Lauri Linder - Academia.edu (original) (raw)
Papers by Lauri Linder
Purpose: This study compared patterns of fatigue among school-age children with cancer as reporte... more Purpose: This study compared patterns of fatigue among school-age children with cancer as reported by children and their parents during an inpatient admission for chemotherapy. Background: Fatigue is the most frequently reported symptom by children and adolescents with cancer. Perceptions of fatigue are influenced by children’s developmental stage with school-age children more likely to conceptualize fatigue as a sense of weakness or being tired that interferes with the child’s ability to engage in day-to-day activities. Methods The setting for this exploratory, descriptive, multiple-case study was an inpatient pediatric oncology unit in a tertiary pediatric hospital in the Intermountain West. Participants were 15 school-age children (mean = 8.8 years; SD = 2.3) with cancer who were receiving inpatient chemotherapy for three days or longer. Fatigue was assessed daily, beginning with the day of admission, using the Fatigue Scale: Child Version (FSC) which assesses children’s perceive...
Journal for Specialists in Pediatric Nursing, 2013
The features of the iPad and its widespread adoption support its use as a tool in research involv... more The features of the iPad and its widespread adoption support its use as a tool in research involving children and adolescents. Although use in our current research has been limited to a hospital-based setting,the iPad’s design and features support its potential use in home- and community-based settings as well.In addition to collecting data through web-based platforms and applications, the iPad may facilitate telehealth-based interventions through the use of its built-in camera and Face Time applications.In our experience with children and adolescents,the iPad has been a useful tool to support multiple types of data collection as well as support other aspects of the research process. The use of iPad application technology certainly opens up opportunities for new and novel ways to collect meaningful data and support research with individuals across the lifespan.
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, Dec 17, 2017
Adolescents and young adults (AYAs) with cancer experience multiple symptoms related to their can... more Adolescents and young adults (AYAs) with cancer experience multiple symptoms related to their cancer and its treatment which can negatively impact their development and quality of life. An understanding of the strategies AYAs use to self-manage their symptoms is limited. This study described symptom self-management strategies reported by AYAs with cancer using an iPad-based symptom heuristics tool, the Computerized Symptom Capture Tool. The study used a cross-sectional, descriptive design. AYAs' free text responses relating their symptom self-management strategies were explored using qualitative content analysis procedures. Strategies were examined overall and by individual symptoms. Seventy-two AYAs 13-29 years of age (mean 18.4 years) reported a total of 772 symptom self-management codes for 585 individual symptoms. These codes were organized into 119 distinct categories. These categories were further organized into 16 subthemes and 3 overarching themes: "Things I Take … ...
Informatics for health & social care, Jan 10, 2015
To evaluate feasibility, including usability and utility, of the Computerized Symptom Capture Too... more To evaluate feasibility, including usability and utility, of the Computerized Symptom Capture Tool for Menopause (C-SCAT-M), a symptom heuristics application (app) for the iPad, with midlife women. Thirty midlife women aged 40-60 and experiencing symptoms they associated with menopause were recruited through flyers posted on a university campus, primary care and women's health clinics. The C-SCAT-M guided participants to identify symptoms they experienced, draw temporal and causal relationships between symptoms and identify symptom clusters. Women were encouraged to think aloud as they encountered questions or problems and their comments were audio recorded. After completing the C-SCAT-M, they completed a 22-item acceptability survey and a demographic survey. Data were downloaded from catalyst website and analyzed using SPSS. Women completed the C-SCAT-M with minimal difficulty, with most indicating that using the app was very/extremely easy and most (57%) preferred using the iP...
