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Papers by Kristina Staley
Asia-Pacific Psychiatry, 2011
Involving service users as research partners is likely to be one of themajor developments in rese... more Involving service users as research partners is likely to be one of themajor developments in research management and conduct in thetwenty-first century. We outline the reasons why we believe this willmake for better research, citing examples. Some of the many waysin which service users can be involved are described, but thereremains plenty of scope for innovation and creativity. There aresignificant challenges, but the evidence from experience in this fieldindicates they can be overcome.
Public Understanding of Science, 2007
This paper discusses the methodological development of Deliberative Mapping (DM), a participatory... more This paper discusses the methodological development of Deliberative Mapping (DM), a participatory, multi-criteria, option appraisal process that combines a novel approach to the use of quantitative decision analysis techniques with some significant innovations in the field of participatory deliberation. DM is a symmetrical process, engaging "specialists" and "citizens" in the same appraisal process, providing for consistency of framing, mutual inter-linkage and interrogation, and substantial opportunities for face-to-face discussion. Through a detailed case study of organ transplantation options, the paper discusses the steps in DM. The analysis shows that DM is able to elicit and document consensual judgments as well as divergent views by integrating analytic and deliberative components in a transparent, auditable process that creates many opportunities for personal learning, and provides a robust decision-support tool for contested science-policy issues.
Psychological Medicine, 2013
Involving service users in research improves its quality and relevance. Many research organizatio... more Involving service users in research improves its quality and relevance. Many research organizations funding and supporting research now ask researchers about involvement as part of their application process. Some researchers are facing challenges in taking forward involvement as the research infrastructure is not always facilitative. Researchers need greater reward and recognition for carrying out good quality involvement to encourage more effective processes.
Health Expectations, 2012
It is now more widely recognized that public involvement in research increases the quality and re... more It is now more widely recognized that public involvement in research increases the quality and relevance of the research. However, there are also more questions as to exactly how and when involvement brings added value. Based on the findings of recent literature reviews, most reports of public involvement that discuss impact are based on observational evaluations. These usefully describe the context, the type of involvement and the impact. However, the links between these factors are rarely considered. The findings are therefore limited to identifying the range of impacts and general lessons for good practice. Reflecting on the links between context, mechanism and outcome in these observational evaluations identifies which aspects of the context and mechanism could be significant to the outcome. Studies that are more in line with the principles of realistic evaluation can test these links more rigorously. Building on the evidence from observational evaluations to design research that explores the 'missing links' will help to address the question 'what works best, for whom and when'. We conclude that a more intentional and explicit exploration of the links between context, mechanism and outcome, applying the principles of realistic evaluation to public involvement in research, should lead to a more sophisticated understanding of the factors that increase or decrease the likelihood of positive outcomes. This will support the development of more strategic approaches to involvement maximizing the benefits for all involved.
Asia-Pacific Psychiatry, 2011
Involving service users as research partners is likely to be one of themajor developments in rese... more Involving service users as research partners is likely to be one of themajor developments in research management and conduct in thetwenty-first century. We outline the reasons why we believe this willmake for better research, citing examples. Some of the many waysin which service users can be involved are described, but thereremains plenty of scope for innovation and creativity. There aresignificant challenges, but the evidence from experience in this fieldindicates they can be overcome.
Final report to …, 2003
Submitted under the Wellcome Trust's programme for novel methods in public consultation (200... more Submitted under the Wellcome Trust's programme for novel methods in public consultation (2000 2003) Grant no: 064492 ... Sue Mayer, Kristina Staley, Andy Stirling and ... The multi-disciplinary research team for Deliberative Mapping is based at SPRU (University of Sussex), ESRU ( ...
Health Expectations, 2011
Service user involvement is embedded in the United Kingdom&am... more Service user involvement is embedded in the United Kingdom's National Health Service, but knowledge about the impact of involvement on service users, such as the benefits and challenges of involvement, is scant. Our research addresses this gap. To explore the personal impact of involvement on the lives of service users affected by cancer. We conducted eight focus groups with user groups supplemented by nine face-to-face interviews with involved individuals active at a local, regional and national level. Thematic analysis was conducted both independently and collectively. Sixty-four participants, engaged in involvement activities in cancer services, palliative care and research, were recruited across Great Britain. We identified three main themes: (i) 'Expectations and motivations for involvement'- the desire to improve services and the need for user groups to have a clear purpose, (ii) 'Positive aspects of involvement'- support provided by user groups and assistance to live well with cancer and (iii) 'Challenging aspects of involvement'- insensitivities and undervaluing of involvement by staff. This study identified that involvement has the capacity to produce varied and significant personal impacts for involved people. Involvement can be planned and implemented in ways that increase these impacts and that mediates challenges for those involved. Key aspects to increase positive impact for service users include the value service providers attach to involvement activities, the centrality with which involvement is embedded in providers' activities, and the capacity of involvement to influence policy, planning, service delivery, research and/or practice.
