Karin Dahlberg - Academia.edu (original) (raw)

Papers by Karin Dahlberg

Research paper thumbnail of HUMAN SCIENCE RESEARCH AS THE EMBODIMENT OF OPENNESS: SWIMMING UPSTREAM IN A TECHNOLOGICAL CULTURE

Journal of Phenomenological Psychology, 2001

ABSTRACT

Research paper thumbnail of Being in-between and lost in the discharge process—An excursus of two empirical studies of older persons’, their relatives’, and care professionals’ experience

International Journal of Qualitative Studies on Health and Well-Being, 2012

The discharge process (DP) is full of well-known risks, and a comprehensive and well-executed DP ... more The discharge process (DP) is full of well-known risks, and a comprehensive and well-executed DP is especially important for older people with multiple health problems and continuing care needs, as well as for their relatives. Few studies focus on the experiences with the DP by older people in need of home care nursing and their relatives. Therefore, the aim was to deepen the understanding of the DP as a phenomenon described by older people, their relatives, and care professionals. The method is an excursus of the findings of two previously published research studies. By using the Reflective Lifeworld Research approach, the empirical findings were further interpreted with lifeworld theory. The results describe the essential meaning of the phenomenon of DP in relation to healthcare needs. The illness and the DP can be viewed as a course of action where the familiar becomes unfamiliar for older people and their relatives, entailing an insecure future existence characterized by the experience of being in-between. The DP is marked by bodily and existential needs. The older persons and their relatives are lost in the hospital context and trying to influence life and adapt to life circumstances, while being relentlessly dependent on care professionals. Care professionals work from both an organizational and a medical approach. Disharmony and disagreement seem to arise easily among the professionals regarding the planning negatively affecting the patients and their relatives. More efforts are needed in the DP to empower older people and their relatives to go on with their life at home. The caring practice needs to more clearly meet and address the individual needs of older people and their relatives and their understanding of their illness. It needs to give them lifeworld and life goals to alleviate their suffering and to help them adjust to their new situation.

Research paper thumbnail of Caring potentials in the shadows of power, correction, and discipline—Forensic psychiatric care in the light of the work of Michel Foucault

International Journal of Qualitative Studies on Health and Well-Being, 2015

The aim of this article is to shed light on contemporary forensic psychiatric care through a phil... more The aim of this article is to shed light on contemporary forensic psychiatric care through a philosophical examination of the empirical results from two lifeworld phenomenological studies from the perspective of patients and carers, by using the French philosopher Michel Foucault's historical-philosophical work. Both empirical studies were conducted in a forensic psychiatric setting. The essential results of the two empirical studies were reexamined in a phenomenological meaning analysis to form a new general structure in accordance with the methodological principles of Reflective Lifeworld Research. This general structure shows how the caring on the forensic psychiatric wards appears to be contradictory, in that it is characterized by an unreflective (non-)caring attitude and contributes to an inconsistent and insecure existence. The caring appears to have a corrective approach and thus lacks a clear caring structure, a basic caring approach that patients in forensic psychiatric services have a great need of. To gain a greater understanding of forensic psychiatric caring, the new empirical results were further examined in the light of Foucault's historical-philosophical work. The philosophical examination is presented in terms of the three meaning constituents: Caring as correction and discipline, The existence of power, and Structures and culture in care. The philosophical examination illustrates new meaning nuances of the corrective and disciplinary nature of forensic psychiatric care, its power, and how this is materialized in caring, and what this does to the patients. The examination reveals embedded difficulties in forensic psychiatric care and highlights a need to revisit the aim of such care.

Research paper thumbnail of Learning in the Ivory Tower: Students' Embodied Experience

College Teaching, 2002

Page 1. Learning in the Ivory Tower: Students' Em bodied Ex per ience ... REFERENCES Bengtss... more Page 1. Learning in the Ivory Tower: Students' Em bodied Ex per ience ... REFERENCES Bengtsson, J. 1998. Fenomenologiska utfyk-ter: (Phenomenological excursions). Gote-borg, Sweden: Daidalos. Dahlberg, K., and N. Drew. 1997. A lifeworld paradigm for nursing research. ...