Research in Nursing & Health, 2015
Adolescents and young adults (AYAs) with cancer experience multiple distressing symptoms during t... more Adolescents and young adults (AYAs) with cancer experience multiple distressing symptoms during treatment. Because the typical approach to symptom assessment does not easily reflect the symptom experience of individuals, alternative approaches to enhancing communication between the patient and provider are needed. We developed an iPad-based application that uses a heuristic approach to explore AYAs' cancer symptom experiences. In this mixed-methods descriptive study, 72 AYAs (13-29 years old) with cancer receiving myelosuppressive chemotherapy used the Computerized Symptom Capture Tool (C-SCAT) to create images of the symptoms and symptom clusters they experienced from a list of 30 symptoms. They answered open-ended questions within the C-SCAT about the causes of their symptoms and symptom clusters. The images generated through the C-SCAT and accompanying free-text data were analyzed using descriptive, content, and visual analyses. Most participants (n = 70) reported multiple symptoms (M = 8.14). The most frequently reported symptoms were nausea (65.3%), feeling drowsy (55.6%), lack of appetite (55.6%), and lack of energy (55.6%). Forty-six grouped their symptoms into one or more clusters. The most common symptom cluster was nausea/eating problems/appetite problems. Nausea was most frequently named as the priority symptom in a cluster and as a cause of other symptoms. Although common threads were present in the symptoms experienced by AYAs, the graphic images revealed unique perspectives and a range of complexity of symptom relationships, clusters, and causes. Results highlight the need for a tailored approach to symptom management based on how the AYA with cancer perceives his or her symptom experience. © 2015 Wiley Periodicals, Inc.
Informatics for health & social care, Jan 10, 2015
To evaluate feasibility, including usability and utility, of the Computerized Symptom Capture Too... more To evaluate feasibility, including usability and utility, of the Computerized Symptom Capture Tool for Menopause (C-SCAT-M), a symptom heuristics application (app) for the iPad, with midlife women. Thirty midlife women aged 40-60 and experiencing symptoms they associated with menopause were recruited through flyers posted on a university campus, primary care and women's health clinics. The C-SCAT-M guided participants to identify symptoms they experienced, draw temporal and causal relationships between symptoms and identify symptom clusters. Women were encouraged to think aloud as they encountered questions or problems and their comments were audio recorded. After completing the C-SCAT-M, they completed a 22-item acceptability survey and a demographic survey. Data were downloaded from catalyst website and analyzed using SPSS. Women completed the C-SCAT-M with minimal difficulty, with most indicating that using the app was very/extremely easy and most (57%) preferred using the iP...
Seminars in Oncology Nursing, 2015
To provide an overview of resources for measuring symptoms and symptom clusters in adolescents an... more To provide an overview of resources for measuring symptoms and symptom clusters in adolescents and young adults (AYAs) with cancer and to examine methodological strategies for evaluating symptom clusters. Published research articles and clinical experience. Limited research has addressed symptoms and symptom clusters in AYAs with cancer. Reliable, valid, and developmentally appropriate measures are needed to advance this area of research. Use of mobile technology and mixed qualitative and quantitative methods to understand AYAs' experience of symptoms and symptom clusters could enhance symptom awareness and the evidence base for practice.
Pediatric Blood & Cancer, 2014
The aim of this study was to evaluate the feasibility and acceptability of a computer-based sympt... more The aim of this study was to evaluate the feasibility and acceptability of a computer-based symptom cluster heuristics tool designed to explore symptom clusters experienced by adolescents and young adults (AYAs) with cancer. The Computerized Symptom Capture Tool (C-SCAT) is a newly developed iPad application, which combines graphical images and free text responses in an innovative heuristics approach to explore symptoms and symptom clusters. Seventy-two AYAs (13-29 years of age) with cancer at five institutions across the US completed the C-SCAT 24-96 hours after the initial chemotherapy dose in a chemotherapy cycle. All participants completed the C-SCAT successfully in a mean of 25 minutes, with 74% reporting that the final image was an accurate or very accurate representation of their symptom experience. Little clarification/coaching was necessary while completing the C-SCAT. Few technical problems were encountered. Participants judged the C-SCAT questions to be clear and endorsed ease of following instructions, typing, and drawing. The C-SCAT demonstrated feasibility and acceptability. With refinement based on study results, the C-SCAT has potential to: (a) empower AYAs to communicate their symptom experience and partner with providers in their care; (b) improve symptom management and ameliorate distress; and (c) translate to use with other highly symptomatic populations.
