Julia Challinor - Academia.edu (original) (raw)
Papers by Julia Challinor
ecancermedicalscience
The Global Power of Oncology Nursing held their 3rd annual conference on 'Celebrating Oncology Nu... more The Global Power of Oncology Nursing held their 3rd annual conference on 'Celebrating Oncology Nursing: From Adversity to Opportunity'. The conference, held virtually, addressed three major nursing challenges: health workforce and migration, climate change and cancer nursing within humanitarian settings. Around the world, nurses are working in situations of adversity, whether due to the ongoing pandemic, humanitarian crises such as war or floods, shortage of nurses and other health workers, and high clinical demands leading to overwork, stress and burnout. The conference was held in two parts in order to take into account different time zones. Three hundred and fifty participants attended from 46 countries, with part of the conference being held in both English and Spanish. It was an opportunity for oncology nurses around the world to share their experiences and the realities for their patients seeking care and their families. The conference took the form of panel discussions, videos, and individual presentations from all six WHO regions and highlighted the importance of oncology nurses role in expanding beyond caring for individuals and their families, to tackle wider issues, such as nurse migration, climate change and care within humanitarian settings.
Seminars in Oncology Nursing
As African countries adopt the global goal of improving childhood cancer survival to 60% by the y... more As African countries adopt the global goal of improving childhood cancer survival to 60% by the year 2030, intentional actions are required to improve nursing. This paper provides the perspective and amplifies the voice of African pediatric oncology nurses. It illuminates the room for improvement and provides a reference point for future comparison. First, we document findings from a survey of the perceived strengths and weaknesses conducted in 2017. The main strength was the humanization of care, while the major weakness was lack of training follow up and insufficient evidence to guide practice. Next, we report on nursing-related aspects of a survey to map pediatric oncology services in Africa. Only 21% of respondents in the mapping survey reported having nurses who care for children with cancer at least 75% of their time. Many centres do not have allied health workers like dieticians, play therapists, and psychologists. Furthermore, we share African pediatric oncology nurses’ rese...
ecancermedicalscience, 2021
In mid-2020, a call was made to oncology nurses in the Global South to share their experiences ma... more In mid-2020, a call was made to oncology nurses in the Global South to share their experiences managing patient care during the coronavirus disease 2019 (COVID-19) pandemic. Eighteen submissions were received from 16 countries across Latin America, Africa, Europe and Asia. Three were research-based and 15 were personal narratives on the psychosocial impact of COVID-19 on the nurses, colleagues, patients and families. Three narratives were from oncology nurses working with cancer-related non-governmental organisations locally or, in one case, internationally. A simultaneous literature search for publications (including grey literature) was performed to identify themes of COVID-19’s impact in these 16 countries and specifically on oncology nurses and patients/families. Four themes were identified: a) interruptions to care; b) support/resource shortages; c) psychosocial impact on nurses and patients and d) staffing and nursing role impacts. The three research-based studies describe onc...
Pediatric Blood & Cancer, 2022
he Paediatric Oncology Initiative in Ethiopia was initiated to honour the memory of Temesgen Gama... more he Paediatric Oncology Initiative in Ethiopia was initiated to honour the memory of Temesgen Gamacho, an extraordinary 16-year-old young man from Ethiopia, who fought a valiant battle against metastatic osteosarcoma. After initial treatment in Addis Ababa, Temesgen came to Washington, DC and was treated at Georgetown University Hospital by Dr Aziza Shad. After Temesgen died in September 2008, his American “mom”, Mary Louise Cohen, joined Dr Shad, President of the International Network for Cancer Treatment and Research’s USA branch (INCTR-USA) and Director of Georgetown University Hospital’s Division of Paediatric Hematology/Oncology, to spearhead an effort to make a difference in the lives of children with cancer in Ethiopia.