Research paper thumbnail of Reflective Life-World Research

Reflective Lifeworld Research is a suitable title for a text that argues for, and gives convincin... more Reflective Lifeworld Research is a suitable title for a text that argues for, and gives convincing philosophical credence to, a qualitative sensibility in the human sciences. The key concept is 'reflective'. This is a rightful scientific attitude, the implications of which become the main theme of an academic publication that finally articulates messages that have been superficially addressed in newer texts in qualitative research. In other introductory human science research texts (such as Murray, 2004; Terre Blanche, Durrheim, & Painter, 2006; Willig, 2008), adopting a reflective attitude or its more political variation, reflexivity, is recommended. However, other introductory texts appear to avoid a philosophically rigorous grappling with the reflective and/or reflexive attitude in research. Reflective Lifeworld Research takes on this challenge and succeeds in a manner that avoids activist or apologetic discourses, instead adhering to an empirical discourse. This becomes ...

Research paper thumbnail of To Use a Method Without Being Ruled by It: Learning Supported by Drama in the Integration of Theory with Healthcare Practice

Indo-Pacific Journal of Phenomenology, 2008

ABSTRACT

Research paper thumbnail of Caring touch - patients' experiences in an anthroposophic clinical context

Scandinavian Journal of Caring Sciences, 2015

This study describes the phenomenon of caring touch from the patients' pe... more This study describes the phenomenon of caring touch from the patients' perspective in an anthroposophic clinical context where caring touch is often used to promote health and alleviate suffering. The aim of the study was to explore and phenomenologically describe the phenomenon of caring touch from the patients' perspectives. The study has been carried out with a Reflective Lifeworld Research approach in order to understand and describe human existential phenomena. Ten female patients were interviewed in an anthroposophic clinic in Sweden. The findings show how caring touch has multifaceted meanings and makes the patients' feel present and anchored in a meaningful context. The patients' feel that they are seen, accepted and confirmed. Furthermore, touch creates a caring space where the patients become receptive for care and has the power to alleviate the patients' suffering, as well as to frighten and cause or worsen the suffering. In order to take advantage of the caring potential, the patient needs to be invited to a respectful and sensitive form of touch. An interpersonal flexible space is necessary where the touch can be effective, and where a dynamic interplay can develop. In conclusion, caring touch is an opportunity for carers to support well-being and health. The carers need to approach their patients in both a sensitive and reflective way. A caring science perspective can serve as a help to further understand touch as a unique caring act.

Research paper thumbnail of A meaningful relief from suffering experiences of massage in cancer care

Cancer nursing, 2001

The experience of massage in an oncology ward was the focus of this study. Eight female cancer pa... more The experience of massage in an oncology ward was the focus of this study. Eight female cancer patients were given massage for 10 consecutive days and then interviewed using phenomenology as a theoretical framework. The essential meaning of getting massage as part of the daily care for female cancer patients was described as getting a meaningful relief from suffering. The findings identified five themes: the relief is meaningful because it offers the patient an experience of being "special." The massage contributes to the development of a positive relationship with the personnel, to feeling strong, and to a balance between autonomy and dependence. The massage also brings about a meaningful relief from suffering because it just "feels good." The findings of this study can be of use to health care professionals as it shows that the relatively short period of massage can result in physical and emotional benefits for cancer patients.

Research paper thumbnail of To survive out-of-hospital cardiac arrest: a search for meaning and coherence

Qualitative health research, 2009

The primary responsibility of prehospital emergency personnel at out-of-hospital cardiac arrests ... more The primary responsibility of prehospital emergency personnel at out-of-hospital cardiac arrests (OHCA) is to provide lifesaving care. Ethical considerations, decisions, and actions should be based in the patient's beliefs about health and well-being. In this article, we describe patients' experiences of surviving OHCA. By using a phenomenological approach, we focus on how OHCA influences patients' well-being over time. Nine survivors were interviewed. Out-of-hospital cardiac arrest is described as a sudden and elusive threat, an awakening in perplexity, and the memory gap as a loss of coherence. Survival means a search for coherence with distressing and joyful understanding, as well as existential insecurity exposed by feelings of vulnerability. Well-being is found through a sense of coherence and meaning in life. The study findings show survivors' emotional needs and a potential for prehospital emergency personnel to support them as they try to make sense of what h...