International Journal of Nursing Studies, 2013
The purpose of this literature review is to document what is known about the most common symptoms... more The purpose of this literature review is to document what is known about the most common symptoms and symptom clusters in adolescents receiving cancer treatment in order to advance the science of symptom management for this unique group of patients. This review identified primary research reports focused on cancer-related symptoms in adolescents using methodology that included objective measurement of the symptom(s) or self-report from the adolescents. We searched the literature using Medline, PubMed, and CINAHL from 2000 to 2011. The first step of the review was to synthesize evidence to identify the most common symptoms experienced by adolescents during the cancer treatment period. The second step located findings from additional research about these specific symptoms individually or as clusters. From 12 reports, we identified 6 common symptoms in adolescents during the treatment period: fatigue, sleep-wake disturbances, nausea/eating problems, pain, mood disturbances, and appearance changes. Findings from 51 studies provided a foundation of evidence about symptom trajectories, contributing factors, and associations between symptoms. This review of the literature identified a relatively small body of research related to symptoms in adolescents during the cancer treatment period. Most of the studies were of low quality evidence and described individual symptoms rather than associations or clusters. A few longitudinal studies described symptoms during a cycle of chemotherapy and across months of chemotherapy treatment. With the exception of nausea, no studies tested any interventions to relieve these common symptoms in adolescents. To ensure that adolescents complete the challenging period of cancer treatment and emerge capable of achieving the developmental milestones of young adulthood, important work remains to be done in this field of symptom management.
Nursing Clinics of North America, 2013
Since 2003, genetics and genomics information has led to exciting new diagnostics, prognostics, a... more Since 2003, genetics and genomics information has led to exciting new diagnostics, prognostics, and treatment options in oncology practice. Profiling of cancers offers providers insight into treatment and prognostic factors. Germline testing provides an individual with information for surveillance or therapy that may help them prevent cancer in their lifetime and options for family members as yet untouched by malignancy. This offers a challenge for oncology nurses and other oncology health care providers to become comfortable with incorporating education about genetics/genomics into their clinical practice and patient education.
Oncology Nursing Forum, 2012
Purpose/Objectives-To describe nighttime sleep-wake patterns during a 12-hour night shift among s... more Purpose/Objectives-To describe nighttime sleep-wake patterns during a 12-hour night shift among school-age children with cancer receiving inpatient chemotherapy and relationships among nighttime sleep, environmental stimuli, medication doses, and symptoms during that shift.
Journal of Pediatric Oncology Nursing, 2002
Journal for Specialists in Pediatric Nursing, 2013
The purpose of this study was to describe group and individual characteristics of nighttime sleep... more The purpose of this study was to describe group and individual characteristics of nighttime sleep-wake patterns among school-age children with cancer receiving inpatient chemotherapy. This multiple-case study used wrist actigraphs and sleep diaries to measure sleep for three nights in 15 children with cancer. Nighttime sleep was less than that required for healthy school-age children and was marked by frequent awakenings. Individual variation in sleep characteristics was evident. Interventions to promote nighttime sleep in the hospital include system-based and individualized efforts to minimize disruptions and support children's home sleep routines.
Cancer Nursing, 2011
Background-Children with cancer must cope not only with their disease and its treatment but also ... more Background-Children with cancer must cope not only with their disease and its treatment but also the environment in which treatment is given. The intensities of sound and light levels required to perform necessary patient care may result in a disruptive nighttime care environment.
Journal for specialists in pediatric nursing : JSPN, 2013
The features of the iPad and its widespread adoption support its use as a tool in research involv... more The features of the iPad and its widespread adoption support its use as a tool in research involving children and adolescents. Although use in our current research has been limited to a hospital-based setting,the iPad’s design and features support its potential use in home- and community-based settings as well.In addition to collecting data through web-based platforms and applications, the iPad may facilitate telehealth-based interventions through the use of its built-in camera and Face Time applications.In our experience with children and adolescents,the iPad has been a useful tool to support multiple types of data collection as well as support other aspects of the research process. The use of iPad application technology certainly opens up opportunities for new and novel ways to collect meaningful data and support research with individuals across the lifespan.