Seminars in Oncology Nursing, 2021
OBJECTIVE This study examined the status of pediatric oncology nursing research in three low- and... more OBJECTIVE This study examined the status of pediatric oncology nursing research in three low- and middle-income countries (LMICs) as examples across three World Health Organization regions: East Africa, Eastern Mediterranean region, and Latin America. DATA SOURCES Published literature was identified from Google Scholar, PubMed, Scielo, Virtual Health Library, and reference lists of some articles. CONCLUSION The experiences of the three LMIC pediatric oncology nurses illustrate the situation of nurse research in their setting and identify relevant published literature. The authors highlight the challenges for nurses to conduct research (eg, lack of training, mentors, funding, and opportunities). Local evidence to inform nursing practice in LMICs is needed. Recommendations for ameliorating the situation include increased advanced practice nurse education, physician and hospital support, funding, and protected time. IMPLICATIONS FOR NURSING PRACTICE Pediatric oncology nursing practice is culturally and context-driven and requires locally acquired evidence to support best practices. Only when sufficient, sustainable, and local nursing research training and education is available in LMICs, will this evidence be generated. Nursing research training (eg, master's and PhD programs), funding, and protected time are three key steps to guide and motivate staff nurses as well as academic nurses to participate in research that informs the care of children and adolescents with cancer across all countries and not only those with significant resources.
Pediatric Blood & Cancer, 2021
In November 2018, theInternational Society of Paediatric Oncology (SIOP) launched a project to ma... more In November 2018, theInternational Society of Paediatric Oncology (SIOP) launched a project to map African facilities providing pediatric oncology treatment. A 55‐item digital survey was created in English, piloted in India, translated to French and Portuguese, and distributed by email, social media, or personal contacts. December 2019, 48/54 African countries responded (72% surveys completed and analyzed). Issues included incomplete responses, multiple entries for one facility with conflicting data for key services, and repeated entries with varied answers by the same respondent. The facility mapping project, now on‐going program will serve as a global registry of global pediatric cancer centers.
JCO Global Oncology, 2020
PURPOSEParent engagement in childhood cancer treatment is central for positive outcomes. Aspects ... more PURPOSEParent engagement in childhood cancer treatment is central for positive outcomes. Aspects of fruitful engagement have been described mainly in high-income countries (HICs) where family autonomy is valued, health care provider-patient relationships are less hierarchical, and active family participation in health care is welcomed. In many low- and middle-income countries (LMICs), these aspects are not always valued or encouraged. We explored childhood cancer treatment engagement in Latin America as part of a larger engagement study in 10 LMICs worldwide.METHODSA qualitative investigation was conducted with parents (with the exception of one grandmother and two aunts in loco parentis; n = 21) of children with cancer in El Salvador, Peru, and Mexico. Participants were recruited by two Childhood Cancer International foundations and two local hospitals. A pediatric oncology psychologist and a medical anthropologist (experienced, native Latin Americans researchers) conducted focus-g...
The Lancet Oncology, 2020
Pediatric Hematology Oncology Journal, 2020
This is a PDF file of an article that has undergone enhancements after acceptance, such as the ad... more This is a PDF file of an article that has undergone enhancements after acceptance, such as the addition of a cover page and metadata, and formatting for readability, but it is not yet the definitive version of record. This version will undergo additional copyediting, typesetting and review before it is published in its final form, but we are providing this version to give early visibility of the article. Please note that, during the production process, errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal pertain.
The Lancet Oncology, 2020
Authorea
The COVID-19 pandemic is one of the most serious global challenges to delivering affordable and e... more The COVID-19 pandemic is one of the most serious global challenges to delivering affordable and equitable treatment to children with cancer we have witnessed in the last few decades. This Special Report aims to summarise general principles for continuing multidisciplinary care during the SARS-CoV-2 (COVID-19) pandemic. With contributions from the leadership of the International Society for Paediatric Oncology (SIOP), Children's Oncology Group (COG), St Jude Global programme and Childhood Cancer International, we have sought to provide a framework for healthcare teams caring for children with cancer during the pandemic. We anticipate the burden will fall particularly heavily on children, their families and cancer services in low-and middle-income countries. Therefore, we have brought together the relevant clinical leads from SIOP-Europe, COG and SIOP-PODC (Pediatric Oncology in Developing Countries) to focus on the six most curable cancers that are part of the WHO Global Initiative in Childhood Cancer. We provide some practical advice for adapting diagnostic and treatment protocols for children with cancer during the pandemic, the measures taken to contain it (e.g. extreme social distancing) and how to prepare for the anticipated recovery period.