Research paper thumbnail of Editorial

International journal of qualitative studies on health and well-being, 2010

Research paper thumbnail of Being in-between and lost in the discharge process—An excursus of two empirical studies of older persons’, their relatives’, and care professionals’ experience

International Journal of Qualitative Studies on Health and Well-Being, 2012

The discharge process (DP) is full of well-known risks, and a comprehensive and well-executed DP ... more The discharge process (DP) is full of well-known risks, and a comprehensive and well-executed DP is especially important for older people with multiple health problems and continuing care needs, as well as for their relatives. Few studies focus on the experiences with the DP by older people in need of home care nursing and their relatives. Therefore, the aim was to deepen the understanding of the DP as a phenomenon described by older people, their relatives, and care professionals. The method is an excursus of the findings of two previously published research studies. By using the Reflective Lifeworld Research approach, the empirical findings were further interpreted with lifeworld theory. The results describe the essential meaning of the phenomenon of DP in relation to healthcare needs. The illness and the DP can be viewed as a course of action where the familiar becomes unfamiliar for older people and their relatives, entailing an insecure future existence characterized by the experience of being in-between. The DP is marked by bodily and existential needs. The older persons and their relatives are lost in the hospital context and trying to influence life and adapt to life circumstances, while being relentlessly dependent on care professionals. Care professionals work from both an organizational and a medical approach. Disharmony and disagreement seem to arise easily among the professionals regarding the planning negatively affecting the patients and their relatives. More efforts are needed in the DP to empower older people and their relatives to go on with their life at home. The caring practice needs to more clearly meet and address the individual needs of older people and their relatives and their understanding of their illness. It needs to give them lifeworld and life goals to alleviate their suffering and to help them adjust to their new situation.

Research paper thumbnail of The enigmatic phenomenon of loneliness

International Journal of Qualitative Studies on Health and Well-being, 2007

Much has been said and written on loneliness, which is a common human phenomenon that belongs to ... more Much has been said and written on loneliness, which is a common human phenomenon that belongs to everyday existence, but few attempts have been made to capture the phenomenon and its existential meaning without reducing its complexity. This paper addresses the question: What is loneliness, what is its essence? The study practiced a phenomenological approach, called Reflective Lifeworld Research. Twenty-six interviews were analysed for meaning with the aim of describing an essential structure for the phenomenon, showing what loneliness is. The analysis shows that the phenomenon of loneliness stands out in meaning as ''figure'' against a ''background'' of fellowship, connectedness and context. One is lonely when important others are not there, because either one has rejected them or they have chosen to be rejected and left the person behind, feeling lonely. One can reject others in favour of another kind of connectedness. Such loneliness is restful and pleasant. It involves the lack of tangible context that other present people can offer, yet a context is not missing*in this instance there is a relationship to and one is part of something else such as nature or animal fellowship. Involuntary loneliness on the other hand involves a lack of context and connectedness. To be involuntarily lonely and not belonging to anyone is to lack participation in the world. To not be. Loneliness as a phenomenon is further characterized as transcending the present situation containing loneliness. One can feel lonely even if there are many people around, or one can be completely alone without feeling lonely. Loneliness can disappear with a sense of belonging, when one connects with someone who is miles away.

Research paper thumbnail of Overcoming the problems of submitting articles to international journals

International Journal of Qualitative Studies on Health and Well-being, 2009

Research paper thumbnail of “Caring for insiderness”: Phenomenologically informed insights that can guide practice

International Journal of Qualitative Studies on Health and Well-Being, 2014

Understanding the ''insider'' perspective has been a pivotal strength of qualitative research. Fu... more Understanding the ''insider'' perspective has been a pivotal strength of qualitative research. Further than this, within the more applied fields in which the human activity of ''caring'' takes place, such understanding of ''what it is like'' for people from within their lifeworlds has also been acknowledged as the foundational starting point in order for ''care'' to be caring. But we believe that more attention needs to be paid to this foundational generic phenomenon: what it means to understand the ''insiderness'' of another, but more importantly, how to act on this in caring ways. We call this human phenomenon ''caring for insiderness.'' Drawing on existing phenomenological studies of marginal caring situations at the limits of caring capability, and through a process of phenomenologically oriented reflection, we interrogated some existential themes implicit in these publications that could lead to deeper insights for both theoretical and applied purposes. The paper provides direction for practices of caring by highlighting some dangers as well as some remedies along this path.

