily for its characteristic progressive loss of visual processing (difficulty

Research paper thumbnail of The ADR/CR divide : an autoethnographic interrogation of its impact on the theory and practice of mediation

I am hugely indebted and immensely grateful to many people. Thank you: To Mirjana without whom mu... more I am hugely indebted and immensely grateful to many people. Thank you: To Mirjana without whom much of this journey would never have happened: for keeping me sane, being a friend, confidante and a rock in stormy seas. I will be forever in your debt in a way you may never know. To Tracey, Andy, Ranse, Baria and Susanne, for unstinting support in difficult circumstances and belief that I would make it. To all those who have been in the support roles that have made my work possible, particularly Fiona, Nic, Kat, Emma, Nicky, Andrew, and Caroline. To Graham and Maria who, at different times, gave me 'big breaks'. At the University of Bradford particular thanks to Lisa, Jared and Patrick. You provided crucial support, academically and as friends. To my supervisors, Tom Woodhouse, Caroline Hughes and Jim Whitman, for your time, patience, support and guidance. I feel blest to have worked with all of you. To Oliver for your crucial support at inception and for your continued interest over the years; it has meant a lot to me. To Michele Mozley for being there, for listening, and for finding a way through the bureaucratic brick walls. To my family, particularly to my parents and to Sarah and Bev, for your unfailingly care and love, even when due to my communication failures you haven't had any idea what I'm actually up to. To all my close friends, particularly Claire, Steve, Käthi, and Matthias for being there for me through thick and thin. To Pam your love, support, energy and patience. For your unwavering belief in me, and that I could do this. For inspiring me to follow my dreams. To all those with whom I've ever been in conflict. And to the parties, advisors, mediators and experts in the conflict processes in which I have been involved. Finally, to those who I can't name, or who are currently escaping my conscious memory, and will suddenly appear before my eyes…just after I hit send.

Research paper thumbnail of Ciarb ADR Competence Frameworks, Competence Statements, and Membership Levels

Arbitration: The International Journal of Arbitration, Mediation and Dispute Management No. 88 Issue 4, 2022

This article presents the results of the original research and design conducted on behalf of Char... more This article presents the results of the original research and design conducted on behalf of Chartered Institute of Arbitrators (Ciarb) to create an integrated set of competence frameworks for Alternative Dispute Resolution (ADR), and the individual ADR disciplines of Arbitration, Adjudication and Mediation. It argues that ADR as a field needs to be clearer on the competence it is providing to users, in line with other professions such as law or medicine. The competence frameworks are presented together with a summary of the underlying premises of the work, the work processincluding consultationand some of the expected challenges in operationalizing the frameworks.

Research paper thumbnail of Writing a Field into Existence: The Divergence of Conflict Resolution and Alternative Dispute Resolution (Mediation

Arbitration: The International Journal of Arbitration, Mediation and Dispute Management, 2021

Mediation is often held out as a panacea. The current state is that information and exchange seld... more Mediation is often held out as a panacea. The current state is that information and exchange seldom flow freely between different areas of Dispute and Conflict Resolution theory and practice, and the quality and quantity of mediation research are suffering as a result. Analysis of the historiography of the fields of Conflict Resolution/Conflict Transformation (CR) and Alternative Dispute Resolution (ADR) reveals evidence of how and why this compartmentalisation has arisen and provides clear evidence of common origins and of the divergence of ADR and CR from the 1980s onwards. This is demonstrated through a qualitative analysis of the historiography of the two fields, cross-field UK/USA English language author analysis, analysis of how each field represents itself and the 'other', and the impact of this representation. I apply ADR in this article as capturing mediation and negotiation as its primary focus, not arbitration. This is due to some OECD English-speaking jurisdictions no longer considering arbitration to be 'ADR', because the time, cost and procedure in arbitration has made it virtually indistinguishable from judge-led court processes in these jurisdictions. Please note the worldwide variation in the application of the term 'ADR'.

Research paper thumbnail of Contributions of patient and citizen researchers to 'Am I the right way up?' study of balance in posterior cortical atrophy and typical Alzheimer's disease

Dementia (London, England), 2018

The current report describes the journey from the sharing of a single, extraordinary experience d... more The current report describes the journey from the sharing of a single, extraordinary experience during a support group conversation to the development of a novel scientific investigation of balance problems in a rarer form of dementia. The story centres around the involvement of people living with or caring for someone with posterior cortical atrophy (often referred to as the visual variant of Alzheimer's disease) in highlighting hitherto under-appreciated consequences of their condition upon their ability to know 'Am I the right way up?'. We describe how comments and descriptions of these balance symptoms were collated and communicated, and the involvement of people with posterior cortical atrophy in shaping a series of scientific hypotheses and developing and adapting appropriate experimental materials and procedures. We also reflect more broadly on how we might better recognise, acknowledge and encourage different forms of involvement, and describe several engagement-...