Pediatric Blood & Cancer, 2019
BackgroundIn 2014, a task force of the International Society of Paediatric Oncology (SIOP) Paedia... more BackgroundIn 2014, a task force of the International Society of Paediatric Oncology (SIOP) Paediatric Oncology in Developing Countries Nursing Workgroup published six baseline standards to provide a framework for pediatric oncology nursing care in low‐ and lower‐middle income countries (L/LMIC). We conducted an international survey in 2016–2017 to examine the association between country income level and nurses’ resporting of conformity to the standards at their respective institutions.ProcedureData from a cross‐sectional web‐based survey completed by nurses representing 54 countries were analyzed (N = 101). Responses were clustered by relevance to each standard and compared according to the 2017 World Bank–defined country income classification (CIC) of hospitals.ResultsCIC and nurse‐to‐patient ratios in inpatient wards were strongly associated (P < 0.0001). Nurses in L/LMIC prepared chemotherapy more often (P < 0.0001) yet were less likely to have access to personal protective...
Journal of Global Oncology, 2016
The Lancet. Oncology, 2017
Oncology Nursing Forum, 2016
Pediatrics, 2015
Although morbidity from childhood cancer is second only to unintentional injuries in highincome c... more Although morbidity from childhood cancer is second only to unintentional injuries in highincome countries, in low-income countries, it hardly hits the radar screen compared with death from pneumonia, diarrhea, malaria, neonatal sepsis, preterm birth, and neonatal asphyxia. Nevertheless, the extraordinary progress made in treating childhood cancer in high-income countries brings into harsh focus the mammoth disparities that exist in impoverished areas of the world. As the capacity to diagnose and treat childhood cancer improves in low-and middle-income countries, the ability to improve outcomes for the more common diseases benefits as well. The authors have summarized the issues related to childhood cancer care with thoughtful attention to how children everywhere can gain from the advances in medical science in high-income nations.
The Lancet. Oncology, 2015
The burden of cancer is increasing worldwide. Cancer has become a priority on the agendas of WHO,... more The burden of cancer is increasing worldwide. Cancer has become a priority on the agendas of WHO, the UN, and other international organisations. Health-care professionals are needed to provide care across the entire cancer continuum, from prevention and detection, to treatment and end-of-life care or survivorship. Unfortunately, such health-care professionsals are seriously lacking in low-income and middle-income countries (LMICs). Initiatives have been made to address
Canadian Oncology Nursing Journal, 2009
dans le cadre d'un projet pilote de leadership infirmier. Le projet, qui bénéficiait du soutien f... more dans le cadre d'un projet pilote de leadership infirmier. Le projet, qui bénéficiait du soutien financier du Pediatric Oncology Group of Ontario (POGO), avait été mis sur pied à la suite d'une consultation auprès de l'équipe d'oncologie pédiatrique de La Mascota et visait à renforcer le leadership infirmier en milieu clinique par le biais de l'éducation continue. Les infirmières étaient d'avis que les soins aux patients et à leur famille s'étaient améliorés en raison de leurs nouvelles compétences de leadership, de leur crédibilité accrue et de leur participation à l'équipe de santé sur un pied d'égalité. Le fait de fournir au personnel infirmier l'autonomie et le financement pour mener un projet lié directement aux soins infirmiers constituait un important développement pour le leadership dans la profession. Le projet de leadership infirmier Contexte L'équipe infirmière du Canada, en collaboration avec la coordonnatrice du projet oeuvrant depuis la Californie (une infirmière hispanophone en oncologie pédiatrique et membre du projet CAPRI), a décidé que la première phase du projet de leadership infirmier du POGO se déroulerait au Nicaragua. Les facteurs qui ont contribué à ce choix comprenaient les suivants : des changements de personnel au niveau des postes d'infirmières-chefs, l'immigration d'infirmières et d'infirmiers, des disputes d'ordre politique au sein des unités locales
ecancermedicalscience
The Global Power of Oncology Nursing held their 3rd annual conference on 'Celebrating Oncology Nu... more The Global Power of Oncology Nursing held their 3rd annual conference on 'Celebrating Oncology Nursing: From Adversity to Opportunity'. The conference, held virtually, addressed three major nursing challenges: health workforce and migration, climate change and cancer nursing within humanitarian settings. Around the world, nurses are working in situations of adversity, whether due to the ongoing pandemic, humanitarian crises such as war or floods, shortage of nurses and other health workers, and high clinical demands leading to overwork, stress and burnout. The conference was held in two parts in order to take into account different time zones. Three hundred and fifty participants attended from 46 countries, with part of the conference being held in both English and Spanish. It was an opportunity for oncology nurses around the world to share their experiences and the realities for their patients seeking care and their families. The conference took the form of panel discussions, videos, and individual presentations from all six WHO regions and highlighted the importance of oncology nurses role in expanding beyond caring for individuals and their families, to tackle wider issues, such as nurse migration, climate change and care within humanitarian settings.
