Kerryn Garner - Academia.edu (original) (raw)
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Papers by Kerryn Garner
latrobe.edu.au
Access to timely and appropriate information is a critical component of informed decision-making ... more Access to timely and appropriate information is a critical component of informed decision-making ... [1, 3-4]. Much of this research has focussed on information needs at diagnosis, and patient-doctor ... To explore the experiences of people with MS in finding, assessing and ...
Health Expectations, 2014
Background and objectiveThe Internet is increasingly prominent as a source of health information ... more Background and objectiveThe Internet is increasingly prominent as a source of health information for people with multiple sclerosis (MS). But there has been little exploration of the needs, experiences and preferences of people with MS for integrating treatment information into decision making, in the context of searching on the Internet. This was the aim of our study.DesignSixty participants (51 people with MS; nine family members) took part in a focus group or online forum. They were asked to describe how they find and assess reliable treatment information (particularly online) and how this changes over time. Thematic analysis was underpinned by a coding frame.ResultsParticipants described that there was both too much information online and too little that applied to them. They spoke of wariness and scepticism but also empowerment. The availability of up‐to‐date and unbiased treatment information, including practical and lifestyle‐related information, was important to many. Many p...
latrobe.edu.au
Access to timely and appropriate information is a critical component of informed decision-making ... more Access to timely and appropriate information is a critical component of informed decision-making ... [1, 3-4]. Much of this research has focussed on information needs at diagnosis, and patient-doctor ... To explore the experiences of people with MS in finding, assessing and ...
Health Expectations, 2014
Background and objectiveThe Internet is increasingly prominent as a source of health information ... more Background and objectiveThe Internet is increasingly prominent as a source of health information for people with multiple sclerosis (MS). But there has been little exploration of the needs, experiences and preferences of people with MS for integrating treatment information into decision making, in the context of searching on the Internet. This was the aim of our study.DesignSixty participants (51 people with MS; nine family members) took part in a focus group or online forum. They were asked to describe how they find and assess reliable treatment information (particularly online) and how this changes over time. Thematic analysis was underpinned by a coding frame.ResultsParticipants described that there was both too much information online and too little that applied to them. They spoke of wariness and scepticism but also empowerment. The availability of up‐to‐date and unbiased treatment information, including practical and lifestyle‐related information, was important to many. Many p...