Asia-Pacific Psychiatry, 2011
Involving service users as research partners is likely to be one of themajor developments in rese... more Involving service users as research partners is likely to be one of themajor developments in research management and conduct in thetwenty-first century. We outline the reasons why we believe this willmake for better research, citing examples. Some of the many waysin which service users can be involved are described, but thereremains plenty of scope for innovation and creativity. There aresignificant challenges, but the evidence from experience in this fieldindicates they can be overcome.
Public Understanding of Science, 2007
This paper discusses the methodological development of Deliberative Mapping (DM), a participatory... more This paper discusses the methodological development of Deliberative Mapping (DM), a participatory, multi-criteria, option appraisal process that combines a novel approach to the use of quantitative decision analysis techniques with some significant innovations in the field of participatory deliberation. DM is a symmetrical process, engaging "specialists" and "citizens" in the same appraisal process, providing for consistency of framing, mutual inter-linkage and interrogation, and substantial opportunities for face-to-face discussion. Through a detailed case study of organ transplantation options, the paper discusses the steps in DM. The analysis shows that DM is able to elicit and document consensual judgments as well as divergent views by integrating analytic and deliberative components in a transparent, auditable process that creates many opportunities for personal learning, and provides a robust decision-support tool for contested science-policy issues.
Psychological Medicine, 2013
Involving service users in research improves its quality and relevance. Many research organizatio... more Involving service users in research improves its quality and relevance. Many research organizations funding and supporting research now ask researchers about involvement as part of their application process. Some researchers are facing challenges in taking forward involvement as the research infrastructure is not always facilitative. Researchers need greater reward and recognition for carrying out good quality involvement to encourage more effective processes.
Health Expectations, 2012
It is now more widely recognized that public involvement in research increases the quality and re... more It is now more widely recognized that public involvement in research increases the quality and relevance of the research. However, there are also more questions as to exactly how and when involvement brings added value. Based on the findings of recent literature reviews, most reports of public involvement that discuss impact are based on observational evaluations. These usefully describe the context, the type of involvement and the impact. However, the links between these factors are rarely considered. The findings are therefore limited to identifying the range of impacts and general lessons for good practice. Reflecting on the links between context, mechanism and outcome in these observational evaluations identifies which aspects of the context and mechanism could be significant to the outcome. Studies that are more in line with the principles of realistic evaluation can test these links more rigorously. Building on the evidence from observational evaluations to design research that explores the 'missing links' will help to address the question 'what works best, for whom and when'. We conclude that a more intentional and explicit exploration of the links between context, mechanism and outcome, applying the principles of realistic evaluation to public involvement in research, should lead to a more sophisticated understanding of the factors that increase or decrease the likelihood of positive outcomes. This will support the development of more strategic approaches to involvement maximizing the benefits for all involved.
Asia-Pacific Psychiatry, 2011
Involving service users as research partners is likely to be one of themajor developments in rese... more Involving service users as research partners is likely to be one of themajor developments in research management and conduct in thetwenty-first century. We outline the reasons why we believe this willmake for better research, citing examples. Some of the many waysin which service users can be involved are described, but thereremains plenty of scope for innovation and creativity. There aresignificant challenges, but the evidence from experience in this fieldindicates they can be overcome.
Final report to …, 2003
Submitted under the Wellcome Trust's programme for novel methods in public consultation (200... more Submitted under the Wellcome Trust's programme for novel methods in public consultation (2000 2003) Grant no: 064492 ... Sue Mayer, Kristina Staley, Andy Stirling and ... The multi-disciplinary research team for Deliberative Mapping is based at SPRU (University of Sussex), ESRU ( ...
Health Expectations, 2011
Service user involvement is embedded in the United Kingdom&am... more Service user involvement is embedded in the United Kingdom's National Health Service, but knowledge about the impact of involvement on service users, such as the benefits and challenges of involvement, is scant. Our research addresses this gap. To explore the personal impact of involvement on the lives of service users affected by cancer. We conducted eight focus groups with user groups supplemented by nine face-to-face interviews with involved individuals active at a local, regional and national level. Thematic analysis was conducted both independently and collectively. Sixty-four participants, engaged in involvement activities in cancer services, palliative care and research, were recruited across Great Britain. We identified three main themes: (i) 'Expectations and motivations for involvement'- the desire to improve services and the need for user groups to have a clear purpose, (ii) 'Positive aspects of involvement'- support provided by user groups and assistance to live well with cancer and (iii) 'Challenging aspects of involvement'- insensitivities and undervaluing of involvement by staff. This study identified that involvement has the capacity to produce varied and significant personal impacts for involved people. Involvement can be planned and implemented in ways that increase these impacts and that mediates challenges for those involved. Key aspects to increase positive impact for service users include the value service providers attach to involvement activities, the centrality with which involvement is embedded in providers' activities, and the capacity of involvement to influence policy, planning, service delivery, research and/or practice.