Seminars in Oncology Nursing
As African countries adopt the global goal of improving childhood cancer survival to 60% by the y... more As African countries adopt the global goal of improving childhood cancer survival to 60% by the year 2030, intentional actions are required to improve nursing. This paper provides the perspective and amplifies the voice of African pediatric oncology nurses. It illuminates the room for improvement and provides a reference point for future comparison. First, we document findings from a survey of the perceived strengths and weaknesses conducted in 2017. The main strength was the humanization of care, while the major weakness was lack of training follow up and insufficient evidence to guide practice. Next, we report on nursing-related aspects of a survey to map pediatric oncology services in Africa. Only 21% of respondents in the mapping survey reported having nurses who care for children with cancer at least 75% of their time. Many centres do not have allied health workers like dieticians, play therapists, and psychologists. Furthermore, we share African pediatric oncology nurses’ rese...
ecancermedicalscience, 2021
In mid-2020, a call was made to oncology nurses in the Global South to share their experiences ma... more In mid-2020, a call was made to oncology nurses in the Global South to share their experiences managing patient care during the coronavirus disease 2019 (COVID-19) pandemic. Eighteen submissions were received from 16 countries across Latin America, Africa, Europe and Asia. Three were research-based and 15 were personal narratives on the psychosocial impact of COVID-19 on the nurses, colleagues, patients and families. Three narratives were from oncology nurses working with cancer-related non-governmental organisations locally or, in one case, internationally. A simultaneous literature search for publications (including grey literature) was performed to identify themes of COVID-19’s impact in these 16 countries and specifically on oncology nurses and patients/families. Four themes were identified: a) interruptions to care; b) support/resource shortages; c) psychosocial impact on nurses and patients and d) staffing and nursing role impacts. The three research-based studies describe onc...
Pediatric Blood & Cancer, 2022
he Paediatric Oncology Initiative in Ethiopia was initiated to honour the memory of Temesgen Gama... more he Paediatric Oncology Initiative in Ethiopia was initiated to honour the memory of Temesgen Gamacho, an extraordinary 16-year-old young man from Ethiopia, who fought a valiant battle against metastatic osteosarcoma. After initial treatment in Addis Ababa, Temesgen came to Washington, DC and was treated at Georgetown University Hospital by Dr Aziza Shad. After Temesgen died in September 2008, his American “mom”, Mary Louise Cohen, joined Dr Shad, President of the International Network for Cancer Treatment and Research’s USA branch (INCTR-USA) and Director of Georgetown University Hospital’s Division of Paediatric Hematology/Oncology, to spearhead an effort to make a difference in the lives of children with cancer in Ethiopia.
