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Papers by Jennifer Tieman

Research paper thumbnail of Building an Architectural Component Model for a Telehealth Service

E-Health Telecommunication Systems and Networks, 2015

Research paper thumbnail of Metrics, measures and meanings: evaluating the CareSearch website

Research paper thumbnail of Communication differences when patients and caregivers are seen separately or together

International Journal of Palliative Nursing, 2015

Southern Adelaide Palliative Care Services introduced a nurse-led early introduction to a palliat... more Southern Adelaide Palliative Care Services introduced a nurse-led early introduction to a palliative care clinic in 2011. The clinic offers a thorough psychosocial assessment and the provision of information and an introduction to future care planning. The patients and their caregivers are seen together by the nurse practitioner initially for a physical assessment. They are then seen by a social worker to focus on advanced care planning and assessment of social and emotional factors. After the social work visit, the patient and caregiver are separated, and the patient sees the psychosocial nurse for coping and adjustment to illness and the carer sees the caregiver network facilitator to assess their informal supports to assist in the role of community-based caregiving. The pilot study looks at the nature of communication in the clinic where patient and carer are together and compares that to when they are separated. A total of 33 patients and their caregivers agreed for their coversations to be tape recorded between May and November of 2013. All tape recordings were transcribed verbatim. Ten patient transcripts (n=40) have been coded for quantitative analysis. The codes identify content and function of speech, cues for information and emotion and whether they are responded to by clinicians. Pilot results reveal that caregivers contribute little in the combined clinics and dominate the conversation in the private clinic. Patients, when seen alone, predominantly express emotion related cues, opposed to cues for information. The clinicians focus on their area of specialty, which results in little duplication in this clinic setting. An earlier evaluation of this clinic found that patients and their caregivers appreciate being separated in the clinic setting to have time and privacy to reveal fears and feelings related to end-of-life care. This current study quantifies the patient and caregiver experience and confirms those earlier findings.

Research paper thumbnail of Literature landscapes: Investigating the contribution of journals and bibliographic databases to palliative care

Palliative care is an increasingly important area of clinical practice and health service deliver... more Palliative care is an increasingly important area of clinical practice and health service delivery. Accessing literature is integral to evidence based practice, yet searching for palliative care literature is challenging. The heterogeneity of patient populations and conditions as well as the multidisciplinary nature of care can make identifying and retrieving relevant evidence and literature difficult.

Research paper thumbnail of Nurses' Hub - New Online Tool in Palliative Care

Research paper thumbnail of Developing and validating a palliative care subject search filter

It's a scene replayed daily in libraries throughout Australia and the world. A user approaches th... more It's a scene replayed daily in libraries throughout Australia and the world. A user approaches the librarian, requesting their expert help in searching for information on a given topic. With the librarian's knowledge and skills in searching, they interrogate a bibliographic database. But how good are expertly generated searches on bibliographic databases? How well do the databases themselves perform? Without an objective standard of measurement, we can only rely on the feedback of our users regarding the success of the search. Yet this may have no relationship to the true quality of the search results in terms of the original query.

Research paper thumbnail of CARESEARCH: SUPPORTING KNOWLEDGE TRANSLATION IN PALLIATIVE CARE

Research paper thumbnail of Evidence in palliative care research: how should it be gathered?

The Medical journal of Australia

Research paper thumbnail of Using online learning modules to help nurses to source the evidence in a palliative care website

Research paper thumbnail of Deathbed visions and hard to explain phenomena: A systematic review

Research paper thumbnail of Effective searching: evidence based solutions

Research paper thumbnail of Investigating the literature on integration, coordination and multidisciplinary care

Research paper thumbnail of Implementation of a pilot telehealth programme in community palliative care: A qualitative study of clinicians' perspectives

Palliative medicine, Jan 19, 2015

Telehealth technologies are an emerging resource opening up the possibility of greater support if... more Telehealth technologies are an emerging resource opening up the possibility of greater support if they have utility for patients, carers and clinicians. They may also help to meet health systems' imperatives for improved service delivery within current budgets. Clinicians' experiences and attitudes play a key role in the implementation of any innovation in service delivery. To explore clinicians' perspectives on and experiences of the utilisation of a pilot telehealth model and its integration into a specialist community palliative care programme. Focus groups and interviews generated data that were analysed through the lens of a realistic evaluation theoretical framework. The study was conducted in a metropolitan specialist palliative care service in South Australia. Participants (n = 10) were clinicians involved in the delivery of community specialist palliative care and the piloting of a telehealth programme. Service providers consider telehealth resources as a means ...