Research paper thumbnail of The ADR/CR divide : an autoethnographic interrogation of its impact on the theory and practice of mediation

PhD, 2017

I am hugely indebted and immensely grateful to many people. Thank you: To Mirjana without whom mu... more I am hugely indebted and immensely grateful to many people. Thank you: To Mirjana without whom much of this journey would never have happened: for keeping me sane, being a friend, confidante and a rock in stormy seas. I will be forever in your debt in a way you may never know. To Tracey, Andy, Ranse, Baria and Susanne, for unstinting support in difficult circumstances and belief that I would make it. To all those who have been in the support roles that have made my work possible, particularly Fiona, Nic, Kat, Emma, Nicky, Andrew, and Caroline. To Graham and Maria who, at different times, gave me 'big breaks'. At the University of Bradford particular thanks to Lisa, Jared and Patrick. You provided crucial support, academically and as friends. To my supervisors, Tom Woodhouse, Caroline Hughes and Jim Whitman, for your time, patience, support and guidance. I feel blest to have worked with all of you. To Oliver for your crucial support at inception and for your continued interest over the years; it has meant a lot to me. To Michele Mozley for being there, for listening, and for finding a way through the bureaucratic brick walls. To my family, particularly to my parents and to Sarah and Bev, for your unfailingly care and love, even when due to my communication failures you haven't had any idea what I'm actually up to. To all my close friends, particularly Claire, Steve, Käthi, and Matthias for being there for me through thick and thin. To Pam your love, support, energy and patience. For your unwavering belief in me, and that I could do this. For inspiring me to follow my dreams. To all those with whom I've ever been in conflict. And to the parties, advisors, mediators and experts in the conflict processes in which I have been involved. Finally, to those who I can't name, or who are currently escaping my conscious memory, and will suddenly appear before my eyes…just after I hit send.

Research paper thumbnail of Contributions of patient and citizen researchers to ‘Am I the right way up?’ study of balance in posterior cortical atrophy and typical Alzheimer’s disease

Dementia, Oct 29, 2018

The current report describes the journey from the sharing of a single, extraordinary experience d... more The current report describes the journey from the sharing of a single, extraordinary experience during a support group conversation to the development of a novel scientific investigation of balance problems in a rarer form of dementia. The story centres around the involvement of people living with or caring for someone with posterior cortical atrophy (PCA; often referred to as the 'visual variant of Alzheimer's disease) in highlighting hitherto under-appreciated consequences of their condition upon their ability to know 'Am I the right way up?'. We describe how comments and descriptions of these balance symptoms were collated and communicated, and the involvement of people with PCA in shaping a series of scientific hypotheses and developing and adapting appropriate experimental materials and procedures. We also reflect more broadly on how we might better recognise, acknowledge and encourage different forms of involvement, and describe several engagement-inspired extensions to the research involving people living with dementia, scientists and artists. Aims and background It is difficult to report the 'aim of PPI' per se in the current study as technically PPI preceded the study. The origins of the research-by which we mean the ideas and creative inspiration which led eventually to formal scientific hypotheses-lie in a broader ongoing relationship between people with posterior cortical atrophy (PCA), care partners, clinicians and researchers formed through our PCA Support Group (www.raredementiasupport.org/pca/). It was at one of these meetings in the Dementia Research Centre in September 2013 that Pam Hulme and Isabel Phillips related how their mother(-in-law) Gaynor Hulme had recently asked them, "Am I the right way up?". This comment was remarkable as posterior cortical atrophy (PCA), the condition with which Gaynor lived, had hitherto been known primarily for its characteristic progressive loss of visual processing (difficulty

Research paper thumbnail of The ADR/CR divide : an autoethnographic interrogation of its impact on the theory and practice of mediation

I am hugely indebted and immensely grateful to many people. Thank you: To Mirjana without whom mu... more I am hugely indebted and immensely grateful to many people. Thank you: To Mirjana without whom much of this journey would never have happened: for keeping me sane, being a friend, confidante and a rock in stormy seas. I will be forever in your debt in a way you may never know. To Tracey, Andy, Ranse, Baria and Susanne, for unstinting support in difficult circumstances and belief that I would make it. To all those who have been in the support roles that have made my work possible, particularly Fiona, Nic, Kat, Emma, Nicky, Andrew, and Caroline. To Graham and Maria who, at different times, gave me 'big breaks'. At the University of Bradford particular thanks to Lisa, Jared and Patrick. You provided crucial support, academically and as friends. To my supervisors, Tom Woodhouse, Caroline Hughes and Jim Whitman, for your time, patience, support and guidance. I feel blest to have worked with all of you. To Oliver for your crucial support at inception and for your continued interest over the years; it has meant a lot to me. To Michele Mozley for being there, for listening, and for finding a way through the bureaucratic brick walls. To my family, particularly to my parents and to Sarah and Bev, for your unfailingly care and love, even when due to my communication failures you haven't had any idea what I'm actually up to. To all my close friends, particularly Claire, Steve, Käthi, and Matthias for being there for me through thick and thin. To Pam your love, support, energy and patience. For your unwavering belief in me, and that I could do this. For inspiring me to follow my dreams. To all those with whom I've ever been in conflict. And to the parties, advisors, mediators and experts in the conflict processes in which I have been involved. Finally, to those who I can't name, or who are currently escaping my conscious memory, and will suddenly appear before my eyes…just after I hit send.