Research paper thumbnail of Patient participation: A qualitative study of immigrant women and their experiences

International journal of qualitative studies on health and well-being, 2010

Patient participation in healthcare is a neglected area of interest in the rather extensive amoun... more Patient participation in healthcare is a neglected area of interest in the rather extensive amount of research on immigrant so-called Selma patients in Swedish health care as well as worldwide. The aim is to explore the phenomenon "patient participation" in the context of the Swedish health care from the perspective of immigrants non-fluent in Swedish. A phenomenological lifeworld approach was chosen. Data were collected from patients within a municipal home care setting in Sweden. Eight women agreed to participate. In seven interviews, an interpreter was necessary for the translation of the interview. Five authorized interpreters were used. Data were analysed in accordance to a descriptive phenomenological method for caring research. The analysis led to an essence of the phenomenon with three constituents, "to experience participation," "to refrain from participation," and "to be deprived of participation." Patient participation from the pers...

Research paper thumbnail of Challenges for future caring science research: a response to Hallberg (2006)

International Journal of Nursing Studies, 2008

In a direct and somewhat provocative editorial in IJNS (43) pp. 923-927, Hallberg (2006) raises s... more In a direct and somewhat provocative editorial in IJNS (43) pp. 923-927, Hallberg (2006) raises several challenges for nursing research if it is to provide useful evidence for health-care practice in both the short and the long term. We wish to offer a response to Hallberg's challenges and to add support to her general call. In particular we wish to consider the challenges she poses in the wider context of caring science rather than the more limited perspective of nursing science. In the spirit of constructive debate we counter some of the claims made and indicate some areas for future direction which embrace a more epistemologically sound view of knowledge generation, which is methodologically sensitive to different research questions. This direction we believe is at the heart of what caring and nursing science is about.

Research paper thumbnail of Challenging a Reductionistic Paradigm as a Foundation for Nursing

Journal of Holistic Nursing, 1995

Historically, nursing practice has been grounded in the objective, analytic philosophy of the nat... more Historically, nursing practice has been grounded in the objective, analytic philosophy of the natural sciences. Over the past decades, caring—a humanistic concept—has been espoused as the essence of nursing. Paradoxically, practice based on the theme of caring remains aligned with the philosophy of the natural sciences and continues to use tools such as nursing process and nursing diagnosis, products of

Research paper thumbnail of A lifeworld phenomenological study of the experience of falling ill with diabetes

International Journal of Nursing Studies, 2009

Please cite this article in press as: Johansson, K., et al., A lifeworld phenomenological study o... more Please cite this article in press as: Johansson, K., et al., A lifeworld phenomenological study of the experience of falling ill with diabetes. Int J Nurs Stud (2008),

Research paper thumbnail of Living with Dementia Yields a Heteronomous and Lost Existence

Western Journal of Nursing Research, 2004

The purpose of this study was to investigate the lived experience of dementia for spouses where o... more The purpose of this study was to investigate the lived experience of dementia for spouses where one of them is diagnosed as having dementia. The study has been conducted using a phenomenological approach. Unstructured interviews were chosen in order to investigate the informants' lived experiences of dementia, both for the person with dementia and for his or her spouse. The essence of the phenomenon, the lived experience of dementia, is that the persons with dementia and their spouses live in a heteronomous existence in which they are lost and are strangers in their own world. The result of this is a life without coherence and a new but unknown meaning that can make them feel uncertain and puts them in a quandary. Whatever those with dementia and their spouses do, they have no real influence over their situation, which leads to feelings of awkwardness, perplexity, and futility.

Research paper thumbnail of To not make definite what is indefinite: A phenomenological analysis of perception and its epistemological consequences in human science research

The Humanistic Psychologist, 2003

... An Idea of Intentional Richness We argue that Husserl's fundamental analysis of the ... more ... An Idea of Intentional Richness We argue that Husserl's fundamental analysis of the human experience is essential to human science research, especially to the approaches that build on lifeworld theory. Despite the purpose ...