Research paper thumbnail of Easy, fast and good : CareSearch creates and publishes search filters for clinicians to have ready reliable access to the best palliative care evidence

Research paper thumbnail of Discovering the dementia evidence base: Tools to support knowledge to action in dementia care (innovative practice)

Dementia, 2015

Dementia requires expert care and decision making, based on sound evidence. Reliable evidence is ... more Dementia requires expert care and decision making, based on sound evidence. Reliable evidence is difficult for busy dementia care professionals to find quickly. This study developed an experimentally tested search filter as an innovative tool to retrieve literature on dementia. It has a known retrieval performance and can be provided as an open access web link directly to current literature. The Dementia Search Filter was developed using validated methodology. An Expert Advisory Group of dementia care practitioners and researchers ratified a representative set of relevant studies and undertook post hoc relevance assessment, to ensure the usefulness of the search filter. The Dementia Search Filter is published on two websites and combined with expert searches to link to evidence on dementia, at end of life in aged care settings and more generally. Evidence accessed by the Dementia Search Filter will help overcome barriers to finding current relevant research in the field, for practitioners, researchers and decision makers.

Research paper thumbnail of Reclaiming the midnight hours: up-to-date evidence in just one click

European journal of cancer care, 2014

Research paper thumbnail of CareSearch - online palliative care information for GPs

Australian family physician, 2010

General practitioners have always been involved in providing palliative care. As Australia's ... more General practitioners have always been involved in providing palliative care. As Australia's population ages, the number of patients living with cancer and end stage chronic disease will increase. This article looks at existing barriers to, and community expectations of, GP involvement in the provision of palliative care. It presents the CareSearch project as one initiative aimed at building GPs' awareness and skills in palliative care. Palliative care is traditionally viewed as being the intense care of a patient who is close to death. In recent years, the scope of palliative care has expanded to include patients who may live for many years with end stage organ failure or cancer. Care of these patients in the community inevitably involves input from the GP. Barriers to GPs' participation in palliative care include knowledge barriers and structural factors. Some GPs feel unprepared to deal with what they see as the complex clinical and psychosocial aspects of palliative ...

Research paper thumbnail of Exploring nurses' attitudes to, and use of, an online palliative care resource

International journal of palliative nursing, 2008

The internet provides access to information and evidence that can support palliative care practic... more The internet provides access to information and evidence that can support palliative care practice. This study aims to evaluate the use and utility of a palliative care website with particular regard to its use and issues for nurses. STUDY DETAILS: A survey of online visitors and a postal survey of staff working in palliative care services were conducted; 134 visitors completed the survey and 371 staff in palliative services responded. Users of the site found the content credible and over 95% would recommend the site to others. Over 90% of specialist palliative care nurses use online resources and half use the CareSearch website. Awareness of the resource was much lower for registered nurses than specialist nurses working in palliative care. Understanding attitudes to, and use of, online palliative care resources by nurses working in palliative care services could help to develop these resources to more effectively meet their needs and circumstances.

Research paper thumbnail of FACILITATING ACCESS TO ACP AND AD EVIDENCE IN PALLIATIVE CARE

BMJ Supportive & Palliative Care, 2013

ABSTRACT Advance care planning (ACP) and advance directives (AD) issues are significant for healt... more ABSTRACT Advance care planning (ACP) and advance directives (AD) issues are significant for health professionals providing palliative care and those affected by the need for palliative care. For change to occur, existing and emerging evidence on ACP and AD needs to be accessible. While research-based evidence is being generated at ever faster rates, better infrastructure in the management of evidence-based knowledge is needed. To facilitate access to evidence-based resources related to ACP and AD. CareSearch is funded by the Department of Health and Ageing to provide evidence-based information for the palliative care community. Content is created within a knowledge translation framework. This includes identifying intended users, searching and appraising relevant literature and online resources, writing and peer review of web pages, development of evidence tools including PubMed searches, and identification of relevant materials for inclusion in the CareSearch bibliographic databases. Web metrics show the website's ACP and AD materials are being used with nearly 40 000 page views in 2012. Page views by type of resource were: Clinical Practice Pages: 10 173 For Patients and Families: 9828 RAC/GP/Nurses Hub: 12 915 Finding Evidence: 5823 DISCUSSION: Web-based resources can increase access and reach to the evidence base for ACP and AD. While access to evidence does not necessarily change practice, it is a necessary first step. The CareSearch website promotes evidence-based practice by facilitating access to the underlying evidence. Specific ACP and AD evidence resources and easy to read and download consumer information are available at http://www.caresearch.com.au.

Research paper thumbnail of Evidence in palliative care research: How should it be gathered?