Purpose: This study compared patterns of fatigue among school-age children with cancer as reporte... more Purpose: This study compared patterns of fatigue among school-age children with cancer as reported by children and their parents during an inpatient admission for chemotherapy. Background: Fatigue is the most frequently reported symptom by children and adolescents with cancer. Perceptions of fatigue are influenced by children’s developmental stage with school-age children more likely to conceptualize fatigue as a sense of weakness or being tired that interferes with the child’s ability to engage in day-to-day activities. Methods The setting for this exploratory, descriptive, multiple-case study was an inpatient pediatric oncology unit in a tertiary pediatric hospital in the Intermountain West. Participants were 15 school-age children (mean = 8.8 years; SD = 2.3) with cancer who were receiving inpatient chemotherapy for three days or longer. Fatigue was assessed daily, beginning with the day of admission, using the Fatigue Scale: Child Version (FSC) which assesses children’s perceive...
Journal for Specialists in Pediatric Nursing, 2013
The features of the iPad and its widespread adoption support its use as a tool in research involv... more The features of the iPad and its widespread adoption support its use as a tool in research involving children and adolescents. Although use in our current research has been limited to a hospital-based setting,the iPad’s design and features support its potential use in home- and community-based settings as well.In addition to collecting data through web-based platforms and applications, the iPad may facilitate telehealth-based interventions through the use of its built-in camera and Face Time applications.In our experience with children and adolescents,the iPad has been a useful tool to support multiple types of data collection as well as support other aspects of the research process. The use of iPad application technology certainly opens up opportunities for new and novel ways to collect meaningful data and support research with individuals across the lifespan.
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, Dec 17, 2017
Adolescents and young adults (AYAs) with cancer experience multiple symptoms related to their can... more Adolescents and young adults (AYAs) with cancer experience multiple symptoms related to their cancer and its treatment which can negatively impact their development and quality of life. An understanding of the strategies AYAs use to self-manage their symptoms is limited. This study described symptom self-management strategies reported by AYAs with cancer using an iPad-based symptom heuristics tool, the Computerized Symptom Capture Tool. The study used a cross-sectional, descriptive design. AYAs' free text responses relating their symptom self-management strategies were explored using qualitative content analysis procedures. Strategies were examined overall and by individual symptoms. Seventy-two AYAs 13-29 years of age (mean 18.4 years) reported a total of 772 symptom self-management codes for 585 individual symptoms. These codes were organized into 119 distinct categories. These categories were further organized into 16 subthemes and 3 overarching themes: "Things I Take … ...
Informatics for health & social care, Jan 10, 2015
To evaluate feasibility, including usability and utility, of the Computerized Symptom Capture Too... more To evaluate feasibility, including usability and utility, of the Computerized Symptom Capture Tool for Menopause (C-SCAT-M), a symptom heuristics application (app) for the iPad, with midlife women. Thirty midlife women aged 40-60 and experiencing symptoms they associated with menopause were recruited through flyers posted on a university campus, primary care and women's health clinics. The C-SCAT-M guided participants to identify symptoms they experienced, draw temporal and causal relationships between symptoms and identify symptom clusters. Women were encouraged to think aloud as they encountered questions or problems and their comments were audio recorded. After completing the C-SCAT-M, they completed a 22-item acceptability survey and a demographic survey. Data were downloaded from catalyst website and analyzed using SPSS. Women completed the C-SCAT-M with minimal difficulty, with most indicating that using the app was very/extremely easy and most (57%) preferred using the iP...