Research paper thumbnail of HUMAN SCIENCE RESEARCH AS THE EMBODIMENT OF OPENNESS: SWIMMING UPSTREAM IN A TECHNOLOGICAL CULTURE

Journal of Phenomenological Psychology, 2001

ABSTRACT

Research paper thumbnail of Being in-between and lost in the discharge process—An excursus of two empirical studies of older persons’, their relatives’, and care professionals’ experience

International Journal of Qualitative Studies on Health and Well-Being, 2012

The discharge process (DP) is full of well-known risks, and a comprehensive and well-executed DP ... more The discharge process (DP) is full of well-known risks, and a comprehensive and well-executed DP is especially important for older people with multiple health problems and continuing care needs, as well as for their relatives. Few studies focus on the experiences with the DP by older people in need of home care nursing and their relatives. Therefore, the aim was to deepen the understanding of the DP as a phenomenon described by older people, their relatives, and care professionals. The method is an excursus of the findings of two previously published research studies. By using the Reflective Lifeworld Research approach, the empirical findings were further interpreted with lifeworld theory. The results describe the essential meaning of the phenomenon of DP in relation to healthcare needs. The illness and the DP can be viewed as a course of action where the familiar becomes unfamiliar for older people and their relatives, entailing an insecure future existence characterized by the experience of being in-between. The DP is marked by bodily and existential needs. The older persons and their relatives are lost in the hospital context and trying to influence life and adapt to life circumstances, while being relentlessly dependent on care professionals. Care professionals work from both an organizational and a medical approach. Disharmony and disagreement seem to arise easily among the professionals regarding the planning negatively affecting the patients and their relatives. More efforts are needed in the DP to empower older people and their relatives to go on with their life at home. The caring practice needs to more clearly meet and address the individual needs of older people and their relatives and their understanding of their illness. It needs to give them lifeworld and life goals to alleviate their suffering and to help them adjust to their new situation.

Research paper thumbnail of Caring potentials in the shadows of power, correction, and discipline—Forensic psychiatric care in the light of the work of Michel Foucault

International Journal of Qualitative Studies on Health and Well-Being, 2015

The aim of this article is to shed light on contemporary forensic psychiatric care through a phil... more The aim of this article is to shed light on contemporary forensic psychiatric care through a philosophical examination of the empirical results from two lifeworld phenomenological studies from the perspective of patients and carers, by using the French philosopher Michel Foucault's historical-philosophical work. Both empirical studies were conducted in a forensic psychiatric setting. The essential results of the two empirical studies were reexamined in a phenomenological meaning analysis to form a new general structure in accordance with the methodological principles of Reflective Lifeworld Research. This general structure shows how the caring on the forensic psychiatric wards appears to be contradictory, in that it is characterized by an unreflective (non-)caring attitude and contributes to an inconsistent and insecure existence. The caring appears to have a corrective approach and thus lacks a clear caring structure, a basic caring approach that patients in forensic psychiatric services have a great need of. To gain a greater understanding of forensic psychiatric caring, the new empirical results were further examined in the light of Foucault's historical-philosophical work. The philosophical examination is presented in terms of the three meaning constituents: Caring as correction and discipline, The existence of power, and Structures and culture in care. The philosophical examination illustrates new meaning nuances of the corrective and disciplinary nature of forensic psychiatric care, its power, and how this is materialized in caring, and what this does to the patients. The examination reveals embedded difficulties in forensic psychiatric care and highlights a need to revisit the aim of such care.

Research paper thumbnail of Learning in the Ivory Tower: Students' Embodied Experience

College Teaching, 2002

Page 1. Learning in the Ivory Tower: Students' Em bodied Ex per ience ... REFERENCES Bengtss... more Page 1. Learning in the Ivory Tower: Students' Em bodied Ex per ience ... REFERENCES Bengtsson, J. 1998. Fenomenologiska utfyk-ter: (Phenomenological excursions). Gote-borg, Sweden: Daidalos. Dahlberg, K., and N. Drew. 1997. A lifeworld paradigm for nursing research. ...