The Medical journal of Australia, Jan 5, 2005

Research paper thumbnail of Building an Architectural Component Model for a Telehealth Service

E-Health Telecommunication Systems and Networks, 2015

Research paper thumbnail of Metrics, measures and meanings: evaluating the CareSearch website

Research paper thumbnail of Communication differences when patients and caregivers are seen separately or together

International Journal of Palliative Nursing, 2015

Southern Adelaide Palliative Care Services introduced a nurse-led early introduction to a palliat... more Southern Adelaide Palliative Care Services introduced a nurse-led early introduction to a palliative care clinic in 2011. The clinic offers a thorough psychosocial assessment and the provision of information and an introduction to future care planning. The patients and their caregivers are seen together by the nurse practitioner initially for a physical assessment. They are then seen by a social worker to focus on advanced care planning and assessment of social and emotional factors. After the social work visit, the patient and caregiver are separated, and the patient sees the psychosocial nurse for coping and adjustment to illness and the carer sees the caregiver network facilitator to assess their informal supports to assist in the role of community-based caregiving. The pilot study looks at the nature of communication in the clinic where patient and carer are together and compares that to when they are separated. A total of 33 patients and their caregivers agreed for their coversations to be tape recorded between May and November of 2013. All tape recordings were transcribed verbatim. Ten patient transcripts (n=40) have been coded for quantitative analysis. The codes identify content and function of speech, cues for information and emotion and whether they are responded to by clinicians. Pilot results reveal that caregivers contribute little in the combined clinics and dominate the conversation in the private clinic. Patients, when seen alone, predominantly express emotion related cues, opposed to cues for information. The clinicians focus on their area of specialty, which results in little duplication in this clinic setting. An earlier evaluation of this clinic found that patients and their caregivers appreciate being separated in the clinic setting to have time and privacy to reveal fears and feelings related to end-of-life care. This current study quantifies the patient and caregiver experience and confirms those earlier findings.

Research paper thumbnail of Literature landscapes: Investigating the contribution of journals and bibliographic databases to palliative care

Palliative care is an increasingly important area of clinical practice and health service deliver... more Palliative care is an increasingly important area of clinical practice and health service delivery. Accessing literature is integral to evidence based practice, yet searching for palliative care literature is challenging. The heterogeneity of patient populations and conditions as well as the multidisciplinary nature of care can make identifying and retrieving relevant evidence and literature difficult.

Research paper thumbnail of Nurses' Hub - New Online Tool in Palliative Care

Research paper thumbnail of Developing and validating a palliative care subject search filter

It's a scene replayed daily in libraries throughout Australia and the world. A user approaches th... more It's a scene replayed daily in libraries throughout Australia and the world. A user approaches the librarian, requesting their expert help in searching for information on a given topic. With the librarian's knowledge and skills in searching, they interrogate a bibliographic database. But how good are expertly generated searches on bibliographic databases? How well do the databases themselves perform? Without an objective standard of measurement, we can only rely on the feedback of our users regarding the success of the search. Yet this may have no relationship to the true quality of the search results in terms of the original query.

Research paper thumbnail of CARESEARCH: SUPPORTING KNOWLEDGE TRANSLATION IN PALLIATIVE CARE

Research paper thumbnail of Evidence in palliative care research: how should it be gathered?

The Medical journal of Australia

Research paper thumbnail of Using online learning modules to help nurses to source the evidence in a palliative care website

Research paper thumbnail of Deathbed visions and hard to explain phenomena: A systematic review

Research paper thumbnail of Effective searching: evidence based solutions

Research paper thumbnail of Investigating the literature on integration, coordination and multidisciplinary care

Research paper thumbnail of Implementation of a pilot telehealth programme in community palliative care: A qualitative study of clinicians' perspectives

Palliative medicine, Jan 19, 2015

Telehealth technologies are an emerging resource opening up the possibility of greater support if... more Telehealth technologies are an emerging resource opening up the possibility of greater support if they have utility for patients, carers and clinicians. They may also help to meet health systems' imperatives for improved service delivery within current budgets. Clinicians' experiences and attitudes play a key role in the implementation of any innovation in service delivery. To explore clinicians' perspectives on and experiences of the utilisation of a pilot telehealth model and its integration into a specialist community palliative care programme. Focus groups and interviews generated data that were analysed through the lens of a realistic evaluation theoretical framework. The study was conducted in a metropolitan specialist palliative care service in South Australia. Participants (n = 10) were clinicians involved in the delivery of community specialist palliative care and the piloting of a telehealth programme. Service providers consider telehealth resources as a means ...

