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Papers by Margaret Sleeboom-Faulkner

Global Morality and Life Science Practices in Asia

Many stem cell therapies, even though largely unproven, are widely viewed as a promising to globa... more Many stem cell therapies, even though largely unproven, are widely viewed as a promising to global healthcare provision. India is a leading locale that makes this therapy available as a last resort to patients from around the world, risking their remaining health and financial resources in exchange for hope. Stem cell therapy service providing centres labelled as ‘rogue’ or ‘maverick’ by some, are vigorously promoting such therapies as ‘safe’ modes of treatment in the guise of ‘experimental’ therapy. This also happens in India after its promulgation of the Guidelines for Stem Cell Research and Therapy in 2007. This article is based on a multi-site ethnographic study that was carried out at several locations in India between September and December 2008. It raises two questions: why such unproven therapies are becoming common practice in locations where the regulatory apparatus is in place; and, how these service providers are successful in sustaining and proliferating the therapeutic...

Stem Cell Research in Asia, 2016

Hastings Center Report, 2019

Global Morality and Life Science Practices in Asia, 2014

Human embryonic stem cell research (hESR) has been controversial in many societies owing partly t... more Human embryonic stem cell research (hESR) has been controversial in many societies owing partly to the existence of diverging views on the normative value of the embryo, and on the ethical derivation and use of embryos and oocytes required for research. This kind of controversy has been, and still is, expressed in the form of protest movements and organisations that aim to deal with the perceived risks of hESR. In the UK, the Warnock Report, which reacted to the particular problems associated with embryo research, recommended the establishment of the license authority, which materialised in the shape of the Human Fertilisation and Embryology Authority (HFEA) in 1990. This included an attempt to measure the public barometer to attain publicly acceptable regulation (Franklin and Roberts, 2006: 3–5). The HFEA devised bioethical guidelines that would regulate the sourcing of biomaterials and the behaviour of stem cell scientists, while taking into consideration shifts in views among the public. Such bioethical regulation is also important to funding agencies, such as the Wellcome Trust and the European Framework Programmes, who wish to protect their reputation and do not wish to subsidise research that is regarded as bioethically irresponsible.

Global Morality and Life Science Practices in Asia, 2014

Global Morality and Life Science Practices in Asia

Shadows of the Past, 2009

This chapter deals with examples of both Orientalism and 'reversed Orientalism'. Just as ... more This chapter deals with examples of both Orientalism and 'reversed Orientalism'. Just as Orientalism has as its main referent 'the other' reversed Orientalism has a 'They' in the form of a powerful bully. The chapter analyses three forms of academic nation-ism to show how by framing research problems in terms of the nation-states and world regions various kinds of boundaries are created that are linked political ideologies. The examples from China and Japan have mainly illustrative value, and in no way are meant to be representative for academic life in these countries. The three forms of academic nation-ism are: Naturalist Grouping, Culturalist Grouping, and Globalist grouping. The chapter emphasizes that the three forms of identity creation occur in all academic descriptions of national identity, simply because any distinction between groups includes criteria that discriminate between what is (un)natural or (ab)normal, our culture or their culture, and universal/particular. Keywords: academic grouping; China; Japan; Orientalism; political ideologies

This collection of case studies is the result of collaborative efforts of an international group ... more This collection of case studies is the result of collaborative efforts of an international group of social scientists studying the impact of predictive and genetic testing on Asian society. They have exerted great efforts, both linguistically and in the area of theorising the socioeconomic and cultural dimensions of predictive and genetic testing.

Global Morality and Life Science Practices in Asia

Stem Cell Research in Asia, 2016

Hastings Center Report, 2019

Global Morality and Life Science Practices in Asia, 2014

Global Morality and Life Science Practices in Asia

Shadows of the Past, 2009

IIAS Publication Series

Frameworks of Choice: Predictive and Genetic Testing in Asia is the first comparative study of pr... more Frameworks of Choice: Predictive and Genetic Testing in Asia is the first comparative study of predictive and genetic testing in Asia in the English language. It explores genetic and predictive testing in relation to political and social institutions such as education, healthcare, research regulation and genetic governance. It is a unique study of genomic policy-making, grounded in empirical fieldwork in China, Japan, India and Sri Lanka.

The volume presents original theoretical analyses of the cultural and political dimensions of predictive and genetic testing by analysing the social, cultural, political and economic environment of choices that people have before and after they undergo a genetic or predictive test. These frameworks of choice also shed light on the different test options of people in developing countries and affluent welfare societies, explaining the so-called therapeutic gap occurring when no therapies are available after diagnosis.

Frameworks of Choice provides a sensitive understanding of the stakes in genetic testing of various socio-economic and political groups, including governments, ethnic groups, women, patient groups, insurance companies, pharmaceutical industry and scientists.