Research paper thumbnail of Ciarb ADR Competence Frameworks, Competence Statements, and Membership Levels

Arbitration: The International Journal of Arbitration, Mediation and Dispute Management No. 88 Issue 4, 2022

This article presents the results of the original research and design conducted on behalf of Char... more This article presents the results of the original research and design conducted on behalf of Chartered Institute of Arbitrators (Ciarb) to create an integrated set of competence frameworks for Alternative Dispute Resolution (ADR), and the individual ADR disciplines of Arbitration, Adjudication and Mediation. It argues that ADR as a field needs to be clearer on the competence it is providing to users, in line with other professions such as law or medicine. The competence frameworks are presented together with a summary of the underlying premises of the work, the work processincluding consultationand some of the expected challenges in operationalizing the frameworks.

Research paper thumbnail of Writing a Field into Existence: The Divergence of Conflict Resolution and Alternative Dispute Resolution (Mediation

Arbitration: The International Journal of Arbitration, Mediation and Dispute Management, 2021

Mediation is often held out as a panacea. The current state is that information and exchange seld... more Mediation is often held out as a panacea. The current state is that information and exchange seldom flow freely between different areas of Dispute and Conflict Resolution theory and practice, and the quality and quantity of mediation research are suffering as a result. Analysis of the historiography of the fields of Conflict Resolution/Conflict Transformation (CR) and Alternative Dispute Resolution (ADR) reveals evidence of how and why this compartmentalisation has arisen and provides clear evidence of common origins and of the divergence of ADR and CR from the 1980s onwards. This is demonstrated through a qualitative analysis of the historiography of the two fields, cross-field UK/USA English language author analysis, analysis of how each field represents itself and the 'other', and the impact of this representation. I apply ADR in this article as capturing mediation and negotiation as its primary focus, not arbitration. This is due to some OECD English-speaking jurisdictions no longer considering arbitration to be 'ADR', because the time, cost and procedure in arbitration has made it virtually indistinguishable from judge-led court processes in these jurisdictions. Please note the worldwide variation in the application of the term 'ADR'.

Research paper thumbnail of Contributions of patient and citizen researchers to 'Am I the right way up?' study of balance in posterior cortical atrophy and typical Alzheimer's disease

Dementia (London, England), 2018

The current report describes the journey from the sharing of a single, extraordinary experience d... more The current report describes the journey from the sharing of a single, extraordinary experience during a support group conversation to the development of a novel scientific investigation of balance problems in a rarer form of dementia. The story centres around the involvement of people living with or caring for someone with posterior cortical atrophy (often referred to as the visual variant of Alzheimer's disease) in highlighting hitherto under-appreciated consequences of their condition upon their ability to know 'Am I the right way up?'. We describe how comments and descriptions of these balance symptoms were collated and communicated, and the involvement of people with posterior cortical atrophy in shaping a series of scientific hypotheses and developing and adapting appropriate experimental materials and procedures. We also reflect more broadly on how we might better recognise, acknowledge and encourage different forms of involvement, and describe several engagement-...

Research paper thumbnail of The ADR/CR divide : an autoethnographic interrogation of its impact on the theory and practice of mediation

PhD, 2017

I am hugely indebted and immensely grateful to many people. Thank you: To Mirjana without whom mu... more I am hugely indebted and immensely grateful to many people. Thank you: To Mirjana without whom much of this journey would never have happened: for keeping me sane, being a friend, confidante and a rock in stormy seas. I will be forever in your debt in a way you may never know. To Tracey, Andy, Ranse, Baria and Susanne, for unstinting support in difficult circumstances and belief that I would make it. To all those who have been in the support roles that have made my work possible, particularly Fiona, Nic, Kat, Emma, Nicky, Andrew, and Caroline. To Graham and Maria who, at different times, gave me 'big breaks'. At the University of Bradford particular thanks to Lisa, Jared and Patrick. You provided crucial support, academically and as friends. To my supervisors, Tom Woodhouse, Caroline Hughes and Jim Whitman, for your time, patience, support and guidance. I feel blest to have worked with all of you. To Oliver for your crucial support at inception and for your continued interest over the years; it has meant a lot to me. To Michele Mozley for being there, for listening, and for finding a way through the bureaucratic brick walls. To my family, particularly to my parents and to Sarah and Bev, for your unfailingly care and love, even when due to my communication failures you haven't had any idea what I'm actually up to. To all my close friends, particularly Claire, Steve, Käthi, and Matthias for being there for me through thick and thin. To Pam your love, support, energy and patience. For your unwavering belief in me, and that I could do this. For inspiring me to follow my dreams. To all those with whom I've ever been in conflict. And to the parties, advisors, mediators and experts in the conflict processes in which I have been involved. Finally, to those who I can't name, or who are currently escaping my conscious memory, and will suddenly appear before my eyes…just after I hit send.