Research paper thumbnail of Easy, fast and good : CareSearch creates and publishes search filters for clinicians to have ready reliable access to the best palliative care evidence

Research paper thumbnail of Discovering the dementia evidence base: Tools to support knowledge to action in dementia care (innovative practice)

Dementia, 2015

Dementia requires expert care and decision making, based on sound evidence. Reliable evidence is ... more Dementia requires expert care and decision making, based on sound evidence. Reliable evidence is difficult for busy dementia care professionals to find quickly. This study developed an experimentally tested search filter as an innovative tool to retrieve literature on dementia. It has a known retrieval performance and can be provided as an open access web link directly to current literature. The Dementia Search Filter was developed using validated methodology. An Expert Advisory Group of dementia care practitioners and researchers ratified a representative set of relevant studies and undertook post hoc relevance assessment, to ensure the usefulness of the search filter. The Dementia Search Filter is published on two websites and combined with expert searches to link to evidence on dementia, at end of life in aged care settings and more generally. Evidence accessed by the Dementia Search Filter will help overcome barriers to finding current relevant research in the field, for practitioners, researchers and decision makers.

Research paper thumbnail of Reclaiming the midnight hours: up-to-date evidence in just one click

European journal of cancer care, 2014

Research paper thumbnail of CareSearch - online palliative care information for GPs

Australian family physician, 2010

General practitioners have always been involved in providing palliative care. As Australia's ... more General practitioners have always been involved in providing palliative care. As Australia's population ages, the number of patients living with cancer and end stage chronic disease will increase. This article looks at existing barriers to, and community expectations of, GP involvement in the provision of palliative care. It presents the CareSearch project as one initiative aimed at building GPs' awareness and skills in palliative care. Palliative care is traditionally viewed as being the intense care of a patient who is close to death. In recent years, the scope of palliative care has expanded to include patients who may live for many years with end stage organ failure or cancer. Care of these patients in the community inevitably involves input from the GP. Barriers to GPs' participation in palliative care include knowledge barriers and structural factors. Some GPs feel unprepared to deal with what they see as the complex clinical and psychosocial aspects of palliative ...

Research paper thumbnail of Exploring nurses' attitudes to, and use of, an online palliative care resource

International journal of palliative nursing, 2008

The internet provides access to information and evidence that can support palliative care practic... more The internet provides access to information and evidence that can support palliative care practice. This study aims to evaluate the use and utility of a palliative care website with particular regard to its use and issues for nurses. STUDY DETAILS: A survey of online visitors and a postal survey of staff working in palliative care services were conducted; 134 visitors completed the survey and 371 staff in palliative services responded. Users of the site found the content credible and over 95% would recommend the site to others. Over 90% of specialist palliative care nurses use online resources and half use the CareSearch website. Awareness of the resource was much lower for registered nurses than specialist nurses working in palliative care. Understanding attitudes to, and use of, online palliative care resources by nurses working in palliative care services could help to develop these resources to more effectively meet their needs and circumstances.

Research paper thumbnail of FACILITATING ACCESS TO ACP AND AD EVIDENCE IN PALLIATIVE CARE

BMJ Supportive & Palliative Care, 2013

ABSTRACT Advance care planning (ACP) and advance directives (AD) issues are significant for healt... more ABSTRACT Advance care planning (ACP) and advance directives (AD) issues are significant for health professionals providing palliative care and those affected by the need for palliative care. For change to occur, existing and emerging evidence on ACP and AD needs to be accessible. While research-based evidence is being generated at ever faster rates, better infrastructure in the management of evidence-based knowledge is needed. To facilitate access to evidence-based resources related to ACP and AD. CareSearch is funded by the Department of Health and Ageing to provide evidence-based information for the palliative care community. Content is created within a knowledge translation framework. This includes identifying intended users, searching and appraising relevant literature and online resources, writing and peer review of web pages, development of evidence tools including PubMed searches, and identification of relevant materials for inclusion in the CareSearch bibliographic databases. Web metrics show the website's ACP and AD materials are being used with nearly 40 000 page views in 2012. Page views by type of resource were: Clinical Practice Pages: 10 173 For Patients and Families: 9828 RAC/GP/Nurses Hub: 12 915 Finding Evidence: 5823 DISCUSSION: Web-based resources can increase access and reach to the evidence base for ACP and AD. While access to evidence does not necessarily change practice, it is a necessary first step. The CareSearch website promotes evidence-based practice by facilitating access to the underlying evidence. Specific ACP and AD evidence resources and easy to read and download consumer information are available at http://www.caresearch.com.au.

Research paper thumbnail of Evidence in palliative care research: How should it be gathered?

The Medical journal of Australia, Jan 5, 2005