Seminars in Oncology Nursing, 2021
OBJECTIVE This study examined the status of pediatric oncology nursing research in three low- and... more OBJECTIVE This study examined the status of pediatric oncology nursing research in three low- and middle-income countries (LMICs) as examples across three World Health Organization regions: East Africa, Eastern Mediterranean region, and Latin America. DATA SOURCES Published literature was identified from Google Scholar, PubMed, Scielo, Virtual Health Library, and reference lists of some articles. CONCLUSION The experiences of the three LMIC pediatric oncology nurses illustrate the situation of nurse research in their setting and identify relevant published literature. The authors highlight the challenges for nurses to conduct research (eg, lack of training, mentors, funding, and opportunities). Local evidence to inform nursing practice in LMICs is needed. Recommendations for ameliorating the situation include increased advanced practice nurse education, physician and hospital support, funding, and protected time. IMPLICATIONS FOR NURSING PRACTICE Pediatric oncology nursing practice is culturally and context-driven and requires locally acquired evidence to support best practices. Only when sufficient, sustainable, and local nursing research training and education is available in LMICs, will this evidence be generated. Nursing research training (eg, master's and PhD programs), funding, and protected time are three key steps to guide and motivate staff nurses as well as academic nurses to participate in research that informs the care of children and adolescents with cancer across all countries and not only those with significant resources.
Pediatric Blood & Cancer, 2021
In November 2018, theInternational Society of Paediatric Oncology (SIOP) launched a project to ma... more In November 2018, theInternational Society of Paediatric Oncology (SIOP) launched a project to map African facilities providing pediatric oncology treatment. A 55‐item digital survey was created in English, piloted in India, translated to French and Portuguese, and distributed by email, social media, or personal contacts. December 2019, 48/54 African countries responded (72% surveys completed and analyzed). Issues included incomplete responses, multiple entries for one facility with conflicting data for key services, and repeated entries with varied answers by the same respondent. The facility mapping project, now on‐going program will serve as a global registry of global pediatric cancer centers.
JCO Global Oncology, 2020
PURPOSEParent engagement in childhood cancer treatment is central for positive outcomes. Aspects ... more PURPOSEParent engagement in childhood cancer treatment is central for positive outcomes. Aspects of fruitful engagement have been described mainly in high-income countries (HICs) where family autonomy is valued, health care provider-patient relationships are less hierarchical, and active family participation in health care is welcomed. In many low- and middle-income countries (LMICs), these aspects are not always valued or encouraged. We explored childhood cancer treatment engagement in Latin America as part of a larger engagement study in 10 LMICs worldwide.METHODSA qualitative investigation was conducted with parents (with the exception of one grandmother and two aunts in loco parentis; n = 21) of children with cancer in El Salvador, Peru, and Mexico. Participants were recruited by two Childhood Cancer International foundations and two local hospitals. A pediatric oncology psychologist and a medical anthropologist (experienced, native Latin Americans researchers) conducted focus-g...
The Lancet Oncology, 2020
Pediatric Hematology Oncology Journal, 2020
This is a PDF file of an article that has undergone enhancements after acceptance, such as the ad... more This is a PDF file of an article that has undergone enhancements after acceptance, such as the addition of a cover page and metadata, and formatting for readability, but it is not yet the definitive version of record. This version will undergo additional copyediting, typesetting and review before it is published in its final form, but we are providing this version to give early visibility of the article. Please note that, during the production process, errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal pertain.
The Lancet Oncology, 2020
Authorea
The COVID-19 pandemic is one of the most serious global challenges to delivering affordable and e... more The COVID-19 pandemic is one of the most serious global challenges to delivering affordable and equitable treatment to children with cancer we have witnessed in the last few decades. This Special Report aims to summarise general principles for continuing multidisciplinary care during the SARS-CoV-2 (COVID-19) pandemic. With contributions from the leadership of the International Society for Paediatric Oncology (SIOP), Children's Oncology Group (COG), St Jude Global programme and Childhood Cancer International, we have sought to provide a framework for healthcare teams caring for children with cancer during the pandemic. We anticipate the burden will fall particularly heavily on children, their families and cancer services in low-and middle-income countries. Therefore, we have brought together the relevant clinical leads from SIOP-Europe, COG and SIOP-PODC (Pediatric Oncology in Developing Countries) to focus on the six most curable cancers that are part of the WHO Global Initiative in Childhood Cancer. We provide some practical advice for adapting diagnostic and treatment protocols for children with cancer during the pandemic, the measures taken to contain it (e.g. extreme social distancing) and how to prepare for the anticipated recovery period.