Research paper thumbnail of Reflective Life-World Research

Reflective Lifeworld Research is a suitable title for a text that argues for, and gives convincin... more Reflective Lifeworld Research is a suitable title for a text that argues for, and gives convincing philosophical credence to, a qualitative sensibility in the human sciences. The key concept is 'reflective'. This is a rightful scientific attitude, the implications of which become the main theme of an academic publication that finally articulates messages that have been superficially addressed in newer texts in qualitative research. In other introductory human science research texts (such as Murray, 2004; Terre Blanche, Durrheim, & Painter, 2006; Willig, 2008), adopting a reflective attitude or its more political variation, reflexivity, is recommended. However, other introductory texts appear to avoid a philosophically rigorous grappling with the reflective and/or reflexive attitude in research. Reflective Lifeworld Research takes on this challenge and succeeds in a manner that avoids activist or apologetic discourses, instead adhering to an empirical discourse. This becomes ...

Research paper thumbnail of To Use a Method Without Being Ruled by It: Learning Supported by Drama in the Integration of Theory with Healthcare Practice

Indo-Pacific Journal of Phenomenology, 2008

ABSTRACT

Research paper thumbnail of Caring touch - patients' experiences in an anthroposophic clinical context

Scandinavian Journal of Caring Sciences, 2015

This study describes the phenomenon of caring touch from the patients' pe... more This study describes the phenomenon of caring touch from the patients' perspective in an anthroposophic clinical context where caring touch is often used to promote health and alleviate suffering. The aim of the study was to explore and phenomenologically describe the phenomenon of caring touch from the patients' perspectives. The study has been carried out with a Reflective Lifeworld Research approach in order to understand and describe human existential phenomena. Ten female patients were interviewed in an anthroposophic clinic in Sweden. The findings show how caring touch has multifaceted meanings and makes the patients' feel present and anchored in a meaningful context. The patients' feel that they are seen, accepted and confirmed. Furthermore, touch creates a caring space where the patients become receptive for care and has the power to alleviate the patients' suffering, as well as to frighten and cause or worsen the suffering. In order to take advantage of the caring potential, the patient needs to be invited to a respectful and sensitive form of touch. An interpersonal flexible space is necessary where the touch can be effective, and where a dynamic interplay can develop. In conclusion, caring touch is an opportunity for carers to support well-being and health. The carers need to approach their patients in both a sensitive and reflective way. A caring science perspective can serve as a help to further understand touch as a unique caring act.

Research paper thumbnail of A meaningful relief from suffering experiences of massage in cancer care

Cancer nursing, 2001

The experience of massage in an oncology ward was the focus of this study. Eight female cancer pa... more The experience of massage in an oncology ward was the focus of this study. Eight female cancer patients were given massage for 10 consecutive days and then interviewed using phenomenology as a theoretical framework. The essential meaning of getting massage as part of the daily care for female cancer patients was described as getting a meaningful relief from suffering. The findings identified five themes: the relief is meaningful because it offers the patient an experience of being "special." The massage contributes to the development of a positive relationship with the personnel, to feeling strong, and to a balance between autonomy and dependence. The massage also brings about a meaningful relief from suffering because it just "feels good." The findings of this study can be of use to health care professionals as it shows that the relatively short period of massage can result in physical and emotional benefits for cancer patients.

Research paper thumbnail of To survive out-of-hospital cardiac arrest: a search for meaning and coherence

Qualitative health research, 2009

The primary responsibility of prehospital emergency personnel at out-of-hospital cardiac arrests ... more The primary responsibility of prehospital emergency personnel at out-of-hospital cardiac arrests (OHCA) is to provide lifesaving care. Ethical considerations, decisions, and actions should be based in the patient's beliefs about health and well-being. In this article, we describe patients' experiences of surviving OHCA. By using a phenomenological approach, we focus on how OHCA influences patients' well-being over time. Nine survivors were interviewed. Out-of-hospital cardiac arrest is described as a sudden and elusive threat, an awakening in perplexity, and the memory gap as a loss of coherence. Survival means a search for coherence with distressing and joyful understanding, as well as existential insecurity exposed by feelings of vulnerability. Well-being is found through a sense of coherence and meaning in life. The study findings show survivors' emotional needs and a potential for prehospital emergency personnel to support them as they try to make sense of what h...