Research in Nursing & Health, 2015
Adolescents and young adults (AYAs) with cancer experience multiple distressing symptoms during t... more Adolescents and young adults (AYAs) with cancer experience multiple distressing symptoms during treatment. Because the typical approach to symptom assessment does not easily reflect the symptom experience of individuals, alternative approaches to enhancing communication between the patient and provider are needed. We developed an iPad-based application that uses a heuristic approach to explore AYAs' cancer symptom experiences. In this mixed-methods descriptive study, 72 AYAs (13-29 years old) with cancer receiving myelosuppressive chemotherapy used the Computerized Symptom Capture Tool (C-SCAT) to create images of the symptoms and symptom clusters they experienced from a list of 30 symptoms. They answered open-ended questions within the C-SCAT about the causes of their symptoms and symptom clusters. The images generated through the C-SCAT and accompanying free-text data were analyzed using descriptive, content, and visual analyses. Most participants (n = 70) reported multiple symptoms (M = 8.14). The most frequently reported symptoms were nausea (65.3%), feeling drowsy (55.6%), lack of appetite (55.6%), and lack of energy (55.6%). Forty-six grouped their symptoms into one or more clusters. The most common symptom cluster was nausea/eating problems/appetite problems. Nausea was most frequently named as the priority symptom in a cluster and as a cause of other symptoms. Although common threads were present in the symptoms experienced by AYAs, the graphic images revealed unique perspectives and a range of complexity of symptom relationships, clusters, and causes. Results highlight the need for a tailored approach to symptom management based on how the AYA with cancer perceives his or her symptom experience. © 2015 Wiley Periodicals, Inc.
Informatics for health & social care, Jan 10, 2015
To evaluate feasibility, including usability and utility, of the Computerized Symptom Capture Too... more To evaluate feasibility, including usability and utility, of the Computerized Symptom Capture Tool for Menopause (C-SCAT-M), a symptom heuristics application (app) for the iPad, with midlife women. Thirty midlife women aged 40-60 and experiencing symptoms they associated with menopause were recruited through flyers posted on a university campus, primary care and women's health clinics. The C-SCAT-M guided participants to identify symptoms they experienced, draw temporal and causal relationships between symptoms and identify symptom clusters. Women were encouraged to think aloud as they encountered questions or problems and their comments were audio recorded. After completing the C-SCAT-M, they completed a 22-item acceptability survey and a demographic survey. Data were downloaded from catalyst website and analyzed using SPSS. Women completed the C-SCAT-M with minimal difficulty, with most indicating that using the app was very/extremely easy and most (57%) preferred using the iP...
Seminars in Oncology Nursing, 2015
To provide an overview of resources for measuring symptoms and symptom clusters in adolescents an... more To provide an overview of resources for measuring symptoms and symptom clusters in adolescents and young adults (AYAs) with cancer and to examine methodological strategies for evaluating symptom clusters. Published research articles and clinical experience. Limited research has addressed symptoms and symptom clusters in AYAs with cancer. Reliable, valid, and developmentally appropriate measures are needed to advance this area of research. Use of mobile technology and mixed qualitative and quantitative methods to understand AYAs' experience of symptoms and symptom clusters could enhance symptom awareness and the evidence base for practice.
Pediatric Blood & Cancer, 2014
The aim of this study was to evaluate the feasibility and acceptability of a computer-based sympt... more The aim of this study was to evaluate the feasibility and acceptability of a computer-based symptom cluster heuristics tool designed to explore symptom clusters experienced by adolescents and young adults (AYAs) with cancer. The Computerized Symptom Capture Tool (C-SCAT) is a newly developed iPad application, which combines graphical images and free text responses in an innovative heuristics approach to explore symptoms and symptom clusters. Seventy-two AYAs (13-29 years of age) with cancer at five institutions across the US completed the C-SCAT 24-96 hours after the initial chemotherapy dose in a chemotherapy cycle. All participants completed the C-SCAT successfully in a mean of 25 minutes, with 74% reporting that the final image was an accurate or very accurate representation of their symptom experience. Little clarification/coaching was necessary while completing the C-SCAT. Few technical problems were encountered. Participants judged the C-SCAT questions to be clear and endorsed ease of following instructions, typing, and drawing. The C-SCAT demonstrated feasibility and acceptability. With refinement based on study results, the C-SCAT has potential to: (a) empower AYAs to communicate their symptom experience and partner with providers in their care; (b) improve symptom management and ameliorate distress; and (c) translate to use with other highly symptomatic populations.