Pediatric Blood & Cancer, 2019
BackgroundIn 2014, a task force of the International Society of Paediatric Oncology (SIOP) Paedia... more BackgroundIn 2014, a task force of the International Society of Paediatric Oncology (SIOP) Paediatric Oncology in Developing Countries Nursing Workgroup published six baseline standards to provide a framework for pediatric oncology nursing care in low‐ and lower‐middle income countries (L/LMIC). We conducted an international survey in 2016–2017 to examine the association between country income level and nurses’ resporting of conformity to the standards at their respective institutions.ProcedureData from a cross‐sectional web‐based survey completed by nurses representing 54 countries were analyzed (N = 101). Responses were clustered by relevance to each standard and compared according to the 2017 World Bank–defined country income classification (CIC) of hospitals.ResultsCIC and nurse‐to‐patient ratios in inpatient wards were strongly associated (P < 0.0001). Nurses in L/LMIC prepared chemotherapy more often (P < 0.0001) yet were less likely to have access to personal protective...
Journal of Global Oncology, 2016
The Lancet. Oncology, 2017
Oncology Nursing Forum, 2016
Pediatrics, 2015
Although morbidity from childhood cancer is second only to unintentional injuries in highincome c... more Although morbidity from childhood cancer is second only to unintentional injuries in highincome countries, in low-income countries, it hardly hits the radar screen compared with death from pneumonia, diarrhea, malaria, neonatal sepsis, preterm birth, and neonatal asphyxia. Nevertheless, the extraordinary progress made in treating childhood cancer in high-income countries brings into harsh focus the mammoth disparities that exist in impoverished areas of the world. As the capacity to diagnose and treat childhood cancer improves in low-and middle-income countries, the ability to improve outcomes for the more common diseases benefits as well. The authors have summarized the issues related to childhood cancer care with thoughtful attention to how children everywhere can gain from the advances in medical science in high-income nations.
The Lancet. Oncology, 2015
The burden of cancer is increasing worldwide. Cancer has become a priority on the agendas of WHO,... more The burden of cancer is increasing worldwide. Cancer has become a priority on the agendas of WHO, the UN, and other international organisations. Health-care professionals are needed to provide care across the entire cancer continuum, from prevention and detection, to treatment and end-of-life care or survivorship. Unfortunately, such health-care professionsals are seriously lacking in low-income and middle-income countries (LMICs). Initiatives have been made to address
Canadian Oncology Nursing Journal, 2009
dans le cadre d'un projet pilote de leadership infirmier. Le projet, qui bénéficiait du soutien f... more dans le cadre d'un projet pilote de leadership infirmier. Le projet, qui bénéficiait du soutien financier du Pediatric Oncology Group of Ontario (POGO), avait été mis sur pied à la suite d'une consultation auprès de l'équipe d'oncologie pédiatrique de La Mascota et visait à renforcer le leadership infirmier en milieu clinique par le biais de l'éducation continue. Les infirmières étaient d'avis que les soins aux patients et à leur famille s'étaient améliorés en raison de leurs nouvelles compétences de leadership, de leur crédibilité accrue et de leur participation à l'équipe de santé sur un pied d'égalité. Le fait de fournir au personnel infirmier l'autonomie et le financement pour mener un projet lié directement aux soins infirmiers constituait un important développement pour le leadership dans la profession. Le projet de leadership infirmier Contexte L'équipe infirmière du Canada, en collaboration avec la coordonnatrice du projet oeuvrant depuis la Californie (une infirmière hispanophone en oncologie pédiatrique et membre du projet CAPRI), a décidé que la première phase du projet de leadership infirmier du POGO se déroulerait au Nicaragua. Les facteurs qui ont contribué à ce choix comprenaient les suivants : des changements de personnel au niveau des postes d'infirmières-chefs, l'immigration d'infirmières et d'infirmiers, des disputes d'ordre politique au sein des unités locales