Research paper thumbnail of Editorial

International journal of qualitative studies on health and well-being, 2010

Research paper thumbnail of Being in-between and lost in the discharge process—An excursus of two empirical studies of older persons’, their relatives’, and care professionals’ experience

International Journal of Qualitative Studies on Health and Well-Being, 2012

The discharge process (DP) is full of well-known risks, and a comprehensive and well-executed DP ... more The discharge process (DP) is full of well-known risks, and a comprehensive and well-executed DP is especially important for older people with multiple health problems and continuing care needs, as well as for their relatives. Few studies focus on the experiences with the DP by older people in need of home care nursing and their relatives. Therefore, the aim was to deepen the understanding of the DP as a phenomenon described by older people, their relatives, and care professionals. The method is an excursus of the findings of two previously published research studies. By using the Reflective Lifeworld Research approach, the empirical findings were further interpreted with lifeworld theory. The results describe the essential meaning of the phenomenon of DP in relation to healthcare needs. The illness and the DP can be viewed as a course of action where the familiar becomes unfamiliar for older people and their relatives, entailing an insecure future existence characterized by the experience of being in-between. The DP is marked by bodily and existential needs. The older persons and their relatives are lost in the hospital context and trying to influence life and adapt to life circumstances, while being relentlessly dependent on care professionals. Care professionals work from both an organizational and a medical approach. Disharmony and disagreement seem to arise easily among the professionals regarding the planning negatively affecting the patients and their relatives. More efforts are needed in the DP to empower older people and their relatives to go on with their life at home. The caring practice needs to more clearly meet and address the individual needs of older people and their relatives and their understanding of their illness. It needs to give them lifeworld and life goals to alleviate their suffering and to help them adjust to their new situation.

Research paper thumbnail of The enigmatic phenomenon of loneliness

International Journal of Qualitative Studies on Health and Well-being, 2007

Much has been said and written on loneliness, which is a common human phenomenon that belongs to ... more Much has been said and written on loneliness, which is a common human phenomenon that belongs to everyday existence, but few attempts have been made to capture the phenomenon and its existential meaning without reducing its complexity. This paper addresses the question: What is loneliness, what is its essence? The study practiced a phenomenological approach, called Reflective Lifeworld Research. Twenty-six interviews were analysed for meaning with the aim of describing an essential structure for the phenomenon, showing what loneliness is. The analysis shows that the phenomenon of loneliness stands out in meaning as ''figure'' against a ''background'' of fellowship, connectedness and context. One is lonely when important others are not there, because either one has rejected them or they have chosen to be rejected and left the person behind, feeling lonely. One can reject others in favour of another kind of connectedness. Such loneliness is restful and pleasant. It involves the lack of tangible context that other present people can offer, yet a context is not missing*in this instance there is a relationship to and one is part of something else such as nature or animal fellowship. Involuntary loneliness on the other hand involves a lack of context and connectedness. To be involuntarily lonely and not belonging to anyone is to lack participation in the world. To not be. Loneliness as a phenomenon is further characterized as transcending the present situation containing loneliness. One can feel lonely even if there are many people around, or one can be completely alone without feeling lonely. Loneliness can disappear with a sense of belonging, when one connects with someone who is miles away.

Research paper thumbnail of Overcoming the problems of submitting articles to international journals

International Journal of Qualitative Studies on Health and Well-being, 2009

Research paper thumbnail of “Caring for insiderness”: Phenomenologically informed insights that can guide practice

International Journal of Qualitative Studies on Health and Well-Being, 2014

Understanding the ''insider'' perspective has been a pivotal strength of qualitative research. Fu... more Understanding the ''insider'' perspective has been a pivotal strength of qualitative research. Further than this, within the more applied fields in which the human activity of ''caring'' takes place, such understanding of ''what it is like'' for people from within their lifeworlds has also been acknowledged as the foundational starting point in order for ''care'' to be caring. But we believe that more attention needs to be paid to this foundational generic phenomenon: what it means to understand the ''insiderness'' of another, but more importantly, how to act on this in caring ways. We call this human phenomenon ''caring for insiderness.'' Drawing on existing phenomenological studies of marginal caring situations at the limits of caring capability, and through a process of phenomenologically oriented reflection, we interrogated some existential themes implicit in these publications that could lead to deeper insights for both theoretical and applied purposes. The paper provides direction for practices of caring by highlighting some dangers as well as some remedies along this path.