International Journal of Nursing Studies, 2013
The purpose of this literature review is to document what is known about the most common symptoms... more The purpose of this literature review is to document what is known about the most common symptoms and symptom clusters in adolescents receiving cancer treatment in order to advance the science of symptom management for this unique group of patients. This review identified primary research reports focused on cancer-related symptoms in adolescents using methodology that included objective measurement of the symptom(s) or self-report from the adolescents. We searched the literature using Medline, PubMed, and CINAHL from 2000 to 2011. The first step of the review was to synthesize evidence to identify the most common symptoms experienced by adolescents during the cancer treatment period. The second step located findings from additional research about these specific symptoms individually or as clusters. From 12 reports, we identified 6 common symptoms in adolescents during the treatment period: fatigue, sleep-wake disturbances, nausea/eating problems, pain, mood disturbances, and appearance changes. Findings from 51 studies provided a foundation of evidence about symptom trajectories, contributing factors, and associations between symptoms. This review of the literature identified a relatively small body of research related to symptoms in adolescents during the cancer treatment period. Most of the studies were of low quality evidence and described individual symptoms rather than associations or clusters. A few longitudinal studies described symptoms during a cycle of chemotherapy and across months of chemotherapy treatment. With the exception of nausea, no studies tested any interventions to relieve these common symptoms in adolescents. To ensure that adolescents complete the challenging period of cancer treatment and emerge capable of achieving the developmental milestones of young adulthood, important work remains to be done in this field of symptom management.
Nursing Clinics of North America, 2013
Since 2003, genetics and genomics information has led to exciting new diagnostics, prognostics, a... more Since 2003, genetics and genomics information has led to exciting new diagnostics, prognostics, and treatment options in oncology practice. Profiling of cancers offers providers insight into treatment and prognostic factors. Germline testing provides an individual with information for surveillance or therapy that may help them prevent cancer in their lifetime and options for family members as yet untouched by malignancy. This offers a challenge for oncology nurses and other oncology health care providers to become comfortable with incorporating education about genetics/genomics into their clinical practice and patient education.
Oncology Nursing Forum, 2012
Purpose/Objectives-To describe nighttime sleep-wake patterns during a 12-hour night shift among s... more Purpose/Objectives-To describe nighttime sleep-wake patterns during a 12-hour night shift among school-age children with cancer receiving inpatient chemotherapy and relationships among nighttime sleep, environmental stimuli, medication doses, and symptoms during that shift.
Journal of Pediatric Oncology Nursing, 2002
Journal for Specialists in Pediatric Nursing, 2013
The purpose of this study was to describe group and individual characteristics of nighttime sleep... more The purpose of this study was to describe group and individual characteristics of nighttime sleep-wake patterns among school-age children with cancer receiving inpatient chemotherapy. This multiple-case study used wrist actigraphs and sleep diaries to measure sleep for three nights in 15 children with cancer. Nighttime sleep was less than that required for healthy school-age children and was marked by frequent awakenings. Individual variation in sleep characteristics was evident. Interventions to promote nighttime sleep in the hospital include system-based and individualized efforts to minimize disruptions and support children's home sleep routines.
Cancer Nursing, 2011
Background-Children with cancer must cope not only with their disease and its treatment but also ... more Background-Children with cancer must cope not only with their disease and its treatment but also the environment in which treatment is given. The intensities of sound and light levels required to perform necessary patient care may result in a disruptive nighttime care environment.
Journal for specialists in pediatric nursing : JSPN, 2013
The features of the iPad and its widespread adoption support its use as a tool in research involv... more The features of the iPad and its widespread adoption support its use as a tool in research involving children and adolescents. Although use in our current research has been limited to a hospital-based setting,the iPad’s design and features support its potential use in home- and community-based settings as well.In addition to collecting data through web-based platforms and applications, the iPad may facilitate telehealth-based interventions through the use of its built-in camera and Face Time applications.In our experience with children and adolescents,the iPad has been a useful tool to support multiple types of data collection as well as support other aspects of the research process. The use of iPad application technology certainly opens up opportunities for new and novel ways to collect meaningful data and support research with individuals across the lifespan.