Research paper thumbnail of Patient participation: A qualitative study of immigrant women and their experiences

International journal of qualitative studies on health and well-being, 2010

Patient participation in healthcare is a neglected area of interest in the rather extensive amoun... more Patient participation in healthcare is a neglected area of interest in the rather extensive amount of research on immigrant so-called Selma patients in Swedish health care as well as worldwide. The aim is to explore the phenomenon "patient participation" in the context of the Swedish health care from the perspective of immigrants non-fluent in Swedish. A phenomenological lifeworld approach was chosen. Data were collected from patients within a municipal home care setting in Sweden. Eight women agreed to participate. In seven interviews, an interpreter was necessary for the translation of the interview. Five authorized interpreters were used. Data were analysed in accordance to a descriptive phenomenological method for caring research. The analysis led to an essence of the phenomenon with three constituents, "to experience participation," "to refrain from participation," and "to be deprived of participation." Patient participation from the pers...

Research paper thumbnail of Challenges for future caring science research: a response to Hallberg (2006)

International Journal of Nursing Studies, 2008

In a direct and somewhat provocative editorial in IJNS (43) pp. 923-927, Hallberg (2006) raises s... more In a direct and somewhat provocative editorial in IJNS (43) pp. 923-927, Hallberg (2006) raises several challenges for nursing research if it is to provide useful evidence for health-care practice in both the short and the long term. We wish to offer a response to Hallberg's challenges and to add support to her general call. In particular we wish to consider the challenges she poses in the wider context of caring science rather than the more limited perspective of nursing science. In the spirit of constructive debate we counter some of the claims made and indicate some areas for future direction which embrace a more epistemologically sound view of knowledge generation, which is methodologically sensitive to different research questions. This direction we believe is at the heart of what caring and nursing science is about.

Research paper thumbnail of Challenging a Reductionistic Paradigm as a Foundation for Nursing

Journal of Holistic Nursing, 1995

Historically, nursing practice has been grounded in the objective, analytic philosophy of the nat... more Historically, nursing practice has been grounded in the objective, analytic philosophy of the natural sciences. Over the past decades, caring—a humanistic concept—has been espoused as the essence of nursing. Paradoxically, practice based on the theme of caring remains aligned with the philosophy of the natural sciences and continues to use tools such as nursing process and nursing diagnosis, products of

Research paper thumbnail of A lifeworld phenomenological study of the experience of falling ill with diabetes

International Journal of Nursing Studies, 2009

Please cite this article in press as: Johansson, K., et al., A lifeworld phenomenological study o... more Please cite this article in press as: Johansson, K., et al., A lifeworld phenomenological study of the experience of falling ill with diabetes. Int J Nurs Stud (2008),

Research paper thumbnail of Living with Dementia Yields a Heteronomous and Lost Existence

Western Journal of Nursing Research, 2004

The purpose of this study was to investigate the lived experience of dementia for spouses where o... more The purpose of this study was to investigate the lived experience of dementia for spouses where one of them is diagnosed as having dementia. The study has been conducted using a phenomenological approach. Unstructured interviews were chosen in order to investigate the informants' lived experiences of dementia, both for the person with dementia and for his or her spouse. The essence of the phenomenon, the lived experience of dementia, is that the persons with dementia and their spouses live in a heteronomous existence in which they are lost and are strangers in their own world. The result of this is a life without coherence and a new but unknown meaning that can make them feel uncertain and puts them in a quandary. Whatever those with dementia and their spouses do, they have no real influence over their situation, which leads to feelings of awkwardness, perplexity, and futility.

Research paper thumbnail of To not make definite what is indefinite: A phenomenological analysis of perception and its epistemological consequences in human science research

The Humanistic Psychologist, 2003

... An Idea of Intentional Richness We argue that Husserl's fundamental analysis of the ... more ... An Idea of Intentional Richness We argue that Husserl's fundamental analysis of the human experience is essential to human science research, especially to the approaches that build on lifeworld theory. Despite the purpose ...